I am having a very nice morning. I was musing about just how nice, and the feelings that gives me, and watching the sun rise, as I waited for my bus to work. The colors were amazing; crimson and scarlet and magenta and orange, pale streaks of mauve and a hint of lavender off to the edges, and in the foreground the contrasting darkness of the trees, bared branches of winter, reaching across those bold colors. I was struck by it and eagerly pulled out my camera (phone) to capture the amazing vista…but my camera will not photograph a sunrise. A little frustrating, but not a big deal. I keep hearing the phrase in my thoughts, though,  as I wait for the bus… “My camera will not photograph a sunrise.” I have the vague sense that as sentences go, it wants to tell me more, but I don’t find more there to know.

My brain injury is a frontal lobe injury. It effects memory and executive function, and likely has for the entirety of my adult life. I contemplate that a lot lately, and how that may have changed my experience of life, and how well/poorly I handle relationships and social interactions or make decisions. I have a lot to learn… having found out about my brain injury doesn’t change past behaviors or experiences, but it has serious potential to change my understanding of how my behaviors and experiences have evolved, what has driven my choices and decision-making, and why some things frustrate me so much (and I hope, also what I can do to improve on how I cope with those things).  I spent the solitary portion of my morning reading about memory over coffee.  I moved on to reading about executive functions while I rode in to work, and during my morning break, a short article about the frontal lobe. I read a lot. (Words work for me, mostly, although I have to read things more than once, take notes, cross reference bits I’m not sure about, and talk things through to gain an in depth understanding of a subject.) This morning I am a little awed at how easily the ‘issues’ I’ve had, challenges, bad behavior, and weirdness line up so cleanly with the information in my reading regarding frontal lobe damage and potential consequences to executive function and memory. I keep staring at the words and wondering why, if I can see these connections so easily here and now, no one looked at the list of shit I’ve been working through for so long and made the connection in the other direction? (You know… “Damn, considering X, Y, and Z, I have to wonder if you are suffering from some sort of damage that effects executive function?” I mean, seriously Medical Science, it actually seems that obvious in hindsight.)

It’s a lot to think about. I vacillate between feeling beat down to the point I can’t go on, overwhelmed to the point of giving up, and feeling like I do today; hopeful, and armed with new knowledge about how and why I am who I am, and where I can go from here with more appropriate tools.  I am hoping that gaining a deeper, more profound understanding of how my injury effects cognition, decision-making, and memory, that I can develop a better set of coping skills – more effective, more reliable, and less ‘guess work’. How do I change how I cope with my brain injury so that I am able to treat people consistently well? How do I make good decisions, and take care of me? How do I reduce the level of agitation and turmoil in my every day experience knowing now that much of it is born of simple frustration, fatigue, or challenges that are a by product of my injury? As is so often my experience, I have more questions than answers.

I need to paint – there are things I need to say that I don’t have words for; a sunrise, a memory I can’t quite remember, a portrait of a fracture I can’t see… I need to feel heard.