Archives for category: Brain Injury

…I bet I already know how you finished that phrase, if you speak American English as a native. lol. Actually, I have rocks in my thoughts, so perhaps you aren’t far off? 🙂  I’m 15 days from my birthday…my new aquarium is standing in its place, ready to be leak tested, and waiting a final equipment check.  Yesterday I delighted my senses with a visit to a nearby landscaping business for some choice rocks for the decor. (Yes, I am the sort of being who finds searching great piles of river rock for just the right ones quite entertaining and satisfying.)   My experience is one of ‘creating a world’. lol. Grand of me, I know, but it is the sort of imagination I have, and really the metaphors while I also ‘work on me’ are endless and wonderful.

...a box of rocks.

…a box of rocks.

The box of rocks is exciting on its own, but it also got me thinking about aphorisms, homilies, figures of speech, slogans, and idioms; shortcuts we take to communicate.  Thinking on that ‘box of rocks’ and how we take communication shortcuts that rely on our listener’s own experience, history, and culture to understand us (by implication) as much as explicitly through our own unique verbiage, (if not more so) quickly put my attention on the clear contradiction between embracing a genuine life and genuine sense of self (sense of genuine self?) and taking verbal shortcuts.  Only 15 days left, and the first half ends…so, I will commit to avoiding the use of figures of speech, slogans, idioms, homilies, and aphorisms for the next 15 days.  Why? I mean, we all use them (some of us more than others). Aren’t they pretty harmless? Well… maybe, but it struck me that colorful or not, expressive or not, they are both lazy and imprecise – and in no case is a choice to use someone else’s phrasing truly ‘my own voice’. Worse still, so many times lately, at the heart of some bit of logical fallacy, error in reasoning, failure to take care of myself emotionally, or moment of treating someone else less well than I could have, I find some verbal shortcut that has become, over time, ‘programming’ instead.  It starts with nursery rhymes and rote memorization in childhood, and slowly becomes who we are.

Maybe you think I’m taking this too seriously? ‘ Making a mountain out of a…’  I don’t need to finish that, do I? Ok,  maybe it seems a small thing, and unlikely to change the way any of us view the world we live in. Perhaps. I mean… Science is safe from sloppy language becoming programming, right? Hmmm… maybe. Again, maybe. What if I ask you what the moon is made of? If the little voice inside your consciousness quickly quips ‘green cheese’ in the background – even though you know it is not factual– just maybe this is a bigger deal than seems obvious.  I’m at least going to give myself 15 days to be who I am, using my own words as much and as often as possible – even correcting myself if I catch myself taking a short-cut through the programming. lol. Why? Because ‘I love you, too.’ means more when it isn’t a knee jerk reaction to someone else saying ‘I love you’, and ‘because I want to be heard’…my own thoughts…my own words…the things that matter to me, about me, to be understood by others.

While I walked to work, I gave the matter of words a bit of thought, well, a lot of thought. I came up with uncountable numbers of simple phrases heard over my lifetime that have become something beyond a sentence or a simple thought – they are cultural programming.  I won’t list them, you no doubt have your own, I simply suggest that for me, it is time to retire as many phrases, and sentences, that I quickly reach for every day, in favor of more genuine heartfelt communication.  If it auto-completes in my head, I’ll be looking for other words. lol.

…In other words, 50 seems a nice point in life to be who I am.

Being one, among many.

Being one, among many.

I woke ‘too early’, though I suppose it’s never too early to spend pleasant moments with a lover…only, I am alone now, with my coffee, impatiently watching the clock to head to my Friday appointment.

The morning started wonderfully well, then took a detour through ancient pain through the wonders of human communication and all it’s grand potential to have pitfalls and consequences. Now I am withstanding the nearly inevitable attack on myself from within that so often follows dialogue that even brushes past damage…and this morning was more like ripping off a scab by mistake, because it looked like a bit of nothing-or-other to be brushed away.

I am feeling frustrated, on a couple levels, and incredibly angry ‘with the world’… which I think may be more accurately described as ‘angry with people who hurt me long ago’.  It is the heart of my struggle with anger. This anger is largely unresolved, unaddressed, and ever-present, the sort of thing no one in my here/now experience deserves directed at them, and without any hope of being addressed with the appropriate individuals. I have the perception it must surely be the most vile and horrific expression of terrible rage ever in humanity’s history with anger, too, because as soon as it ever begins to come up, everyone around me immediately moves to do or say whatever it takes to shut it down. I have a lifetime of experience that says to me that my anger is unacceptable. I try and try to deal with it alone, and I suck at it in a most extraordinary way, I admit.

We each have our challenges and issues. I doubt mine are truly unique, and there are women who have and will suffer worse, more, and longer. I have survived some nasty shit. Broken, but perhaps not beyond repair, frustrated, but loved…things are better than they were, but god damn, I am so tired –  fatigued – from continuously working to address first one bit of damage, then another, with a frequent experience that feels a bit like scrubbing a huge expanse of floor, and just when I take a moment to appreciate the work well done, someone walks up and says (in a totally well-meaning way) “you missed a spot”. It’s frustrating…almost seems like the floor just keeps getting bigger.

Am I just bitching? Maybe…I am still headache-y, and feeling disappointed that I have challenges getting the emotional support I need…but a great deal of that is likely tied to my lack of skill at asking for what I need. Harder still to communicate that some particular thing is very important to me, especially when I have my own doubts that it makes sense, or what I need from the moment as a result.

I don’t feel well understood this morning, and something I was trying to communicate got swept aside for something else also important… I feel lonely and not well cared-for, right now, which has me doubting… so many things. That is the nature of this morning’s brain attack: doubt. My rational mind ‘knows’ this doubt and depressed bit of morning is illusory (thank you mindfulness!)… the feelings are what they are, just feelings.

How do I tell a lover that all I really want is a few minutes with strong comforting arms around me, and reassuring words while I cry really hard for just a few minutes, when I have so much trouble acknowledging it for myself?

Friday’s experience is brought to you by trauma, damage, and a will to survive… There’s hope for the day, yet; I got an early start.

So many metaphors...hard to choose just one.   (detail from "Anxiety" 2011)

So many metaphors…hard to choose just one. (detail from “Anxiety” 2011)

I’m saying good-bye to an old friend.

A steady rain falls this morning, like a lifetime of tears falling in a day; the sort of respectable rainfall that farmers count on, and that quickly turns a pleasant walk into a test of endurance. I like rain. I especially like rain from a warm, dry vantage point with a hot cup of coffee. I’ve got my coffee, the rain, and if I want to reach into my heart and touch something that hurts, I have my share of tears, too. I also have a headache. The headache is part of this particular good-bye.

You see, after more than a decade, I am finally saying good-bye to prescription anxiety medication. Aside from this headache, and a few somewhat surreal days, it hasn’t been too difficult. I was most concerned about some potential that I’d suddenly be taken over by the level of anxiety that was my everyday experience before I embraced Big Pharm’s tempting sales pitch. A decade is a long time to take a drug, and I’m not surprised that the experience of withdrawing from it is more profound than the assurances and platitudes the literature provides; nearly all the research I’ve been able to access is based on clinical trials of short-term use (6-8 weeks), and none of it is based on a decade or more of continuous use.  Actions have consequences. A decade is a long time to take a drug.  There is too much information available, and a lot of recent reporting, regarding how business interests have resulted in a substantial amount of medical research being suppressed, or actually manipulated for a desired outcome, and similar sorts of things that frankly scare the hell out of me every time I look in my medicine cabinet. I’m painfully aware, too, that doctors are people, not gods, and just as prone to fraud, deceit, greed, error and simple incompetence as anyone else. I am serious about embracing a genuine experience of who I am – of being myself. Really being myself. So, the time had come to back up my recent progress with real trust that my experience is improved, and that I am more whole than I had been, and am capable of continuing to grow and improve my experience, and heal my ancient hurts. I decided to take care of me in a different way. Big Pharm didn’t fix my issues, and couldn’t – they had 10 years to make it happen. lol. My turn. For real. I’m learning, healing, growing…and I am happy to see 50 without having to take mind-altering drugs to endure my experience, pacify my fears, or ‘make me presentable’ for the rest of the world. The headache today is worth it.

...not going to dwell on it... (detail of 'Broken' 2012)

…not going to dwell on it… (detail of ‘Broken’ 2012)

I’m still human. I still feel anxiety. I still have things to work on, to work out, to understand more clearly. I have more to learn. I still have PTSD, and I’m still learning new skills for managing that experience more effectively. I still have a TBI, and I’m finally learning things that address that part of my experience directly, and that matters more than I ever know how to describe.

There’s always another lesson in life’s curriculum, isn’t there? My morning thoughts and contemplation are interrupted. I am finding that my concentration is limited for now, as I say good-bye to this ‘old friend’. I’m not sorry to see it go. But it is a complicated good-bye.

...each having our own experience.  (detail of "Emic" 2012)

…each having our own experience. (detail of “Emic” 2012)

It is sometime later, now. The serenity of the  morning didn’t last, and while that is disappointing, I’m finding that I am ok, myself.  Anxiety is what it is, and I’m ok. My own experience, right now, right here, is one of relative calm; concerned, aware, and finding significant perspective in the beauty of a rainy day, and the many shades of green I see. Some experiences have more value than others, and for the moment a rainy day trumps anxiety and ‘what if’ scenarios.

Respect…consideration…compassion…reciprocity…openness…my ‘Big 5’ only look easy on paper. I’m finding that getting there is still a destination, and the journey requires an everyday commitment to mindful choices, and awareness. I want it to be easy. I accept that both effort and will are required; this is not about easy.

I’m tired and my head aches. That’s worth it, too. I’m giving myself my self for my 50th birthday.

"Who am I? Wait...I had something for this..."  (detail of 'Kronos' 2002)

“Who am I? Wait…I had something for this…” (detail of ‘Kronos’ 2002)

I woke early this morning.  It was uneventful, and mostly due to my failure to shut off my alarm clock the night before.  I enjoyed the luxury of loitering in bed, wrapped up on warm blankets, enjoying the freedom to daydream, and muse about what matters to me. I further enjoyed the freedom to let my thoughts be on their way when I was sufficiently entertained, rather than getting caught up in a moment of distress, or allowing myself to succumb to some attack on my serenity from lurking personal demons. Eventually, morning won over additional sleep, and I have enjoyed watching the dawn unfold gently through the windows, thinking about my upcoming birthday, my life, my loves, my values, my needs, my humanity, my will, my intentions, my desires… it has been a very think-y morning.

I got done with that, soon enough. Since then, I’ve been sipping my latte and watching a misty rain gradually develop into quite a rainy morning, a drenching Oregon downpour, in fact, of the sort that defines our reputation for changeable wet weather. I love the rain. I rarely feel anything but soothed and peaceful on rainy days, and that has been part of who I am since I can remember.

“…Since I can remember…”  I can’t always, you know. My memory has been crap-tastic, also ‘since I can remember’.  That’s the TBI making one of its contributions to my experience, most likely.  Almost 50 (25 days to go) and headed for menopause, and being an artist, people in my life tend to accept the memory issues in a matter of fact way – it was by far more awkward and embarrassing in my 20s, when I was regularly accused of ‘not paying attention’, ‘not caring’, or ‘lying about not remembering’.  That would be one of the many reasons I’m quite happy not to be in my 20s anymore! lol

My birthday means more to me than makes any sense to me… 50 really seems like a big deal.  I mentioned it to a friend who is older and she smiled at me with the patience of a mother looking at the simple progress her child makes growing up; tolerant, understanding, compassionate, and from an entirely different perspective in life. I wonder if, at 70, 50 will still seem like it was a big deal? I also wonder why we tend to be so committed to a base 10 number system – so much so that we tend to benchmark our ‘decades’ as somehow more significant than other divisions of time on our lifeline… I mean… 14 was damned important to me… so was 5… and 11… 27… 9…32…40…47…clearly not all about 10s. Just a random musing on a rainy Saturday.

Someone dear to me hurt me incredibly deeply, recently.  My heart still aches with it.  The conflict between that person’s values and my own seems to stand out like a an Exit sign in a dark corridor.  It’ll have to be discussed at some point, because it is the sort of thing that matters, and speaks to the core of who I am as a being. I find myself touching the moment gently, tenderly, in my recollection and wondering ‘was that it, was that the end of a friendship?’  Not something to be taken lightly, at all. Something to ponder carefully.  I consider it, and let it go for now.

The rain falls, the household wakes… time to enjoy a rainy Saturday. 🙂

Wow. I dislike what ‘news’ has become.  Political corruption? Hardly news-worthy, it’s an everyday thing, and it will continue to be for as long as we elect corrupt or corruptible human beings to positions of power.  It would be nice if a politician had to accept that role with the clear contractual understanding that he or she could not ever personally profit from that role in a direct way, or if anyone in power were ever actually held accountable for what they themselves force the nation to endure by their decisions or actions.  This is not an article about politics, or news.   I found it profoundly adult to hear Angelina Jolie go public with her account of choosing a double mastectomy over her very high risk of aggressive breast cancer…and found myself dismayed and in some cases disgusted that anyone would choose to criticize her choice; it was hers to make. Period. It’s a shame that women without that level of income, or those resources, don’t have the opportunity, realistically, to make that choice themselves. This is not an article about breast cancer, or the limited health choices that women without means face, or feminist issues of gender-limited personal freedom and choice.  Not a day goes by that the news doesn’t have another story about rape, and equally heinously, another story about what women ‘can do to prevent being raped’; rape is prevented by people not committing non-consensual sexual acts against others, it isn’t more complicated than that. Don’t rape.  The news these days just isn’t worth reading most of the time.  Not because the information isn’t valuable, not because some of what is observed isn’t newsworthy, but because the presentation of so much information is tainted with bias of one sort or another to the point that it isn’t ‘information’ at all; it is marketing, propaganda, spin, color, or outright lies. ‘Fact-checking’ relies rather heavily on someone, somewhere, being able to tell the difference between fact and opinion. lol.

I’m frustrated by how easily my balance can be disturbed by the media. ‘News’ that is intended to distress, to frighten, to alarm, to ‘call to action’ rather than inform, advise, or enlighten isn’t ‘news’ at all – it is an attack on my consciousness. I avoid it. I ask friends to stop sending me links to things. Ah, but we all use Facebook, don’t we? Well, I still do – some very dear friends and loved ones use it as their primary form of communication, long distance.  It’s hard seeing some of the things people post. More and more of my friends use ‘trigger alerts’, which I value. I’m using them more, too.

28 days… one menstrual cycle away from being 50. lol.

Spring is still unfolding all around me. I love the walk to work in the mornings; strolling past each neighbor’s garden, seeing the flowers opening day by day, feeling the soft chill morning air against my skin, or perhaps a tender misty rain falling – like this morning.  I keep returning to my own garden, morning and evening, watering, watching, loving…

Kiss of Desire, kissed by a misty morning rain.

“Kiss of Desire”, kissed by a misty morning rain.

I love the colors of morning, and the surprises…

"Graham Thomas" blooms for the first time this year.

“Graham Thomas” blooms for the first time this year.

Last year we picked out some roses likely to do well in this garden. “Graham Thomas” was one, and already quite large and eager to take his place as master of the central flower bed.  I’m quite delighted, also, with “Ebb Tide”; covered with buds and blossoms of a rich deep purple.

"Ebb Tide" wowing me.

“Ebb Tide” wowing me.

Old favorites draw my eye, too, and I smile even thinking seeing “Baby Love” on the other end of my walk home tonight.  Selected with sentiment and love, she was the featured rose of my last garden, a much smaller space – too small for my grand plans. lol.

"Baby Love" will bloom like this through the year and well into November.

“Baby Love” will bloom like this through the year and well into November.

My garden is a sanctuary where ‘the news’ can’t reach me.  When I’m in my garden, I am in the moment, aware, engaged, and being on this extraordinary other level.  Still working on mindfulness practices I am hoping will one day be very natural in my experience, as natural as stepping into my garden.

A mystery rose.

A mystery rose.

…Life has a lot of lessons to share, a lot of mysteries to reveal. Perhaps one day I will find mindfulness an easy part of being, and figure out what that mystery rose is, or find the words to tell the world “You have no power over me.”

In the meantime, I meditate, practice mindfulness, consider my Big 5, learn better skills for taking care of me, and hope to ask the questions that reveal my own heart to me most clearly.  In between, I garden.  😀