Archives for posts with tag: lived experience

I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

I’m sipping my first cup of (terrible) morning coffee, courtesy of this somewhat rundown hotel, part of a massive chain with a good reputation… and often less-than-impressive results. I won’t name names, it could be any chain. lol It could be any bad cup of in-room hotel coffee. I’d meant to write a few words last night, after reaching my destination, a small town on the northern California coast… I was too tired to do more than get checked-in, haul my minimal baggage (a weekend bag, and my “office on wheels” that I use for hauling my laptop and peripherals around) into my room and settle in. That hints at my age more than a little, doesn’t it? I use peripherals (a mouse, a separate keyboard…). I chuckle quietly to myself. I don’t care if my age is out there in the world, and I for sure do not prefer to sit with a laptop perched somewhere trying to type at some odd angle! lol

…I’m 60 as I sit here, and 61 in June this year. Fucking hell, the time races by…

I woke up to the buzz of a message from my Traveling Partner, awake ahead of me, with the recollection of last nights spectacular sunset in my thoughts and regretting that it was not convenient to try to get a picture of it (I was driving down highway 101 at the time, eager to finish the drive and not wanting to stop, even for a picture of a sunset). It was one of the most wonderful, most colorful sunsets I’ve ever seen. It turned the evening sky the boldest shade of deep orange, and the steely blue-turning-to-gray of the ocean peaking through the trees as I passed, and watching the sunset fade into the twilight was amazing. I wish, now, in the faint light of dawn, that I had stopped and taken a picture, to remember it for always. Here’s the thing, though; the picture is not the experience. The memory, too, is not the experience, itself. It was more important that I was watching, aware, and present in the moment that beautiful sunset occurred. Seeing a picture of it, without having seen it would be lovely, sure, but… it’s not the same as living it… and lived experiences are fleeting.

I’m just saying… don’t give up living to get a picture of the moment. “Be here, now” is not a passive endeavor. There are verbs involved. Do the verbs. Live the experience. Your experience. Time is short and it is fleeting – and we are mortal creatures. Maybe the whole fucking point is to live while we live? Eyes wide open and grabbing life with both hands and childlike wonder seems more worthwhile than getting just the right staged photo to share…somewhere, particularly on some digital platform that may not even survive the decade. My opinion. Do you.

…Well… here I am, eh? One woman, living this mortal life…

Today I’ll visit a dear friend, and say goodbye. I won’t rush it. Even this sort of moment is meant to be lived, and being present is the most precious thing I can offer my friend, now. I have no miracles on hand, but I’ll be there, 100% this woman I am; I know I am as dear to her, as she is to me. It’s enough. I take a moment for gratitude; I’m fortunate to be able to “drop everything” and be here. I’m grateful for that, and for my Traveling Partner, who is injured and still recovering, and lonely while I am away, but nonetheless encouraged me without hesitation to make this trip knowing how important this friendship has been to me, and how hard it is to say last goodbyes. I admit… I keep hoping it will somehow prove to have been “a waste of time” and that my friend will fully recover and be completely okay. I don’t even try to brush away that unlikely hope; we need to hope. It keeps us going in tough times. Our emotions are not our enemies. (Took me awhile to learn that lesson!)

…So… I sip my terrible first coffee, alert for messages from my Traveling Partner, or from a friend here locally (we’d talked about maybe getting a coffee this morning; this whole thing is hard on both of us, but she’s been here dealing with it since things went downhill for my dear friend, and it was her message that brought me here). I’m thinking my thoughts, and preparing to visit a dear friend (probably for the last time). Poignant and sorrow-filled, but it’s a friendship worth honoring, and I really don’t think I could live with the regret if I didn’t at least try to show up and say goodbye.