Archives for posts with tag: pain management

I woke up abruptly, some minutes ago. I woke feeling frustrated, irritated, vaguely angry, impatient – a host of less than pleasant feelings crowding my consciousness. I felt as though I were in the middle of an argument. I felt as though I were not being heard. Definitely awake. Definitely “in the wee hours”. I laid awake awhile feeling my heart thump, hard, fast, as though I had been exerting myself. Breathless.

I got up, finally, to pee, to get something cold to drink, to “walk it off”, to “get some air”… I got up to breathe. To exhale. To let this shit go.

Initially, the house remained dark – suitable for the “middle of the night”, and avoiding waking anyone else. At some point, I remember I am alone right now, and turn on soft lighting, once it is clear sleep is not immediately at hand. I sit down to write, when it is also clear that “letting it go” wasn’t effortless in this moment – and was reminded of a conversation with a friend, earlier in the day. Human beings struggle. It’s not always an easy experience. We are beings of both emotion and reason; either one can be “a tad off”. Emotional wellness is important – as is our ability to reason in a rational, healthy way. They balance one another. They feed on each other. They inform each other. I experience feelings that source with my thoughts. Some of my thinking has its foundation in how I feel about an experience. Connections. We exist in context.

I breathe deeply. Exhale evenly, slowly. I relax, deliberately, willing my shoulders to drop back down where they belong (and wonder, again, what pulls them up so tightly, so uncomfortably). The experience of “hearing my heart thump” slowly diminishes, until what I am hearing is my typing. Some of this is about focus – what I pay attention to, becomes a larger part of my experience. We become what we practice. Doesn’t make it effortless. In fact, quite the contrary; it is the effort, the practice, itself, that creates the change being sought. Do the thing. Do it again. Keep repeating it. Eventually, it becomes part of who we are. “Easy” is not part of the process.

Another deep cleansing breath. Something icy cold to drink, seeking to cool off from the very subjective sense of being “too hot”.

…What the hell was up with my dreams?? I woke when I did, straight to being fully awake, no lingering in a dream, no recollection of the contents of my consciousness, before that moment when I woke, frustrated, irritable, and frankly a bit angry. What was that about? I breathe. Exhale. Relax. Let it go – again. It’s literally not relevant to this moment, here, now, in the quiet and the darkness.

I look at the clock and wonder if I will return to sleep… it’s not quite 2:00 am, on a “work night”. I’d rather not be awake right now… but I clearly am. What to do about it matters less, for me, than not getting stressed out by whatever that outcome ends up being. The thought of returning to sleep causes some anxiety. Nightmares? Possibly. I take a moment of consideration and gratitude that I don’t remember them, if that’s what woke me. Could have been a noise… but the world seems quiet, now. Lingering on the “why” isn’t helpful, and obsessing over that holds potential to drive additional anxiety. Another breath. I exhale. Relax – again. Let it go – again. Have another drink of cold weird liquid – what the hell did I grab out of the fridge? I look more closely. Oh. A sugar free sports drink in a flavor I don’t care for. Hilarious. I continue to drink it eagerly; the cold of it is more soothing than the flavor matters at all.

…I could just stay up. Have a shower. Meditate. Do some yoga. Make coffee… The time would pass quickly, and it would soon be time to head to the office…

My mind sifts through various recent conversations with assorted colleagues, friends, family members, doctors… aimless fussing and wound-picking, unproductive, and not especially healthy. I let that all go, too. I have a thought, properly relevant to experiences of anxiety and wakeful nights, and grab my vape – works for my daytime anxiety, will it work now? I watch the cloud billow around my face, and dissipate. There’s a loveliness to it, illuminated by the glow of my monitor.

I frown, irritated by the recollection of a recent visit to the VA. New doctor. Young doctor. “Have you tried Tylenol?”, she asked (about my literal decades of chronic osteo-arthritis pain in my spine). I’m still annoyed. Seriously?? Was she fucking kidding me? Potentially one of the stupidest questions I’ve ever been asked about pain management, by a doctor. Have I ever tried _____? Lady, Doctor,Β if it’s over the counter, I’ve fucking tried it – or read the contraindications and recognized it isn’t for me. For fuck’s sake, really? Damn.

Oh. Is that what woke me? I’m still processing my anger and frustration with that appointment? Admittedly, I’ve avoided dealing with it. I keep trying to “let it go” without having to deal with it. That, folks, is called “skipping a step” and it tends not to be very effective – but grinding my gears over it, ruminating endlessly frustrated by it, is also not effective. Running from the emotions does not put them to rest – it just results in feeling as though I’m not being heard. (Because I’m not.)

There’s a solution here. I hit my vape again. I shift gears and head to my meditation cushion. Whether or not I sleep is no longer my concern. It’s about a bigger picture of self-care, and “feeling heard” is something that needs to begin with me.

Here’s a brief musical interlude to pass the time… πŸ˜‰

Some time has passed. There’s still time for more sleep, if it comes to that. I’m not worried about it. I’m not worried. I feel relaxed. Content. Centered. I’m okay. This is one moment, of many. Just that. It’s not a bad moment, if I pulled it from life’s deck like a playing card; relaxed, content, safe, hydrated, secure in my home, secure in my relationships. There are no longer alarm bells going off in my head, and I am at ease, and comfortable in my own skin. The moment is altered and I change the music. I think of my far away Traveling Partner, still sleeping. I laugh, reminded that I am at home alone, and stream the music to the stereo in the living room, I turn it up, still mindful that the world (and my neighbor) sleeps. My thoughts travel briefly to a younger time in my life; I’d have run from this moment, pursuing any available distraction. Tonight? I pull myself back into my body, back into this “now”, and let the bass wash over me. “…Free the history…” I pick up my buugeng, and begin to dance, feeling my contentment mingling with the music, and the movement. (Your results may vary.)

Unexpectedly, in the middle of a moment, grief washed over me, unsolicited, unwelcome – and too real. It has been just 25 days since my mother died. So much has happened since then to distract me from that experience. I dropped to the floor weeping like a… like… well, like a grown ass woman, grieving the loss of her mother, honestly. It’s okay. There is no shame in these honest tears, and I am okay right now. This is real, and it is what it is. I needed this time alone, I suppose; real life has some things to tell me, things I need to hear. My heart needs to be heard – and I need to take the time to listen.

I cried for some little while. I’m okay with that; tears dry. As they do, I think about a shower, and coffee. It’s almost 3:30 am. The alarm will go off in an hour, and there’s little point in going back to sleep, now. πŸ™‚ It’s already time to begin again. πŸ™‚

I woke up easily this morning, a nice change from yesterday. Rather oddly, I woke with the whisper of a dream left behind still resonating in my consciousness. Words lingered, although I could no longer recall the dream. “You’re not the good guy, here.” And, “This isn’t about you, at all.” Interesting observations, suitable for many occasions – but I don’t have any context. The dream had already faded.

I’m not “the good guy” here, though, I’m sure of that; I’m a human being, living my life. Only that. Sure, I like to think I am doing my best. Sometimes I actually am. By many practical measures, it isn’t always the case, though; I could sometimes do more, better. That’s real, and very human.

This isn’t about me, at all. Well, much of it is not, that’s also quite true. Most of it, maybe. Like, seriously, almost any detail of any moment I can be present for, still just isn’t much “about” me. I’m here, living and being, and (in this case) drinking coffee…and even this moment, right here, early in the pre-dawn gloom, isn’t much “about” me. It’s about a typical Thursday morning. It’s about this cup of coffee, and this handful of words. It’s about this headache. It’s about the morning traffic, and the sound of little birds in the hedge beyond the window. I’m such a small part of this moment – and not in any “bad” or diminishing way. It’s just that there is so much more to… all of it. I’m just one consciousness present in this here-and-now. Taken in the larger context of “everything else”, my breath, and my very life force, are minuscule. That’s okay, too; there’s a lot of life to live, and a lot of details to take in. If I spend all of my energy on my small concerns, I’ll miss a lot of other stuff. lol

I stop drinking coffee long enough to meditate. Nice morning for it. Today, it does nothing for the headache. I hadn’t seriously expected that it would, but sometimes it does. If nothing else, it often gives me perspective on life that makes it seem of less consequence.

…I realize rather abruptly that I’d forgotten to take my morning medication when I got up. I go ahead and do that, once I’ve poked around in my recollection of the morning a bit, trying to be sure I’m correct about that (doesn’t do anything good for me to take it twice, I promise you that!) – I wash it down with coffee, feeling vaguely guilty about doing that (it’s supposed to be taken with a glass of water…). I let that petty shit go.

My body is uncomfortable, this morning. This fucking headache. Why do I call it a headache, I wonder? It is also a terrible bit of pain in my neck, and a weird jabby stabby sensation in my ear when I turn my head, sometimes, and also a rather horrible permanently cramped up trapezius, particularly painful along the top, from my neck to my shoulder. These pains all feel related to each other, and nothing much helps, so far. I think I would endure it more easily if I knew what the problem is. I’ve been in significant pain since about 1990, when my osteo arthritis developed, I don’t really expect to ever be entirely “pain free” again in my life… I do my best to care for this fragile vessel skillfully, and ease the pain as much as I am able to without poisoning myself or wrecking my health in some other way. It could be worse. I’d just like an answer to the question “what the fuck??”

Fuck. A glance at the clock reminds me of the work day ahead. Pain and employment are not really the best-ever combination of experiences, and it requires so much to stay ahead of the irritability, the distraction, and the misery of it. I breathe. I let it go. We all walk our own hard mile. We’re each having our own experience. Unavoidably, the pain I live with is the worst pain I can imagine; it’s what I know. Each one of us has our own challenge, and I am certain I have coworkers whose pain is more severe, whose life contains more chaos, who woke this morning frightened, or sad, or angry, or needing a moment of support and consideration. I can, if nothing else, do my best not to add to any of that, myself, and to be considerate, thoughtful, kind, and compassionate. I can, at least, try. Another breath. Another sip of coffee. Another moment to consider how fortunate I am to be mostly fairly healthy, all things considered, and to live with pain that doesn’t debilitate me to the point that I can’t work at all. It could be so much worse.

…Fuck this headache, though! Neck-ache? Whatever. Fuck all of that painful nastiness.

It’s time to begin again. I’ve got to work with “the materials on hand” in this life, and unfortunately, pain is a thing. I breathe through it, finish my coffee, and turn to face the day as the sun rises. πŸ™‚

I hurt today. I hurt when I woke up this morning. It’s autumn, leading into winter, the weather is chill and damp, and the arthritis in my spine is delivering on the annual promise of pure nearly unrelenting misery for the winter for the moment.

Perspective is a funny thing; we build our subjective experience on a web of sensations, assumptions, wishful-thinking, and straight up lies we tell ourselves, which, over time seem very convincingly true and real. We rarely pause to reconsider any of it, and sort of just bumble along thinking we’re right, most of the time. So… it’s not true.

I’m not always in pain. I’m not even always in pain all winter, ever winter.Β I’m certainly in pain more often I’d like. I’m most definitely in pain right now.

Three paragraphs about pain. Not one about pain management. lol Fuck pain. Pain shrinks my world down to the size of wherever it hurts, and keeps my attention there, to the exclusion of most anything else. That, sadly, has a lot to do with how, over time, my implicit experience of my quality of life, and my day-to-day expectations of my experience to be, is about pain. I’m focused on my pain right now, and that pain becomes a defining characteristic of the memory of this moment, and, again, over time, that adds up to a long-term perception that my life, itself, is defined by my pain.

It is not.

Pain is a small wee minuscule tiny barely significant part of my experience when I allow myself to experiences and observe other things besides just my pain.

I’m not suggesting this is easy. I even admit, my results vary; today I am in pain.

So… now what? Take fuck tons of pain-numbing drugs? Not my preferred solution, honestly. Ignore it? That’s far easier to say than to achieve. So… what, then? Other things.Β 

Yeah…like, I mean a lot of other things. I mean, taking a break from the work routine long enough to really engage a colleague in a great discussion of any other thing than either routine work matters, or my pain. Or their pain. Or pain at all. I also mean, taking a break from sitting at my desk, and giving myself a chance to move and walk around. Have a big glass of water. Read something I’ve never read before. Write love poetry.

It’s about the distraction from being trapped in the wholly subjective experience of the context of long-term pain challenges; it doesn’t have to hurt this much. So, right now, at least for some little while, I put my attention on matters other than pain. It’s not the easy choice; pain makes my world tiny, and utterly self-involved. Looking beyond that is… hard.

I guess I need to begin again. πŸ˜‰

…I just hurt, is all. Like… predicting a hard early winter levels of arthritis pain, here. Pain sufficiently severe to present a chronic distraction, to drive volatile moods, to aggravate me to the point of anger-driven anhedonia… the cluster-headache-pain of spinal pain. I hurt, and I’m fussy, and I’m irritable, and I’m… not at my best. The problem with the pain is less about the pain than the sabotage. No kidding; pain shrinks my world and limits my focus. Worse still…?

…You can’t see it. Some of us are pretty stoic about pain, most of the time. You’ve no idea what you’re up against when you interact with someone with invisible injuries like chronic pain. Was I terse with you? Yeah, well, I couldn’t stand up without my cane this morning, and every step hurts – except the ones that don’t require my spine. Breathing hurts. Moving hurts. Not moving hurts (actually more so than moving, over time anyway).

“Take something for it. Duh.” Uh-huh. I like that idea. So, after I finish ruling out the OTC stuff that may be problematic for some other health conditions and the RxΒ  non-opiate pain relievers I can’t have because of some contraindication or another against those, that leaves, generally, just opiates and cannabis. I’d rather not deal with the political and medical minefield of opiates, but if I could be without pain… then? Rarely. I dislike the sexual side effects, and yes, I said it; I’d rather endure my pain and still be able to enjoy sex than be 100% pain-free but not able to enjoy sex. So. Get over that with me, I’m human, and I’ve got a lifetime of experience with my priorities – the pain management options available to most of us are fairly shitty in one way or another. It’s a thing that some of us are entirely too aware of. Cannabis? Yep. Definitely. As much as I can, and it is my “go-to remedy”, but let’s be frank with each other; it’s not a perfect fix, and it is not appropriate for all circumstances (or all pain).

This is not a quantity of pain that is easily medicated away. Pain is a signal from our body about our health or circumstances. It shouts loud because it is supposed to. Drowning it out is a major task; our body would much rather we fixed whatever is actually wrong. It’s complicated, and it’s imperfect, and there are so few days in the year that I’m entirely pain-free that they become cause for real celebration. I hurt so much of the time, and have for so long (since around 1990), that I’m seriously bored of bitching about it. (Can’t people who actually know me somehow just also know that I hurt…? Like… mostly always? lol)

I plan my life as if there is no pain. I don’t know how else to do it, really. I still want to live my life. I still just fucking hurt. Sometimes I hurt too much to hike. Sometimes I hurt too much to party. Sometimes I hurt too much to do housekeeping or even to get dressed. This weekend, I filled my calendar with cool stuff I was seriously looking forward to doing, and people I am eager to see. By the time the weekend actually came, and with it the welcome rain and the autumn weather I enjoy so well, my pain had come back, too. This weekend ended up being less about going and doing, and more about connecting (with my partner) and chilling (at home). It was lovely. So worth it, in spite of my pain.

Fuck pain.

Autumn and winter are worst. Then Spring. I get some relief in the summertime heat. Most years I even get to put away my cane. It’s been in my car, unused most of the time, since May. Four and a half months almost pain-free this year… less than the year before, which was less than the year before that. I find myself wistfully remembering years ago, when it seemed like I only hurt like this in the coldest months…

I got into the elevator at the end of my day and ignored the tears that just started spilling down. I got into my terrifically hot car with a real “aaaaaaahhhhh” moment of relief; however brief, totally worth it. “Pain management”. lol It’s more like “endurance” if you’ve got chronic pain. It is an endurance test filled with well-meaning suggestions, well-wishes, and an utter inability to communicate what this experience is like to people who don’t have it; we all feel our own pain, and can’t feel someone else’s. I’ve had some amusing experiences with people whose most serious pain in life has been a hangnail, stubbed toe, or bump in the night, who don’t understand chronic, relentless, serious pain, and how it wears away at one’s enthusiasm, and will. “I hope you feel better soon! Have you tried…” Uh-huh. Yep. That too. Yeah, and that. No, it didn’t “work”… What to say when someone who really cares tries so hard to offer support and comfort? A weary chuckle and a reminder that “chronic” pain is… um… not going go away,Β really, probably ever. That’s when I gave up the Rx pain relievers; between the fucking hassles getting them, and the constant nagging about their use, the side effects, and the fact that this shit is fucking forever…? Nope. I actually still work for a living. I have shit to do. People are counting on me. I’m counting on me.

I’m so not saying I hurt more than you do! I’m not saying my pain is worse than… anything. I’m just saying, frankly, in clear explicit terms that chronic pain is a thing I do deal with. Daily. You, too? I’m sorry to hear that. “Have you tried…” (jk jk lol)

What I am saying is that it is not possible to sufficiently well-medicated to truly stop hurting, only to get medicated enough that I care even less about the pain in the background, for a while. Shit. That sounds bleak. Don’t be sad. Sometimes it helps a lot. Sometimes it helps enough. Right now, today, nothing helps; it is the beginning of autumn, and I go through this every year… and…

I’m glad. I mean… it’s a fair trade. It could be worse. I’m still walking.

In 1986 I broke my back. It was pretty bad. My spinal canal was more than 60% occluded by a piece of vertebrae that had broken off from the impact, and gotten jammed into my backbone. There was real concern I would not even walk again. I was kept on a backboard for a couple days, very still, and partially restrained while we “worked out the next steps”. I wasn’t allowed to roll over, ever, without calling for nurses, who would ever so carefully roll me onto my side, re-secure my body so I couldn’t roll forward, backward, or move much at all, and put supporting pillows here and there to try to make me comfortable. I was heavily medicated. My back was broken in two places. My wrist was broken, and I had a head injury. I was not in the best shape for decision-making, but I had a good medical team. My surgeon offered me an option; a somewhat experimental procedure that could result in staying on active duty, being able to walk, and fully recovering from my injury, with some lengthy convalescence…, or, well… some less than perfect outcome in that basic “still walking” context. I took the deal. I absolutely did. (If he’d told me I’d be facing a life time of pain, would I still have made the same choice? Well, sure; we don’t know what we don’t know. I’d never known a lifetime of physical pain of this type or magnitude, and would not have been able to imagine what it might be like.)

I was in the hospital for months, then recovering on active duty long enough to be certain that I needed more time. It was going to be two years before I could “go back to work”, but that was in some rosy optimistic future I couldn’t yet envision any differently than “a full recovery”. Arthritis? That’s something that happens to old people, right? I worked hard throughout those two years of convalescence – and I returned to active duty feeling pretty fucking triumphant, no kidding; I was lean, strong, fit, and flexible. The pain came later. About a year into being back on active duty. Something definitely felt wrong… I kept going back, appointment after appointment. I wanted a diagnosis, and then I wanted to be treated, and I wanted to recover.

“Well, it looks like you’ve got a touch of osteo-arthritis…” I got my diagnosis. Shortly afterward, and feeling fairly heartbroken about it, I also got my discharge. That “touch of arthritis” has continued to spread over the years, commandeering my spine and my experience one joint at a time. I’m still walking. I’m grateful for that. I’m grateful for the hikes, for the downtown shopping on foot, the strolls through gardens, the slow dash to a meeting… all of it. It could be so much worse in some way. Most of the time, it’s just pain. It’s mostly manageable. It is… what it is. We age. We feel pain. We are mortal creatures.

I live my own personal Little Mermaid allegory. lol

But fuck. I hurt. Damn it. Sometimes I’m so fucking tired of hurting, and I forget myself, and end up taking it out on… maybe you? People. People who matter to me. People who couldn’t have known. People who have things to get done and need something from me. People who want to enjoy my company. People who have never hurt. People who, also, always do.

In spite of my pain, I feel very appreciated. πŸ™‚ I could do better at demonstrating that.Β 

…I tryΒ “not to bitch”. (My results vary.) I do my best to manage my pain without making it anyone else’s issue. (Again with the varying results.) It doesn’t always work out well. This weekend, my Traveling Partner reminded me gently how much better a shared journey can be, when each moment and step is taken from a fully present place, in a completely authentic way. We talked about the pain. I’m glad we did. It stopped feeling like a shameful secret. It stopped feeling like a weakness. It’s just an experience.

Suddenly I’m not sure whether to post this one. Too many words about an experience no one likes to have (pain)…

…It’s time to begin again. I’ll go try some things… maybe I’ll feel better soon. πŸ˜‰

I woke in pain.

Damn it. A sentence that short doesn’t do the moment justice. Rainy, chilly, autumn days, and colder night-time temperatures, and here it is time again for my arthritis pain to become a serious shot-caller in my day-to-day experience. Damn, this sucks. I woke hurting, couldn’t roll over because my spine was locked up, rigid and aching, from my waist to my shoulders. I laid still with the pain for a few moments, taking time to be aware that I was able to breathe “comfortably” – for some values of “comfort” – and confirming fingers and toes move, and that I felt sensations in extremities.

Time for the winter practices, already? Yeah, looks that way. I slowly, with great determination, begin moving the bits and pieces that do seem pretty mobile. I flex fingers, arms, toes, feet, legs. I stretch anything that stretches. I find adequate leverage to roll to my back. I pull my knees to my chest one by one, and begin working on arching my back some small bit. I push-pull-rock and get rolled first to one side, then the other. Repeat all the motions on each side. Eventually, I am able to roll to my right side, push myself up on an elbow, pull myself the rest of the way using the arm on the other side, and a firm grasp on the edge of the pillow top of the mattress. Sitting up! Yes! It feels like triumph.

I sit for a few minutes, ignoring the tears – a combination of pain and relief, that spilled over as I sat up. Mornings like this one, I am “painfully aware” (lol) that one day I won’t be able to easily live alone; I’ll need help with basic things, at some point. Aging is a thing. I am definitely living that process. I sigh, and the sound fills the otherwise quiet room. Maybe a shower will help?

The long minutes lingering in a hot shower leaves my skin reddened in places, but my spine is a bit more flex-y, as a spine ideally would be. I don’t hurt quite so much. I can dress, with care, and anything to do with standing is as easy as ever, and that means – coffee. πŸ™‚ My coffee this morning even turned out wonderfully well, and I am enjoying it with a smile that has no trace of the pain I woke in. Oh, I still hurt; it’s that sort of day. It’s more manageable now, is all, and that is enough.

I sip my coffee and think about the phone call with my Traveling Partner last night, sharing his autumn and winter travel plans with me. I think, now, about how those may/can change my own plans. I smile. The physical distance doesn’t change much for me; we talk regularly, and the specifics of distance are irrelevant in our digital experience. We see each other when circumstances and choices permit it. (Sure, I will miss him; I always miss him when he isn’t near me, but that doesn’t have to mean drama and bullshit. lol) I was planning to discuss my reluctance to plan regular visits down once the roads begin to freeze, or snow becomes a concern (even though I have chains, it’s just not my preference to tackle long drives in icy/snowy conditions); his plans are such that it just won’t actually be a concern. lol Win and good. Convenient. Stress-free mutually beneficial planning for the win! πŸ™‚

First coffee finished, I make a second, and load a great set,Β from a favorite DJ who does a regular live cast on Facebook, to get me moving, and hopefully provide additional relief of my pain, and a bit more freedom of movement. Movement hurts, but it helps, too. Hard not to dance to great music.

I spend coffee #2 grooving in my chair, writing, and chatting with my Traveling Partner as we get our mornings started. A promising beginning to a leisurely Sunday. I open my “to do list” and frown at tasks I know I am not going to be able to do with any ease, and scroll through prioritizing the tasks that will be more easily handled today. I smile when I get to the line that says “get enough rest” – that’s one I can check off right now. πŸ™‚

No idea what the day holds, but I’m here. You’re here. There’s an entire day ahead to make something of – and that’s enough. πŸ™‚