Archives for posts with tag: TBI

I may as well have ordered from a menu…”I’ll have the Random Emotional Overload, please – does that come with Feelings of Not Being Heard? I’d also like extra Not Well Understood, please. Can I have that with a side of Fail Sauce? There’s no Diary in that, is there? …Oh, Honey – you should try the Accusations and Dismissiveness, I hear that’s really exceptional here…”

Yesterday, I went, in mere seconds, from feeling content, comfortable, and enjoying quite a lovely day, to… something very different. The tiniest of difficulties with communicating a very simple idea (“yes and I am uncomfortable”, versus “No, because I am uncomfortable” – quite different concepts, truly) quickly became an embarrassing loss of emotional regulation on a level that is difficult to accept, explain, or excuse without some understanding of how a disinhibiting brain injury might complicate PTSD. It is what it is. I continue to do my best and work to grow and improve on what I can’t rely on without exerting will and continuous practice… It is what it is, and what it is just happens to be my experience, which sometimes sucks rather a lot.

I moved on, the evening unfolded, eventually I slept. The damage is done, of course. There are no ‘take backsies’, once I’ve hurt someone – they hurt. It’s the crumpled paper model of regret; the apology is necessary, and making amends is important, but the damage is done.

My head hurts today. I didn’t sleep well. Hormone Hell sucks like crazy, but it’s still 100% on me to do my best to be the best person I can be, moment to moment. It sucks that a few painful moments on a single day out of many can have the potential drive pain and stress into so many other potentially entirely unrelated moments even on entirely different days, but there it is. It’s one major reason why mindfulness matters so much, why I keep harping on being in this moment, and reminding myself that we are each having our own experience; there’s just no sharing some of it, and becoming mired in what sucks is so much easier than becoming wrapped in what is warm and lovely and good. Be. Here. Now.

This moment was lovely...

This moment was lovely…

Today is a good day for practicing practices. Today is a good day to be this amazing woman I am – challenges and all – and to continue to do my best, and to grow, and heal, and walk on, until I reach a new perspective. Today is a good day to embrace all the vast character and wonder of this creature I hold so tenderly in this broken vessel. Today is a good day to stand between myself, and the world, and be the person I can count on right now to care for me, reliably well, every day.  Today is a good day to make choices that meet my needs over time.

I had an amazing evening with my traveling partner, last night. It didn’t end as well as it started, and I went to bed feeling off-balance and a little sad. I wrapped myself in my blankets and wept for a few minutes, even tolerantly allowing myself a few ‘it’s not fair!’ and ‘it isn’t me!’ moments. I didn’t notice, but at some point I realized I had moved on; my tears had dried, my breathing was deep, relaxed, and even, and my heart felt calm. 72 minutes. Tears became meditation pretty quickly, and very naturally, and I don’t know quite when, but it was 72 minutes from when they began to fall, to when I began to fall asleep, and realized that I was actually entirely okay in that moment – and that moments being what they are, the earlier one that caused the heartache was long over.

Moments are not a big deal; they are moments.

Any one moment, utterly unique, and filled with potential.

Any one moment, utterly unique, and filled with potential.

Moments do not define me. I define me.

We really, truly, are each having our own experience, moment to moment, day-to-day, and it any one such moment we may each – or all – be at odds with one another, because those individual subjective experiences are our world, and we view the rest through those filters, on the backs of our assumptions, and doing our best to find our way through our very own chaos and damage. “Being right” doesn’t really enter into it, for me at least, because “being right” is just as subjective as our experiences, themselves. The challenge for me, last night, was in figuring out how to stay aware and engaged with my hurting partner, and make room – compassionate, tender, understanding, supportive emotional space – for him to have his own experience right along side me having my own.

I have room for improvement. This is a very general statement I believe to be universally true of my experience.

So often things seem more complicated than 'this versus that'. Perspective matters. Relevance matters. Compassion matters.

So often things seem more complicated than ‘this versus that’. Perspective matters. Relevance matters. Compassion matters.

I found my way last night with the awareness that the moment didn’t define me. The challenge we were having communicating and loving wasn’t a characteristic of ‘who I am’ – it was a moment. A challenge. Sure, it’s pretty easy to take that challenge and turn it on myself as a weapon, but where is the value in that? Growing as a person is more easily fostered in gentle conversation, shared insights, connecting and discussing needs, limits, boundaries with compassion for each other, and present with each other even when/if we are hurting. (It sounds easier than it seems in the moment, at my current skill/awareness level.) Remembering that I define me, and that my experience of myself is 100% reliably true to the self that I am when I allow it to be was powerful.  However hurt a lovers feelings may be, those are their feelings, about a moment (their moment); their feelings do not define me, (and considering how little tie to objective reality emotions may truly have, it seems a very poor practice to internalize someone else’s feelings, or taking them on as characteristics that define me, for myself).

xxx

We each make our way using the perspective we have, and the tools we develop. 

I woke feeling pretty awesome this morning, and very centered. It’s a lovely way to start a day. Today is a good day to be reminded we are each having our own experience, and that they co-exist with equal validity. It’s a good day to reread The Four Agreements. It’s a good day for love.

Yeah…this is not about ‘management’ as in ‘leadership’, and it’s not about improving one’s resume for a better paying job with keys to the executive washroom. Nope. It’s another sort of ‘executive’ ‘management’ altogether. The ‘executive functions‘ of the brain manage cognitive processes, such as (and likely not limited to) working memory, reasoning, task flexibility, problem solving, planning, impulse control, and in specific areas like the ‘orbitofrontal cortex’, things like evaluating subjective emotional experiences (and so much more). All very interesting, no doubt, but for me it’s a little more personal, and relevant…my TBI is a frontal lobe injury. The lingering impairments are mostly executive function sorts of things, and as with so many other people, and other TBIs, very interestingly individual – the brain is fancy, and the outcome of any given injury is equally individual. A whole new world of potential to heal and move on opened up when I started learning more about how these injuries work (don’t work?), and why, and how it changes my experience… and in so many moments, the experience of those who make their lives (or work) with me.

It is what it is, at least the piece where I look in the mirror every morning and I am… me. It’s not all bad. It’s better, actually, than it once was. I’ve learned a lot. I’ve grown. I’ve become more skillful at caring for this broken vessel, and at sorting out some of the chaos and damage that lingers.  It is, sometimes, a shit experience and I struggle. Very human.

How about this one for a great practical joke on one human primate by the universe… one of my ‘favorites’… my PTSD causes serious sleep disturbances, nightmares, sometimes insomnia, and diminishes the hours of restful deep sleep I can get; I’m easily awakened by the littlest noises, or novelty, in my nighttime surroundings… (waaaait for it…) and my executive function impairments are much more pronounced – to the point of being quite obvious – if I don’t get good rest, reliably, pretty nearly every night. So… yeah. A night or two of poor sleep, for whatever reason, and I start… declining. My temper is often the first obvious sign that ‘things are not right’ – I become irritable, and easily angered, and feel less positive, generally, when my sleep is of poor quality. Next up, I start struggling with emotional balance, and lose ’emotional regulation’ characteristics in my day-to-day experience most adults don’t even realize they have going on in the background; I feel them most particularly when they slip away unexpectedly.  The more tired I become, the more fatigued over time, the more prone to real tantrums, crying jags, and irrational mood swings I become – and (waaaait for it…) less able to sleep; my brain won’t shut down. When I do find sleep, I sometimes dream that I’m awake in such detail I wake exhausted to the point of tears. Yep. Pretty god damned funny. (Not)

Most of the time, these days, I still manage decently well overall…enough to pass as a grown up most of the time. There’s no real way to share what the subjective experience is like (you sort of have to be there). Every one of the many calming practices I’ve learned matters a great deal. Every choice counts. Every effort is meaningful. Every success – however fleeting, however limited the benefit, however difficult it is to recognize in the moment – every success builds the foundation for successes to come. My hope is that over time, that foundation grows substantial enough to bear the burden of the entirety of the chaos and damage…strong enough to hoist me above the pain, long enough to really see the view from a radically different perspective somehow ‘above it’… I would very much like to keep working at life and love to find that I have transcended what has hurt me most and become that woman – or more – that I might have been without the chaos and damage.

Please don’t tell me that’s wishful thinking. Tonight I couldn’t bear to lose the crutch of some shred of positivity to lean on. I’m tired. I know I am. My brain is buzzing like it’s noon on a sunny summer day; I’m not sleepy…but if I can practice good practices (meditation, and yoga are both very calming), and avoid becoming negative, or caught up in some random moment of weirdness, or a sneak attack by my own brain, I might sleep – or at least rest. Rest is okay. Rest is enough.

Enough is okay with me. Hell, I’m not even having to ‘do it alone’, really; my traveling partner checks in now and again. I welcome the closeness, the touches, the tenderness. The reassurance that love is, helps me find my way in the darkest darkness.

Wrapping this one up on a positive note; perspective matters, too.

Wrapping this one up on a positive note; perspective matters, too.

The evening ends quietly, after a pleasantly productive day that felt more recreational than not. I spent much of it gardening…well…on such tasks as gardening offers at the tail end of winter, preparing for planting to come. Things will turn to spring seemingly overnight; I take advantage of pleasantly sunny or dry days getting ready for it. I share my love of gardening and growing things with my traveling partner, and we pass a lot of time talking about plants, gardening, techniques, yield… It’s strangely intimate, which I attribute to the undercurrent of love that is so palpable when we are together.

I’m not ready for sleep, but I am no longer feeling like companionship. These last few minutes of evening are my own; I sift through the events, interactions, and thoughts of the day, and consider them more thoroughly. I take time to savor the most pleasant moments. I make a disciplined practice of pausing ever so briefly on moments that troubled me, taking only such time as needed to observe, non-judgmentally, and moving on to other moments. It doesn’t feel natural to linger so willfully on all the things that felt the best, and delighted me most, nonetheless, it is a practice that tends to create a more positive experience overall, day-to-day, and finding and maintaining balance seems easier, generally. It most certainly counts as treating myself well.

Today wasn’t fancy, and that doesn’t matter at all; today was enough.

Some of the very best moments are the simplest of pleasures. Few things are more wonderful than love and coffee shared on a relaxed morning.

Some of the very best moments are the simplest of pleasures. Few things are more wonderful than love and coffee shared on a relaxed morning.

I love fairy tales, and stories with a strong heroine, who faces a challenge, learns a lesson, and grows to become someone wonderful. I like a happy ending. I read a lot of ‘happily ever after’ endings over the years, and at some point ‘happily ever after’ became an implicit goal. That’s especially maddening because that is basically the least attainable goal ever imagined. I enjoy feeling happy. I find ‘joy’, ‘delight’, and all manner of pleasant happiness-related, happiness-producing quite wonderful and worth experiencing. I didn’t have much success making the whole point of existence getting to some difficult to define ‘happily ever after’ place. Quite the contrary, I think making ‘happily ever after’ something to chase resulted in a lot of personal unhappiness.

I don’t actually understand why happiness seems so much more common now that I’m not chasing it…but it does tend to be the experience I am having.

Unfolding like spring flowers.

The loveliness of simply being.

I am okay right now. It wasn’t my best evening. I enjoyed the day in relative physical comfort. By the time I arrived home, after a chilly drizzly commute, I was in pain and irritable. If I could fold time, I would put this moment, here, adjacent to my arrival, and perhaps enjoy myself and my family more, being in a better mood, and less pain. I’m not complaining, and I don’t recall being unpleasant, just in pain and perhaps too tired to be more considerate with my phrasing; I know it takes a lot to hurt my traveling partner’s feelings, and I know I succeeded. I will make amends in the morning, learn from the experience and move on. It’s okay to treat myself with great care, even though I feel badly about the evening going a bit sideways, and I have spent the evening gently, managing my pain, watching South Park, and writing. It was my intention to do these things when I arrived home hurting so much, and it’s pretty satisfying to find that good self-care has indeed helped a lot, although I am still in too much pain to be able to sleep just yet; yoga will help with that a lot, and meditation afterward is a nice way to finish the day.

Every time something works out just a bit better, I take time to really appreciate it, notice it, and hold onto the experience for some minutes. I ‘let it soak in’. I make a point of continuing those practices, and even investing more time in those that are regularly part of some new moment of personal success. In the most difficult moments, I am sometimes very briefly so bitter and hurt that I am unsure these things really matter, or that I am actually making progress day-to-day. The doubts are incredibly painful, and I am very relieved each time I get past that moment, to this place when ‘I am okay right now’, and able to enjoy the moment of progress, or resilience, or emotional safety – successes, all.

Stormy sky, quiet evening.

Stormy sky, quiet evening.

I feel more vulnerable sharing successes, than I do ‘failures’, or learning experiences. Vulnerable is okay, too. It’s a nice evening.