Archives for category: Brain Injury

Every day I am trying to walk my path with my eyes open. I don’t always succeed, but then, few things manage to achieve “always”, or, for that matter, “never”. Those require an unrelentingly high standard of proof. lol I do okay, generally. One step at a time. One practice at a time. One beginning at a time. I just keep starting over, and keep walking. Somewhere along the way, I’ve managed some personal growth. I’ve managed to develop some interpersonal relationship skills. Hell, I have even managed to develop some tact, though I use it less often than would perhaps be welcomed. I am very much a “work in progress”, and my perspective on that, these days, is that there is no “final exam”, no “finish line”, no end in sight – it’s all about the journey. The walking of the path, itself, and the living of this life, is the point. No destination matters as much. I’ll get where I get. I’ll get there when I get there. I try to do my best every moment I can, along the way.

…Still totally human… My results vary.

Today, I write at the end of my day. I’d forgotten I hadn’t written, until the work day ended, and I went back to my blog to review what I wrote in the morning, from the often weary perspective of the other end of a busy day. How’d I do? That’s sort of the point of “checking back”. πŸ™‚ That – and catching spelling mistakes I missed. lol (For real – totallyΒ  human.)

My thinking is sometimes very different later in the day. Real life has had a chance to take the shine off my morning optimism, perhaps, or the day has frustrated or amazed me. Sometimes, I’m so groggy in the morning that my thinking is clouded, simple-minded, or my meandering musings fairly pointless, and my afternoon or evening perspective is sharpened by events that have been more fully considered since the morning. My perspective changes. My results of the day vary. I’ve wrestled with emotion, or found myself struggling with reason, or failed to find a balance between the two. Today, though? Just a day… room to grow.

My Traveling Partner sticks his head into the studio “Do you want to play a cool game and kill some time?”, he asks with a smile. “No,” I smile back, “I want to finish my writing.” He sticks a playful tongue out at me, and closes the door. I’m suddenly stricken by intense anxiety – baggage. Personal demons. Personal demons carrying my baggage. Seriously? This, again? Even knowing my partner has occasionally nagged me for not taking time to do the things that help me maintain balance – and sanity – and that he loves to see me invest some portion of my effort and energy in doing things I love doing, because they are part of who I am; I’m sitting here terrified that he may be hurt and angry, feeling rejected, because I did not drop everything immediately to rush to his side, this time, right now. I don’t berate myself over it. I go gently; there’s real damage here. This? This is scar tissue from decades of abuse in other relationships. This is what surviving sometimes looks like. There’s still “clean-up” to do. Still some healing self-work that needs to be completed. And that’s okay. It’s certainly very human.

I correct my posture. I breathe. Exhale. Relax. I imagine myself gently-firmly taking heavy bags from the hands of the exhausted demon carrying them, and setting them down (really imagining it very clearly), on a curb perhaps, or next to a dumpster. I imagine walking away – away from this baggage. Away from that exhausted, defeated demon, standing alone, and a tad puzzled.

…We get to choose our path. We get to choose over and over again. We become what we practice.

I smile to myself. It’s clearly a good time to begin again. πŸ™‚

So… internet connectivity issues in the 21st century, during a pandemic, while working from home… yeaaaaaaah… so…. wow…

…The world has changed a lot since 2000, hasn’t it?

A couple evenings in a row, we’ve experienced some connectivity challenges. Initially, I soothed my frustration with assumptions that it was, most likely, network bandwidth issues resulting from higher usage during peak hours – after all, my ISP’s status page indicated there were no outages in my area (although, checking the internet showed some consumer self-reporting to the contrary). It got worse, each day beginning a bit earlier, resulting in more frequent interruptions in connectivity, that began to last longer. Each time, resolving itself fully, for a shorter and shorter period of time. I reported it. No resolution, just the usual “did you try unplugging it and plugging back in?” sorts of basic troubleshooting. The next day I tried getting help through chat-based support, and frustrated myself with a fairly terrible customer experience, due to the ISP’s zeal to protect my account security (so, thanks, I guess?) – efforts which sometimes create new challenges because of my TBI. Yeah, that sucked, but apparently there was still “no outage in my area”, and it seemed like our connectivity was back…? Sort of? Mostly?

This morning I awoke and found myself face-to-face with my Traveling Partner’s apparently all night long frustration-journey with the intermittent lack of connectivity having become so severe that it was not possible to connect, which he continued to re-attempt, troubleshoot, and re-attempt some more, without success. His frustration was uncomfortable to be around, but so familiar; frustration is my kryptonite. I get it. What a shitty experience! The longer it goes on, the deeper and more encompassing it gets. Worsening that; all the log-in and authentication details are mine, and there’s never been, previously, any reason for that potential limitation to become a known, obvious, “need to fix this today”, sort of concern. So… he could not simply contact technical support and resolve it with them, himself. (Couldn’t have anyway, since their hours are extremely limited right now, in this time of pandemic; I had to wait until 6:00 am to call.) Fuckfuckfuckfuckfuckfuck. What a shit experience that had to be for my partner! I only glimpsed those final moments at the ragged edge of his all-night-long frustration, before he yielded to sleep, and left calling technical support in my hands.

Some 90 minutes or so later, after chat support fails me utterly, over-the-phone troubleshooting confirms that some piece of technology outside the house has begun to fail (but still tries to serve), and needs a technician to actually touch it. Repair or replace? Unknown, and to be determined. I feel fortunate that there was an appointment window open tomorrow morning. Working from home, for me (probably for most people), requires a fast FiOS internet connection. No connection? No access to work tools. No ability to authenticate to access those tools if I could access them in the first place. lol I sip my coffee and reach out to my team – instead of enjoying my morning hours. (“Fuck this shit”, I snarl to myself, softly, not wanting to wake my partner with my irritation; I have much to do “in the office”, and this is a valued “get it done” day of the week. Super frustrating. My turn.) I start working on rescheduling what can be rescheduled, and figuring what I can do instead of what I can’t do. I succeed in coordinating with my team. I succeed in moving the one critical meeting that very much needs me to be connected to have any value. So far, so good.

It’s still weird that the only work tool I really have available is my email. I mean… seriously? Still, I can get some things done. That’ll matter tomorrow afternoon, and Friday, when I have to attempt to catch up everything else. πŸ™‚

Finally, I sit down here, and begin to write, even though I already know that with this connectivity challenge, it’ll be the spin of a cosmic roulette wheel determining whether I can save it, and upload it, at any point. I actually feel pretty cut off, which feels pretty weird. If I were out in the trees, I muse, I’d be seeking this experience, and embracing it. Right now, though? It’s a major inconvenience. It tests my patience. Clearly, my Traveling Partner’s patience was also tested. It would be nice to be certain whether or not we “passed”. LOL

“Not connected. Trying in 31s…” I look at the router. Flashing light. Yeah, okay, I get it. I sigh, and make a second coffee.

As I pass through the living room on my way back to my studio, I smile at the books; I’ve got plenty to read. I grin at the aquarium; always something to do, to watch, to enjoy. I frown at my partner’s gaming computer… and my work laptop… It is what it is. Today it is temporary, and will (probably) be resolved tomorrow… but… what if it wasn’t? What if, and this is an unlikely “if” but worth considering, what if it were permanent? What if the internet simply failed. No recovery. No reconnecting. What would life look like without internet… after allowing connectivity to become such a critical piece of 21st century life? I mean, sure, books, games, love-making, conversation, crafts, hobbies, gardens… but… what about online shopping? What about connected gaming – or gaming that requires online authentication to proceed with local play? What about work? What about staying in touch with loved ones. (Do you even remember where you last saw a postage stamp in your home? Do you still have stationary?)

I find myself sitting with these questions, and this coffee, watching the dawn turn to day, and waiting for tomorrow… as if there’s no value in “now”. Weird. I breathe, exhale, relax, and pull myself back to “now”. Present. Awake. Listening to the sounds of life beyond this house – the occasional car goes by. Birds are singing. The otocinclus in the aquarium are contentedly seeking out any remaining algae to munch on. Life is very much still… alive. No connectivity required. I finish my coffee, hit my vape, and begin again.

…I don’t really know what today holds, but there are more ways to be “connected” than the internet. πŸ˜€

 

I’m watching the sky slowly change from dark to dawn. I am, in a sense, “late to work”; I usually start earlier. This morning, it mattered more to start the day gently. I’m in some pain, and also feeling rather fussy in a vague way that persists, beyond my attempt to “troubleshoot” my experience. I mean… “everything” is fine, for most values of “everything”, and for most values of “fine”. Life in the time of pandemic is feeling a bit confining, at times, but my sanity project is keeping me sane, so… that’s working.

The RGB lights in my computer tower twinkle and chase merrily, over, around, back again. The aquarium light slowly begins to brighten for the day ahead. I am awake. It is a new day, well-suited to all manner of new beginnings. It’s a good place to start. πŸ™‚

…Shipping delays make me feel vaguely impatient with life, generally… I breathe, and exhale, and let that go. This is not a unique experience. I’m fortunate to have the opportunity and resources to order this or that, and have it delivered. I sip my coffee and focus on my good fortune, my opportunities, and… the gratitude. Also a good “place” to start the day.

Life is a strange journey, is it not? One step at a time, down a path I can’t clearly see, to a “destination” that is simply an ending, eventually. How will I want to be remembered? What do I want the tale of my life’s journey to say about me, as a human being? Questions worth reflection, and a few minutes over coffee, on an utterly ordinary (for some values of “ordinary”) Tuesday morning, on a week in Spring time, in a year of pandemic.

…

…It’s almost daylight, now. Some time a bit later. Meditation. Coffee. Yoga. It’s unavoidable, at this point… I glance at the time. Yep. Time to begin again. πŸ™‚

I’m relaxed and smiling this morning. I’m happy yesterday is behind me. Though I had gone into it expecting the day to be in some small way “celebratory”, the day had something very different in mind for me. I spent much of my morning in a state of frustration (because, reasons) and grief (over my Mother’s death last summer), bouncing between tears, and a roller-coaster of (mostly) negative emotions of various sorts. It was hard on me, and hard on my Traveling Partner, who was, let’s be honest, having his own experience, too.

…Turns out grieving colors our experience, and socks that are too tight can wreck a potentially delightful day. Who knew? (Well, probably most of us, but nonetheless, we can all be taken by surprise over such things, and that is what is so unexpected.)

Once my partner and I recognized that I was struggling with grieving (and feeling fairly foolish about it, some 9+ months after my Mom died), dealing with my bullshit was easier. Dealing with his? I shrug it off, now, as “humans gonna be human”, but yesterday was hard for both of us, for a variety of reasons. At some point after I went to bed last night, he realized that his physical discomfort (see “socks that are too tight”, above) was wrecking his mood. This morning he was merry and comfortable, his usual loving self. I was over whatever (grief) was biting my ass, yesterday, too. Very different experience of each other. πŸ™‚

Building a life characterized by contentment and sufficiency does not, ever, guarantee a smooth easy ride to the end of a happy life. lol There are verbs involved. Results may vary. We’re each having our own experience. Bullshit and drama are a very human experience. So. Sipping my morning coffee this morning, feeling infused with perspective, and decently well-rested (although short on sleep). Will it be a good day? No idea – but it is a new one. I get to begin again. πŸ™‚

However much we love the people we love, however good the hearts of those around us, especially in such trying times, it’s not a reasonable expectation to think it will always be easy, or that we will always “get it right”, just because we want to (perhaps even more than we usually do). Sometimes an otherwise comfortable moment may skid sideways, and suddenly become a challenge, or moment of conflict, hurt, or sorrow. So human.

…I could say “deal with it” or “happens to everyone”, and try to shrug it off irritably. I’m not really that person, though, and more often, I simply retreat to “sort myself out” and cry for a few minutes. Generally just some handful of tears of frustration and disappointment, sometimes tears of hurt, or tears of anger. It’s true, though; I cry over shit. I used to be very strict with myself over crying, working furiously to shut it down, stuff it into a dark corner of my consciousness, wrap it up quickly, hide it, wiping those errant tears away as quickly as I could, before anyone could see them, splash some water on my face and move on with things. It was not a helpful approach. Now? Now I just go ahead with it, generally, and cry. (I often seek out some privacy for that purpose, because I also don’t find someone else’s intervention, disapproval, need to “fix” things, or whatever like that at all helpful in those moments, either; sometimes I just need to cry.)

I only bring it up because I often feel some better after having – and experiencing – my emotional moment. It matters to be present with those feelings. To feel and acknowledge them, without shame, without guilt, can be incredibly freeing, and a big step toward restoring balance.

Things in the world are pretty scary right now. The media isn’t doing much to help with that, with the ceaseless 24/7 COVID-19 coverage painting every news story as somehow “about” that, and presenting a picture of the world that somehow suggests there is nothing else newsworthy going on, at all. It’s a weird lens through which to view the world. Eventually, it may “get to you”. Go ahead. Have that moment. It’s okay to cry over it, too. Give yourself a break if you do; it’s a very human thing, and honestly, not at all harmful. πŸ™‚ You may even feel a bit better for a while, having giving yourself a chance to feel it.

…Then, begin again. Move on from that moment. Let it go. Grief is a real emotion. Feel it when you feel it. It does not have to own you, or make you over in a new image. You can choose to let it go, when you’re ready.

I am sipping my coffee in the studio. Starting my day. It’s another work day. Another Tuesday. Another day in the time of pandemic. My Traveling Partner wakes early. We’re both struggling with physical pain, this morning. Rainy day ahead? Maybe. I don’t give myself the time to over think it; it is what it is. Another sip of coffee, and I do what I can to let even the mundanity of physical pain “just go”. (It’s not that effective, right now, and my results definitely vary on this point.) I breathe, exhale, and relax. Just another work day in the “new normal”.

I glance at the clock; already time to begin the day in earnest. (I’ve been making an effort to keep to my usual schedule for a sense of normalcy.) Time, in fact, to begin again. πŸ˜‰