Archives for category: health

I see another doctor today, up at the VA. I haven’t reliably had good experiences with medical care. That’s not an uncommon experience for people. I found myself feeling tense in advance, and aggravated ahead of any clear reason to feel aggravated, and on top of all that, I’m in pain. I was fussing over it internally, and it had grown to the size of a wee demon capable of wrecking my mood entirely – or my day. Considering the pleasant morning I had with my Traveling Partner this morning, that seemed pretty “unfair”…

I took a minute for a break in the sunshine – a rare sunny winter afternoon, uncommonly mild (although a bit chilly in the shade) – and asked myself “the hard question”; do I have a practice for this situation? I had to admit to myself, yeah, actually, I do.

I stood there in the sunshine, feeling it warm my back, vaping, blowing clouds in the direction of the clear blue sky visible between slumbering chunks of concrete and steel, pocked with windows. Breathe. Exhale. Relax. I started letting go of my assumptions and expectations of this appointment, allowing all that baggage to fall away. I gave myself room to accept my anxiety and my anger – then I let those go, too, with some self-directed kindness, and compassion. I finished my break, eventually, with a reminder to assume positive intent – yes, even about this – so I can go into this appointment with fresh eyes, open to a new outcome. Ready to listen deeply. Ready to answer questions from the perspective of (likely) sincere interest in my health and well-being. Ready to answer those questions gently, and directly, without a lot of “extra” discourse. One at a time, as they are, without reading into them. (Tall ask, honestly, still… a worthy endeavor.)

I’m okay. I’m ready for this. This moment here? It’s not about that. It’s about beginning again. 🙂

I noticed the peculiar balmy quality to the air this morning, on the way to work. It persisted through the day. Warmer weather than is typical for January. The air is soft and very still, and the scent of it hints at summer storms. Decidedly peculiar weather.

I enjoyed the commute home more than I generally do. It felt easy. Effortless. Unfettered. The sky looked stormy, without looking anything like winter, somehow. The temperature remained quite mild, even into the evening. I went for take-out, for dinner. I went to the store a bit later. I had the energy to do this-n-that – maybe borrowed from the stormy sky. Still no rain falling, just the scent of the hint of a promise of rain… later. I smiled as I drove home. I smiled as I drove through town, first on one errand, then on the next. I pulled into the driveway smiling.

The weekend is here. I’m still smiling.

The amount of pain I am in is every bit as uncomfortable as the worst winter I’ve ever had with my arthritis. Something like 30 years of pain-filled winters; every winter feels like the worst one, ever. I wonder for a moment if, in fact, they’re all quite similar, and I simply lack the capacity to recall it with clarity. Sitting here in pain tonight, I kind of appreciate that possibility. It is what it is, though, and bitching about it as endlessly as I experience it doesn’t help with the pain, and doesn’t improve the experience, so… I let it go. Over and over again, I notice the pain, with a breath, with a movement, with the completion of one task or another, or just a change of position. I notice it. I let it go. When it is too much to bear, at all, I fall back on a pain reliever. I try to get by without them. I don’t find them something worth counting on. I’m frustrated with the song and dance involved with every refill, every new doctor, every change of health coverage; most of the time, I’d rather be in pain that deal with any of that. Sometimes, it’s too much to argue with, and I reach for relief.

Here’s the thing, though; I’m enjoying my life, generally, in spite of the pain. That seems an important detail. I hold on to that for a few moments. I make the effort to focus on that, more than the pain.

My sleep has gone to crap, again. No idea why. I remind myself it’s a thing I’m aware I deal with, and have since… yeah, I don’t have a memory of a time in my life without sleep disturbances of one sort or another. I shrug without thinking, and feel the pain in my spine flare up, in this new place I don’t remember hurting before quite recently. Annoying. I take a deep breath and coax my shoulders into relaxing once more. Tonight? Yep. I took a pain reliever. Are you kidding me? Pain sucks, and also, I’d like to hurt at least enough less to sleep a few hours, if not deeply, at least straight through without waking. Goals. lol

All of this is so… human.

I listen to the last of the rush hour traffic whooshing by, on the street. I think about the trail I plan to walk, tomorrow, and wonder which turns to take, and where I’ll turn around and head back for home. There’s a longer loop trail near by, and extension of another familiar walk. Maybe I’ll take that walk, and push past my recent distance, for a grander goal? I feel twinges of pain mocking my intentions…

I shrug all that off, quite deliberately, and imaging an obscene gesture at my unseen enemy. “You don’t tell me!” I think… I’ll just begin again. 😉

This morning I woke to the sound of distant music. I couldn’t place the source. I turned over once or twice, thinking perhaps I might go back to sleep, once I wasn’t hearing it. It was faint. Ambient. Vaguely familiar. I finally sat up, wondering if my Traveling Partner was awake, quietly watching TV or something. There was a hint of light, under the bedroom door, so… maybe?

Well…shit. Now I’m awake. LOL

I got up, and made my way down the hallway in the morning darkness. No lights were on, there was only a hint of light from the front stoop, illuminating my studio through open blinds, which gave some small amount of light and the hint of an appearance (from within the dark of the bedroom) that a light could be on. (No lights were on.) I stood in the darkness, puzzled. The house was quiet. There was no music. I had stopped hearing it, as soon as I opened the bedroom door onto the utterly ordinary darkness of the house in the wee hours. Strange. I turned my head, and thought I heard something, again, like music… I shrugged off the inconsequential mystery and started to get ready for a new day.

I started making coffee, and it was then, while the grinder was running, that I heard the music again. It’s not music. Now I’ve sorted it out. Between my tinnitus, and the sounds of the fridge, and the aquarium, when the heat kicked on, too, I heard it; a hint of an impression of the sound of distant music. Frequencies of noise, blending strangely, and becoming vaguely musical. lol Damn it. That woke me? Wild. I sip my coffee, breathe, relax, and let that go. It’s not really relevant to anything else, at all. 🙂

I dress myself every day. I’m not bragging, most people do. I’m just saying, usually I feel pretty comfortable and satisfied with those choices. Easy enough. Today, weirdly, I just… don’t. LOL I’m not sure what I wanted out of wearing clothes today, but somehow… this isn’t it. LOL I’m feeling my years. I’m feeling my weight. I’m feeling aggravated by the sensations of fabric and constriction and confinement and… wtf? Oh. Hang on.  I breathe and let that go, too. I notice that my tinnitus is pretty loud today, just generally, and allow the awareness to become more real, as I listen to it. Okay, so, a quiet noise woke me, and my clothes “feel weird”. I give myself some self-care and attention. I listen to the woman in the mirror beefing about the weird of the day, and wonder how much is symptomatic of one issue or another. TBI or spinal injury… I guess I can take my pick, or admit that acknowledging the potential is enough to initiate heightened attention to my physical wellness and self-care needs today, and let that be enough.

A few minutes of meditation. More coffee. Neck pain. A headache. More self-care. Appropriate medication. A glass of water. The day, oddly, is beginning pretty well, in spite of whatever bullshit and weirdness is going on with my nervous system today. I’m content to enjoy the parts I can, and nurture the parts that need care, and just let the rest go. It’s enough.

One last swallow of coffee. One more quick scan of this moment, and this space, right here; do I have what I need for the day ahead? I guess it’s time to begin again. 🙂

No kidding. Damn little gets more “real” than actual reality colliding with the fictional version of reality we generally live with in our heads. :-\ It’s a bit like petting a beautifully fluffy strange cat on the basis of how cute and soft it appears; sometimes those’ll bite back unexpectedly – and it’s not even personal… “cute and soft” are simply not reliably the most important things to know about a strange cat.

I’m still getting over being sick, and my defenses are down. My ability to “get” humor is rendered somewhat unreliable. My will to accept as humor those “zingers with stingers” falls short of the need, sometimes. I end up taking something small quite personally, and end up with hurt feelings. My temper flares more easily, while I also need more tenderness and patience. It sucks more than a little when the result is conflict, particularly when what I wanted is affection. Sometimes reality can be more than a little vexing.

Yesterday at work was efficient. Purposeful. Challenging. Satisfying. Also – short. I went home a couple hour early, still committing to self-care. Still getting over being sick. Unfortunately, I’m not over being wholly made of human, and much of the evening in no way met my short-term, or long-term, self-care needs. My Traveling Partner and I did not make as much of the opportunity to spend that time together as we could have, and the result was some unpleasant back-and-forth that, looking back, doesn’t seem very productive. No epiphanies, no light bulb moments, no feeling of greater connection or shared relief on the other side… We sort of just picked ourselves up from each difficult moment and began again. It wasn’t satisfying. It wasn’t pleasant. It didn’t feel connected (just frustrating, and, well… hard). I should be more clear here; I’m only talking about my own experience, subjectively, and while I seriously doubt his was better than that, it may very well be that it was worse. It’s hard to know.

You know what I do know? I know that love requires effort, and care, and reinvestment… and I know that we (both) give it those things. Last night sort of seemed like neither of us saw how much the other does put into it. Like I said, it was less than pleasant, and rather unsatisfying. I’m not sure the specifics of the underlying circumstances really matter (or what they may or may not really have had to do with our difficult moments last night). It felt a little existential at points. I’m making a specific point not to cast blame, or attempt to triage in a more detailed way, primarily because doing so doesn’t hold value in this moment, right here; I’d rather focus on growth and healing, and where still needed, self-soothing. I can easily see points at which I could do a better job communicating my needs, my boundaries, my thoughts (likely, nearly always, so, yeah, definitely with regards to yesterday). I give those things the thought they deserve, and sip my coffee… thoughtfully. This human being I love so well, this partner who gives so much, certainly deserves that consideration. 🙂 I have a responsibility (and opportunity) to make time for it – and it is a worthy endeavor for a partnership so dear to me. Love takes some work. Love is worth the effort.

…So… sipping coffee, thinking thoughts. Tomorrow is Thanksgiving. The winter holiday season begins with gratitude. That’s a lovely beginning. I borrow that theme for my morning, and give myself over to considering all that I am grateful for in this relationship, in this life, in this moment. I feel it ease my very human (and in at least one case, fairly silly) hurts; it’s hard to be petty and grateful in the same breath. 😉

Damn I love that man. Doing our best isn’t always enough for any one circumstance, moment, or conversation, but I am most definitely confident that he is doing his best for me, and for us, pretty much 100% of his time. That’s a lot to ask of a person who also has to deal with their own bullshit and baggage in life. I don’t think I can claim to do more/better, at all. I make a mental note to be kinder… to keep practicing taking that breath before I react to some small thing in some larger-than-necessary way… to treat love well. To listen. Really listen. Like… a lot more.

…so human… and adulting is so… complicated…

I take another sip of my coffee, and prepare to begin again…

I woke about an hour ago. It’s a bit past 3:00 a.m. now. Little point in attempting to return to sleep. No idea what actually woke me. For now, I’m dealing with this sinus headache, but, and this is just real, I’m almost delighted that I can, mostly, just breathe. The vertigo, which I think may be a result of sleeping with my neck at an odd angle, combined with this head cold, is a cruel new addition, and I’m already “over it” (meaning to say, I’d very much like to be done with this whole mess, now, please…).

I worked yesterday, from home, and wrapped up the day about 2 hours early, compared to a typical Monday. I honestly wasn’t good for much. Today, either, potentially, but I am feeling “up to it”, and no coughing or sneezing, so far, and able to breathe (mostly)… I may go into the office today. I sit here sipping icy cold grapefruit fizzy water, wondering if I really will. The advantage is small; I have more monitor “real estate” there, and this allows me to work somewhat faster, with more things open and easy to see. That’s it. The disadvantage? If I am still contagious, I get everyone on my team sick (small office space), and potentially also everyone I talk to. That’s a dick move. I resolve to stay home if I start sneezing or coughing, and decide that if I do go in, I’ll go quite early, and overlap with folks for a much shorter period of time, keeping my hands washed, and wearing a mask. If nothing else, the mask itself will discourage conversation, and reduce risk further.

…I’ll probably work half a day, get the essentials done, take advantage of the efficiency of the big monitors, and cancel live calls/meetings that involve face-to-face participation.

My coffee is very good this morning. I feel content and alert in spite of the ridiculous hour. My body feels mostly pretty comfortable, very little pain. The discomfort I do feel is largely to do with this cold, and I’m clearly getting over that. I find that to be very good news – honestly, I have shit to get done. Not being up to doing things sucks. I keep sipping this coffee, between physical therapy exercises, and wait for this vertigo to clear up; if it doesn’t, I’ll stay home. Driving to the office in the dark, in the rain, and also with vertigo? That just sounds fairly stupid.

Back and forth… water… coffee… work from home? Go to the office? More water. Another sip of coffee. How do I best take care of this fragile vessel? Water. Chicken broth. Tea. Sleep. More sleep. More water. Limited use of cold care remedies, and only those that are definitely effective, and don’t mess with my head. More sleep. More water. More broth. Food when I can eat. I don’t know what works for you – do that, though, I suppose. I do this. 🙂 I’d been going through a record-breaking number of Kleenex’s there for a day or two, but this box next to me has been open now for more than 12 hours, and it’s still half full. Progress.

…Oh, damn, do I enjoy being able to breathe? Oh, yes, yes, I do – so very much. 🙂 It’s nice having that back.

I find myself looking forward to the cold autumn air and the rain fresh breeze, when I step outside, into the pre-dawn darkness of morning. The house is comfortably warm, but not hot. I feel a bit overdressed for the indoor temperature, and remind myself that my coat is in the bedroom closet, my partner still sleeping. Going to work without my coat, in this weather, in this health, seems fairly dumb; I’ll have to go get it, probably waking my partner. :-\ It is what it is. I remind myself he would comfortable do so, himself, were the situation such that he needed a clothing item from the bedroom, while I am sleeping. lol No coat = no commute. 🙂 That’s some solid self-care decision-making right there. 🙂

I look at the time. It’s very early, not quite 4:00 a.m., but getting that kind of head start on the day will be a huge win for reducing exposure to any lingering contagion, so… I guess it’s time to begin again. 😀