Archives for category: pain

I woke this morning filled with profound love; thoughts still ringing from love songs in my dreams.  The dawn came later than I expected, heavy with gray clouds and subdued by morning mist.  Quiet time with my thoughts of love and romance, and an excellent latte, preceded a lovely walk to the office.  I found myself wondering as I walked ‘is this what ‘whole’ and ‘well’ feel like?’

I am enjoying my experience.  It isn’t ‘perfect’ – whatever that may mean.  For now, ‘perfect’ doesn’t matter, because it isn’t real.  My arthritis is kicking my ass this week; I am in serious pain.  My headaches have been unusually severe, and frequent.  I am discontent, professionally, and often struggling much harder with my personal demons from day-to-day than I hope to in the future.  None of that stops today, right now, from being really quite nice.  (I re-read that sentence, and wonder how long I could have been simply enjoying my life in spite of the chaos and damage, had I understood the possibility existed?)

So… on with the day.  Love songs and delightful moments still lingering in my thoughts, and since they are really too personal to share I will share some of this morning’s pictures, instead.

No matter how small our world may appear to someone else, it is everything we know, ourselves.

No matter how small our world may appear to someone else, it is everything we know, ourselves.

The autumn garden has its own needs, and its own beauty.

The autumn garden has its own needs, and its own beauty.

This morning, the work and the tools, take a back seat to experiencing now.

This morning, the work and the tools, take a back seat to experiencing now.

 

 

I woke this morning in a good place. I would say, if asked, that I ‘feel pretty good’. Everything this morning has gone smoothly, right down to the basically perfect latte I am sipping now.  Why do I also feel a growing edgy discontent?

Big jobs need big tools.

Big jobs need big tools.

I remember that I have new tools, new skills, new ways of viewing old things… and I take a moment to do a quick self-inventory. (“Hey there, Self, just checking in – how are things?”) A couple deep relaxing breaths, and some calm consideration of self, and i find that although I do feel good, and it has been a nice morning so far, I also have a headache – and I so often have headaches that I fail myself on self-care because I don’t acknowledge the pain, discomfort, and reduction in emotional resilience that go with a headache. Generally I ‘don’t notice’ – and what that really means is that I reduce my level of mindfulness until I am no longer aware of the headache – and open myself to a long list of risks and consequences of moving through my day mindlessly. So, this morning, I am allowing myself the freedom to both be in a good place, and be there with this damned headache. 🙂

I have a few things on my mind that I do want to talk about, write about, think about… I am finding it hard to find ‘cognitive space’ for that, and the intervals in my day still available to write, or think, seem to be dwindling away.  (I write those words and suddenly feel so tired…)  There is new stress in my experience – at work – and my routine is being upset.  Doesn’t sound like a big deal, I’m sure, although ‘routine’ is something I use to get around some of the lingering cognitive consequences of my TBI.  I keep expecting that to matter to someone besides me. lol.

Last night was an exceptional evening; hanging out with an old friend, dinner as a family, a leisurely evening hanging out and talking.  I feel like I’m forgetting something… maybe we watched a movie? If we did, right now I don’t remember what it was.  It was the delightful time together that was important.

Today is my new therapy day.  My schedule is changing and I feel uprooted and confused.  It sucks.  I’ll be changing to a new time, too.  I really like stability, and this is not that.  I already feel the effects of these small changes – for one thing, my therapy day is now also a work day. Instead of being entirely focused on my needs, my recovery, my wellness, and therapy-related thinking and self-work, I will be spending it thinking about someone else’s needs, someone else’s work – then racing across town during peak traffic to drop exhausted into my therapist’s office and try to switch gears efficiently and ‘take care of me’ for an hour, then hurry home and try to get enough head space to decompress from what are usually pretty emotionally complicated visits with my therapist, so that I can sleep.  I am aggravated and feel like I am being undermined at a time when I am finally making real progress.  There have been very few experiences in my life that have made me angrier – a bitter seething anger that lacks expression, poisoning me slowly; it feels very connected to ancient anger about powerlessness.  More of life’s challenging curriculum.

Changing seasons and roadside wildflowers as a metaphor.

Changing seasons and roadside wildflowers as a metaphor.

It seems noteworthy that this few moments and words reflecting on my feeling of ‘growing discontent’ and edginess (and realizing that it was my stress about my schedule changing and the knowns and unknowns about that change driving the shift in my mood as I got closer to heading to the office for the morning), positioned me well to observe the feelings, identify the concerns, accept the potential that my experience in therapy may be affected by my change in schedule.  I feel less like I’m driving past a ‘caution’ sign and more like I saw one and slowed down. 😀  I get a real jolt of delight when my new tools work well in a way that actually improves my experience.  My headache even seems to be slowly easing – although that could be the quad latte, and the lovely sunrise unfolding before me.  lol

...sometimes taking a moment for simple beauty is enough.

…sometimes taking a moment for simple beauty is enough.

In spite of challenges, I am making real progress with taking steps beyond just ‘managing’ my PTSD, to real healing, as well as slowly doing what I can to rehabilitate a decades-old TBI.  I’m even satisfied with my progress, and able to appreciate the work I am doing.  This is change for the better – used to be I just couldn’t detect any progress at all, and any hint of improvement in my experience seemed quite fleeting, or even illusory.  This new ability to observe, recognize, accept, and be pleased with growth and improvement is wonderful. 😀

Sometimes it helps to talk things over with a friend... thank you for 'being there'.

Sometimes it helps to talk things over with a friend… thank you for ‘being there’.

Autumn is coming. I can feel it as my morning routine shifts and changes with approaching colder weather. Funny to say that, the morning after a 90 degree day, but I feel it. I feel a little slower this morning. My bones ache where arthritis has already settled in. I feel stiff and tired, and lingering in the shower, while refreshing, did nothing to improve my range of motion this morning. My head ‘feels foggy’ too, as though my body woke without letting my mind know. My latte tastes wonderful, and feels necessary. The sky is still dark, although I’ve been up now for nearly an hour. So, this morning, a slower start.

I’ve started playing SuperBetter. (Wow, that seems completely off topic, somehow…) I’m not sure what else to say about that. It seemed worth commenting on at the moment I brought it up, but I am still a bit groggy from staying up later than I usually do… and now I don’t recall why I mentioned it. lol. It’s a cool game, though, that brings self-work into the gaming arena.  I’m finding that it makes staying focused on improvement, growth, and change feel fun and rewarding, where so often it can feel a bit isolating and frustrating [for me].

Anyway… another work day. Another day for love, Love, and romance. Another day. By itself, that’s enough most of the time, isn’t it? 🙂

Oh, right… it’s September 11th.  I’m American. I could say something about that, but my opinion, once heard, can’t be unheard – and often my opinion on such matters is less well received than I expect it to be. lol. Why trouble you with it now? We can talk about it tomorrow, or the next day, or perhaps sometimes when it seems harmlessly apropos. Today, pundits will fill the airwaves with their opinions, and some portion of the world will listen, and repeat it as original thought, or nod along as to the beat of music no one else can hear, and everyone will go on with their day satisfied with themselves, and feeling righteous, patriotic, and justified.  I don’t know how much of that is really a good thing… I dislike knee-jerk patriotism. (When people dance like puppets, I’m pretty sure there’s someone pulling the strings.)  Suffice it to say that I don’t find violence as a political solution any more effective, appropriate, or acceptable than it is as a relationship building tool for individuals.

"9-11" 2001

“9-11” 2001

Enough about that. How are you, today?  Do you find that your peers, friends, and loved ones respect you and treat you with consideration, compassion, and affection? Have you found the balance between life and work that fulfills you, and provides you with adequate resources to pursue your passions in life? Do you feel ‘successful’? Did you wake up eager to face a new day, with a smile, or a song in your heart? Were the first words you heard today words of encouragement and love? Are you ‘happy’? Are you content? Is your relationship with yourself more about delight… or criticism? Do you have a plan? Do you have a Plan B?

Sometimes there is real value in slowing myself down for a moment, and letting my brain catch up with the rest of me. The unanswerable questions about you, out there, somewhere else in the world, enjoying the dawn, or sleeping through it, do that for me nicely. Thanks for ‘being there’ for me. 😀  I pose these questions relevant to you, but of course they are also questions to answer about myself, aren’t they? (Nice one, Brain, way to sneak in some quality introspection. lol)

This sort of chaotic mental wandering is what happens when I write before I’m quite awake. lol.  This morning I’ll have a second latte before I head to work, and take a few moments alone, content, and serene as the dawn unfolds.

It’s been a lovely evening after an interesting day.  It’s been a day of ordinary pleasures and extraordinary love.  Good lattes, great conversations with people I love, moments of delight and respect, moments of wonder, moments of excitement, even a moment or two of complicated emotions I don’t really have words for at all.  Now, night has fallen. The household is quiet. Ahead of me, a few moments taking care of me; meditation, yoga, a shower, and some unmeasured time gazing at my aquarium before I sleep.  There is really no need to look back to see what is behind me, not right now. Now is simply…this quiet place, this quiet time.  I am not always this aware of how little assurance there really is of having one such beautiful moment of peace and contentment. I am aware, for now, how unwise it is to count on having this moment – or any one moment – of such specific pleasure.

Still… and it is ‘still’ right now… Still, this moment is this peaceful, and I am content. Quite content. It’s very nice. I’d be happy to feel this way a lot more than I generally do.  I’m here right now, though, and I am enjoying it for what it is, without reservation.

There are so many small delights in this brief moment… the laptop… the MC Frontalot t-shirt… the knowledge  that so many people who matter so much to me are only as far away as this keyboard, and their own. In that sense, we’re almost touching… I hear the rain coming down again, and the cat creeping across the roof… and quiet.

Shhh… Here comes the future…

It is a pretty morning, and Dave Matthews sings songs of love and life while I sip my morning coffee. My loved ones are home from their weekend getaway, and returning with them, the tension and stress of everyday life, notably absent while they were away. I am considering that, and perspective, this morning.

Much of my PTSD is related to family and romantic relationships, and associated with trauma over time, and small ‘inconsequential’ things that somehow destroy my sense of balance and calm very suddenly.  Fears that overcome me are often based on some historical detail that results in my utter uncertainty about whether or not I am still ‘rational’, whether my here-and-now experience is ‘real’.  The rapid swings between paralyzing panic and trapped-animal rage result in wildly unpredictable behavior – most of it  unpleasant.  One of my highest priorities right now is really getting that under control.  Strangely…’getting it under control’ is turning out to mean ‘accepting myself’, and my feelings, and not exerting so much control; giving up on forcing myself to comply with some arbitrary standard of performance in the face of my own suffering.  In the past, the ferocity applied to ‘forcing myself to be okay’ resulted in splitting headaches, problems with my blood pressure, anxiety and panic attacks, and fits of uncontrollable crying that would sweep up out of nowhere, leaving me feeling like I had, on top of everything else, failed to ‘control myself’.

“Myself”. My self. My self. My self.  Damn. Who am I? Where does my experience begin, where does it end? What is the boundary between what is me, and what is someone else? You’d think an adult would have this one mastered by 50.  Well, sometimes the answers to my questions, the understanding I seek, the resolution to a challenging problem, are inconveniently buried in the basics.   So, this weekend, in addition to being about ‘perspective’, is about applying an understanding of perspective, an experience of perspective, to the question ‘who am I?’

Sorting out the difference between what stresses me, and me stressing over other people’s stress, turns out to be more complicated than I expect.  I’m learning to ‘make room’ for my feelings, and learning to accept myself.  I’m also having to learn to take those new tools, and accept my loved ones, and ‘make room’ for them to have their experience, without that urgent need to intervene, ‘make it right’, ‘force it to work’, or ‘fix things’ sweeping aside the very things that make us individuals sharing a relationship – our unique and individual experiences that we are having, and choosing.

Sometimes words by themselves are not enough for me to gain real clarity.  Maybe I don’t have the right words, or enough words, or maybe I don’t choose them well, or define them with sufficient clarity.  I have painted a number of self-portraits over the years, and studies of my state of being in the abstract.  This morning it occurred to me to take a look at them all, as a body of work with a story to tell – a story to tell me.

"Portrait of the Artist's Tears" 1984?

“Portrait of the Artist’s Tears” 1984?

My shoddy bookkeeping tends to indicate this is my oldest surviving self-portrait.  A small work on watercolor, my recollection is that I was hesitant to make my unhappiness with life too obvious, for fear of making it a great deal worse.  The cries for help just kept coming…

"All I Am" 1985

“All I Am” 1985

Slipped between sheets of rice paper, stored in a box, shoved into the back of a closet for many years, “All I Am” stayed quietly hidden, along with my truths.  i struggled with myself, with my experience, with my PTSD – although I didn’t know then, what I struggled with.  I knew I wanted something else, and I knew my relationships were a core concern…

unfinished "Brownie" 1986

unfinished “Brownie” 1986

I clung fiercely to the illusions I loved most, hoping that somehow wishing hard enough would be enough…

"Waiting for Morning" 1986

“Waiting for Morning” 1986

It wasn’t enough, and I didn’t yet have the tools I needed to find peace, or clarity, and my cynicism and ancient pain overwhelmed me.  Futility became an everyday experience, and romantic love did not exist in my experience in any recognizable form…

"Marriage" 1987

“Marriage” 1987

Grim, bleak landscapes figured prominently in much of my work by 1987, and expansive vistas of far away places. I wanted to get away, but I lacked certainty about what I was running from, or to.  It wasn’t all tears and trauma, and even our worst trials may be interrupted by some wonderful moments.  Marriage didn’t treat me well, and love was pure fiction as far as I could tell, then, but…

"Lovers" 1991

“Lovers” 1991

I found love for the first time, later on. It, too, was a momentary interruption on a very scary ride through life, then.  It was something to hold onto for later, and that would mean so much…

"Joy" 1995

“Joy” 1995

“Joy” is still my singular favorite self-portrait, because it speaks to me of that moment of wondrous realization that love exists.  It was a mundane enough moment, at the dining table, watercolors out, painting simple sketches of moments and feelings, and suddenly… joy, desire, love, passion, and a feeling of being filled with something powerful, something beyond me, and something that was – and is – profoundly positive and transcendent of pain, and chaos and damage.  If I had any thought I could ‘take it with me’, this is a painting I’d want buried with me – it is the best of all that I have within me.

Life is complicated stuff, and I have rarely been able to ‘hang on to’ the best bits.  I struggled for years, and did what I could to ‘keep it to myself’, even suppressing as much pain as I could through Rx psych meds. The next self-portrait I painted was from within an altered state so profound that I got lost, all the pieces of me separating as mists and fogs, dissipating and leaving me alone, and naked with who I had become…

"Separated from Self"

“Separated from Self” 2010

I began making profound changes to, well, almost everything, shortly after that point. Life as it was couldn’t be borne much longer, and it was obvious, even to me.  I can’t take credit for being a willful adult being making reasoned changes… I’ve got to be as honest as I can on that one. I began grabbing any foothold and laying waste to my moment, to my status quo, hanging on to what felt like a change for the better with real ferocity, and discarding anything that hurt… and of course, circumstances, life, and the free will of others in my life threw assorted changes into the mix, too.

"Communion" 2010

“Communion” 2010

I experienced profound love – that magical, amazing, wondrous sort of love often promised, rarely found.   Of course, life rarely limits our unexpected circumstances to the ‘magical, wondrous’ variety…

"A Ratio of 13 to 1" 2011

“A Ratio of 13 to 1” 2011

A sudden, unexpected, unsought career change resulted in anger, insecurity, and… freedom. I was suddenly free to make radical new choices about that pesky ‘who am I?’ question, free to redefine myself, willfully, as I came off the psych meds and regained my soul, and my intellect, and began to develop a sense of self that didn’t rely on any evaluation but my own.  Damn, that sounds awesome when I read it.  Actually, it sucked.  It sucked a lot, and it was one of the most difficult things I’ve undertaken, and more than 2 years later I am still working on it – although it is now as much a joy and delight, as a challenge.  There will never be enough ‘thank you’s’ to give to the dear ones who have been there for me throughout this incredible period of growth.

"Taking Another Look at Me" 2011

“Taking Another Look at Me” 2011

I have re-examined myself from a number of angles since then…

"His Bitch II" 2012

“His Bitch II” 2012

Who am I as a lover? As a partner? What is sex to me, now? Can I  put my demons to rest?

"Agent of Chaos" 2012

“Agent of Chaos” 2012

Can I ‘get it under control’? Can I ‘figure it all out’? What’s wrong with me? I continued to struggle, and somehow the things I expected would help me… data… analysis… writing in my journal… seemed to be making it all so much worse.  I was ‘spinning my wheels’ and not getting anywhere… I stopped writing. I stopped painting. My soul seemed to be stalled. Hormones. Relationship challenges.  Choices and actions that didn’t align to values I thought I had.  The chaos and damage were taking over, the wreckage in my head was becoming the experience in my life… I felt utterly lost.

"Broken" 2012

“Broken” 2012

At the end of 2012 I painted “Broken”. I was trying to say… something. Trying to explain what it felt like on the inside, to communicate something I couldn’t quite seem to put my finger on… and as 2012 became 2013, I found out about the brain injury I had received as a tween.  (I still don’t remember it in any concrete ‘this is my experience’ sort of way… but the crack in my forehead refutes any desire to wish it away now.)  The new information, and beginning therapy more appropriate to my experiences and needs, kick started 2013 as a year of growth – and real healing.

These are who I have been.  I am somewhere new, now, getting to know this amazing being that i am… facing my world, my life, my experience with real hope, and real healing… I look at these self-portraits now, and it is tempting to be frustrated that I wasn’t listening to me, but I am done punishing myself for what has been, and waltzing endlessly with my demons.

I painted “Perspective” this weekend.  It isn’t as much a self-portrait as a meditation, a reflection on a bigger picture, a useful skill, a necessary step in the process of ‘knowing’ – or unknowing – what is, and what is not, and what may be.  I am 50 this year, and there is a lot to celebrate, to observe, to experience.  Soon… a new self-portrait.

I am learning that ‘who I am?’ is not a question to be answered with words.  🙂