Archives for posts with tag: arthritis pain

Life is rich with eye-opening moments. Some of them are heart-breaking (like the moment I realized I was only a resource to someone I thought loved me, many years ago). Other eye-opening moments are simply moments of greater awareness than the moments that preceded. A few are literally moments at that point at which I open my eyes – like this morning, when I woke, opened my eyes, and found as my initial eye-opening experience that I am in tremendous physical pain this morning. My arthritis. It’s not a crisis of any magnitude, and there’s not much to be done about it that would be new, or particularly noteworthy; I take my pain medication, and I head for my yoga mat. After my morning coffee, I will soak in a hot bath and hope that the saturating heat will ease my pain and stiffness further.

My arthritis is in my spine. I rarely think much about how I rely on my spine until I find myself mostly unable to make use of it in any sort of flexible way. This morning getting out of bed was complicated by both the stiffness and the pain. I rolled off the side of the bed, letting my legs drop to the floor, and leaning on the wall to slowly stand. Sitting and standing maneuvers are difficult today, even after yoga eased some of the stiffness.

The pain is another matter. Even after easing some of the stiffness in my spine, I am hurting too much to find joy in the day, so far, which makes me cross. I reach out to my traveling partner and cancel plans to hang out. I am in no mood to be in the company of others, and for the time being, all I can think about is the pain. While that may change as I practice good self-care practices, I can’t really rely on being able to hold on to a pleasant demeanor long enough to be certain of treating others well. Solitude is a good choice when I am in this much pain. I don’t mind the solitude – and I definitely dislike finding that I have treated my traveling partner poorly over something as trivial (and commonplace) as pain. It was an easy choice to make, and my traveling partner does not complicate such things with manipulation, tantrums or drama; he appreciates being treated well.

Summer flowers are everywhere; I only see them when I look. Awareness matters.

Summer flowers are everywhere; I only see them when I look. Awareness matters.

The weather forecast is for a hot day. I take a moment to appreciate the existence of air-conditioning, sip my coffee, and pretend to plan my day in some way that isn’t centered on the pain I am in – but I keep finding myself accounting for the pain in a very frank way as I figure out what I want to do with this day – I keep having to remind myself that some of the things I might like to do are going to be damned difficult if I can’t bend, reach, lift, carry, get down on the floor and back up, sit in one place, or generally move with any ease. I am irritated to be stalled by pain. I remind myself to be kind to myself; this fragile vessel can only do so much on a day like this, and there’s nothing lazy about that.

I sip my coffee indifferently, contemplating just going back to bed…but that won’t work either; it was the pain of being in bed that woke me, earlier. I frown at myself for a moment; I am not making taking care of me easy, at all. I pause and put the focus on the good qualities of the day, the pleasant features of this moment, just beyond the pain…

Clematis on a summer morning is lovely even when I hurt.

Clematis on a summer morning is lovely even when I hurt.

…It’s a lovely morning, in spite of the promised heat of the day. The early morning sunlight is clear and bright, and filters through the blinds casting interesting stripe-y shadows that I enjoy greatly. The coffee I have been sipping with such disregard is quite delightful – a darker roast than I have been drinking (I tend to prefer darker roasts, myself). I am enjoying the warmth of the mug in my hands when I pause to take a sip.  (I nearly always finish my coffee in sips, consuming it well before it cools off, most days.) The a/c kept the apartment quite comfortable through the night, and I slept well and deeply, and woke feeling alert and clear-headed. Most of the housework on my ‘to do list’ for a Sunday can be done with relative ease, even when I am hurting, and occupying my time in that fashion will quite likely take my mind off the pain for a time. I have a couple new books to read, and it looks like a great day for that, too. I can choose from  Pablo Naruda‘s “Twenty Love Poems and a Song of Despair”, Thich Nhat Hanh‘s “Anger”, or Naomi Wolf‘s “Vagina”. Taking breaks between chapters to do yoga will help ease my pain and stiffness if I find myself sitting too long.

It’s admittedly easier to focus on the pain; it shouts at me within my consciousness in a way that the pleasant details of the morning simply don’t compete with easily. It is worthwhile to patiently choose to be aware of more. Like so many practices, it does take practice, and there are verbs involved. My results vary. 🙂

The heavy scent of summer jasmine reminds me of my childhood home. I wonder why I haven't gotten a potted one for my patio yet?

The heavy scent of summer jasmine reminds me of my childhood home. I wonder why I haven’t gotten a potted one for my patio yet?

Today is a good day to practice exceptional self-care, and to treat myself well. Today is a good day to make choices that result in not treating others badly. Today is a good day for good choices, good practices, and an awareness that there is life beyond pain. Today is a good day to enjoy everyday moments of delight, and to practice self-compassion. This fragile vessel can only do so much, and there is no rush to complete living as though it were on my task list; the journey is the destination.

This morning I woke in pain; my arthritis has flared up after many days of not bothering me much at all. The hot dry days offer relief…but…it’s still hot. It’s still dry. I am in pain. I slowly rose, patient with the stiffness of my spine. This is a morning for music and dance, cool breezes be damned. I peer through the patio blinds and notice with some surprise that already the days are shortening and dawn is coming later…did I wake ahead of the alarm? I double-check. It went off. It woke me. I no longer remember hearing it. Pain is a distraction.

I start the day with Usher, and coffee. Facebook tells me my computer is infected with malware. I glare at the page with skepticism and irritation. Why is Facebook telling me what to do? I log out with a promise to myself to let my traveling partner know; I trust him, and his skills, more than any app or browser warning. Hell – the warning probably is the malware, requesting permission to get started. For the moment I find myself in contemplation of all that is unclean and vile about the internet, and my head aches with the weight of the suspicion, and distrust. The pain, again, is a distraction.

I reach for my coffee, and burn my tongue, then spill it in my lap for the added delight of hot coffee held to tender flesh by coffee soaked jeans. Seriously? Who the hell ordered this day? I snarl at myself, managing to knock over my chair as I get up, too quickly, to change clothes. The chair falls on my foot. Great. The top I wanted to wear doesn’t go with the pair of jeans I just put on. The top I’d wear instead is in the laundry. I break a nail reaching for an acceptable alternative. Are you fucking kidding me? What is up with today?

Pain is no joke. The unexpected return of significant arthritis pain this morning easily throws me off, which would be, perhaps, just a little amusing in the face of words like ‘chronic’ and ‘long-term’ – if I were in any mood whatever to laugh about it. Right now I just hurt. I hurt and I’m sort of mad at the day right now. Don’t say it. I know what works. There are practices to practice and it’s time for that. I get it. Pardon me while I take a few minutes to take care of me.

Yes, yes. I know.

Yes, yes. I know.

1. I took my medication on time, and it’ll take another 30-40 minutes to be fully effective. It only addresses the symptom: pain. There is more to do to put the day back on track.

2. Medical cannabis helps by potentiating the Rx pain reliever – and it will take the edge off my quickly deteriorating mood, and wipe the snarl off my face promptly…and make yoga easier.

3. Putting the rest of the morning aside, yoga is next, and I take my time with a long sequence of postures that lengthen and gently flex my spine, easing the pain where the pain lives. The headache begins to diminish.

4. Then, meditation – this is an Rx that goes straight to the brain, literally, and is a first/last/always step for me these days…although, sometimes, like a child resisting bedtime I fight the necessity irritably for no good reason.

5. Coffee. I take my time making a really first-rate cup of coffee for myself, and sit down to enjoy it, feeling very much that the morning has been ‘reset’.

It is once again a morning filled with music and I am smiling and sipping my coffee as contentedly as if I woke up on an entirely different morning. Choices, verbs, patience and self-compassion, and the willingness to accept that the potential to improve a poor experience exists…and practicing practices for the win. 🙂

Enjoying other moments.

Enjoying other moments.

The morning moves on, time passes, I sit quietly enjoying pictures of a walk with the wanderer after work, yesterday. If I spend more time thinking about the rough start to the morning, lingering on uncomfortable sensations, unpleasant emotions, or the difficulties themselves, than I do savoring the delights of other moments with similar depth and clarity, over time my negative bias will increase, and my ‘background experience’ will become more negative as well. I take this understanding very seriously, and commit to enjoying my coffee and thinking about the evening behind me. I linger over the recollection of finally taking a photograph of a dragonfly.

He's there, really. (I have no idea why I like dragonflies so very much, but I do.)

He’s there, really. (I have no idea why I like dragonflies so very much, but I do.)

I think, too, about the later conversation with my traveling partner, and the feeling of connection and warmth in spite of the physical distance. That takes my thoughts all sorts of lovely places, thinking about love, Love, and loving. At this point there is no hint of the morning’s challenges remaining in my experience of the moment, and I find myself ready to move on with the day.

Am I achieving emotional self-sufficiency? Do I need to ask this question now? Living the experience is, perhaps, enough.

Beautiful.

Beautiful.

Today is a good day for practicing practices, using verbs, and having my own experience – if it’s mine, I can change it. 🙂

I love fairy tales, and stories with a strong heroine, who faces a challenge, learns a lesson, and grows to become someone wonderful. I like a happy ending. I read a lot of ‘happily ever after’ endings over the years, and at some point ‘happily ever after’ became an implicit goal. That’s especially maddening because that is basically the least attainable goal ever imagined. I enjoy feeling happy. I find ‘joy’, ‘delight’, and all manner of pleasant happiness-related, happiness-producing quite wonderful and worth experiencing. I didn’t have much success making the whole point of existence getting to some difficult to define ‘happily ever after’ place. Quite the contrary, I think making ‘happily ever after’ something to chase resulted in a lot of personal unhappiness.

I don’t actually understand why happiness seems so much more common now that I’m not chasing it…but it does tend to be the experience I am having.

Unfolding like spring flowers.

The loveliness of simply being.

I am okay right now. It wasn’t my best evening. I enjoyed the day in relative physical comfort. By the time I arrived home, after a chilly drizzly commute, I was in pain and irritable. If I could fold time, I would put this moment, here, adjacent to my arrival, and perhaps enjoy myself and my family more, being in a better mood, and less pain. I’m not complaining, and I don’t recall being unpleasant, just in pain and perhaps too tired to be more considerate with my phrasing; I know it takes a lot to hurt my traveling partner’s feelings, and I know I succeeded. I will make amends in the morning, learn from the experience and move on. It’s okay to treat myself with great care, even though I feel badly about the evening going a bit sideways, and I have spent the evening gently, managing my pain, watching South Park, and writing. It was my intention to do these things when I arrived home hurting so much, and it’s pretty satisfying to find that good self-care has indeed helped a lot, although I am still in too much pain to be able to sleep just yet; yoga will help with that a lot, and meditation afterward is a nice way to finish the day.

Every time something works out just a bit better, I take time to really appreciate it, notice it, and hold onto the experience for some minutes. I ‘let it soak in’. I make a point of continuing those practices, and even investing more time in those that are regularly part of some new moment of personal success. In the most difficult moments, I am sometimes very briefly so bitter and hurt that I am unsure these things really matter, or that I am actually making progress day-to-day. The doubts are incredibly painful, and I am very relieved each time I get past that moment, to this place when ‘I am okay right now’, and able to enjoy the moment of progress, or resilience, or emotional safety – successes, all.

Stormy sky, quiet evening.

Stormy sky, quiet evening.

I feel more vulnerable sharing successes, than I do ‘failures’, or learning experiences. Vulnerable is okay, too. It’s a nice evening.

I’m quietly contemplating my evening’s ‘crash landing’ and wondering why? The house is quiet, but it isn’t late and I don’t know that anyone is sleeping. I know I am not.

It wasn’t a bad evening, quietly hanging out and watching videos of this and that. Calm. Pleasant. Eventually ‘good nights’ were exchanged. I am feeling very mortal waiting for the test results from my biopsy. I find myself ‘trying to be brave’ like the small girl I once was and hoping to let it go until I get the results – any other choice seems silly in the abstract. I am so very human.

Stormy weather...

Stormy weather…

I hurt tonight. I’ve got a terrible headache, probably stress or fatigue. My arthritis hurts. How is it I hurt this badly and still want romance? It’s frustrating. I’m not exactly approachable; I am fragile, reactive, and emotional. That’s really where it all breaks down – in one simple question, and in an instant of contemplation, “How are you doing?”. “Well, shit, I was mostly fine until you asked, actually…” but I never manage to say that. I blurt out the details of how I am doing – however that happens to be, and with the force of whatever emotion is bound up in it all – and it tumbles forth in words…and emotions, in no particular order, and with full real-time intensity.  It must suck on this whole other level to live around this injury, and the chaos and damage I wade through every day – I just don’t have the same perspective on it. How can I?

I don’t know what I’m to learn here. There’s something to be learned, I’m sure of that. It’s late, and these tears don’t matter a tinker’s damn to the massive ills of the world. This is some minor league suffering, right here, and there’s a chill calm part of me that recognizes the subtle difference between the simple sorrow, itself, and the wave of suffering that follows, self-inflicted. Part of me feels foolish to be so storm-tossed, like an adolescent girl; the thought reminds me it’s only been a bit more than a week since I started on the medication I was given – hormones. There are so many moving pieces to this whole ‘taking care of me’ thing. I feel like a dick for having a minor meltdown when I was unwittingly on the brink of being handed a few moments of connection, contact, and affection that I sorely needed at the end of a difficult week.

Sitting here quietly in the darkness, I also feel: sympathetic, compassionate, warm – understanding. What did I expect with the hormones, the headache, the fatigue at the end of a long day, hurting well beyond what my Rx handles, and waiting for test results? I sit calmly, wondering what to do to take care of me most skillfully, and with greatest love. Sleep, soon, probably…

There’s a new day, tomorrow. Love is pretty ‘forgive-y’ (if that’s even a word)…but choices have consequences, I’ve hurt someone dear to me, and tonight I am alone. Perhaps the dawn will come and find me smiling…certainly there’s enough love to go around if only I am open to it. There are verbs involved.

...I still have so far to go.

…I still have so far to go.

Yesterday was cold – winter-cold, as in to say ‘it’s winter’. Yep. It’s generally the time of year for winter holidays in the northern hemisphere. I went to work bundled up in weather appropriate garb, and still felt stiff and cold by the time I got to the office. By the end of the day, I was in a nearly unmanageable amount of pain, and chose to bring my evening to an early close after a hot shower. I didn’t get to sleep any earlier, really, but I also didn’t treat anyone poorly. This morning I wake, stiff and hurting. Winter often brings more pain, and I find myself aware that my own awareness of that isn’t helping…I set that thought aside and reach for another, and my coffee.

On my way in to the office yesterday, I explored the recent significant increase in my anxiety level (work related), and used a variety of new tools and skills to take a look at more closely than I have. I used perspective to give myself an improved sense of scale and recognized it isn’t actually as severe as it once was. I used walking meditation to remain engaged in the moment, and aware of my emotional experience without judgement, and the seeming profundity of the feelings diminished considerably. I used body scan practices to sort out the emotions from the sensations, which tends to change the sense of an emotion from being very significant, to simply being, further alleviating the anxiety. I used cognitive practices I learned using SuperBetter – like a ‘reality check’ – to decrease my tendency to escalate internally based on untested assumptions, and each practice I practiced took me a step further from being anxious. The root cause was clear and obvious as soon as my heart was calm and my thinking was clear; it’s really just work anxiety. Hardly noteworthy; I’m sure everyone has occasional anxiety about work, career, employment…something in that area.

Work anxiety isn’t pleasant, and it does keep me up at night and messes with my sleep…but…what if my messed up sleep is actually causing the anxiety? What if it isn’t ‘real’ at all? Thoughts…emotions…both rather astonishingly lacking in substance…maybe I shouldn’t be so ready to attribute cause and effect, or be haphazard about assigning relative importance? As I walked I allowed myself to consider the extreme…what if ‘the worst’ happened? I startled myself to laugh out loud when I realized I was – even now – holding on to ‘losing my job’ as some  pinnacle of misery, some worst case scenario. It isn’t. My employment, what I do for a living, may well be the very least important, significant, or defining quality about me as a human being; its damned near irrelevant…particularly because of the person I am, and the values I hold, and what I hold most dear about myself, and life. Work? It’s a characteristic, and changeable. I’m a human primate; I’m adaptable. The loss of any one job doesn’t have more significance than any other change – unless I allow it to.  I felt a bit of vertigo as my values kicked my anxiety in the nuts. The work day was just fine – other than the pain I’m in.

It's all about perspective. What we choose to look at changes what we see.

It’s all about perspective. What we choose to look at changes what we see.

I woke this morning, stiff, and with a headache. The air feels too dry. I’m a bit cross. I do what I can to set clear expectations and boundaries with regard to mornings; it takes about an hour for my medication to be fully effective, for my brain to really come back online, and for my stiff joints to regain some mobility.  I take active steps to avoid interacting with people until I can more easily and reliably treat them well. Funny how often – even in the face of that very clear, very specific expectation and boundary setting – some human primate or another will crowd me, or try to have reasoned dialogue about…well, damned near anything. I’m just not ready. My traveling partner knows me well. He too is a human primate, and the recipient of some of my boundary and expectation setting. Tip for other free-range human primates: if you are going to step across that line, arriving with a hot tasty latte is an excellent success strategy. LOL My Americano was tasty, and hot… but there’s nothing ‘creamy’ about an Americano. As it turns out, I find ‘creamy’ an extraordinary delight in the morning. I still hurt. I still have this headache. Now I also have this tasty latte, and a really charming funny guy to hang out with before work!

Today is a good day to take things as they come. Today is a good day to be adaptable, flexible, and to make the best assumptions of others, where assumptions must be made at all. Today is a good day to change the world.