Archives for posts with tag: arthritis pain

Most mornings proceed pretty gently for me these days, and even on the worst of them I get by pretty well, and treat myself decently, and with considerable compassion. This morning was less than usually gentle, and although I’ve done what I can, I am less than ideally kind to myself – I am frustrated by my limitations and feeling irked. It’s not the best addition to my morning coffee, which somehow tastes bitter in spite of using the same coffee I find so richly satisfying most other mornings – and in spite of my general lack of ability to detect bitter flavors in the first place. It is one more defining detail of the start of my day.

I woke from a sound sleep, head as stuffy as the room also felt, throat dry, head pounding, and the clock factually admonishing me that it was already 5:30 am, well into the ‘I may as well get up’ time of morning [for me]. I definitely did not want to get up, and I felt groggy and out of sorts. I got up to pee, and opened the patio door to the morning breeze, hoping to cool the apartment down without fully waking up, and noticing my pain well beyond the usual as I did so. (That makes it sound far more efficient than my hapless dizzy clumsy careening around the room actually was.) I took my morning medication, drank a glass of water, and returned to bed, hoping to sleep in spite of the pain. That doesn’t always work out for me, particularly after sunrise, but on this gray overcast moody looking morning, and after considerable tossing and turning trying to find some combination of pillows and posture that would allow it, I slept.

I woke later to a cool room filled with fresh morning air, headache gone, and easily able to breathe. I feel rested. I still hurt. I am in more pain than usual, possibly just the ordinary change in my arthritis pain that comes with a change in the weather. Yesterday, sunny, warm, and clear… today, gray, overcast, cool, and threatening rain – it’s very much the sort of change that comes with more than usual pain, and I feel less cross with myself recognizing that. (At 5:30 am it was less obvious that it would be a cloudy day.) My coffee is still pretty dreadful… and I give some moments of thought to whether it makes more sense to pour it out and make another cup, or just drink it and have a better second cup later? I get up to go pour it out and start over… then remember I am currently getting by on limited income. Shit. I sit down, taking a more practical, frugal approach, and sip my coffee as it is… glaring down into the dark brew now and then, wondering what the hell went wrong with my process this morning to get this result?

Still… pain and a bad cup of coffee isn’t the whole of my day, or of my experience – it’s not even the whole of my morning. I’m barely awake yet, and the day stretches ahead well beyond my ‘now’, unformed, unlived, and largely unimagined. There will be verbs involved, and choices. 🙂 I sip my coffee and wonder whether or not ‘taking care of me’ today is more about yielding to the pain I am in and compromising my loose plans for greater comfort… or refusing to let my pain call the shots, and undertaking the things I am inclined to do, more slowly perhaps and less comfortably, and just understand that the pain is what it is, and it’s part of my experience more often than I’d like… It’s a hard call this morning. If it actually hurt less to just go back to bed and stay there… I probably would. It doesn’t, so that’s not even an option. lol

That’s a funny thing about the vast menu of choices life presents me with, that I don’t consider as frankly as I might, as often as would be helpful… there are some things I want very much to be choices of mine, that are not in fact on my own actual [still vast] menu of choices to consider – when I am honest with myself. I can’t really choose not to be in pain with my arthritis in any realistic way. I can’t choose to be younger. I can’t choose to change the past. I can’t choose to begin somewhere over there, when I am standing right here. I can’t choose for any of the many details of reality to be other than they are – although I can choose to ignore them, or pretend them differently, the consequences of my actions remain tied to the real reality, and the true truth. Reality does not care what lies we tell ourselves. Our truths have very little to do with what we say in words.

So… this morning… pain. I still want to go to the farmers’ market this morning. When I go, some later, I will still have to be mindful that my resources have changed a lot, and being frugal has value – this is a poor time to be careless or wasteful with resources. I will need to slow down a bit, and manage my pain – or my pain will take the driver’s seat and manage my mood. Choices. Always choices. It’s worthwhile to take a few minutes over my coffee to consider what my choices really are – and where they lead me.

I decide on a hearty breakfast at home, accepting as a given that shopping when I am hungry may drive unintended spending. Before breakfast, a walk and yoga. A second cup of coffee. A hot shower. I notice in this one moment, right here, now, I am not actually in pain… I don’t question that, and I do pause everything else (writing, coffee, gazing at the bird feeder beyond the window…) and take some time to be aware that I am not hurting, to savor it, to linger over the sensations of feeling good; doing so is a practice that shifts my implicit memory away from ‘being in pain all the time’ to being aware that I am not always in pain, and improving my day-to-day perspective and sense of my experience. Moment by moment I build my day… the difficult start? Just one moment of many to come, and I let it go. 🙂

Neither a single ocean wave nor one small bird defines a day at the beach.

Neither a single ocean wave nor one small bird defines a day at the beach.

I woke up in pain this morning, more pain than most mornings, and particularly more so than recent mornings.  A morning with an unusual amount of pain kicks over some self-care dominoes pretty quickly, and I found myself clumsy, slow, and emotional before I’d even finished my first coffee.

Clumsy with pain, and not my best cup of coffee. One morning, one moment, of many.

Clumsy with pain, and not my best cup of coffee. One morning, one moment, of many.

I’m okay, really. At this point, I am struggling more with the un-eased stiffness of my arthritic spine than with the pain itself. Coffee #2 is quite excellent, and I’m finding a bit of yogurt with some oats and dried fruit mixed in quite satisfying for a late bite of breakfast. The morning is a good one, pleasantly relaxed and without stress…aside from the pain, the stiffness, and the coming and going of emotions associated with those experiences. I am in enough pain to evoke tears, each time the pain resurfaces. The stiffness of my joints makes me ‘feel old’ more than the pain itself does, but the pain is what moves me to tears. Now and then I contemplate just going back to bed, although it was likely some characteristic of how I was sleeping that finds me here this morning. I feel frustrated and annoyed.

I checked in with my traveling partner online between coffees. I miss him greatly, and we had discussed hanging out today. I am a lot less fun when I hurt this much. I feel the frustration in the background, and a yearning to ‘force myself’ through ‘whatever it takes’ to ease my pain – not because I hurt, but because I want so much to hang out with my traveling partner and enjoy that time together wholly undistracted by pain. Punishing myself because I am trapped in this fragile vessel, limited by mortal limitations, isn’t really a good way to treat myself – or to get the results I’d like, either, and tends to put me in a bad mood over time. I stop myself long enough to recognize that I am doing my best, and remind myself that it is enough.

I put myself on pause to meditate. I take time to do some yoga. Both these things offer some measure of relief of both the pain, and the emotionality. I sit quietly, and enjoy my coffee while watching the rain fall just beyond the patio door. I’m okay right now. Pain is what it is, and I am dealing with that today, but what I’m not having to deal with is treating myself poorly for a condition in life that is not worthy of blame, or punishment. I’ll enjoy the day, in spite of the pain I am in – because it isn’t the pain that determines the quality of my experience, it’s just something I have to deal with.

I take some good deep breaths, sip my coffee, and pay attention to my posture as I write; it is an easy enough bit of mindfulness to bring to my experience and relieves considerable discomfort. I lose sight of it repeatedly and, as with any bit of mindfulness, that’s to be expected. I begin again. And yet again. I keep practicing. Over time, I relax more comfortably with better posture, slowly encouraging muscles that may not have been doing their part to become stronger and more involved. Incremental change over time is a powerful thing. With the yoga too, postures that were too difficult upon waking are now within reach, and later today I will achieve others that offer still more relief. The toughest of the practices on a morning like this one is simply being patient with myself, and giving myself the time and consideration to get results more slowly than I might on another day.

I smile thinking of my traveling partner, and hope that his morning is going well, and that his coffee is excellent, also. Today is a good day to smile, and enjoy what each moment offers; the moments themselves are so few in a mortal lifetime. Today is a good day to appreciate what is working out well, and any improvements that develop over time. Today is a good day to appreciate the woman in the mirror and to treat myself well, rather than criticizing my best efforts on a difficult day. Today is a good day to enjoy my coffee and listen to the rain fall. It’s enough.

 

I am a fan of explicit expectation setting. I am also a person who struggles with some sorts of unexpected changes – maybe you are too? With both those things in mind, I figured I would make a point of saying that I will be shifting my writing from early mornings to late evenings; I’d like to take more time in the mornings to meditate, and start the day slowly, and with summer becoming autumn, and winter not so far off at this point, pain management will be enhanced by doing (more) yoga in the mornings, too.

Change isn’t so bad; I enjoy a change of perspective now and then, and I find evenings and mornings fill my thoughts quite differently. When I started this blog, I often wrote in the evenings. At that time it was a less-than-ideal fit for the needs of others in the household. Mornings were ‘easier’. That’s no longer a significant consideration and for some time to come I expect I will need a bit more in the way of self-care, just to manage my physical pain as the season changes.

I am hopeful the change in timing will be comfortable all around…this post will be waiting for you tomorrow morning, as if I wrote it at the usual time, and I will sit down to write after work tomorrow evening – perhaps with my head in a very different place, open to other ideas, and different ways of viewing life and the world than what mornings have tended to reveal?

A change of season, a change in routine, a change in perspective.

A change of season, a change in routine, a change in perspective.

Today is a good day for change, and a good day to take care of me. 🙂

 

I woke ahead of the alarm, and almost immediately my thoughts turned in a dark direction, filling with negativity, doubt, imagined hurts – all in the seconds after waking, before my broken brain really has a chance to boot up and fight the demons in the darkness. With a sigh I flip on the light – and reach for the alarm clock. No way to I want to hear it go off – my internal alarm bells were already clanging away.

I took my morning medication and went straight for the music – “Bitch Don’t Kill My Vibe” for openers, first thing, and loud enough to hear in the shower. In this case, the ‘bitch’ in question is the woman in the mirror – and I sing along, right to her face, all through my shower and getting dressed for the day. Seriously? Acknowledging the power of my own freedom to choose, and the potential it has to color my experience, means on a morning when my own brain attempts a sneak attack – it’s totally okay to call me on my bullshit, myself. By the time my coffee is ready, I expect to be past the difficult waking moment, without using up the emotional reserves necessary to deep dive the chaos and damage; it’s enough to recognize that I have more than my share, and understand that it can make for some challenges now and then. (At least, that’s definitely enough at 4:30 am on a work morning, before I am even completely awake!)

By the time my coffee is ready – I’ve recovered my now-utterly-routine peaceful leisurely morning. I celebrate with my favorite bounce back anthem. Dancing from the kitchen with my coffee, singing along as I cross the room with a wink and a smile at the woman in the mirror – that crazy bitch knows I am not taking her bullshit today! lol [Reminder: there are no literal voices in my head, and I am just this one person right here – but I do find it handy to face the woman in the mirror on terms that allow me to communicate more easily with myself across the chasm of this injury and the vast piles of chaos and damage left behind from other experiences with other people.]

It’s a morning for music, I guess. I am moved.  Listening to “Love Sex Magic” when it comes up in the playlist, I grin and feel the residual heat and fervor of my love for my traveling partner…and on some other level, my pure delight and animal enthusiasm for healthy adult play, generally. Few things chase the demons back into the darkness like a really good playlist. 🙂

Aside from the complicated moments immediately after waking, it’s a lovely morning. My coffee is tasty, smooth, hot – and I managed it without spilling boiling water on the counter when I moistened the filter, or getting dust from ground coffee all over the floor – I often do both. It’s okay; I’m learning not to take my own humanity personally, or treat small such ‘mistakes’ as any reflection on my worth as a human being, a partner, a lover, artist, writer, or woman – hell, it’s not even “about” having a brain injury. Every human, everywhere, has moments of clumsiness, makes mistakes, causes a mess by mistake, or falls short of their own vision of who they can be on some occasion. Perfect? It’s not a thing in real life. I’m over that. I haven’t lost anything but some needless heartache to let go of emotionally brutalizing myself over ever action or outcome that could be viewed as a mistake – and with good reason, frankly; too many of them turn out to be, if not utterly necessary in some unanticipated fashion, just not a big deal at all, and definitely unworthy of the drama, turmoil, and hurt. I figure, over time, continuing to treat myself well in this fashion will also result in having the reaction, itself, come up far less often. That tends to be how incremental change over time works out.

My arthritis is hurting a lot this week. Dancing helps – hurts, but it does help, and the easiest way to overcome the inertia of pain is to find movement irresistible – that’s dance, right there, isn’t it?  Turning on the music this morning was a good call for my body, as well as my heart and mind. My playlist is mostly dance tracks, hip hop, crunk, and couple of other favorites that ‘don’t really belong here’ (Santana, Billy Idol, Skrillex) … only… this is my playlist, and they do ‘belong’. How much easier would so much of life be with practices that made the practicing itself irresistible? There’s often a real thrill or moment of gratification associated with experiences in life that present the greatest risks of negative outcome… sex… money… rage… That’s more than a little bit inconvenient for a woman with a dis-inhibiting brain injury, trust me. I’m glad I can yield to the urge to dance without concern for adverse consequences. 🙂

A summer day, a journey that continues.

A summer day, a journey that continues.

The point this morning, as much as anything, is that I am often in my own way more than anything else is. Injuries do happen. Pain is part of the human experience. The constant struggling is a choice. Learning to make my choices differently is a process. Today is a good day to practice the practices that are working best for me. It’s a good day to remind the woman in the mirror I won’t be taking her shit, either; we need each other, but I won’t be allowing her chaos and damage to call the shots, when I can avoid it with other choices. Today is a good day to enjoy the journey.

This morning my arthritis pain is…well, it is. But it isn’t as much so as yesterday, and the improvement is the foundation on which my smile is built, this morning. My coffee is hot and tasty, and the morning is chilly – this seems a pleasant combination, and tends to reinforce the smile. On my way to make coffee, I spotted my rather shy clown pleco (Panaqolus maccus) scooting out of view and I grin from ear to ear to have seen him at all. He has his favorite hiding spots and generally only ‘comes out’ when he’s pretty sure no one is watching.

The only picture I've gotten of my clown pleco since I moved.

The only picture I’ve gotten of my clown pleco since I moved.

So far, a basically pleasant morning, filled with small things to smile about, and some arthritis pain. I start to think ‘not bad for a Monday’ and catch myself rolling my eyes rather dismissively; there’s nothing ‘wrong with’ Mondays – and setting those expectations, even in a back-handed way, is no way to treat myself, particularly on an actual Monday. I find my thoughts wandering to ‘how did we find our way to a place where Mondays are given such a poor reputation?’ We can get pretty worked up about how shitty Monday’s might be (or tend to be, or seem to tend to be, or are rumored to seem to tend to be), but in practice, are Mondays actually any worse than any other days? Maybe Mondays are worse for people coming off a weekend bender and having to drag themselves through an ugly commute into the office to commit acts of servitude in corporate purgatory…but even that…I feel kinda bad for poor Monday having to listen to people talk shit on her all the time. Pretty good that she’s not a person.

This particular Monday seems to be starting well, at least for me. I am not reading the news – even the articles linked by friends on Facebook get no attention from me this morning. They’ll be there on Tuesday, no doubt. I am enjoying my coffee, my yoga, my meditation, my writing. I am enjoying an email from a dear friend. I am enjoying a pedicure, and a foot rub – oh sure, I know as well as anyone else that a foot rub I give myself doesn’t feel ‘as good’ as a foot rub given to me by someone else…but living alone doesn’t mean I simply go without everything that feels good. lol. That would suck, wouldn’t it? (I assure you, a foot rub I give myself still feels pretty damned good.) I woke a little ahead of the alarm this morning, and feeling well-rested, I got up. There’s more time in my morning, and on a Monday I suppose I could go to work early…but damn, what does the job ever do for me that I didn’t straight up earn in the first place? Nothing. I do verbs of a variety of sorts, for a variety of purposes and persons, all the time, and certainly I am worthy of investing in my own needs and pleasure on a Monday morning; the job will still be there at the usual time. I choose to put my time and my effort where it will be most appreciated this morning – in myself, and meeting my own needs.

The sun rises noticeably later each Monday. It is still summer, but this morning is not a hot one, and I am pleased to wear something less…sleeveless, for a change. The morning is comfortably cool. I smile, noticing the time; it’s only now the time I usually wake up, a leisurely Monday morning, indeed – with plenty of smiles.

I spent much of the weekend, in spite of pain, puttering around the apartment continuing to ‘move in’ – smaller tasks, now, but the details are part of what makes this place “home” for me. In the rush of having to move ahead of schedule (my safety is more important than financial concerns, honestly), details that I would have handled quite differently got…’managed’ hastily and without much forethought: paperwork stuffed into drawers, unrelated items packed into boxes that were not well-labeled, and on moving in some cupboards were stuffed with things that “don’t really go there”, just to reduce visual clutter enough to create a sense of order, and momentum to continue unpacking.  I love creating order from chaos. I love the sorting process of figuring out where things most ideally go for both storage and use. I love creating this space that “feels like I live here”. The small details of moving in delight me – my comfort, built on my choices. It’s lovely to have this autonomy after so many years of conversations resulting in me compromising what works for me so that someone else can have what works for them. I guess that sounds pretty selfish… for now I am okay with that. I have lived a lot of years making do in living arrangements not well-suited to the issues I have, or set up such that daily life is an impediment to therapy, or rehabilitating this injury. I’m overdue to enjoy things “my way” for a while. (First, I’ve had to figure out what that is…) 🙂

Monday? It’s a good day to spend time with the woman in the mirror. It’s a good day to take a ‘no compromise’ approach to treating myself well. It’s a good day for simple pleasures, and for bringing a smile into the office – and into the world.