Archives for posts with tag: experience

Yeah…this is not about ‘management’ as in ‘leadership’, and it’s not about improving one’s resume for a better paying job with keys to the executive washroom. Nope. It’s another sort of ‘executive’ ‘management’ altogether. The ‘executive functions‘ of the brain manage cognitive processes, such as (and likely not limited to) working memory, reasoning, task flexibility, problem solving, planning, impulse control, and in specific areas like the ‘orbitofrontal cortex’, things like evaluating subjective emotional experiences (and so much more). All very interesting, no doubt, but for me it’s a little more personal, and relevant…my TBI is a frontal lobe injury. The lingering impairments are mostly executive function sorts of things, and as with so many other people, and other TBIs, very interestingly individual – the brain is fancy, and the outcome of any given injury is equally individual. A whole new world of potential to heal and move on opened up when I started learning more about how these injuries work (don’t work?), and why, and how it changes my experience… and in so many moments, the experience of those who make their lives (or work) with me.

It is what it is, at least the piece where I look in the mirror every morning and I am… me. It’s not all bad. It’s better, actually, than it once was. I’ve learned a lot. I’ve grown. I’ve become more skillful at caring for this broken vessel, and at sorting out some of the chaos and damage that lingers.  It is, sometimes, a shit experience and I struggle. Very human.

How about this one for a great practical joke on one human primate by the universe… one of my ‘favorites’… my PTSD causes serious sleep disturbances, nightmares, sometimes insomnia, and diminishes the hours of restful deep sleep I can get; I’m easily awakened by the littlest noises, or novelty, in my nighttime surroundings… (waaaait for it…) and my executive function impairments are much more pronounced – to the point of being quite obvious – if I don’t get good rest, reliably, pretty nearly every night. So… yeah. A night or two of poor sleep, for whatever reason, and I start… declining. My temper is often the first obvious sign that ‘things are not right’ – I become irritable, and easily angered, and feel less positive, generally, when my sleep is of poor quality. Next up, I start struggling with emotional balance, and lose ’emotional regulation’ characteristics in my day-to-day experience most adults don’t even realize they have going on in the background; I feel them most particularly when they slip away unexpectedly.  The more tired I become, the more fatigued over time, the more prone to real tantrums, crying jags, and irrational mood swings I become – and (waaaait for it…) less able to sleep; my brain won’t shut down. When I do find sleep, I sometimes dream that I’m awake in such detail I wake exhausted to the point of tears. Yep. Pretty god damned funny. (Not)

Most of the time, these days, I still manage decently well overall…enough to pass as a grown up most of the time. There’s no real way to share what the subjective experience is like (you sort of have to be there). Every one of the many calming practices I’ve learned matters a great deal. Every choice counts. Every effort is meaningful. Every success – however fleeting, however limited the benefit, however difficult it is to recognize in the moment – every success builds the foundation for successes to come. My hope is that over time, that foundation grows substantial enough to bear the burden of the entirety of the chaos and damage…strong enough to hoist me above the pain, long enough to really see the view from a radically different perspective somehow ‘above it’… I would very much like to keep working at life and love to find that I have transcended what has hurt me most and become that woman – or more – that I might have been without the chaos and damage.

Please don’t tell me that’s wishful thinking. Tonight I couldn’t bear to lose the crutch of some shred of positivity to lean on. I’m tired. I know I am. My brain is buzzing like it’s noon on a sunny summer day; I’m not sleepy…but if I can practice good practices (meditation, and yoga are both very calming), and avoid becoming negative, or caught up in some random moment of weirdness, or a sneak attack by my own brain, I might sleep – or at least rest. Rest is okay. Rest is enough.

Enough is okay with me. Hell, I’m not even having to ‘do it alone’, really; my traveling partner checks in now and again. I welcome the closeness, the touches, the tenderness. The reassurance that love is, helps me find my way in the darkest darkness.

Wrapping this one up on a positive note; perspective matters, too.

Wrapping this one up on a positive note; perspective matters, too.

I’ve gotten some decent sleep this weekend, even ‘slept in’ two days in row. This morning I slept until nearly 9:00 am. I woke abruptly, some noise most likely, but truly I was well-rested and returning to sleep was neither likely, nor would it be a healthy choice; the day had begun. I woke in considerable physical pain, and moments into the morning it was clear that I was not yet sufficiently able to maintain emotional balance to be casually interacting with people – I was genuinely hurt by the initial interaction with one member of the household, this morning, and it was not worth all that; it was a just moment of insensitivity and callousness common to people before they are completely awake, first thing in the morning, and I myself was also just waking up and prone to taking things excessively personally. It wasn’t personal, but I was – and perhaps still am – unprepared to deal with it appropriately, although I think I did okay with it. Pain management is a very big deal for good emotional resilience; if my pain is not well-managed I tend to take things more personally, and also struggle with being very emotionally needy. I chose a wiser path, and took my coffee with me into a quieter space, to take time for meditation, then catch up on email…and now, here I am.

Choose your experience; we're live and unscripted.

Choose your experience; we’re live and unscripted.

Good sleep. Appropriate pain management. Taking medication on time. Taking time to meditate. Recognizing and distinguishing between internal and external stressors. Calories. Exercise. There are a lot of pieces to the self-care puzzle, and they all matter. The challenge is practicing good self-care even when I am in a crappy mood, in pain, feeling ill, or distressed with PTSD symptoms. Today shouldn’t be that difficult…the major challenge today is ‘merely’ physical pain. I hurt, but I hurt pretty much all winter long, every year, and have for many years. I’m not bitching; other people hurt more often, and hurt worse than I do. I have a lot to be grateful for, and I don’t take those things for granted these days; they really matter, and taking care to appreciate the good things, and be grateful for what I have, and what works, and what feels good is a practice that is tending to ‘adjust’ my implicit memory, and my ‘default settings’ regarding how I experience my life in a more positive direction. I’ve made a lot of progress down this path – I both enjoy a better experience, generally, than I used to most days – and I can tell that my experience is improved, too.  (It’s not much help when things get objectively better, but do so in the absence of being able to recognize that improvement!)

It’s an interesting puzzle that what I want in life, the things I yearn for most fervently, can so easily sap me of my emotional resilience and self-sufficiency, and undermine a good experience I have by drawing my attention away from what is good right now, and putting the focus on some moment of discontent – that in some cases actually only exists in my thinking, without any anchor in some element of my experience in life.

Discontent joins the emotions on the short list of ’emotions I just don’t enjoy or find value in’…worry, guilt, jealousy, disappointment, and discontent amount to a lot of dark days for a lot of human primates. I don’t put anger or fear on that list – they both serve obvious purposes ‘used in moderation’; they are legitimate warning klaxons to improve my chances of survival. Moving away from what frightens me may mean my surviving some dangerous moment in the world. Being moved to anger tends to keep my awareness aligned to my values, but for now I can’t do much more to describe anger’s potentially helpful qualities; it’s an area of weakness for me, and I struggle with it to this day. The thing about those other emotions? They are all pinned to expectations and expectations are so often the ruin of a good time. I love to plan, and I like the comfort and security of having done so…but becoming attached to an expectation is a different thing. Clear and explicit expectation-setting has its place in day-to-day life, absolutely true. It’s the implicit, unverified, un-validated, unconfirmed, “I thought we…” sorts of expectations that fuck us all up. It occurred to me this morning, sipping coffee that is unexpectedly ‘bitter’…if I could entirely let go of implicit expectations, I would likely also be letting go of worry, guilt, jealousy, disappointment, discontent…and possibly other subtle negative emotions that can potentially mess with another otherwise great day. It’s a practical thing, and probably worth the effort involved. I won’t miss even a moment of discontent, worry, guilt, disappointment, or jealousy if I never feel those emotions ever again.

Today? Yes, I’m contemplating expectations and discontent, because I woke first with one, and then trending toward developing the other. I happened to take notice of the trajectory of my emotions, and put myself on pause to give it some thought. Had I allowed the moment to overwhelm me, and gotten caught up in ruminating about the drivers of my discontent, and begun wallowing in my disappointment that ‘my expectations’ failed me, I’d be in a very different place right now. I think the constant practicing of better practices proved itself this morning; I found perspective over my unexpectedly bitter coffee, and a tiny bit of unexpectedly positive news.

Today is unscripted. Ideally, I hold no expectations that I haven’t set explicitly, and even then I understand that change is. Today is a good day to live life engaged in the moment, present in my interactions, and open to the possibilities I hadn’t considered exploring. Today is a good day to change my experience of the world.

I’m still lounging in my sleepwear, and it’s actually 8:00 am. I succeeded in sleeping in – and a good thing, because my emotions and my physical pain kept me up quite late. There’s nothing like stress, hormones, and pain to illustrate all my very worst qualities as a human being: easily frustrated, childishly attached to being comforted, emotional, needy, demanding, inflexible, irritable, unapproachable, resentful, baggage laden, and capable of losing all perspective in a moment. This human primate thing is not so easy as it seems…at least not if I am wanting to be the best that these raw materials allow.

This morning I woke with this headache continuing from yesterday, and through the tears (yes, sufficiently painful to cause tears in the absence of other emotion-causing stimulus) I took time to be grateful for something pretty obvious; I don’t have this headache every day. That’s something. I take a moment and try to apply the same practice to other frustrations, other things I am ‘going without’ or just no longer have in my experience these days, that I continue to be attached to, and to yearn for.  I’m grateful that I ever did have those feelings, and experiences. I appreciate and value the memories that linger.

This is not the most joyful place I’ve been in life. Facing a mid-life health concern, having my own experience – companionship, love, sharing; none of these things actually change one thing that is real and true in all this. I am having my own experience. There will always be elements of my experience I can’t easily share, or verbalize. There will always be the limitation that others are having their own experience, as well, and my words will be filtered through their understanding of the world, and the context of their experience. There will probably also always be elements of my experience that are best not shared at all – that’s been a given all along. It’s one of the most difficult things about having this particular TBI, or of being a trauma survivor; most people don’t try to share on the level I default to, and most people do not want to have a visceral understanding of some kinds of pain. I am alone with my words. A lot. At some point, that has to be okay.

My TBI complicates things, and sometimes in a very unexpected way. I’ve been feeling incredibly discontent lately, less supported than I ‘expected to’, lonely, sexually unsatisfied, emotionally isolated, frustrated, and disconnected in my relationships… I miss a particular time period in a valued romantic relationship (which one would not be relevant, the experience is similar across all of them, to varying degrees). I miss “that year” together, with the intensity of our affection, the continuous good-natured camaraderie, the close emotional bond, the driven heat of sex-all-the-damned-time – and feeling well and truly loved, satisfied, cared for, nurtured, valued… it was fucking fantastic. There’s never been another year like it in my life, before or since – even in the relationship I share with that lover, now. I noticed it at the time, and I valued it greatly. I regularly attempted to express my appreciation and gratitude… and to my later great disadvantage (I realized during the night), his response was to assure me I deserved to be treated so well, and that he always would, and further that I ought not settle for less, ever. I wonder if, at the time, he had any idea that he would be treating me less well over time, himself? I recognized how spectacularly special that time was, and the wonderful way he loved and cared for me. I regret that I didn’t understand his polite refusal to be complimented on it had the potential to set my expectations of the future of love. It’s not fair to either of us that I yearn so much for a moment in love’s life cycle of unsustainable intensity. I’m sure it was a good time for him, too. No time machine. That time is not now.

Here I am now. Love is. That’s a pretty big deal. There are still things I want out of love that I don’t have right now. That is what it is. I suppose I will likely always feel that way. Realistically, if I never had sex ever again… I’ve had more than most people, some of it has been extraordinary. Same with love – if I were bereft of love’s warmth tomorrow, I have at least known love. Romantic promises and hyperbole probably don’t trip everyone up the way they tripped me up…my broken brain got in my way; I did not understand those promises were not ‘real’, only beautiful words of love.

Today I will have breakfast with a friend I’ve been missing, and converse about the things going on in our ‘now’. I won’t need to pretty up the details – he’s the sort of friend I’ve always been able to be entirely frank with, and he’s always there. He’s been a friend since before the relationships of my heart’s landscape now even existed, and has context on who I am over time, and how I’ve grown. When we hang out, I walk away feeling more aware of how far I’ve come, and wholly accepted. It’s never been about sex between us, and it’s good to be able to talk those things over with someone who doesn’t have any potential to feel hurt by it. If you have such a friend – cherish them. You may need the warmth of their good company later on. Later I will ride the train home, and think about all the sex, all the lovers… and the awareness that there is life beyond sex, much of which I’ve not had to explore; most of my experience is sexual in some way. I’d like to find my way to a point on the journey where sex just doesn’t matter, doesn’t drive needs, doesn’t influence my actions or emotions – for now, even the idea of sex tends to feel emotionally compelling, and something more or less on the order of ‘everything that matters’, because for now, it seems to matter so terribly much that without those experiences, I sort of wonder what the point is?

The path isn't straight, the destination isn't obvious, but the journey must continue.

The path isn’t straight, the destination isn’t obvious, but the journey must continue.

Today is a good day to explore the unknown within. Today is a good day to talk with a friend. Today is a good day to wander, eyes open, on strange paths. Today is a good day…to change.

I’ve had some inspired moments that left me urgently wanting to write, recently, but the timing was poor and the moment was not at hand; the ideas have since slipped away. Some mornings I wake feeling inspired to write, other mornings it is my morning meditation that inspires me…still others, I face a blank page for an eternity of minutes, until making an observation about that experience, itself, is what remains. (Guess what sort this morning has turned out to be? lol)

I keep a journal. My most private, uncensored, unfiltered, uninvestigated, unverified, stream-of-consciousness reflections on my experience are written there, ideally where they do no harm. I have many dozens of bound volumes reflecting on various details of my life over time, and at one point they were displayed on bookcases as a singular body of written work; there was something strangely powerful about standing midst the many varied volumes, understanding that even so many were only a small slice of my individual experience in a mortal lifetime. Change happens. Most of those volumes are now locked away, for space-saving and aesthetic reasons, and changes in what I need to hold on to as I have changed, myself. In high school I wrote with structure and discipline, in the evening, once daily, at the end of the day. Later, I wrote in a somewhat irregular way, because the Army didn’t make it an easy thing to find time to write. Domestic violence drove my writing ‘underground’; my journal was secured in a safe deposit box at a nearby bank that I felt reasonably certain my husband-at-the-time did not frequent. Opportunities to write freely, then, were very rare, and the writing seemed fairly desperate.

After my first marriage ended, and I moved into my own place, my writing (in my journal) exploded into a very large part of my experience, and the many dozens of volumes began piling up. I was going through blank books every 6 weeks or so, and writing about everything I could think to. Since then, on and off I’ve gone through periods of near-continuous writing that don’t exactly seem ‘inspired’ as much as … driven. Then I stopped. Just…stopped. For a long while I didn’t write at all, almost two years, I think. Eventually, I’d write one day, say nothing,  then it would be days, weeks, months before I ‘tried again’. I had ‘lost my voice’. It pained me. I was ‘stuck’ and uninspired, and also feeling that I urgently needed to say something. I was in a very bad place. Life continued to go on around me, and certainly I continued to reflect on it…but I’d lost a powerful ally on a lonely journey: myself. Words matter. Mine matter to me. I read what I write. I had stopped writing. I had stopped listening. There seemed no other choice to me, then; what I was saying on those pages wasn’t helpful. I considered burning them all, every volume, every page, every word. I’m still not sure why…and I’m still not sure it’s a bad idea.

The closer I got to turning 50, the more it hurt me to feel so silenced. I wasn’t painting, either. I felt shutdown, diminished, and impaired. I ended many days thinking “well, this has likely run its course then, hasn’t it?” about my life, and wondering what to do about that feeling.

...and usually with a cup of coffee.

…and usually with a cup of coffee.

Here I am on the other side of all that. I write most days, here, and less regularly in my journal – and it’s digital these days. Mindfulness practices, meditation, and improving my understanding of the neuroscience of emotion has taken me a long way from that dark place. I’ve been finding life worth living for a long while, now, without any requirement that it be ‘perfect’. I feel disappointed less often. The rare days I really struggle with anxiety, fearfulness, or that bleak feeling of utter futility, are those when my PTSD is clearly causing me problems, or when I’m fatigued and having more challenges with my head injury than I do when I am well-rested.

The writing is a metaphor inasmuch as there are characteristics of that experience that point out how varied the human experience can be: driven, broken, emotional, stoic, programmed, helpless…and also loving, compassionate, supportive, adventurous, romantic, exciting… mindful. It’s been these new practices of mindfulness that have benefited me most, and the rest of life’s lessons tend to build on that, these days, by improving my experience day-to-day, or highlighting missed practices, or needful changes, using less favorable outcomes to show the way. I’ve learned that living is not about filling the blank page, as much as choosing what to write with care, and that writing is one of the things I do to take care of me.

Today is a good day to write words about writing. Today is a good day to smile, and enjoy who I am – who we each are. Today is a good day to be kind, to be considerate, and to value my most private joys as highly as those I share.

I started the morning with a headache. I’m sure it will pass. My brain feels a little sluggish and foggy today; it was very late when I actually fell asleep, and I woke earnestly wanting the alarm to go off later…much later. I’m not bitching. I’m hopeful that at some point I will have that quality of deep sleep on a weekend morning that carries me on wings of pure restfulness until I wake, and finding myself so groggy right now manages to be a reminder that I am capable of deep sleep. My fingertips feel cold. This morning it reminds me that the temperature in my room is once again balanced for better sleep, and fairly chilly first thing when I get up as a result. I’m okay with that, too.

Headache and all, actually, today feels okay so far. I feel okay. The gray cloud of uneased loneliness seems to have lifted – and no surprise, I suppose, considering I spent a good many minutes after I retired last night crying; unreservedly and wholeheartedly grieving what may be lost along the way. Just that. To have some moment, some experience, of such sweetness and love – any such – and feel it slip away over time, or simply be…done…those are some very challenging experiences for me. I am still learning to accept some very basic truths about life – that lovely ‘this too shall pass’ aphorism cuts a very different way when considered in the context of some profoundly wonderful thing…and it’s no less true. Change is. I didn’t pass judgment on my sorrow, and I didn’t make excuses, or criticize my need to grieve life’s losses over time. I accepted in that moment that I was feeling profound sadness, and let that experience unfold. I cared for myself, and tended my injured heart, and I didn’t stuff my big emotions into a tiny box.

Just about the time my tears had dried, and I was meditating calmly and feeling accepting and content, my traveling partner checked in on me; it’s been a difficult bit of time, together, and he is more sensitive than most to the ebb and flow of my emotions, it can be hard to endure the intensity up close. We cuddled for a time, and I felt safe and secure nestled in his arms. I felt loved. It’s a powerful love that we share… It may not ‘be the same’ right now as it ‘once was’, but won’t that always be true, regardless? I live ‘now’…and ‘once was’ is not now, ever. It’s really that simple. This morning I woke feeling centered, and understanding more that there is so much to be enjoyed about right now… there are so many nuances to love and to loving… if things stayed the same, however good that might be, how much of what love has to offer would I miss out on?

I made some different choices to take care of me over the past few days, and they’ve been good choices, based on the outcome over time. Initial results don’t always seem so promising…but there again, maybe that’s because although change is, change is not always comfortable. I feel good today. I feel balanced. I feel the results of taking care of me….even grieving what isn’t can have some value, after all, it helped me get on through to what is.  In my own experience, being nearly always feels more fulfilling than yearning. I wasn’t helping myself out, being stuck and waiting for someone to help me out of the muck; I had my hands on a rope ladder of my own making, and all I needed to do was climb. There are verbs involved.

Today is a good day to take another step on this amazing journey. Today is a good day to remember that kindness begins with how I treat myself – and so do respect, consideration, compassion, and love. Today is a good day to remember the effect of incremental change over time, and to understand that however small one single step may seem to be as a singular experience, taken as a whole the journey goes many many miles, and every individual step is utterly necessary to complete it. Today is a good day to continue the journey.

One step at a time...

One step at a time…