Archives for posts with tag: TBI

There are things that are easy. Well…I mean…aside from me. Easy, I mean. 😉

I’m in a comfortably good mood, and enjoying the positive items in my Facebook feed; today is a spectacularly good day for my feed, and definitely worth enjoying. Then there’s the lovely autumn afternoon…sunny, mild, and festive with fall color.  The work day ended in a good way. I’m not in more pain than I can manage, and I am comfortable. My anxiety dissipated at some point, although I am not sure quite when. In general, it’s a pleasant evening – and I have cold pizza for dinner, which is one of my favorite foods.

There have been times when things have gone wrong, and it’s just lasted and lasted – days, weeks, worse – that’s rarely my experience these days, and I’ll say straight up that even though I still struggle with my chaos and damage, still feel frustrated to stumble on some broken bit unexpectedly, still mourn what isn’t when I could do better to enjoy what it is – it’s all so much better now, than it has been in the past. There have been no huge grandiose ‘changed overnight’ big deal improvements that suddenly ‘made everything okay’, and I don’t expect there will be. It’s all been small things, a bit at a time, some forward momentum, and moment to stumble, progress over days and weeks, then a really shitty day or two that messes with my mind and leaves me feeling uncertain and insecure.  The progress is real, though, and incremental change over time is a thing that has immense power to improve my experience – not just my experience in some one small circumstance, but even in my relationships, my self-talk, how things feel and look and taste, and how I enjoy my life from moment to moment, all alone. So worth it. Just saying.

One sunrise of many.

One sunrise of many.

Please take care of you. You matter. Keep practicing. Fall down. Begin again. I know you’ve got this. 🙂

I woke feeling well-rested and content, and  I got a great start to my day – even on the professional side, or so it seemed, initially.

Like most people, I am not universally skilled at all things – personal or professional. It’s been pretty well confirmed over time that if my symptoms flare up (PTSD), or my brain injury gets in the way of getting things done, like dominoes falling in sequence more challenges begin to pile up, emotionally, cognitively, and socially. This morning, a ‘what the fuck?’ moment of frustration quickly developed into the sort of challenges I can’t easily manage in the office, and I made the choice to get out of the challenging environment, head for home and take care of me. I knew as I walked home in the chilly autumn sunshine that I would be more easily able to support myself in the quiet safety of my wee place, surrounded by green and contentment.

Home.

Home.

There’s been some construction in the community. My windows were recently replaced. Then a tree was removed – part of a ‘drainage improvement’ project. Not easy experiences – but I got over it, and the overall look of things has remained substantially unchanged… (You know where this is going, right?)

Today, when I get home, things are very different indeed.

Today, when I get home, things are very different indeed.

Speechless. Also just at the edge of becoming enraged by frustration, and a feeling of being actively undermined – professionally and personally – at every turn, if not by the willful intent of human beings, certainly by circumstances. This is hard. Frustration is my kryptonite, and I’m not even super.

Now I’m home… my feeling of safety is destroyed by the continuous sound of the voices of strangers shouting over machinery – on all three sides of my apartment (3 different work crews: painters, a pipe crew with a ditch witch, and a crew of…well…carpenters on the roof, or roofers doing carpentry). My sound sensitivity increasing rapidly to the point where sounds will actually seem… psychologically painful. (Is that the right phrase for this experience, I wonder?) My ability to sooth myself is shattered by the combination, and the tears I will no doubt cry sometime soon are beginning to queue up waiting for the next thing I can’t take more of. Just fucking great, right? I come home to take care of me… and… now what? Please tell me – now what? I’m even completely alone, no reassuring hug from my traveling partner, or anyone else, unless I want to step outside and start randomly asking construction guys for hugs. There is no human comfort to be had until I have to force myself into the world to get to my therapy appointment on the other side of town – using mass transit – at which point I can pay another human being a lot of money to spend an hour with me at arm’s length.

Sorry. You’re ‘seeing me’ at what is my current near-worst. I hope you understand that, for the moment, being heard is the best thing I can do for myself – even if it is the being-heard-at-a-distance of writing words that someone else will read from far away. It actually counts for a lot, so… thank you for being here. So…what else can I – what else will I do? Things. There are things to do that will help – the harder part is accepting that each thing may only help some tiny tiny seemingly insignificant amount, and that it is critically important to go ahead and do each and every one to get to the best possible self-supporting outcome. It’s harder than I’d like it to be in the moment.

  1. I’m going to put on some music to mask some of the background noise; I choose Squarepusher, and turn it up louder than I might ordinarily, because some of the noise of the machinery will tend to blend in and fool me into perceiving more music than noise.
  2. I make a soothing hot beverage (no stimulants, though); the heat of the cup in my hands is comforting, and enjoying a cup of tea requires me to slow things down and take a minute for me.
  3. I make a point of alerting the construction crews politely that I am at home, and ask that they be courteous about the noise as much as possible; given a chance, people are frequently fairly kind and accommodating when they are aware that a veteran with PTSD is struggling nearby.
  4. I sit down to write about my experience, without determining in advance whether this will be ‘for publication’ or not, freeing myself to ‘get it all out there’, and leave spelling, grammar, syntax, tone, clarity, and intent to be reviewed afterward. No self-censorship. No self-criticism. Just words.
  5. I review my self-care checklist and verify that meds and basics are handled, making any adjustments needed.
  6. I put the writing on hold for some little while, to meditate if I can (it’s really really noisy around her today), but that may have to wait for the work crews to go to lunch at noon.
  7. Yoga helps me relax my body – and right now every small bit of ease I can provide to myself is going to have value.

I’ve done what I can for now. Soon I’ll be leaving for my appointment, anyway. So far, step by step, practice by practice, I have dialed down my stress enough to feel calm and mostly okay. I am okay right now; it’s important to notice and reinforce the awareness to help build more positive implicit emotional memory, and emotional self-sufficiency.

Today is a good day to be a student. Today is a good day to practice the practices. Today I’m okay right now.

Life isn’t all about tears, or romance, or menopause, or drama, or change; sometimes life is about managing all the other things.

A lovely day built on ordinary moments.

A lovely day built on ordinary moments.

I worked later than I planned to. I didn’t have to; I was genuinely caught up in my work, and it being a good day for that sort of thing, I finished a task I was committed to without considering the clock. I took the longer walk home, and enjoyed the last of the afternoon sunshine filtered through autumn leaves. I paused once or twice to exchange messages with my traveling partner, also tired at the end of a long work day. I arrived home quite fatigued, just at the edge of being too stupid to operate a stove, but my mind is still busy – even now, minutes later, here in the stillness.

I sit for some minutes fighting the impulse to go or do, before realizing that the feeling would likely persist as long as I still had my hiking boots on. I take them off, astonished to find that I am moving so slowly, brain still buzzing. My impulse is to flip on a movie, or documentary, or favorite animated series; I stop myself when I realize that doing so simply continues to feed my tired brain with additional stimulus. Dinner would be better…

…I careen around the small apartment bumping into things rather awkwardly, but without any particular stress over it; I’m clumsy when I am tired. That’s not so uncommon. I find myself struggling awkwardly (there’s that word again) to get from street clothes into comfy clothes – and chuckle out loud at the thought of doing yoga in this fatigued state. (It’s humorous that my constant correction of spelling mistakes as I type this now won’t be evident in the finished product – though no doubt I’ll miss one or two – there are more mistakes than words tonight.) I turn on the oven to pre-heat, and notice on the way that I’ve strewn clothes, boots, coat, house keys, and mail literally all over the apartment, here and there, without any sense to it at all. I sigh to myself and back track…clothes into the laundry basket…keys on the carabiner attached my handbag, mail to the side, on my desk, to be opened, reviewed, and acted upon. I stall for a moment looking at my coat with some confusion before remembering that I’d had it hanging on the back of my easel this morning. I hang it carefully in the closet with a reminder to ‘put away my things’. Reminders help. I stumble on my shoes, in the middle of the floor, forgotten – again, already.

I sit down, to write, content that dinner will be ready shortly… and just as I get to this spot… well… that spot just over/up there, where it says “I sit down…” I notice that although I most definitely did turn the oven on to preheat, the pot pie remains as it was, sitting on the baking sheet, waiting to go into the oven.  When I’m tired the self-care piece is both more difficult to manage well, and more important to manage reliably. I keep practicing. Living alone is very… educational. I have relied on so many hidden cues and reminders hidden in the context of shared daily experiences without understanding how much I would not know – or remember – to do for myself without them. It takes practice, so I keep practicing.

I am stiff and having been still for a few minutes it is now hard to move easily, and I feel slow, but I’ve actually started dinner. I am too tired for the sort of cooking that might put me at significant risk of injury – I almost reconsidered the oven, too, but chips and salsa isn’t the sort of ‘dinner’ that meets my nutritional needs, and the oven was hot by the time I thought to reconsider it. Dinner is the easy part. I set a series of alarms on my phone as task reminders hoping to avoid overlooking important self-care basics – including one that will tell me ‘go to bed’ at a preselected ‘no later than this’ hour. I hope to remember to turn it off before I go to bed earlier…but there’s the chance it will wake me from a sound sleep later.  🙂

I suddenly don’t recall where I was going with this at all… I guess simply that the practicing is an ongoing thing, and it’s evenings like this when it matters most that I have been practicing so much; I take steps to take care of me that actually support my needs. My results vary – your’s probably will too.

It’s a good evening to take care of me…I don’t think I have much more to offer this moment than a best effort. It’ll be enough.

tomorrow I can begin again

tomorrow I can begin again

I stepped out of the office into the sunshine still feeling the weight of work on my shoulders, and clogging my thoughts. I stopped, just stopped, right there in front of the entryway, and stood. I took a deep breath and exhaled slowly, letting my shoulders relax, and looking into the azure autumn sky.

A beautiful blue change of perspective.

A beautiful blue change of perspective.

I decided to take a longer route home around and through the park, enjoying the changing colors as the afternoon sky began to deepen, taking on qualities that would soon become twilight. I didn’t hurry; it isn’t really far, and I would beat sunset home by quite a bit. There is nearly always time to linger, and savor life.

Enjoying the colors.

Enjoying the colors.

There is no rush.

Lingering.

Lingering.

No rush at all.

Savoring life.

Savoring life.

I eventually made my way home. A lovely walk on an autumn afternoon, listening to peeping frogs and birdsong, and the shuff-shuff of leaves beginning to accumulate in dry drifts until the next rainstorm as I kick them aside to watch them fly, a childhood bit of fun I still enjoy greatly.

These beautiful moments aren’t fancy, or exotic, or rare, or complicated – but they are extraordinarily lovely, reliably sweet and satisfying, and fill me with a sense of joy and love. Simple, sure – and mine. That’s enough. 🙂

Yesterday went sideways early, and although that was emotionally difficult to bear; like most things do, it passed. I spent the day gently, and crashed early; that amount of emotional turmoil is exhausting.

I woke to a new day, feeling good, and feeling well-rested. My traveling partner was over somewhat later. We went somewhere new for brunch, and enjoyed ourselves greatly. The conversation was meaningful without being difficult for either of us (as far as I could tell). We got back to my place and watched a movie together – one I’d really been wanting to see (Avengers Age of Ultron), but dreading seeing alone because I wasn’t sure whether it would be too dark and intense for my general preference.  (Having this injury, I tend to feel the emotions projected in movies very intensely.) The movie was not only just fantastic end to end (my opinion), it was exciting, funny, upbeat – and the good guys win, but with just enough doubt in the finishing moments to be certain to leave plenty of room for another sequel. I had a blast watching it, and I know that ever after it will be more meaningful because I shared it with my traveling partner.

“Baby Love” blooming in the fall rain. There’s a metaphor there.

Love is funny like that, isn’t it? The things we share are altered in the sharing; we grow together having shared them, and we are altered, too. 😀  The personal growth, the sharing of experiences, and the enjoyment of life intertwined with another is, for me, an intensely intimate emotional experience (or I can’t really do it, honestly).

By the end of the movie I was very excited and just at the edge of that child-like place where excitement could potentially become agitation, or frustration become temper. My partner embraced me and held me close, and headed on his way. I had planned to settle into creative endeavors for the afternoon, and just couldn’t hold still even for myself, I was that wound up by the excitement of the movie (I totally love super hero movies). I went for a long walk in the autumn sunshine instead, and thought about love and loving, and the differences between being loved, and delivering on love’s promises to another. I thought about love songs offered in blue moments, and how solid the ephemeral connection between hearts can feel. I took pictures of mushrooms, rainy day flowers, and small bugs working to make summer last just a few more days. I arrived home serene, uplifted, and feeling cared-for.

Signs of autumn everywhere, and a lovely day to walk off what has troubled me.

Signs of autumn everywhere, and a lovely day to walk off what has troubled me.

I am learning to invest more heavily in what feels good, rather than allowing myself to become mired in what hurts. It’s just good emotional economics, really…but…there are verbs involved. It does require practice. And…my results vary. That’s okay. A day like today makes up for a lot – it’s certainly more than enough. 🙂