Archives for posts with tag: TBI

Early evening, in autumn, golden sunlight filtering through the vertical blinds over the patio door, me fussing a bit, somewhat uneasy, headache-y, annoyed. I am not sipping coffee; it is too late in the day for that, unless I’m planning to be awake all night. This is a fairly noisy time of day, here, even in the relative quiet of my comfortable space. I can nearly always hear the traffic on the commuter thoroughfare 100 yards away (ish).  Today the background noise isn’t in the background at all. Contractors are using power saws, hammers, drills, pry bars, and talking loudly all around the outside of my apartment. The noise is well-beyond what could be considered comfortable without hearing protection.

I came home from work to finish the workday in a quieter space; I’m feeling irritable, a tad stressed, and extremely sound-sensitive. There is no quiet to be had here, and the headache I arrived home with, hoping to feel dissipate quickly upon arrival in this chill safe space, now commands my attention from my lower back, on up across my shoulders, up my neck and over my skull, coming to rest as a sensation of tightness in my head, and teeth clenched, neck aching. I am numb to most of anything else going on just at the moment, wanting only to alleviate the pain in my spine, my neck, my head. My tender heart finds its own way to misery; I kick myself while I’m down, resenting the attention I am giving to my physical pain, when there are tears lurking so near to my eyes, waiting to spill out. I suspect my heart doesn’t quite understand that there’s nothing really wrong, I just hurt, and the noise is hard to bear. I promise myself that once the contractors are gone, I will soak in a long hot Epsom salt bath, then linger in a luxurious shower, indulging myself with the sensuous pleasure to be had in hair washing, and the simple sensations of warm water and lovely scents, listening to music I enjoy. It’s not ‘everything’ – how much ever is? It is, perhaps, enough – and enough will do nicely.

How 'real' is all this stress? What's it really made of?

How ‘real’ is all this stress? What’s it really made of?

So much for a change of perspective! In the moments when I hurt most, the practices that sooth me best can seem subtly out of reach. That’s very frustrating, and sometimes even ‘unreasonably difficult’. The noise is very nearly unbearable, and it is a physical feeling of its own. Hard to describe. Painful. Enraging. It’s quieter now, and later. I’ve taken time for a chat with my traveling partner. Had a bite of dinner. Did what I could to care for this fragile vessel in any way I can…any way that isn’t dependent on quiet, I mean. Quiet is just not available at the moment, even with ear plugs in.

I’ve gotten past the anger, frustration, disappointment, and yes even emotional hurt of getting home to find, instead of a quiet sanctuary, noise. A lot of noise. Irritating, ceaseless… wait… That’s the thing, though, isn’t it? This is the hard part. The part where practice shows off what has been built over time? This isn’t a drill, people!! It’s doesn’t matter what I expect. Preparation helps – but the map is not the world. The plan is not the experience. What I think is not to be confused with what is.  Learning the distinction between acceptance and futility has been a difficult bit of life’s curriculum for me. I hurt so much right now, there is real effort in refusing to yield to anguish, in drawing in line in the behavioral sand, so to speak, and finding the balance between taking care of me devotedly, and simply taking care, graciously, compassionately, understanding with some perspective that we all suffer with things like noise. I still hurt – but I haven’t lashed out at any of the carpenters, or my landlady, or the neighbor’s well-meaning child, or …well… you get my point. There’s no ‘easy’ to this piece of the journey, I do hurt, and the noise is making me just fucking crazy with irritation. I still have choices; focusing on the easy ones and excluding the difficult ones also limits my outcomes.

I take time to do some yoga. I breathe. I meditate with a warm cup of chamomile tea in my hands, warming my fingers and soothing me, enjoying the fragrant steam rising up from the mug.

Perspective matters. What I see is colored by my experience.

Perspective matters. What I see is colored by my experience.

There are moments beyond the noise. I can reach them; there are verbs involved. Not easy? No. Not easy. Still worth it. Still practicing.

There are all sorts of details I could have handled better today – but I handled things well enough, and I’ve taken care of me generally, and done so pretty well. I’ve taken care of the things most needing my attention, and I’ve put off some things that can comfortably wait for me to get to them another time. Success isn’t always obvious, or profitable, or heroic – sometimes it’s measured as ‘enough’. I’m okay with that – and I’m okay right now.

I am a fan of explicit expectation setting. I am also a person who struggles with some sorts of unexpected changes – maybe you are too? With both those things in mind, I figured I would make a point of saying that I will be shifting my writing from early mornings to late evenings; I’d like to take more time in the mornings to meditate, and start the day slowly, and with summer becoming autumn, and winter not so far off at this point, pain management will be enhanced by doing (more) yoga in the mornings, too.

Change isn’t so bad; I enjoy a change of perspective now and then, and I find evenings and mornings fill my thoughts quite differently. When I started this blog, I often wrote in the evenings. At that time it was a less-than-ideal fit for the needs of others in the household. Mornings were ‘easier’. That’s no longer a significant consideration and for some time to come I expect I will need a bit more in the way of self-care, just to manage my physical pain as the season changes.

I am hopeful the change in timing will be comfortable all around…this post will be waiting for you tomorrow morning, as if I wrote it at the usual time, and I will sit down to write after work tomorrow evening – perhaps with my head in a very different place, open to other ideas, and different ways of viewing life and the world than what mornings have tended to reveal?

A change of season, a change in routine, a change in perspective.

A change of season, a change in routine, a change in perspective.

Today is a good day for change, and a good day to take care of me. 🙂

 

It’s time I took a moment for you, I suppose. You’ve been stepping up your game lately, and dropping lots more comments on my blog. I’m sure you have a job to do, and the money must be worth it to you (or you haven’t yet determined that it is not). Two things, though: first, and this is important if you hope to have any of your comments remain in place, your comments will reliably be deleted if they are not specific to the subject matter of my blog, and reflect clearly that you have actually read that post, and understand it in some way. I moderate my comments pretty strictly, and the spam settings are strict enough to occasionally filter out comments from real people – so of course, I check them all. Secondly, and this one is entirely irrelevant to me, personally, but I do have to note that if you are dropping random irrelevant comments on blogs that are simply entirely unrelated, that also have strong spam filter settings, you aren’t really living up to your end of the bargain with  your employer, are you? I mean, I suspect businesses think you are driving additional traffic their way, or bringing clicks to their links, and… well… if your Forex trading link is in the comments on my blog, you’re not at all. Just figured I’d call that one out, too.

Still, every now and then, I actually struggle to delete one of your spammy comments – because it is written such that it seems to indicate you actually read the post. Not some generic ‘this could be a response to anything’ sort of comment, and not a comment so off the mark you clearly did not read the post, the blog description, or even look at the header or title…but a real, actually fairly specific, comment on what I’ve written…yep, you occasionally step away from the norm and say something real. Those are harder to delete, and I’ve let one or two stay, as a courtesy – because you read what I wrote, and it mattered enough for you to say something about that on your spammy link comment. It’s time you know the rules to this game I’m playing; if you’re real, your comment might stay. If you actually read what I’m writing, and I can tell, I consider keeping your comment – even if the link is for Viagra, walk-in tubs, car window replacement, Forex trading tips, or how to win one’s social security disability case. If you are just dropping spam like bunny turds in a meadow, I hit ‘delete permanently’ without hesitation or a second thought. High volume spammers get the bonus courtesy of having their address blocked, too, as a measure of self-care efficiency for me.

A chilly autumn morning, an opportunity to reflect on what is needed, and what is not, and sort things  out.

A chilly autumn morning, an opportunity to reflect on what is needed, and what is not, and sort things out.

It’s a lovely morning. My coffee is hot and tasty. I’m in pain, enough to distract me from a lot of small pleasant things, but not enough to ruin my morning entirely. Tons of spam comments this morning, though… It’s a good day to delete bullshit. Any sort of bullshit, really, it’s a nice day to clear away clutter of all sorts, spam or otherwise. A nice day to let go of baggage, to restore order, to sort things out, and haul away what isn’t needed. This could be a metaphor. For now? Just words over coffee.

I woke smiling this morning, although in pain, and feeling light-hearted, balanced, and calm. This would seem almost commonplace, except that last night, at the end of a wonderful evening with my traveling partner, some particular turn of phrase, repeated several times in conversation in relatively quick succession, triggered my PTSD symptoms. My emotions quickly spiraled out of control, and somewhen in the midst of it, I directed my dear love to go, to leave, to walk on…and found myself alone and crying; he respected my boundaries, which sucked then, but this morning it is something I cherish. I can count on him so utterly.

p.s. I love you.

p.s. I love you.

He phoned me after he left, upset and concerned. He pointed out my symptoms (because I am not always aware that I am interacting with some other experience). We talked.  Afterward, I took time to meditate. I calmed and soothed myself – relying on emotional resilience and self-sufficiency that I am building over time through all manner of practices (like meditation). I reflected later on what went down, and how and why. Moments like last night are outstanding for monitoring growth and progress – but they still suck completely and entirely. I emailed him an unreserved heartfelt apology, making no excuses for my behavior (let’s be real here, it’s been much much worse in the past, and that’s not relevant to treating someone I love badly now!), which was uncomfortable for both of us, and unpleasantly emotional. I was already over it such that I could also express gratitude and appreciation for what he was attempting to discuss and help me with, and I had taken time to follow up on our shared concern and the practical relevant details… like a grown up. 🙂

I made a note for myself to follow up later on developing more effective ways to gently communicate that some particular detail, phrase, approach, or behavior has the potential to trigger me – not in the hope of having it avoided, but because in real life these things come up, and one by one I must move past them, for my own emotional well-being, and as a loving investment in my relationships, and wouldn’t it be nice once in a while to just say ‘Oh hey, could you rephrase that one this time? I’m still working on that and I’ve got some challenges with that verbiage’. It takes time, but I no longer view improving on these things as unachievable; I may have some measure of PTSD for the rest of my life, but there is nothing about that which suggests I can’t continue to improve, to grow, and to become the woman I want most to be.

We've all got some baggage.

We’ve all got some baggage.

When my traveling partner had gone, and I was sifting through my chaos and damage, it was quickly very clear that the entire problematic exchange wasn’t at all about or with him (or us) in any way at all; I could feel my violent first husband standing in the room with me. It was an eye-opening moment to be so able to clearly sense the anachronistic miasma of ancient fear and pain. It was also part of what allowed me to move past the moment – and my symptoms – so quickly last night, once I was alone. I could really feel that it didn’t source in my real experience of the moment in any way at all. I had been triggered – and I don’t mean mainstream press too-pc-for-adulthood-don’t-say-things-I-find-discomfiting- “triggered”*.  I mean no bullshit, I was having a post-traumatic stress flashback. Generally, in the past I have had no way of clearly discerning that such is the case until well afterward. This is growth. I don’t know what to do with it, but it is very promising, anyway. I haven’t had a flash back in a long while (months, and well before I moved into my own place, back in March).

Every moment of growth is as a rainbow in a stormy sky; a promise of better things.

Every moment of growth is as a rainbow in a stormy sky; a promise of better things.

Last night – and a couple of times early in the day – I was having a strange very severe headache in a weird location, that throbbed with a deep dull nauseating ache that pulsed every 10-15 seconds or so. I’ve no idea if it was related, causal, or worth consider a serious concern… except that any headache that is unusual is also of great concern for someone with a TBI and a family history of stroke. This morning I made a point of emailing my physician to make note of the headache, and ask if I should make an appointment. I haven’t felt it yet today, so perhaps it was just a headache.

Today I'm not making this complicated.

Today I’m not making this complicated.

I am okay right now. Love is okay right now. Human beings persist in being human, and life offers opportunities to learn, to fail, to grow, and to connect our hearts through what is difficult more often than through what is easy. It’s worth becoming skilled at managing my worst moments more skillfully; I can count on most of the best moments to take care of themselves.

It helps to have the right tool for the job.

It helps to have the right tool for the job…

Today is a good day to practice good practices. Today is a good day to take care of me – and to take care of love. Today is a good day for listening deeply, and connecting honestly. Today is a good day for authenticity and vulnerability. Today is a good day to say thank you, when love shoulders the heavy load my post-traumatic stress carries every day. Today is a good day to walk on, and enjoy blue skies. I am okay right now. 🙂

...and perhaps a change of perspective.

…and perhaps a change of perspective.

It's a journey. Each step I take is my own.

It’s a journey. Each step I take is my own.

*Just an afterthought…Can I just say that I find it damned inconvenient that people have undermined the value and meaning of the word ‘triggered‘ by diluting it for their everyday over-sensitivity or bad-tempered moments? For someone with post-traumatic stress the experience of having symptoms triggered is not a mildly uncomfortable moment, or inconvenience – it’s a pretty big deal, associated with brain chemistry, volatility, mood, physical experiences, and isn’t something that can be easily turned away from or ‘managed’. By mis-using the word to cover feeling uncomfortable to read the ‘fuck’ in a news article, or because a moment of provocation caused a bit of temper, people who really need to express an experience are robbed the language to do so. Knock it off – go find your own words. Seriously. There’s a big difference between being a bad-tempered over-sensitive little bitch, and being having one’s post-traumatic stress triggered – trust me, I’ve had both experiences, and I’m pretty clear on the difference. 🙂

I woke very early this morning, minutes after 4:00 am. It’s a work morning, so making any effort to sleep longer isn’t likely to be very satisfying. I get up, and linger in the shower, while I take the chill off the apartment by pre-heating the oven. I’m up early enough for a proper breakfast. No idea what I’ll make, or whether it will actually require the oven. It’s definitely autumn, now; I am no longer making any effort to cool off the apartment. I have been here in my wee place long enough for the seasons to change. 🙂

Enough.

Enough.

There is very little drama in this experience. I sip my coffee and let myself wonder what ever kept me in any abusive relationship, ever, in the first place? Love? No – because that sort of treatment doesn’t qualify as being loved, and doesn’t tend to produce love as a reaction. I learned that the hard way. Fear of being solo, of being unqualified to adult all alone? Could be, at least the first time. I was very young when I married my first husband, and mostly did so because I earnestly wanted to move out of the barracks and ‘didn’t know how’ otherwise…and… it seemed expected, culturally, that I would marry. Now that, right there? That’s a shitty reason to get married, or be in a relationship of any other sort. Loneliness? I suppose loneliness is an important reason people may stay in an abusive relationship – loneliness sucks that much, sometimes – so much that self-care and good decision-making are undermined in favor of the mere idea of love.

Be love.

Be love.

Living alone? Not so scary, honestly. By far better than living with chronic mistreatment, neglect, disrespect, deceit, evasion, misdirection, or physical, emotional, or financial abuse. Do I get lonely? Sure. I’m human, and I miss touch, and the everyday intimacy and connection of living with someone I love dearly – but I’ve got to be honest, I’ve only approximated that experience in most relationships, generally very short-lived during the newest weeks of the relationship, and with only the most superficial level of connection, and very little real intimacy – because I didn’t have well-developed skills, practices, or understanding of what relationships take to build and maintain in the first place. My own ignorance and lack of personal development definitely limited my ability to forge the bonds I didn’t know I was looking for in the first place. Now I have the skills, the desire, the partnership – but we are separated, day-to-day, by 14 miles that sometimes feel infinite. Now… I am also learning that however common love can be, when we live from a loving place, a love like the one I share with my traveling partner is on another order of magnitude entirely, and it is not affected by the distance between us, even in lonely moments, when I yearn to be near him.

"You Always Have My Heart"

“You Always Have My Heart”

I sip my coffee and think about love, and loving. Is there some magic, mystical secret to this powerful love we share? I suspect not. It’s quite probably part chemistry, but I feel fairly certain that the larger portion of it is simply that we treat each other truly well. The Big 5 are pretty consistently in play (respect, consideration, reciprocity, openness, and compassion). We’re human, there are moments that challenge us now and then, but day-to-day, moment-to-moment, I can count on my traveling partner to treat me well, to support my growth, to encourage me, to listen deeply, and to be connected and really with me when we are together, and he can count on those things from me. It’s quite lovely, and it’s all in spite of being quite human (the both of us), with our own baggage, our own chaos and damage, and our own view of the world.

"Cherry Blossoms" 12" x 16" acrylic on canvas 2011

“Cherry Blossoms” 12″ x 16″ acrylic on canvas 2011

There are other reasons to build a relationship than for love, even marriage is not always built on love. Even the most practical, logistical, or political basis for a long-term relationship benefits from The Big 5, and suffers without them. I think so, anyway. I think a lot about treating people well, and what that means, and how I get there. How we treat people changes us. What we endure in our relationships, and the treatment we receive at the hands of loved ones, changes us. We become what we practice. When we treat someone poorly, however valued we may say they are to us, we change them over time; the damage piles up and changes how we are treated in return. Living alone, I have only one person to count on to treat me well day-to-day – and I’m still learning a lot about taking care of me, and treating myself truly well…but I’ve got a lot less drama while I do, and I’m not having to expend precious resources, or waste valuable time, healing fresh wounds.

"Communion" 24" x 36" acrylic on canvas w/ceramic and glow. 2011

“Communion” 24″ x 36″ acrylic on canvas w/ceramic and glow. 2011

I know you want to be treated well. I think everyone probably does (in the way they define that, themselves). This morning, I’m not thinking as much about how I want to be treated – I’m thinking about how I treat others. How about you? Are you treating your loved ones truly well day-to-day, or do you let your temper get the better of you and say vile things you regret later, then expect people around you to ‘stop taking things so personally’ or ‘grow a thicker skin’? Maybe you justify the terrible hurts you deliver with your words by rationalizing the truth of them, or the necessity of hearing them said, or because you are ‘right’? Do you excuse your own bad behavior by saying it’s your hormones, or you had a rough day, or you hurt or don’t feel well? Are you aware you are still causing someone you love pain, and maybe even tearing down something you built that was once beautiful? Treating someone you love poorly is like spraying political graffiti on a precious work of art, or painting over a mural, or… well… it’s actually just not okay, and is entirely unpleasant, and doesn’t show any hint of love. Just saying. Even a heartfelt apology does not make the words unsaid, or take away the experience of being hurt – and no one forgets those things, not really. In a good relationship, it’s simply that the good moments outweigh the difficult ones a lot.

"Contemplation" 11" x 14" acrylic on canvas 2012

“Contemplation” 11″ x 14″ acrylic on canvas 2012

I am humbled by the wonder in the realization that I am good at love. (I wasn’t always, I’ve worked to get to this place.) This is a powerful place to be in life. Practice matters, even on this, and it isn’t the bit about being loved that needs the practice, generally. Loving isn’t just a word – it’s a verb, and one that requires quite a lot of things, like kindness, and deep listening, and attentiveness, and authenticity, and vulnerability, and compassion, and patience, and surrender, and tenderness, and being comfortably wrong as easily as being right, and laughing, and touching, and sharing experiences, and eye contact. I enjoy how many verbs there are from which to choose to show love. Practicing them is both entirely necessary, and highly rewarding… I mean… If you want to love, and be loved in return. Some people only want to be loved (or maybe just worshiped, adored, or served); it’s much less work, but eventually love dies when it isn’t nurtured.

p.s. I love you.

p.s. I love you.

Today is a good day to love well, and to deliver on the promises made by love. Today is a good day to treat every heart well, not just my own. Today is a good day to make eye contact, to be kind, and to really listen when someone is talking. Today is a good day to practicing loving. The world could use a little more love, and we become what we practice.