Archives for posts with tag: TBI

A week ago, I stumbled and fell. For days afterward I’ve felt rather as if I had received a serious beating (and yeah, I do know what that feels like), between the pain of falling on uneven concrete, and the usual aches and pains. It’s been much to take. The heat, the profound hotter-than-it-seems-it-should-be heat of this pandemic summer has surged back toward record-breaking temperatures, and is expected to get hotter before it cools off to more typical hot summer temperatures over the weekend. (Camping next week should be fairly comfortable, for many values of “comfort”.) Today? Just a day. Yesterday, mostly pretty pleasant. Another fine day. I don’t feel as if I’ve done all that much, really, and I don’t hurt quite as much today as I have for the last handful of days. How the hell am I so g’damned tired??

…Right at the moment, I feel like “my brain can barely lift a finger”. Or something like that. So tired. I could tumble into bed right now, quite content to sleep through the night.

Why am I so tired??

I take a deep breath. Exhale slowly and evenly. Repeat a couple times, feeling various localized points of pain or discomfort come to the forefront of my awareness and once acknowledged, recede again into the background noise of pain that is just… there. I sip this can of name-brand fizzy beverage – the human equivalent of “nectar”, it’s got so much sugar in it. I take a moment to appreciate these small cans that are everywhere now. I never could finish an entire soda by myself – these are perfect. I know this boost of sugar will lift my spirits and my energy for a short time (very short) (too short), and likely find me crashing sometime soon after, even more fucking tired.

I could sleep. I’m an adult. It’s my time. My bed. My general well-being… I could just go the fuck to bed and get some rest, like a proper decision-making adult…

…I don’t want to. I want my energy back. I want to feel eager to make a great meal to share with my Traveling Partner. I want to feel engaged and alert and interested in hearing what he’s been up to, today, and what his plans are for projects-in-progress, this week. I barely care enough to even wonder what might be convenient to throw in a bowl and call “food” for the two of us. Am I even hungry?

…Am I over medicated? Incorrectly medicated? Under medicated? Misunderstanding where my energy went or what consumed it? Did I sleep so poorly that I did not rest? Maybe I just need a drink of water? Or…?

I actually feel so tired that I’m cross with it – have been almost all day – and finding myself on the edge of tears again and again, simply from the fatigue. That tired. Literally stupid with the fatigue. I’m stupid tired. But could I actually sleep? I’m doubtful. So… what now? My partner let me know he’d love my help in the shop, even as he acknowledged his awareness of my fatigue – I almost went to help, even knowing how fatigued I am. It’s a dumb idea; in addition to “stupid”, I’m probably also quite clumsy, or prone to a lack of attention that is actually dangerous around machinery. So… yeah. I figured I’d write for a minute, instead… I mean… how badly can I fuck this up? (It’s probably shot through with spelling errors I just don’t see, if nothing else.)

How I ended up just on and on about how tired I feel in this one limited mortal moment, I have no idea. I guess it’s just the thing on my mind. 🙂

…I could begin again…

Happy Monday, y’all. It’s been hours since my morning coffee, and the afternoon is heating up quickly. I’ve got my bottle of cold water at my desk, and a covered mug of hot noodles for a quick lunch. My Traveling Partner is in his shop, doing shop things. I’m staring into an abyss of spreadsheets and a to-do list that is frankly embarrassing in length. I take a long drink of water and remind myself it is a job, and I’m being paid to do it. This time is not my own (well, I mean, right now is my lunch break, so… that’s mine).

I breathe deeply. My exhale becomes a heavy sigh. I’m mostly fine. I’m just sort of cross. This has, so far, been one of those days that seems as if every attempt I make at affection, appreciation, positive connection… any bid at all really, directed to my partner is met with… a surly, rather terse, somewhat parental tone. I’m annoyed with that. It’s not at all where my own head is at. I’m finding, as a result, that I’m just irked with the whole fucking day I find myself wrapped in. I’m okay with saying I’m annoyed by it. Real enough. What to do about it is another matter. So far, continued attempts are not being met well, so I’ve sort of given up on it for the time being. I’m in “task processing mode”, focused on practical matters and getting shit done, one step at a time, without becoming emotionally invested at all. Considering how much I enjoy my partner’s appreciation, affection, and approval, it’s sometimes very tough to let it go and hold on to the awareness that we’re each having our own experience.

Honestly, we’re a hilarious partnership. We adore each other, and generally manage the day-to-day with humor and delighted affection for each other. Sometimes it’s not that easy, and my brain injury definitely gets in the way of things now and then. I try to be patient with myself, even when he’s having trouble being patient with me, himself. I work hard on not taking his impatience with me at all personally; I know that it is not. I can be surprisingly clumsy sometimes, or awkward, or hapless, or somehow offset from his understanding of whatever the hell is going on at the moment. We are each having our own experience, that’s unavoidable. We are not one being, one mind. We’re two entirely separate human primates, making a go of life together. 🙂 A shared journey, not an identical one.

I give my noodles a chance to cool a bit. I don’t really feel up to adding a burned mouth to my list of bullshit to deal with today. lol I have choices. I can change my experience – and change my perspective on it (I was pretty irritable and on the edge of tears when I started this, now I’m just hungry*. lol). Resilience doesn’t seem to be about never reacting, or avoiding the occasional bad mood, so much as being about shortening that period of time between when a feeling or experience develops, and when I’ve gained useful perspective on it. It’s enough to be able to make that journey. I sometimes even feel that I’m getting pretty good at doing it with a measure of skill. 🙂

…I sure know how to begin again… 😀

*By the time I finished writing through my lunch break, and having a bit of a pleasant chat with my partner about shop-related matters, and connecting in a loving way, I was once again in a comfortable place emotionally. Feels good. Didn’t honestly take that long to get from “there” to here, and the lack of residual negative emotion clogging up my experience of self (and this Monday) speaks volumes for how far I’ve really come since 2013. I’m sometimes pretty blown away when I reflect on the likelihood that a bit of emotional weather of this sort could have been days or weeks worth of feelings of despair, futility, and irritation. That’s a long way from where I am now. 🙂 Worth celebrating. I slurp my noodles contentedly. This works.

Is the dim light of dawn, before sunrise, “too early” to go for a walk? Does coffee actually “taste good” at all? Is a desktop 3D printer “worth the money”? Am I “beautiful”? Am I “fat”? Am I “stupid”? Is that remark on the tip of my tongue “in good taste” or “hurtful”? Is that bag of groceries “too expensive”?

…Is this a moment I can afford to waste on trivia?…

It’s a matter of perspective in every case, and for each question that I’ve listed so far, isn’t it? Is there a single objective truth answering any one of these questions? I don’t think there really is. Perspective is a tricky piece of adulting. We seem to develop perspective over time, and if we’re fortunate we begin from a helpful place with parents, educators, and elders, leading us through learning, with great care to “stay real”. Doesn’t happen for everyone (that’s pretty “real” all by itself), and certainly a great many human primates reach adulthood either lacking any sense of perspective, or mired in weird distortions created by emotional chaos, thinking errors, and misinformation. Perspective is a big deal.

The dim light of dawn, before sunrise, is “too early” to go for a walk, if the path will be treacherous, slippery, or known to be the active hunting territory of a cougar. Certainly there’d be better times to walk such a trail. On the other hand, given a level paved suburban “trail” through a safely lit park, in the company of a friend, maybe not so hazardous after all?

Which one is this?

Coffee only “tastes good” to those who have a taste for it. Just saying; if you don’t like coffee, no, it doesn’t “taste good” at all. Hell, I enjoy a good cup of coffee – and I not-uncommonly quaff a cup that is… just not good. So… yeah. Perspective weighs in, again.

I suppose, with things like “affordability”, the questions are very relative. A desktop 3D printer is probably super affordable given adequate income, bills all paid, surplus resources, or a likelihood that it may itself become a source of revenue. It wouldn’t be “worth the money” if viewed as an entertaining toy coming out of a limited budget that would result in not paying the bills, or not being able to buy groceries, or fill a prescription for life-sustaining medication. There’s definitely more to “affordability” than the price tag of an item.

Beauty, and the evaluation of beauty, is so incredibly subjective and individual. Am I beautiful? I sometimes think so. Sometimes other people say so. My mirror doesn’t lie to me, though, and I am an entirely ordinary-looking middle-aged woman. What is “beauty”? If it is a feeling and sense of self, I could easily call myself beautiful and feel that I truthfully am, most days. If it is a practical matter of size, shape, symmetry, and fashionable aesthetic? I’m most likely not even “pretty”, “cute”, or “attractive”, to most people. I’m just a 58-year-old woman with a few extra pounds. I’m sufficiently comfortable with who I am and how I look that I don’t make any practical effort to change it with cosmetics, and that works for me. I like comfortable.

The “fat” and “stupid” questions work a lot like the “beauty” question, really; they are subject not only to my own perspective, but also to the subjective perspectives of others around me. Am I fat? Well… I guess, yeah. My doctor would use medical language to say as much, and my health would benefit from losing some weight. A male friend of many years acquaintance would disagree; he likes the aesthetic, the softness, and the hug-ability of a plump woman. Is he wrong? No, just has a different perspective on the matter of weight and fitness. Similarly, if I am having a conversation on a topic I know well, with someone who knows much less about it, I may sound very smart. On the other hand, if I were to attempt to chat up a physicist by fronting and showing off how much I know about physics? I’d sound very stupid indeed, and I’d look a major fool. Very relative. Standing alone in a room considering all of what I know in the context of all there is to know, I’d hesitate to call myself “smart” – there is so much more I could learn, know, or come to understand. 🙂 I’d also hesitate to call myself “stupid” – that there is vast knowledge available, and I only know a fraction of it, is not the defining characteristic of stupidity in my dictionary. (Your results – and your dictionary – may vary.)

Is the remark on the tip of my tongue “in poor taste” or “hurtful”? God damn, it sure could be. I hope it isn’t. I’ve grown a lot over the years, and it is not my way to hurt people carelessly (or by intent, generally), or to present myself in a way that is objectionable for people to be around. I would not even be “the one” to get to decide whether a remark is in poor taste or hurtful – that would need to be decided by the recipient, or the individual I hurt by it. In that instance, it is their perspective that matters, not mine.

Groceries can be expensive. Sometimes that is a matter of perspective, sometimes it’s just a painful punchline to a joke that isn’t funny in a life full of struggle. “Can I afford groceries for my family?” is a question I hope none of us this morning has to ask. Wishful thinking. No doubt someone out there is very worried about this question, and it’s a legit source of stress and heartache. Perspective, here, is more about getting through, getting by, and for those of us not facing that specific struggle, perspective has to extend to being kind at the check out line day-to-day; we don’t know what that other person is truly going through.

It’s a strange time. The pandemic had been seeming to recede, and people got excited (and careless). In that careless excitement lurked the ongoing hazard of new variants with new characteristics, and here we all are, trying to sort out when and where masks still just make fucking sense, and whether or not it’s worth the obvious risks to socialize in groups, yet. For me, my own perspective, it seems a bit premature. I enjoyed my coastal getaway, but I still keep my mask handy. I still avoid groups and close contact with strangers. I still avoid crowds and enclosed shared spaces. I go here or there to run an errand, but attempt to minimize my direct contact with people. I work from home and feel fortunate that I can. I hang out with my Traveling Partner, so grateful to share this peculiar time with this singular individual, fortunate to live and love with a human being I value and enjoy. Feels weird to have moved to new community, but never dined out in one of the local restaurants, or set foot in the shops in the downtown area, but… would it be worth dying for? My perspective is that it can wait – living and loving matters more. So, I take care, take precautions, and stay mindful that this is not a universally shared perspective. 🙂

I stare down into my coffee cup, and then at my to-do list for today. Another Sunday. More housekeeping. Aquarium maintenance, gardening, a quick trip the hardware store… It’s time to begin again. 🙂

Hey there – it’s summertime. What are you doing with that? I mean… yeah. Pandemic. That’s a thing. But, in spite of all of that, and it’s a lot to take, what are you doing to enjoy the season? Breathe it in, at least, these sunny days, and yeah, even the heat, and the sweat, and the struggle – all of it makes up “now”. Be right here in it, fearlessly you. How good could that feel?

…It’s not a perfect world…we’re not perfect beings…and omg, aging is a real thing, too. I’m just saying, embrace your moment. Make that hard choice. Ask that hard question. Do that thing you always thought you’d maybe like to do. If not now, then when will you? Don’t let your moment slip away – don’t you already have a pile of regrets stacking up? Why add one more? I’m just saying… we’ve all got “now”, and not much else besides our memories, and our yearning for something more. 🙂

I’m sipping my coffee and smiling, enjoying a slow morning in the middle of the work week – I took the day off to have coffee with a friend, and run an errand in the afternoon that didn’t fit nicely into the work day. It’s a pleasant departure from the routine. My Traveling Partner is working on this and that, and I feel his love infused in the morning; he makes me 3D printed fidget toys that satisfy my restless motion.

It’s just a button to press, but so satisfying!

I sometimes find it hard to remember to really take it easy and chill and enjoy the moment. I don’t mean that I don’t know to do that, just that, sometimes, when I think I am doing that… I’m not. I’m fretting over some other moment. I’m reviewing some past stressor and wondering if I handled that well, or I’m projecting into a future moment of anticipated anxiety, wondering how to best handle that when it eventually arrives. Being here, now, is sometimes a bit of a challenge. You too?

I breathe, exhale, relax. I pause for moment, just to listen to the music in the background. I sip my coffee, really attending to the taste of it, the feel of the warm cup in my hand, the vague hint of something I never can quite identify (it’s not unpleasant, and I suspect is the “missing” taste of “bitter” that I am not very sensitive to). After all these years, I still enjoy a good cup of coffee (and still tolerate a bad one! LOL).

So yeah… there’s “now”, and there’s everything else that is not “now”. Grab a moment and get started – it’s already time to begin again. 🙂

I’m sipping coffee and listening to videos, waiting for my thoughts to gel around some idea, or word, or notion; it’s not happening. I’m content, and relaxed, and feeling pretty good in my here-and-now, and it’s enough… so… “no words”. lol It is what it is, I suppose. There’s a lot going on in the world, and a lot of it matters a great deal, but this moment, here? Pretty relaxed. It’s a weekend day. Housekeeping later, coffee now.

One sunrise, last week.

My morning walks have been at a favorite park for a couple weeks now, since it re-opened. Dawn is coming later, each day, and soon it will be too dim in the morning to easily and safely walk these trails so early. I haven’t yet sorted out how my routine will need to change. Some days, it still feels very new to be so “settled”. It’s not as if every day is the same – they differ rather a lot. My “routines” have still not really established themselves as a natural byproduct of my comings and goings. I guess I’m okay with that – I sort of have to be as a consequence of simply being okay with myself. 🙂 Still, though, I’ve got to figure out when and where I’ll be getting my mile(s) in, once the early morning is “too dark”.

Same walk, different morning.

There was an air show this weekend. The noise did not cause me any particular stress. The traffic was not much of an inconvenience. Looks like it was probably a pretty cool family-friendly event.

…I feel a thought arise, and slip away before I can make any use of it… I think it may have been interesting, or relevant, or tie some idea to another, but… it’s gone now. LOL

My Traveling Partner is spending quite a bit of time in his shop. It makes sense; it’s the time of year for it. It fits my sense of seasonality in the context of family life. He’s been making parts for other tools, and making things that solve small household problems – like handy hooks to hang the attachments for my mixer, tucked out of the way, still very convenient. The wee hook specifically fit these mixer attachments. So cool! My father and my (paternal) grandfather were both “makers”, and I feel very much “at home” with my partner doing things in his shop. It feels “right”. 🙂

I finally planned time for a camping trip. Getting a reservation anywhere I wanted to be was pretty challenging, and I ended up opting for “car camping” this year vs hiking into a more remote spot. Nonetheless, I’m super excited about it – and choosing car camping means somewhat better comfort, and I’m pretty stoked about that, too. 😀 Coffee with chipmunks, squirrels, and robins, as the sun run rises, sounds pretty good. Long walks with no destination. Afternoons napping in the heat before taking another walk before dinner. No fireside stuff; the entire state is a huge vast wildfire zone right now, but the summer heat will mean I won’t ever be so chilly that a fire seems necessary for comfort, anyway. I take my computer when I go to the coast. I take a notepad, a sketchpad, and a pen, when I go camping. lol It’s a very different experience.

I walked away from my writing before I’d finished my coffee, and spent time relaxing with my partner, talking about projects, hanging out, watching videos, and then got started on housekeeping chores for the week. It’s been a fun day. I completely forgot I was in the middle of writing a blog post until sometime after lunch. LOL I’m smiling and sipping an afternoon cocktail – a rare treat – and checking off the chores. Just laundry left now, and it’s in progress. I took time to combat an accumulation of tasty leftovers by making a nice lunch salad. A good summer afternoon meal. Life feels… pleasantly ordinary, more or less. It’s a hot day. It’s comfortable in the house. My headache is somewhat diminished with careful, reliable hydration, and good nutrition (I mean, what the fuck do I even know about any of that, really? I’m not a doctor, I’m just saying, it seems less severe, some days, if I am definitely drinking enough water, and eating a balanced diet with lots of leafy green veggies in it. I do not care a bit if that’s a “placebo effect” resulting from simply thinking those things matter, or if it is “real”. I don’t hurt as much, and that’s enough).

The tall icy glass, in which what is left of this gin & tonic sits, sweats condensation; cold glass, warmer room. I sip on it slowly – as I said, I rarely drink alcohol these days, so I take my time with such things to minimize risk of foolishness or poor decision-making. 🙂 My Traveling Partner makes an exceptional cocktail. He also has some familiarity with my problematic history with alcohol (having grown up around multiple family members with acknowledged, legit, “drinking problems”, and my own early behaviors around alcohol as a young soldier), and he’s cautious with such things (which is appreciated, not forced on me). I enjoy the fantastic sometimes complex flavors of a well-crafted cocktail, and we stick with the delights that rarity requires: exceptional quality of the ingredients, sourced with care and thoughtful selection, flavors outside the “everyday”, and cocktails that are notable (for their history, or their ability to evoke nostalgia, or for simply being especially delightful in flavor) – but notable in some way other than their ability to intoxicate. We’re not really “about” the potential for drunkenness, and it shows in how rarely we drink, and how slowly we drink when we do. LOL Drunk people break shit.

I’m happy to enjoy a partnership so safe that I can even relax and enjoy a cocktail now and then without worrying that I’ll turn right around and “burn my life to the ground” on a funeral pyre of addiction. I understand better, now, that in some respects it isn’t about the addictive substance nearly as much as it is about the relationships that support my emotional wellness day-to-day. There’s a ton of more recent science on addiction, if that’s interesting to you for any reason at all. I encourage you to study more (I mean, like, always, and anything that is of interest to you) – definitely check your sources. “Karen’s Facebook group” is likely a less rigorously peer-reviewed source for information on the science of addiction than, you know, scientific studies available on PubMed, or some other reputable source. Just saying – fact-checking is good stuff. Knowing your source? Good stuff. Reading and applying critical thinking? Good stuff. Do your homework.

…And, hey, if you’re just not well-informed about a topic, not an expert at all, maybe just don’t share that uninformed opinion at all, eh? It’s okay to lack information. It’s less okay to make shit up like you know something about it. I know, it’s hard; we all want to be experts.

…Reminder: I’m no expert. Nope. Not even on mindfulness. I’m just a human being human, doing the best I can to be my best self, trying various practices that may help me along the way. I’ve got a reading list – did you notice I didn’t write any of those books? Yeah. That’s because I am not an expert. At all. Just a human, being human. Sharing what I can of a complicated journey, in case other travelers are also wandering around without a fucking map. 🙂

It’s been a pleasant Sunday. I’ve gotten a few things done. The garden is looking lovely, and the roses have now established themselves where they’ve been planted. I smile when I think about the years and the miles and the containers being carried from apartment to apartment over decades… so few survived to see home, here. It was a lot to ask of a wee rose in a container. I’m sure there’s a metaphor in there, somewhere. I’ll think it over for awhile, and see what I can make of it.