Archives for posts with tag: use your words

I’m sipping my iced coffee and thinking about mortality. Not really a surprise after visiting a dear friend who is facing hers. Thing is, there are options and “ways to go”, and I’m not surprised by my dear friend’s choices, and I’m so fucking grateful (and relieved) that she’s gotten to make those choices with her own voice and mind and will, and that her family loves her enough to respect those choices. It’s a difficult time. Saying goodbye was less trying than simply somewhat sorrowful (and also unexpectedly joyful and deeply connected), and in part that was because my dear friend is cared for by people who love her, who have also managed to keep their senses of humor intact, and are so skilled at balancing respect for this dear woman who has been so much to us all, while also fending off the medical bureaucracy and bullshit (yeah, there’s a surprising amount of that) to ensure she is cared for and comfortable while the clock ticks. I’m glad I went to visit.

The private anecdotes illuminate the loving good-nature of my dear friend, and her continued sense of humor and awareness of her circumstances. I won’t be sharing those, they feel too private – but g’damn do I love this woman, and admire her strength and practicality. I hope when it is my turn, I have some measure of her strength, wisdom, and will. She’s managed to make things so much easier on her family simply by having known – and communicated – what she wants for end-of-life care for a long time. Fuck it is going to be a lonelier world without her in it!

…What I’m saying is, think about what you will want when “that time” comes, and then actually say words about it to those that you love. Don’t run from it. We are mortal creatures, and at least as of 2023, there’s no dodging that.

I arrived home last night after as close to an effortless drive back as could have been achieved. Almost no traffic, things moving along smoothly at slow points through small towns, pretty good weather… even the rain that began to fall midway through the drive stayed quite well-behaved and wasn’t much of an impediment to safe driving. I got home more than an hour earlier than expected, but that was mostly due to taking shorter/fewer breaks. I took plenty of those, and more frequently, with the result that I didn’t need so many or such long ones. Funny how that worked out. There’s a self-care lesson there. My Traveling Partner was pleased to have me home. I am happy to be back. Feels good. Comfortable. Familiar.

…The comfort and familiarity of home reminds me of the disappointing blandness of the hospital my dear friend is currently in. How the hell is anyone supposed to heal in that unengaging, unappealing environment?? I sip my coffee and think about that for some minutes…

The pre-dawn darkness became daylight… I barely noticed. There’s quite a lot to catch up on with work… time to begin again.

I find one of the most difficult (and worthwhile) practices to be refraining from taking things personally. It’s so easy to bask in the glow of a lovely compliment and take that to heart… but… the same person telling you that you’re awesome yesterday could very well be calling you a fucking bitch when they see you next week. That’s about them.

If I let myself become invested in some other person’s opinion of me to the point that it becomes self-defining, I’m likely to end up constantly spun up every time they change their opinion in some moment of joy – or anger. That doesn’t sound particularly healthy, at all. Using another example; if taken personally, shit talk from another room could be a huge mood wrecker and potentially a source of conflict. Avoid taking that personally, and it’s simply that other person dealing with their own emotions (however well or poorly, which is a separate concern). I’m not saying it’s easy to avoid taking shit personally, at all, I’m just saying its a worthwhile practice. So – I keep practicing.

…An insult is like any poison; it only affects you if it gets into your system. Don’t drink the poison.

Human primates are messy and sometimes unpleasant to deal with. Doesn’t matter if it’s that guy over there, or the person in the mirror – we’ve all got “issues”. Making a point of letting that other person’s issues be their own (and not letting them also become yours) is a good step toward feeling centered and calm, even when there’s a bit of chaos about. It’s also easier to focus on and deal with your own issues if you’re not all wound up in someone else’s moment. It’s one useful thing about being individuals; you can let that person be who they are, let them have their moment, and go right ahead and work on you while they do. Non-attachment is another useful-but-also-difficult practice. I take a deep breath and let it out.

I sip my coffee. The day started early, and less than ideally well. I got up, dressed, and went directly to work. I’m not in a good mood, and just dealing with that is taking quite a lot of my focus and effort. I had my day planned differently, but circumstances often don’t check my calendar. lol Later this morning, I’ll attempt to make the drive to a town nearby to get some lab work done that has been delayed by the inclement weather. I’ll return movie rentals on my way back. Maybe take a package to the post office. All of this is dependent on the condition the road is in, later in the morning. I admit – I’d very much like to get out of the house for awhile. I’m feeling a bit cooped up, and it’s exhausting trying to keep up on work, the housekeeping I usually do, and handle the tasks and chores my partner typically handles, while also doing things to support and care for him while he recovers from being injured. It’s a lot. I’m fucking tired. I’m tired enough that it limits my ability to graciously deal with stress or moments of temper, and since we’re both human primates, there’s reliably a bit of that now and then. I could do better. I keep practicing.

…There’s a lot of practicing going on this morning…

I sigh. Continue to drink my coffee. I could use some real “down time”. My last “coastal getaway” was mostly spent working, and was done primarily with the intention of giving my Traveling Partner time alone to work on a project – neither of us anticipated that he’d get hurt and be both unable to work on that project at that time, but also have to shelve it for weeks while he recovered. I came home from a getaway that provided little down time at all, to increased workload and increased stress with few opportunities to get away from either because I was needed right here at home to provide my partner with care because he just couldn’t get around to do basic tasks for himself. I’m exhausted, and I’m very much yearning for some time to myself to just exist on my own terms for some brief period of time without being constantly aware of the fairly long list of things I still haven’t gotten to that need doing. It’s called “self-care” for a reason; you’ve got to do it yourself, for yourself. I’m betting my Traveling Partner would enjoy a couple days without my constant presence, himself… I remind myself to ask, and to check-in on whether he thinks he is in sufficiently good shape to take care of himself without me for a couple days.

In the wintry months, camping is not an ideal option for me, personally. I don’t care for sleeping on the ground in cold weather, and it worsens my arthritis significantly to do so. Instead, I count on an inexpensive room on the coast, near trails and beaches I enjoy walking. I check to see what the availability is like over the next couple of weekends, and spot a potential opportunity. Just taking the steps to check out my options reduces my stress some little bit; I “feel heard” by the person I reliably need to be listening to me (me). I breathe. Exhale. Relax. Sip my coffee. Repeat. I think about other things I can do to ease my stress and restore my energy and plan my day with those things in mind. The weather seems to be improving somewhat, and the ice is melting… handy. I could use a walk. 😀

I make a short list of the more urgent items to attend to today, so I don’t forget them… I immediately feel overwhelmed when I add “put away your laundry” to the list; I’ve been putting off actually completing that task for literally weeks. It’s one task I can shrug off without really affecting anyone else, but… it does add to the chaos in my living space, and that increases my stress. There’s an obvious cycle to that, and breaking it requires me to hang up a bunch of shirts and tops, which is physically painful and also tedious. That’s it. That’s the “big deal” and I keep dodging it. Fucking hell. And the dishes need doing, which vexes me endlessly because as soon as they’re done, I cook something or fetch my Traveling Partner a snack and there are more fucking dishes. Cycles upon cycles.

…One task at a time…

I look at the time, and my inbox. It’s already time to begin again.

I’m in a pleasant place, at the end of a pleasant day. It’s been a lovely break from the routine, and I’ve enjoyed it. Doesn’t do anything to improve the pain I’m in, that’s just real, and as much as possible I’m past letting it call my shots in life(except when it just does) – but it doesn’t mean I’m not in pain. Here’s the thing, though… we’re each having our own experience, and pain (or suffering) is part of the human condition. (Wait around long enough, you’ll get yours.) (And, I’m sorry in advance, cuz it’s definitely going to be a thing, if it isn’t already.)

I’m in pain. My Traveling Partner is also in pain. We have different pain, and different reasons why. We both hurt, and it can be super annoying. Pain tends to shrink one’s world down to just the pain we experience, ourself. It’s very human to filter someone’s shared experience through the lens of our own lived experience – without any reason to assume that these might be at all similar (they’re often not sufficiently similar to justify that approach). It makes for shitty listeners and a poor experience when seeking support. 😦 I remind myself to do better.

I’m sure we’ve both done all the things we know to do when we’re in pain. Doesn’t really do more than maybe improve things a bit. Doesn’t treat the underlying condition or cause. Doesn’t result in a uniformly pleasant experience from that point. Doesn’t make communicating about it any easier. Neither does being apart. Quite the contrary, being apart when we want support from our partner is extra frustrating. Not ideal for communication – or pain management. Stress amplifies pain. Pain causes stress.

Human primates being human primates, we tend to make some pretty stupid assumptions (and then act upon those instead of something we can confirm is truly the case) when we’re stressed, frustrated, hurt, or hurting. It’s no wonder I like the occasional getaway all alone; human primates vex me. (All of them, pretty reliably, at some point.) I’m not any better, being that I’m also a human primate. This evening I am, in fact, vexed with myself and my ongoing very human communication challenges. It sucks and I’m cross about it. How the fuck do I so reliably say things that I think demonstrate how much I care, only to have the person I’m speaking to behave as though I’ve been ignorant, insensitive, or just somehow wrong? Super annoying. I’d definitely like to do better.

I’d like to do more to “be there” for my Traveling Partner. I failed pretty seriously, and I think all I was really being asked to do was listen for awhile. That should be easier. (I definitely need more practice.) Over text, my communication challenges are complicated by how much slower I type out a text than my partner does. (I also tend to do several edits or rewrites of a response, and often still working on that, seeking to be careful with my words, considerate, wise… and then his messages start stacking up, and I’m not yet done with the first reply. Awkward. By the time I hit send, what I’ve said no longer makes sense. It’s problematic, and I definitely think conversations that require care and consideration do best irl rather than as text messages. Just my opinion, my experience. I want to help support him, and help him get the support he needs (or treatment) to be really well through and through. I also want that for myself, but don’t know how to get it. It’s hard, sometimes.

…Some things don’t have a tidy diagnosis with a conveniently positive resolution…

Now I’m distracted and annoyed by this situation, and struggling to focus on my book at all. I breathe, exhale, relax, check my meds – yep. Time for the next round. I sigh out loud. A few minutes ago my partner was telling me how much he misses me. I wonder if that’s still true right now? I hope we both sleep well and get good rest, and wake up in less pain. That’d be nice for both of us.

It’s evening. Already time to begin again.

…………..

I rarely “follow-up later”. This is me doing that. Hours later. I’m still in pain. He’s still in pain. We’re still apart from each other, and it’s… night. I miss him. He misses me. A few terse words and a bit of misunderstanding don’t change that (even when it may feel, momentarily, that it might). A quick reset – a chance to “begin again” – isn’t just a phrase. It’s a practice. I took some time, got past my bullshit. Distracted myself in a healthy way to avoid ruminating over bullshit. I “broke the spiral”, and got my evening back on track.

I’m tired, but not yet sleepy. I finished one book, and took time to sit with that world and its adventures, for a little while. I’d go to sleep, but I’ve had an “unfortunate amount” of coffee (4 cups? Maybe 5?) – and yes, it likely affects my ability to fall asleep quickly at my usual somewhat early hour. All good. I’ll rest, anyway. Maybe start the next book…? Then finally, get some sleep.

I’m eager to return home. Another opportunity to begin again. 😀

This morning I “hate humanity”. I mean… it’s not even humanity’s fault, this morning. I have a headache. Base of the skull, at the back, just where my neck connects. Does it feel like a tension headache? No. Doesn’t feel muscular at all, but that doesn’t mean it isn’t. I don’t know. I know I have a headache, and it is pretty fucking terrible. My Traveling Partner suggests drinking more water. Yep. On it, already. Makes sense. Maybe it will help. I’m just saying; I have this headache and it colors my entire experience of life and my perspective on humanity and the world, generally.

I’m making a point of mentioning this for a reason; you wouldn’t know if I didn’t if I didn’t tell you, but you’d likely still experience something or other unpleasant if you had to interact with me right now, and you’d potentially not know why things went the way they did, due to that lack of information. You don’t know what you don’t know, and nearly everyone is going through something, quite silently and alone with their shit. That missing context matters. Be patient with people. Be kind. Be sympathetic and empathetic and compassionate. Be aware.

…And also… take care of yourself and use your words. No one is going to read your mind.

Fucking hell, this headache, though… right now I don’t care that it is the start of the holiday season, or… mostly anything. I’m just cross and headache-y.

…I’d very much like to begin again, please…

I slept poorly last night. Restless dreams, wakefulness, and frequently having to get up to pee, along with being in pain, made for a difficult night. My Traveling Partner woke up in a shitty mood, in pain, and cross with me as his default approach. Not my favorite way to start a day. I dressed and headed out as soon as I woke. “Later” will be soon enough to return home, hopefully some time after my partner has had his coffee, done some yoga and stretching, and taken whatever he can to manage his pain and allergies.

I’m sitting on a fence rail next to a marshy expanse of still water favored by all manner of water birds. There is seasonality to the view. I enjoy this quiet place, although on weekends it is often crowded with bird-watchers and camera nerds. It’s a nice place for perspective.

God damn, it would suck if this otherwise beautiful relationship were to fail over our inability to sleep in the same place. I think about that briefly. Tears well up, and I brush them away. We’re not there yet and there are still things to try. My sleep study got moved up from mid-August to… tomorrow. I’m not exactly excited, just hoping something helpful comes of it.

A woman and child walk past me. I hear the child ask “Mommy, why does that lady look sad?”, and the woman’s kind careful reply “Sometimes being a grown up is hard honey. It makes Mommy sad sometimes, too.” For real, Lady, you’re so right. Sorry, Kiddo, it’s not always easy.

I sit quietly awhile. No plan. Just stillness. I check the hours for the pharmacy near home in order to time my return such that I can pick something up for my Traveling Partner. I try to do enough sweet things, kind things, helpful things to offset the unpleasantness of our shared challenges. It’s not “enough”, but it is at least something. I find myself making a silent promise to refrain from talking about my own pain, and fatigue, and stress, and anxiety… Hoping to be more easily able to make room for my partner to feel heard, even if I can’t do much about it. Again, it’s not everything, it’s just something.

… I have to trust that after 13 years together he does understand that I am chronically struggling with pain, myself, and that he has the affection for me and the emotional intelligence to hold space for that awareness day-to-day, in spite of his own pain and fatigue. That’s hard sometimes. It can be a very “fuck your pain, what about mine?!” kind of world sometimes. I think I can do better… But how best to do better without being a dick to myself and undermining my own emotional wellness? It’s a puzzle.

… Sometimes being a grown up is hard, and it makes me sad…

I think about a dear friend tearing up a bit as we discussed age, aging, and the inevitable loneliness of feeling “cast aside”. Fucking hell, that is some real shit. Sometimes being grown up is hard. I watch a small flock of birds take flight, appearing to chase a larger bird. They don’t pay me any attention at all. I’m not part of their experience.

We’re each walking our own path. No map. Sometimes we get lucky on the journey and have some companionship along the way for some distance. It’s not a given that we will, and ultimately we’re in this alone, regardless how or whether we surround ourselves with people or creatures. These are individual journeys. Nonetheless, we’re also all in it together. It’s a puzzle. I remind myself to try to be kind. Always.

It’s time to begin again.