Archives for category: Hormone Hell

I may as well have ordered from a menu…”I’ll have the Random Emotional Overload, please – does that come with Feelings of Not Being Heard? I’d also like extra Not Well Understood, please. Can I have that with a side of Fail Sauce? There’s no Diary in that, is there? …Oh, Honey – you should try the Accusations and Dismissiveness, I hear that’s really exceptional here…”

Yesterday, I went, in mere seconds, from feeling content, comfortable, and enjoying quite a lovely day, to… something very different. The tiniest of difficulties with communicating a very simple idea (“yes and I am uncomfortable”, versus “No, because I am uncomfortable” – quite different concepts, truly) quickly became an embarrassing loss of emotional regulation on a level that is difficult to accept, explain, or excuse without some understanding of how a disinhibiting brain injury might complicate PTSD. It is what it is. I continue to do my best and work to grow and improve on what I can’t rely on without exerting will and continuous practice… It is what it is, and what it is just happens to be my experience, which sometimes sucks rather a lot.

I moved on, the evening unfolded, eventually I slept. The damage is done, of course. There are no ‘take backsies’, once I’ve hurt someone – they hurt. It’s the crumpled paper model of regret; the apology is necessary, and making amends is important, but the damage is done.

My head hurts today. I didn’t sleep well. Hormone Hell sucks like crazy, but it’s still 100% on me to do my best to be the best person I can be, moment to moment. It sucks that a few painful moments on a single day out of many can have the potential drive pain and stress into so many other potentially entirely unrelated moments even on entirely different days, but there it is. It’s one major reason why mindfulness matters so much, why I keep harping on being in this moment, and reminding myself that we are each having our own experience; there’s just no sharing some of it, and becoming mired in what sucks is so much easier than becoming wrapped in what is warm and lovely and good. Be. Here. Now.

This moment was lovely...

This moment was lovely…

Today is a good day for practicing practices. Today is a good day to be this amazing woman I am – challenges and all – and to continue to do my best, and to grow, and heal, and walk on, until I reach a new perspective. Today is a good day to embrace all the vast character and wonder of this creature I hold so tenderly in this broken vessel. Today is a good day to stand between myself, and the world, and be the person I can count on right now to care for me, reliably well, every day.  Today is a good day to make choices that meet my needs over time.

Another chance…? Another chance to what, exactly? This morning I woke feeling decently well. Pain…manageable. Mood…serene. Yesterday started well, but most of the day itself was a test of emotional endurance, with physical pain supervising every effort. It was all small stuff, too. I’d just start pulling free of the dense sludge of negative emotion, and get slapped with some new small test of my patience, or balance. I spent the day struggling. Oddly, the day ended relatively well with 90 or so minutes of calm, quietly spent with the family, ending with a couple of episodes of South Park, and the company of my traveling partner. If I could have smushed the opening hour and the closing hour together, the day would have been quite brief, but quite wonderful.

Living isn’t about ‘could have’, is it? Life isn’t about ‘ought to’. Life isn’t about ‘didn’t’. Life is a very real-time experience, however often I bamboozle myself with yearning for something past (or regretting it), or however often I am stalled by an attachment to a future outcome. ‘Now’ is what I’ve really got to work with.

I actually don’t know what turned me around last night. I got home still feeling blue, unbalanced, reactive, and stressed out. I struggled through a shower, through some chores, and even taking care of me basics, and feeding my fish. I politely retired to a solo space, certain at that point that I just wasn’t ‘fit company’ and not wishing to spread it around. I lit some candles (mostly to take off the chill of the room, but I do enjoy the ambiance). I spent the next hour (maybe longer) meditating. That’s all, just still, and quiet, and focused on that simplest point of life, my breath. When I finished, I still had a few tears to go, and they drifted lazily down my cheeks while I took out the trash for tomorrow’s pick up, and made a bite to eat. From that point, it was as if it was an entirely different day. It was…odd.

When I called it a night, I didn’t read or do yoga, or linger awake in the night. I did spend more time meditating, no clock, and once finished with that, contentedly rearranged myself for sleep. This morning I woke feeling fairly good. Correlation does not prove causation, but I do find it noteworthy that many of the improvements in my experience, overall, and bad-days-turned-good experiences, seem to be associated very specifically with meditation. Before it sounds like an endorsement, I’ll also point out I could just as easily say they are associated with tears, but it would be a misleading statement, since I’ve been crying far longer than I’ve been meditating. LOL

I recognize from yesterday’s moods, and from things said during appointments, that I need to slow things down a bit, at work and at home. I’m pushing myself harder than I mean to, and compromising more of my own needs than is healthy for me. Spending more time meditating benefits me directly, but also improves outcomes and experiences for people alongside me, interacting with me. Somehow my ‘to do list’ has grown to pages, and when I take a closer look, it’s unnecessary to push myself so hard; organizing one’s time need not result in self-abuse (no, no, not that kind of ‘self-abuse’! lol).

One winter moment, still,  and calm. If I could just get the hang of this one - 'each time for the first time, each moment the only moment'.

One winter moment, still, and calm. If I could just get the hang of this one – ‘each time for the first time, each moment the only moment’…I keep practicing.

Today is a good day to slow it down and enjoy the journey. Today is a good day to treat myself with kindness and respect my own time, my own limits, my own boundaries. Today is a good day to change the world.

 

I’m still lounging in my sleepwear, and it’s actually 8:00 am. I succeeded in sleeping in – and a good thing, because my emotions and my physical pain kept me up quite late. There’s nothing like stress, hormones, and pain to illustrate all my very worst qualities as a human being: easily frustrated, childishly attached to being comforted, emotional, needy, demanding, inflexible, irritable, unapproachable, resentful, baggage laden, and capable of losing all perspective in a moment. This human primate thing is not so easy as it seems…at least not if I am wanting to be the best that these raw materials allow.

This morning I woke with this headache continuing from yesterday, and through the tears (yes, sufficiently painful to cause tears in the absence of other emotion-causing stimulus) I took time to be grateful for something pretty obvious; I don’t have this headache every day. That’s something. I take a moment and try to apply the same practice to other frustrations, other things I am ‘going without’ or just no longer have in my experience these days, that I continue to be attached to, and to yearn for.  I’m grateful that I ever did have those feelings, and experiences. I appreciate and value the memories that linger.

This is not the most joyful place I’ve been in life. Facing a mid-life health concern, having my own experience – companionship, love, sharing; none of these things actually change one thing that is real and true in all this. I am having my own experience. There will always be elements of my experience I can’t easily share, or verbalize. There will always be the limitation that others are having their own experience, as well, and my words will be filtered through their understanding of the world, and the context of their experience. There will probably also always be elements of my experience that are best not shared at all – that’s been a given all along. It’s one of the most difficult things about having this particular TBI, or of being a trauma survivor; most people don’t try to share on the level I default to, and most people do not want to have a visceral understanding of some kinds of pain. I am alone with my words. A lot. At some point, that has to be okay.

My TBI complicates things, and sometimes in a very unexpected way. I’ve been feeling incredibly discontent lately, less supported than I ‘expected to’, lonely, sexually unsatisfied, emotionally isolated, frustrated, and disconnected in my relationships… I miss a particular time period in a valued romantic relationship (which one would not be relevant, the experience is similar across all of them, to varying degrees). I miss “that year” together, with the intensity of our affection, the continuous good-natured camaraderie, the close emotional bond, the driven heat of sex-all-the-damned-time – and feeling well and truly loved, satisfied, cared for, nurtured, valued… it was fucking fantastic. There’s never been another year like it in my life, before or since – even in the relationship I share with that lover, now. I noticed it at the time, and I valued it greatly. I regularly attempted to express my appreciation and gratitude… and to my later great disadvantage (I realized during the night), his response was to assure me I deserved to be treated so well, and that he always would, and further that I ought not settle for less, ever. I wonder if, at the time, he had any idea that he would be treating me less well over time, himself? I recognized how spectacularly special that time was, and the wonderful way he loved and cared for me. I regret that I didn’t understand his polite refusal to be complimented on it had the potential to set my expectations of the future of love. It’s not fair to either of us that I yearn so much for a moment in love’s life cycle of unsustainable intensity. I’m sure it was a good time for him, too. No time machine. That time is not now.

Here I am now. Love is. That’s a pretty big deal. There are still things I want out of love that I don’t have right now. That is what it is. I suppose I will likely always feel that way. Realistically, if I never had sex ever again… I’ve had more than most people, some of it has been extraordinary. Same with love – if I were bereft of love’s warmth tomorrow, I have at least known love. Romantic promises and hyperbole probably don’t trip everyone up the way they tripped me up…my broken brain got in my way; I did not understand those promises were not ‘real’, only beautiful words of love.

Today I will have breakfast with a friend I’ve been missing, and converse about the things going on in our ‘now’. I won’t need to pretty up the details – he’s the sort of friend I’ve always been able to be entirely frank with, and he’s always there. He’s been a friend since before the relationships of my heart’s landscape now even existed, and has context on who I am over time, and how I’ve grown. When we hang out, I walk away feeling more aware of how far I’ve come, and wholly accepted. It’s never been about sex between us, and it’s good to be able to talk those things over with someone who doesn’t have any potential to feel hurt by it. If you have such a friend – cherish them. You may need the warmth of their good company later on. Later I will ride the train home, and think about all the sex, all the lovers… and the awareness that there is life beyond sex, much of which I’ve not had to explore; most of my experience is sexual in some way. I’d like to find my way to a point on the journey where sex just doesn’t matter, doesn’t drive needs, doesn’t influence my actions or emotions – for now, even the idea of sex tends to feel emotionally compelling, and something more or less on the order of ‘everything that matters’, because for now, it seems to matter so terribly much that without those experiences, I sort of wonder what the point is?

The path isn't straight, the destination isn't obvious, but the journey must continue.

The path isn’t straight, the destination isn’t obvious, but the journey must continue.

Today is a good day to explore the unknown within. Today is a good day to talk with a friend. Today is a good day to wander, eyes open, on strange paths. Today is a good day…to change.

I’m quietly contemplating my evening’s ‘crash landing’ and wondering why? The house is quiet, but it isn’t late and I don’t know that anyone is sleeping. I know I am not.

It wasn’t a bad evening, quietly hanging out and watching videos of this and that. Calm. Pleasant. Eventually ‘good nights’ were exchanged. I am feeling very mortal waiting for the test results from my biopsy. I find myself ‘trying to be brave’ like the small girl I once was and hoping to let it go until I get the results – any other choice seems silly in the abstract. I am so very human.

Stormy weather...

Stormy weather…

I hurt tonight. I’ve got a terrible headache, probably stress or fatigue. My arthritis hurts. How is it I hurt this badly and still want romance? It’s frustrating. I’m not exactly approachable; I am fragile, reactive, and emotional. That’s really where it all breaks down – in one simple question, and in an instant of contemplation, “How are you doing?”. “Well, shit, I was mostly fine until you asked, actually…” but I never manage to say that. I blurt out the details of how I am doing – however that happens to be, and with the force of whatever emotion is bound up in it all – and it tumbles forth in words…and emotions, in no particular order, and with full real-time intensity.  It must suck on this whole other level to live around this injury, and the chaos and damage I wade through every day – I just don’t have the same perspective on it. How can I?

I don’t know what I’m to learn here. There’s something to be learned, I’m sure of that. It’s late, and these tears don’t matter a tinker’s damn to the massive ills of the world. This is some minor league suffering, right here, and there’s a chill calm part of me that recognizes the subtle difference between the simple sorrow, itself, and the wave of suffering that follows, self-inflicted. Part of me feels foolish to be so storm-tossed, like an adolescent girl; the thought reminds me it’s only been a bit more than a week since I started on the medication I was given – hormones. There are so many moving pieces to this whole ‘taking care of me’ thing. I feel like a dick for having a minor meltdown when I was unwittingly on the brink of being handed a few moments of connection, contact, and affection that I sorely needed at the end of a difficult week.

Sitting here quietly in the darkness, I also feel: sympathetic, compassionate, warm – understanding. What did I expect with the hormones, the headache, the fatigue at the end of a long day, hurting well beyond what my Rx handles, and waiting for test results? I sit calmly, wondering what to do to take care of me most skillfully, and with greatest love. Sleep, soon, probably…

There’s a new day, tomorrow. Love is pretty ‘forgive-y’ (if that’s even a word)…but choices have consequences, I’ve hurt someone dear to me, and tonight I am alone. Perhaps the dawn will come and find me smiling…certainly there’s enough love to go around if only I am open to it. There are verbs involved.

...I still have so far to go.

…I still have so far to go.

I started the morning with a headache. I’m sure it will pass. My brain feels a little sluggish and foggy today; it was very late when I actually fell asleep, and I woke earnestly wanting the alarm to go off later…much later. I’m not bitching. I’m hopeful that at some point I will have that quality of deep sleep on a weekend morning that carries me on wings of pure restfulness until I wake, and finding myself so groggy right now manages to be a reminder that I am capable of deep sleep. My fingertips feel cold. This morning it reminds me that the temperature in my room is once again balanced for better sleep, and fairly chilly first thing when I get up as a result. I’m okay with that, too.

Headache and all, actually, today feels okay so far. I feel okay. The gray cloud of uneased loneliness seems to have lifted – and no surprise, I suppose, considering I spent a good many minutes after I retired last night crying; unreservedly and wholeheartedly grieving what may be lost along the way. Just that. To have some moment, some experience, of such sweetness and love – any such – and feel it slip away over time, or simply be…done…those are some very challenging experiences for me. I am still learning to accept some very basic truths about life – that lovely ‘this too shall pass’ aphorism cuts a very different way when considered in the context of some profoundly wonderful thing…and it’s no less true. Change is. I didn’t pass judgment on my sorrow, and I didn’t make excuses, or criticize my need to grieve life’s losses over time. I accepted in that moment that I was feeling profound sadness, and let that experience unfold. I cared for myself, and tended my injured heart, and I didn’t stuff my big emotions into a tiny box.

Just about the time my tears had dried, and I was meditating calmly and feeling accepting and content, my traveling partner checked in on me; it’s been a difficult bit of time, together, and he is more sensitive than most to the ebb and flow of my emotions, it can be hard to endure the intensity up close. We cuddled for a time, and I felt safe and secure nestled in his arms. I felt loved. It’s a powerful love that we share… It may not ‘be the same’ right now as it ‘once was’, but won’t that always be true, regardless? I live ‘now’…and ‘once was’ is not now, ever. It’s really that simple. This morning I woke feeling centered, and understanding more that there is so much to be enjoyed about right now… there are so many nuances to love and to loving… if things stayed the same, however good that might be, how much of what love has to offer would I miss out on?

I made some different choices to take care of me over the past few days, and they’ve been good choices, based on the outcome over time. Initial results don’t always seem so promising…but there again, maybe that’s because although change is, change is not always comfortable. I feel good today. I feel balanced. I feel the results of taking care of me….even grieving what isn’t can have some value, after all, it helped me get on through to what is.  In my own experience, being nearly always feels more fulfilling than yearning. I wasn’t helping myself out, being stuck and waiting for someone to help me out of the muck; I had my hands on a rope ladder of my own making, and all I needed to do was climb. There are verbs involved.

Today is a good day to take another step on this amazing journey. Today is a good day to remember that kindness begins with how I treat myself – and so do respect, consideration, compassion, and love. Today is a good day to remember the effect of incremental change over time, and to understand that however small one single step may seem to be as a singular experience, taken as a whole the journey goes many many miles, and every individual step is utterly necessary to complete it. Today is a good day to continue the journey.

One step at a time...

One step at a time…