Archives for category: pain

It’s a quiet evening. I’m sitting with this heating pad on my back, contentedly watching a randomized playlist of favorite South Park episodes, sort of, and checking out tent camping opportunities around the state. Spring will be here soon enough. I’m in pain, but managing to find contentment; I’m not spreading the stress around.

Taking time to hang out with a friend, to pause the clock and enjoy the moment, and to enjoy a well-chosen, healthy brunch...

Taking time to hang out with a friend, to pause the clock and enjoy the moment, and to enjoy a well-chosen, healthy brunch…

...walking urban trails, enjoying a great coffee, getting a massage, lingering in a hot Epsom salt bath, and sharing a favorite show in the evening...

…walking urban trails, enjoying a great coffee, getting a massage, lingering in a hot Epsom salt bath, and sharing a favorite show in the evening…

Today was a good day. It’s enough.

 

I’m still lounging in my sleepwear, and it’s actually 8:00 am. I succeeded in sleeping in – and a good thing, because my emotions and my physical pain kept me up quite late. There’s nothing like stress, hormones, and pain to illustrate all my very worst qualities as a human being: easily frustrated, childishly attached to being comforted, emotional, needy, demanding, inflexible, irritable, unapproachable, resentful, baggage laden, and capable of losing all perspective in a moment. This human primate thing is not so easy as it seems…at least not if I am wanting to be the best that these raw materials allow.

This morning I woke with this headache continuing from yesterday, and through the tears (yes, sufficiently painful to cause tears in the absence of other emotion-causing stimulus) I took time to be grateful for something pretty obvious; I don’t have this headache every day. That’s something. I take a moment and try to apply the same practice to other frustrations, other things I am ‘going without’ or just no longer have in my experience these days, that I continue to be attached to, and to yearn for.  I’m grateful that I ever did have those feelings, and experiences. I appreciate and value the memories that linger.

This is not the most joyful place I’ve been in life. Facing a mid-life health concern, having my own experience – companionship, love, sharing; none of these things actually change one thing that is real and true in all this. I am having my own experience. There will always be elements of my experience I can’t easily share, or verbalize. There will always be the limitation that others are having their own experience, as well, and my words will be filtered through their understanding of the world, and the context of their experience. There will probably also always be elements of my experience that are best not shared at all – that’s been a given all along. It’s one of the most difficult things about having this particular TBI, or of being a trauma survivor; most people don’t try to share on the level I default to, and most people do not want to have a visceral understanding of some kinds of pain. I am alone with my words. A lot. At some point, that has to be okay.

My TBI complicates things, and sometimes in a very unexpected way. I’ve been feeling incredibly discontent lately, less supported than I ‘expected to’, lonely, sexually unsatisfied, emotionally isolated, frustrated, and disconnected in my relationships… I miss a particular time period in a valued romantic relationship (which one would not be relevant, the experience is similar across all of them, to varying degrees). I miss “that year” together, with the intensity of our affection, the continuous good-natured camaraderie, the close emotional bond, the driven heat of sex-all-the-damned-time – and feeling well and truly loved, satisfied, cared for, nurtured, valued… it was fucking fantastic. There’s never been another year like it in my life, before or since – even in the relationship I share with that lover, now. I noticed it at the time, and I valued it greatly. I regularly attempted to express my appreciation and gratitude… and to my later great disadvantage (I realized during the night), his response was to assure me I deserved to be treated so well, and that he always would, and further that I ought not settle for less, ever. I wonder if, at the time, he had any idea that he would be treating me less well over time, himself? I recognized how spectacularly special that time was, and the wonderful way he loved and cared for me. I regret that I didn’t understand his polite refusal to be complimented on it had the potential to set my expectations of the future of love. It’s not fair to either of us that I yearn so much for a moment in love’s life cycle of unsustainable intensity. I’m sure it was a good time for him, too. No time machine. That time is not now.

Here I am now. Love is. That’s a pretty big deal. There are still things I want out of love that I don’t have right now. That is what it is. I suppose I will likely always feel that way. Realistically, if I never had sex ever again… I’ve had more than most people, some of it has been extraordinary. Same with love – if I were bereft of love’s warmth tomorrow, I have at least known love. Romantic promises and hyperbole probably don’t trip everyone up the way they tripped me up…my broken brain got in my way; I did not understand those promises were not ‘real’, only beautiful words of love.

Today I will have breakfast with a friend I’ve been missing, and converse about the things going on in our ‘now’. I won’t need to pretty up the details – he’s the sort of friend I’ve always been able to be entirely frank with, and he’s always there. He’s been a friend since before the relationships of my heart’s landscape now even existed, and has context on who I am over time, and how I’ve grown. When we hang out, I walk away feeling more aware of how far I’ve come, and wholly accepted. It’s never been about sex between us, and it’s good to be able to talk those things over with someone who doesn’t have any potential to feel hurt by it. If you have such a friend – cherish them. You may need the warmth of their good company later on. Later I will ride the train home, and think about all the sex, all the lovers… and the awareness that there is life beyond sex, much of which I’ve not had to explore; most of my experience is sexual in some way. I’d like to find my way to a point on the journey where sex just doesn’t matter, doesn’t drive needs, doesn’t influence my actions or emotions – for now, even the idea of sex tends to feel emotionally compelling, and something more or less on the order of ‘everything that matters’, because for now, it seems to matter so terribly much that without those experiences, I sort of wonder what the point is?

The path isn't straight, the destination isn't obvious, but the journey must continue.

The path isn’t straight, the destination isn’t obvious, but the journey must continue.

Today is a good day to explore the unknown within. Today is a good day to talk with a friend. Today is a good day to wander, eyes open, on strange paths. Today is a good day…to change.

I’m quietly contemplating my evening’s ‘crash landing’ and wondering why? The house is quiet, but it isn’t late and I don’t know that anyone is sleeping. I know I am not.

It wasn’t a bad evening, quietly hanging out and watching videos of this and that. Calm. Pleasant. Eventually ‘good nights’ were exchanged. I am feeling very mortal waiting for the test results from my biopsy. I find myself ‘trying to be brave’ like the small girl I once was and hoping to let it go until I get the results – any other choice seems silly in the abstract. I am so very human.

Stormy weather...

Stormy weather…

I hurt tonight. I’ve got a terrible headache, probably stress or fatigue. My arthritis hurts. How is it I hurt this badly and still want romance? It’s frustrating. I’m not exactly approachable; I am fragile, reactive, and emotional. That’s really where it all breaks down – in one simple question, and in an instant of contemplation, “How are you doing?”. “Well, shit, I was mostly fine until you asked, actually…” but I never manage to say that. I blurt out the details of how I am doing – however that happens to be, and with the force of whatever emotion is bound up in it all – and it tumbles forth in words…and emotions, in no particular order, and with full real-time intensity.  It must suck on this whole other level to live around this injury, and the chaos and damage I wade through every day – I just don’t have the same perspective on it. How can I?

I don’t know what I’m to learn here. There’s something to be learned, I’m sure of that. It’s late, and these tears don’t matter a tinker’s damn to the massive ills of the world. This is some minor league suffering, right here, and there’s a chill calm part of me that recognizes the subtle difference between the simple sorrow, itself, and the wave of suffering that follows, self-inflicted. Part of me feels foolish to be so storm-tossed, like an adolescent girl; the thought reminds me it’s only been a bit more than a week since I started on the medication I was given – hormones. There are so many moving pieces to this whole ‘taking care of me’ thing. I feel like a dick for having a minor meltdown when I was unwittingly on the brink of being handed a few moments of connection, contact, and affection that I sorely needed at the end of a difficult week.

Sitting here quietly in the darkness, I also feel: sympathetic, compassionate, warm – understanding. What did I expect with the hormones, the headache, the fatigue at the end of a long day, hurting well beyond what my Rx handles, and waiting for test results? I sit calmly, wondering what to do to take care of me most skillfully, and with greatest love. Sleep, soon, probably…

There’s a new day, tomorrow. Love is pretty ‘forgive-y’ (if that’s even a word)…but choices have consequences, I’ve hurt someone dear to me, and tonight I am alone. Perhaps the dawn will come and find me smiling…certainly there’s enough love to go around if only I am open to it. There are verbs involved.

...I still have so far to go.

…I still have so far to go.

I didn’t get far with my day yesterday before the news was filled with murder, and soon thereafter #JeSuisCharlie – and with good reason. It’s criminal to murder. It’s unacceptable to take lives over a difference in aesthetic, opinion, lifestyle – I mean, let’s face it, murder just isn’t okay.  How do people ever get the idea that there is adequate justification to murder? That’s a level of righteous entitlement that frustrates and angers me, and I feel helpless. That’s perhaps the point; to render voices silent. I am moved by the outpouring of support as artists of all sorts stand, come forward, and make statements of their own – because we are all Charlie Hebdo; artists take risks with words, images, and songs. Every one with a voice, everyone with something to share, everyone with a message, everyone with an experience outside the ordinary, everyone moved to create art, compose music, or put words in a row, is Charlie Hebdo. Charlie Hebdo isn’t an individual anymore than The Onion is an individual – and the more powerful for having distilled the voices of many into one; this terrorist attack resulted in real human lives lost, real murder, and it’s really not okay.

This is why we can’t have nice things. How many times do we have sit back in shock and horror because some lunatic jackass(es) thinks they have the right to take a life to make a statement or prove a point? It’s horrific, and fairly stupid, that this goes on… but we live in a world where whole nations commit to acts of genocide, slaughter, land-grabbing, and warfare, over opinions, over resources, and over ideology. I defy you to find justification for any of it that is ‘rational’, reasonable, or truly necessary…but we all grow up in a world where our own leaders set an example that says to us all that we are not safe, and that our lives lack value, and that for some there is justification for murder.

I, too, am Charlie Hebdo. Aren’t you? What will you do to make the world safer for the artists who amuse, who enlighten, who delight, who move you to a different understanding than you had before? We need your help, your support, and the power of your convictions. Each of us, all of us, are Charlie Hebdo; don’t let your voice be silenced.

Tiny worlds exist between one perspective and another along my way.

Tiny worlds exist between one perspective and another along my way.

My own day was much less eventful than Wednesday in Paris. I went to my medical appointment, arrived on time, had my procedure. No amount of comforting medically dismissive preparatory dialogue is adequate to describe how much this procedure hurt…but the acute moment was very brief. “You may feel some cramping…” was definitely not accurate, relative to my own experience. It was vile. Invasive. Painful. I spent the remainder of the day gently, taking care of me in the company of my traveling partner. I called it a night early. Today I feel okay, although a little achy in an area I usually don’t feel much moment-to-moment. In the context of global terrorism, murder, and the viciousness of free-range human primates it seems a small thing. I can’t help but wonder…what would the perspective be of the wee life forms living in the moss growing in the crack on a brick wall, on our madness?

Today is a good day for perspective. Today is a good day to treat myself gently – and to treat the world gently, too; we’ve been through a lot, haven’t we? Today is a good day to be kind, out in the world.

I woke with some difficulty this morning, so stiff that rolling over to shut off the alarm took effort, and the seeming ceaseless beeping until I got to the clock didn’t seem to do as much to wake me, for real, than I might have expected had I been sufficiently awake to have expectations beyond expecting to be able to turn off the alarm sooner, with greater ease. I’m still groggy.

I’ve been sitting here, gazing vacantly at my aquarium, and listening to a jazz standard that doesn’t sound quite right…even though I feel sure that the version I am listening to it the one I favor most.  It’s an odd sensation, that finds me searching YouTube for other versions, by other artists I have listened to singing this song… none of them sound the way I remember. the arrangement is somewhat different in all of them. Then…as I hum the version I expected, quietly, it hits me; I’m hearing the version of the song that is most representative of me singing it, myself. Yep. I sing jazz standards, mostly a capella, mostly in the shower, in the car, or out walking…and I rarely do so when anyone can hear me because my singing is actually pretty dreadful. lol I love the feeling that goes with whatever moves me to sing, and alone I feel no hint of self-consciousness about delighting myself in this fashion. I find it unexpected that my favorite version of any of these songs I love would be my own.

I suspect being hung up on this song this morning is a kindness my brain is offering me to distract from both pain, and the worrisome appointment later. It is convenient that the biopsy falls on the same day as therapy – however emotionally challenging the biopsy procedure may turn out to be, I’ll be getting pro-level support later. By the end of the work day yesterday, I was feeling pretty pragmatic about the appointment – and the procedure. I’m still tense about it, still a bit worried about the outcome, but it’s no surprise to me that I’m mortal, that I’m 52 this year, that aging is, or that uncomfortable medical procedures are sometimes necessary. I’m fortunate to have ‘procedures’ available that may save me from an early demise. Fear subsided by day’s end, and this morning I am…tense, yes, but unafraid. That’s an improvement.

The worst case scenarios my brain devised, of course, are dreadful – and seemingly reasonable, or at least potentially possible, but that’s sort of a requirement for a really terrifying worst case scenario, I think. I didn’t get past the fear until I allowed myself to consider these ‘worsts’ to their apparent likely conclusions, and took a moment to consider those proposed outcomes with an open heart, self-compassion, and acceptance. “What if…”  It added some things to the disappointingly long list of shit I think I need to work on, and served to reinforce an eagerness for life that is pretty positive, generally. My next step – and this one needed real will, and commitment to action, was to take some moments to consider that these worst case scenarios are just my brain running simulations – “what if” analysis – and they have no more reality at all than any other work of fiction. They are merely words, images, and projections of potential moments that are not yet, and may never be. They have no power over me that I do not give them, myself.

Perspective

Perspective

Having reached a point of emotional equilibrium about this appointment, it’s disappointing to wake up this morning in this much pain, and this stiff. My spine feels like my vertebrae are super-glued in place and lack any flexibility at all…but, hey… great day to see a doctor, even on an unrelated issue. (Are there really any ‘unrelated issues’, ever?)

So here’s a question… If you had to check out today – and I do mean end your mortal experience here in this plane of existence, no planning, no preparation, no last great experiences, just wrap things up and call it good – if you had to check out today, are you content with what you got done for yourself, and for the world? Have you left a lasting positive legacy of some kind, even if it’s only the lovely memories of having loved you that remain? Was it ‘worth it’? If the answer is ‘no’ – what will you do differently tomorrow? It was this question in mind, last night, as I arrived home that gave me insight I needed to communicate, at long last, something that had been throwing my heart’s song off-key and I was finally able to express it as a question without accusation, or grief, or baggage, and that was a wonderful moment.

Well…here it is, today, and no more stalling. Today is a good day to take care of me. Today is a good day to recognize the sometimes hurtful fictions in my thoughts are not the experience I live, unless I choose that experience, myself. Today is a good day to let events unfold gently. Today is just one day of many, and I am just one person, each of us having our own experience of the world.