Archives for category: pain

Oh, I know, hugely misleading subject line, if I got your attention and you think I’m going to talk about sex. 😦  Cuz…um…I’m not. Nope. Different sort of sucking.

i suck at making my needs understood. Even when I think I have expressed myself simply, clearly – and even in the face of seeming to have understanding and affirmation from others, I regularly find myself facing a complete disconnect from what I thought I had expressed and what others later recall or seem to have taken from the conversation. There’s no point being mad at them.  My friends and partners and loved ones are pretty rational people who communicate well with others. I, on the other hand, have a lifetime of struggling to have my needs understood (sometimes by me) or to communicate them clearly… so it has to be me.  If past partners are to be understood, maybe it really ‘always’ is.

It’s not ‘self pity’ – let’s be clear. I’m disappointed. I’m sad. I’m angry – mostly with myself, because I tried so hard to get this fucking ‘taking care of me’ thing right and failed with the sort of unarguable failure that I’ll let myself ‘enjoy’ all day.   I’m still not heard, not understood. Everyone involved simply walked away with their own assumptions. My own efforts at clarifying questions or re-setting expectations, or ‘working it out’ equitably just got me a hearty helping of isolation and being disconnected. Peachy.

I feel sad and frustrated. I thought I had today set to go – a lovely day of mindfulness and domesticity in support of my own needs and the needs of my family. I wasn’t understood. Now I still have a lengthy to-do list – and no joy facing it.  I put so much into this – into communicating my own needs, in communicating what I wanted to provide to support our family… and I completely failed. I failed with real skill, considering I went into it thinking what I had to offer was desirable and advantageous to everyone else. I guess I didn’t understand their needs either. 😦

Well, just fucking delightful. When I suck – I do so with real skill, and by way of overcoming all obvious advantages – like everyone seeming to want the same thing. Bravo, me!

Shit. Happy Sunday. Now what?

It’s been an interesting week; more of some things (arthritis, affection, intimacy, discussions of the future, analytical workload, headaches, adulthood, vulnerability, satisfaction, contentment, excitement about the future being discussed, sunshine)  and less of other things (pointless conflict, frustration, tedium, nightmares, ‘extra’ bandwidth at work, whimsy, self-restraint, subtext, cool weather).  It is summer, and already the mornings grow light just a little later, and the workload gets just a little heavier. I’m not bitching. It’s the end of my work week, and I’m home, feet up, cold water to sip on, and the entire world at my finger tips. It is a quiet evening.

My head aches viciously. PMS and fatigue. My back torments me beyond wanting to casually call it something as simple as ‘pain’. I will take an Rx pain reliever tonight. 😦 I hurt. It isn’t any more than that, though – a physical experience of discomfort.  On other levels I feel serene, calm, balanced, emotionally comfortable, cherished, wrapped in love… nice world to live in. I think about other worlds, other pain, but the thoughts drift through my head space like clouds, casting a momentary shadow and moving on.

Therapy tomorrow. Shit’s getting real lately – I don’t look forward to it, although I know that even this is part of the journey, and that my therapist really knows some things, and that I am ready for this.  I’m struck again and again by how profound this experience is.  I’ve been in therapy before… it’s hasn’t been solidly effective or actually changed anything, in the past.  At best, I felt some relief for weeks or months, and been helped past some moment of crisis – and that has had to be enough to get by on.  This? This is an entirely different experience. I don’t talk much about therapy.  It’s incredibly personal, as experiences go, and extraordinarily intimate and naked and raw. It doesn’t translate well into spoken language, much of the time, because the things that strike me most are subtleties and…completed sentences, finished thoughts, provoked epiphanies, sudden connections…and something else. Something I feel about me, sense within myself, recognize as being changed…and I don’t know what to call it or how to describe it.  I know it is important.  BUT, I no longer look forward to it, at least for now.

….

…Huh… I just had one of those baggage dropping, altered-state creating, moments of weirdness… nothing went wrong. I think it went ok. Which feels weird. Now I don’t want to write … because I don’t know what just happened or what exactly is ok about it.  Being a grown up is hard sometimes and I don’t always understand it.  I’m just going to add some pictures, and finish the moment on a metaphorical note.

Close up...

Close up…

... or from a distance.  Perspective matters.

… or from a distance. Perspective matters.

 

 

 

It’s been a long day. I’m ending it with a backache, a headache, and quite content to see this one reach its conclusion.  It’s ending well; I don’t want to give a different impression. It’s just been a day that began well, is ending well, and in between…it wasn’t horrible, wasn’t tears or trauma, wasn’t even noteworthy in a way worth noting. It was effort well-spent, small stresses well-managed, tasks completed, begun, and otherwise dispensed with. Satisfying, overall, more or less…I’m just…done. So very done for today.

...finally...evening light.

…finally…evening light.

Funny thing, I suspect the fatigue, perhaps even the pain, stem more from what I’m not doing, than the things I am – or have been – doing today. That ‘conversation with myself’ isn’t going to go away. Taking care of me, and healing, and growing and learning to nurture myself and invest in my own experience, my own needs and giving myself the support and respect I need from myself isn’t the easiest thing I’ve ever undertaken. I’m a handful – the wreckage, the chaos and damage, the ancient pain – it all adds up. Walls built over years keep me out, too.  Introspection easily becomes a sort of mental geodesic dome of fun-house mirrors, reflecting my poor assumptions and bad programming back onto myself again and again, splintering, fracturing, breaking up a momentary understanding into confusion and incoherent half-baked wishful thinking, or worse still, fears and insecurities built on enough of what is real to mislead me into self-loathing, or frustrated rage. I’ve had to find another way.  It’s a journey, not a destination – I’m pretty sure of that, now.

There is still so very little ‘knowing’, and so many questions. I am a student…of life, of love, of truth, of what is…of what is not…of what may be…what isn’t so likely…and bit by bit my firm certainty in the world reveals itself as an illusion, a defense, a sort of camouflage to protect me from the one person I can never ever be saved from. Yep. Me. Her.  Me-at-18, me-at-20, me-at-30… me…then. Let’s not talk about then, shall we?

Mindfulness isn’t about pretending something isn’t. Healing isn’t a score card, and no amount of pretense can will me whole of heart and mind. So…I have to make room in my experience for her.  For me.  That earlier iteration of chaos and damage that is who I have been. So much chaos. So much damage.  It’s on my mind, and it is a distraction from my every day experience, this need to face myself, in a way so honest and so direct that she can not evade my questions with her answers, presses on my consciousness with such force.  So now what? I have to find the words…the time…the place…

I’m glad the day ends, and ends well. I need my strength. I am here, now, and having survived and endured her ‘then’, along with her, I know her strength well.  I don’t know the outcome…I know she won’t take a dive. I know I can’t afford to lose, or forfeit. 

Night falls and I am glad to rest.

 

 

…As in a morning sunrise…

It is a quiet morning, beyond my common understanding of quiet. I am still and serene. I am… ok. It’s been a couple of days to take care of my fragile heart, to heal and to rest. My eyes still tear up when I think about Tuesday morning, and I hurt down deep that ancient pain can still touch me at all. That it can reach through progress and every day delight to grab hold of my experience and continue to torment me saddens me a great deal, and so much of that vague simmering undercurrent of anger in ‘who I am’ is about this…that the pain of what-has-been can still touch me.

I see the reflection of my face in the dark mirror of the unused side monitor…I don’t look broken. I don’t look like I’ve lost my mind. I see the hint of a smile, and a subtle knowing look that suggests ‘you can’t fuck with my head so easily’…although I don’t think that’s accurate, as much as how I see that reflection; a hint of a woman I am becoming, more than the woman I have been in the past. There are also big colorful earrings…which is for the moment more relevant to my pleasure in that reflection. They match my shirt. I feel a moment of familiar affection for this complicated being that I am. Becoming more…’aware’…has also resulted in some fun moments of friendly exasperation over being so very human. I’m endlessly amused by my vanity…do earrings really matter? That the purple of these bold cheap purple and green daisies is quite the same purple as the hand-me-down purple thermal delights me in a sweet and simple way. It isn’t that the purple is a match that matters, as much as the delight. The delight is more about where the earrings and shirt came from. Every material thing I cherish has a story, or holds a memory.

Today isn’t trivial. Today isn’t tragic, either. It’s just a day. It is, however, a day that has started well and for now that is more than enough to put a smile on my face. It was a tough week…strangely, and wonderfully, it’s an enormous improvement over other, older, more difficult weeks.  It’s been about resting, recovering, healing…instead of ‘more of the same’ and the pain and anger and the tears.  The mindfulness practices I am learning have helped more than I can describe; imperfect perfection. I need a lot more practice. lol. Progress, though, is enough to show me I am choosing a path that is taking me to some desirable destination. Again, that’s enough. It wasn’t so long ago that I’d have spent days bouncing in and out of horrible states of rage and despair, frustration and tears, unable to get ‘unstuck’ from ancient pain, unable to be aided or consoled, begging for mercy, unheard. Then there’d have been days and days of fatigue and exhaustion, wandering around in a blue funk, teetering on the edge of ‘more of the same’, until it all finally ran its course. This is so much better.

It is Friday, though…and that means therapy. Progress is awesome. Doing the work that supports further progress…not always so awesome. It’s ok, though. I have the support of my partners, and 50 years of life experience to remind me that my demons only have the power I give them, and that the journey is not about the goal, or measuring the distance walked, as much as enjoying the experience over time.

No pictures today, and far fewer than a thousand words.

PTSD. This morning these are the most important 4 letters in the alphabet, for me.  They are not important individually, and they are not important for the words the initialism represents, at least, not right now. Right now they are only important because they name my experience and give me shared language to attempt to communicate with the world.

"Broken" 2012, detail

“Broken” 2012, detail

For now, I am calm, again. Things seem quiet. An eternity ago the morning started easily and beautifully. Something went very wrong. The brain injury complicates my experience. I’m so fatigued now, and my memory of what went wrong, exactly, and what set me off, and what exactly transpired between then, and some short time later (an hour almost exactly) is all pretty fuzzy and jumbled. Confused. A moment of irritability became ‘an episode’. I don’t actually know what that must be like from the outside…I can’t see me from that perspective. From the inside it is…frightening, actually terrifying, and the loss of control is…hard to describe. Lost in panic and terror, uninhibited aggression is a very real and imminent threat, and the awareness of that adds to my terror and panic. I do remember reaching again and again for mindfulness practices I am learning – this was their first real ‘test drive’ in my emotional ‘badlands’. I kept trying to breathe, to focus on that, to allow that moment of new breath to give me just a bit more control over my actions…no throwing things…breathe…no slamming things…breathe…no head slamming…breathe…no self harm… I achieved a personal best this morning. It wasn’t everything…I’m not strong enough yet, or skilled enough, or… perhaps just too broken. It was finally too much to manage and I was overcome, overwhelmed by chaos and damage. I remember feeling as if I were under attack, as if my life, my will, my liberty were threatened, as if my actual being were at risk of…not being. The world seemed to fall away and I remember crying out…pleading, I think, for help…or mercy.

I am fortunate, so very fortunate. I sit quietly here, soft jazz playing, tears still sliding down my face on and off as my emotions come and go, and my poor tired broken brain does its best to regulate things appropriately. My partner was with me, and he is more prepared than most people to support a partner with the issues I’ve got. “There for me” doesn’t even begin to describe it. He is the voice of reason calmly observing I’ve been triggered; before I realize myself that I’m going off the edge, he’s giving me something to grab onto for emotional leverage, for perspective. He’s the warm embrace comforting me, in spite of my behavior, and emotional state. He’s the thoughtful touches: the ready kleenex, the sympathy, the jazz playlist, the good listener, the wise storyteller. He gives me closeness, then space, as he watches me move through the badlands; helpless to share my experience, ever willing to share ours, and always doing his best to nurture me and helping heal my heart. I can’t ask for more – I doubt there is more to ask for.

My other partner woke later, the worst of it past. Less experienced, but all the love the world to build on, her first question was ‘what can I do to support you?’ with the firm commitment of a soldier on the battlefield, her will and her resolve available on request, without hesitation. I am fortunate to be so well-loved.

I know more about taking care of me, now. I’m taking that very seriously these days. So, today will be that – taking care of me. Recovering. Healing.

"Emotion and Reason" 2012 detail

“Emotion and Reason” 2012 detail