Archives for posts with tag: arthritis pain

I love fairy tales, and stories with a strong heroine, who faces a challenge, learns a lesson, and grows to become someone wonderful. I like a happy ending. I read a lot of ‘happily ever after’ endings over the years, and at some point ‘happily ever after’ became an implicit goal. That’s especially maddening because that is basically the least attainable goal ever imagined. I enjoy feeling happy. I find ‘joy’, ‘delight’, and all manner of pleasant happiness-related, happiness-producing quite wonderful and worth experiencing. I didn’t have much success making the whole point of existence getting to some difficult to define ‘happily ever after’ place. Quite the contrary, I think making ‘happily ever after’ something to chase resulted in a lot of personal unhappiness.

I don’t actually understand why happiness seems so much more common now that I’m not chasing it…but it does tend to be the experience I am having.

Unfolding like spring flowers.

The loveliness of simply being.

I am okay right now. It wasn’t my best evening. I enjoyed the day in relative physical comfort. By the time I arrived home, after a chilly drizzly commute, I was in pain and irritable. If I could fold time, I would put this moment, here, adjacent to my arrival, and perhaps enjoy myself and my family more, being in a better mood, and less pain. I’m not complaining, and I don’t recall being unpleasant, just in pain and perhaps too tired to be more considerate with my phrasing; I know it takes a lot to hurt my traveling partner’s feelings, and I know I succeeded. I will make amends in the morning, learn from the experience and move on. It’s okay to treat myself with great care, even though I feel badly about the evening going a bit sideways, and I have spent the evening gently, managing my pain, watching South Park, and writing. It was my intention to do these things when I arrived home hurting so much, and it’s pretty satisfying to find that good self-care has indeed helped a lot, although I am still in too much pain to be able to sleep just yet; yoga will help with that a lot, and meditation afterward is a nice way to finish the day.

Every time something works out just a bit better, I take time to really appreciate it, notice it, and hold onto the experience for some minutes. I ‘let it soak in’. I make a point of continuing those practices, and even investing more time in those that are regularly part of some new moment of personal success. In the most difficult moments, I am sometimes very briefly so bitter and hurt that I am unsure these things really matter, or that I am actually making progress day-to-day. The doubts are incredibly painful, and I am very relieved each time I get past that moment, to this place when ‘I am okay right now’, and able to enjoy the moment of progress, or resilience, or emotional safety – successes, all.

Stormy sky, quiet evening.

Stormy sky, quiet evening.

I feel more vulnerable sharing successes, than I do ‘failures’, or learning experiences. Vulnerable is okay, too. It’s a nice evening.

I’m quietly contemplating my evening’s ‘crash landing’ and wondering why? The house is quiet, but it isn’t late and I don’t know that anyone is sleeping. I know I am not.

It wasn’t a bad evening, quietly hanging out and watching videos of this and that. Calm. Pleasant. Eventually ‘good nights’ were exchanged. I am feeling very mortal waiting for the test results from my biopsy. I find myself ‘trying to be brave’ like the small girl I once was and hoping to let it go until I get the results – any other choice seems silly in the abstract. I am so very human.

Stormy weather...

Stormy weather…

I hurt tonight. I’ve got a terrible headache, probably stress or fatigue. My arthritis hurts. How is it I hurt this badly and still want romance? It’s frustrating. I’m not exactly approachable; I am fragile, reactive, and emotional. That’s really where it all breaks down – in one simple question, and in an instant of contemplation, “How are you doing?”. “Well, shit, I was mostly fine until you asked, actually…” but I never manage to say that. I blurt out the details of how I am doing – however that happens to be, and with the force of whatever emotion is bound up in it all – and it tumbles forth in words…and emotions, in no particular order, and with full real-time intensity.  It must suck on this whole other level to live around this injury, and the chaos and damage I wade through every day – I just don’t have the same perspective on it. How can I?

I don’t know what I’m to learn here. There’s something to be learned, I’m sure of that. It’s late, and these tears don’t matter a tinker’s damn to the massive ills of the world. This is some minor league suffering, right here, and there’s a chill calm part of me that recognizes the subtle difference between the simple sorrow, itself, and the wave of suffering that follows, self-inflicted. Part of me feels foolish to be so storm-tossed, like an adolescent girl; the thought reminds me it’s only been a bit more than a week since I started on the medication I was given – hormones. There are so many moving pieces to this whole ‘taking care of me’ thing. I feel like a dick for having a minor meltdown when I was unwittingly on the brink of being handed a few moments of connection, contact, and affection that I sorely needed at the end of a difficult week.

Sitting here quietly in the darkness, I also feel: sympathetic, compassionate, warm – understanding. What did I expect with the hormones, the headache, the fatigue at the end of a long day, hurting well beyond what my Rx handles, and waiting for test results? I sit calmly, wondering what to do to take care of me most skillfully, and with greatest love. Sleep, soon, probably…

There’s a new day, tomorrow. Love is pretty ‘forgive-y’ (if that’s even a word)…but choices have consequences, I’ve hurt someone dear to me, and tonight I am alone. Perhaps the dawn will come and find me smiling…certainly there’s enough love to go around if only I am open to it. There are verbs involved.

...I still have so far to go.

…I still have so far to go.

Yesterday was cold – winter-cold, as in to say ‘it’s winter’. Yep. It’s generally the time of year for winter holidays in the northern hemisphere. I went to work bundled up in weather appropriate garb, and still felt stiff and cold by the time I got to the office. By the end of the day, I was in a nearly unmanageable amount of pain, and chose to bring my evening to an early close after a hot shower. I didn’t get to sleep any earlier, really, but I also didn’t treat anyone poorly. This morning I wake, stiff and hurting. Winter often brings more pain, and I find myself aware that my own awareness of that isn’t helping…I set that thought aside and reach for another, and my coffee.

On my way in to the office yesterday, I explored the recent significant increase in my anxiety level (work related), and used a variety of new tools and skills to take a look at more closely than I have. I used perspective to give myself an improved sense of scale and recognized it isn’t actually as severe as it once was. I used walking meditation to remain engaged in the moment, and aware of my emotional experience without judgement, and the seeming profundity of the feelings diminished considerably. I used body scan practices to sort out the emotions from the sensations, which tends to change the sense of an emotion from being very significant, to simply being, further alleviating the anxiety. I used cognitive practices I learned using SuperBetter – like a ‘reality check’ – to decrease my tendency to escalate internally based on untested assumptions, and each practice I practiced took me a step further from being anxious. The root cause was clear and obvious as soon as my heart was calm and my thinking was clear; it’s really just work anxiety. Hardly noteworthy; I’m sure everyone has occasional anxiety about work, career, employment…something in that area.

Work anxiety isn’t pleasant, and it does keep me up at night and messes with my sleep…but…what if my messed up sleep is actually causing the anxiety? What if it isn’t ‘real’ at all? Thoughts…emotions…both rather astonishingly lacking in substance…maybe I shouldn’t be so ready to attribute cause and effect, or be haphazard about assigning relative importance? As I walked I allowed myself to consider the extreme…what if ‘the worst’ happened? I startled myself to laugh out loud when I realized I was – even now – holding on to ‘losing my job’ as some  pinnacle of misery, some worst case scenario. It isn’t. My employment, what I do for a living, may well be the very least important, significant, or defining quality about me as a human being; its damned near irrelevant…particularly because of the person I am, and the values I hold, and what I hold most dear about myself, and life. Work? It’s a characteristic, and changeable. I’m a human primate; I’m adaptable. The loss of any one job doesn’t have more significance than any other change – unless I allow it to.  I felt a bit of vertigo as my values kicked my anxiety in the nuts. The work day was just fine – other than the pain I’m in.

It's all about perspective. What we choose to look at changes what we see.

It’s all about perspective. What we choose to look at changes what we see.

I woke this morning, stiff, and with a headache. The air feels too dry. I’m a bit cross. I do what I can to set clear expectations and boundaries with regard to mornings; it takes about an hour for my medication to be fully effective, for my brain to really come back online, and for my stiff joints to regain some mobility.  I take active steps to avoid interacting with people until I can more easily and reliably treat them well. Funny how often – even in the face of that very clear, very specific expectation and boundary setting – some human primate or another will crowd me, or try to have reasoned dialogue about…well, damned near anything. I’m just not ready. My traveling partner knows me well. He too is a human primate, and the recipient of some of my boundary and expectation setting. Tip for other free-range human primates: if you are going to step across that line, arriving with a hot tasty latte is an excellent success strategy. LOL My Americano was tasty, and hot… but there’s nothing ‘creamy’ about an Americano. As it turns out, I find ‘creamy’ an extraordinary delight in the morning. I still hurt. I still have this headache. Now I also have this tasty latte, and a really charming funny guy to hang out with before work!

Today is a good day to take things as they come. Today is a good day to be adaptable, flexible, and to make the best assumptions of others, where assumptions must be made at all. Today is a good day to change the world.

I’ve got a solo weekend. The morning, so far, as been still and quiet…and strange. I didn’t sleep well, but I don’t feel fatigued. I tossed and turned wakefully much of the night, and managed to use the entire area of a king size bed alone…every corner, every side, diagonally, crosswise, splayed like a starfish, curled up like a hedgehog, with pillows, without pillows, blankets, no blankets… which is most peculiar since I generally sleep in just one or two positions throughout a given night, sometimes laying flat on my back throughout, rarely rolling over (it’s a remnant of domestic violence, and nights when any movement might give away that I wasn’t sleeping, or remind my spouse I was there, at all). I sometimes wake in the morning to find that the covers are not even a little disturbed from the night’s sleep, just turned down at the corner from getting up, looking like a dog-eared book page. So…yeah. I didn’t sleep well. I didn’t want to wake early, and went to bed tired, sleepy, and ready to just sleep until waking caught up with me.

As it turns out, waking caught up with me around 2:38 am. I had some fun cat naps between then, and when I finally gave up and got out of bed, around 5:00 am. No nightmares. I feel reasonably well-rested and satisfied with the comfortable knowledge that I can nap later, if I care to. I took my time with my yoga. I had to. I’m stiff this morning and the pain of my arthritis, which is in my spine, is indescribably vast and commanding of my attention. This morning my spine feels like a rigid column of pain, on which my head sits; a first for me, I think, to have continuous arthritis pain from the vertebrae just above the line of my hips, to the second vertebrae above my shoulders. I keep finding room in my experience to be somewhat impressed by the completeness of it. I suppose that’s better than laying in bed crying because it hurts. I don’t really want to waste precious mortal time that way.

Droplets of mist gather everywhere on a foggy morning, each one a tiny universe for life I can't see...or perhaps a miniature gazing ball on the world I can see. I suppose it depends on my perspective.

Droplets of mist gather everywhere on a foggy morning, each one a tiny universe for life I can’t see…or perhaps a miniature gazing ball on the world I can see. I suppose it depends on my perspective.

It’s another foggy morning. I love fog as a metaphor for the unknown, the unseen, the mystery of potential, and choices yet to be made. I enjoy walking in the fog.  I enjoy the whimsy of imagining that as I walk I create the world around me; each step I take revealing some new detail, what is beyond view slowly emerging. Yep. Almost 52, still daydreaming everywhere I go. lol. 🙂 It’s a quality of self that I value a great deal; it has held the power to make the tragic and painful endurable, and it has kept me going long after I would have quit without it.

Tears unexpectedly begin pouring down my face… arthritis pain? No, it’s just old trauma, old hurts; there are things lurking in the darkness that I never really stop crying over. These days I don’t fight the tears that come when my heart is touched by my own hurts; I keep a safe space for myself, in my own heart, to comfort me, to show myself compassion, to recognize that it has indeed been a lot to go through, a lot to survive, and to recognize that these honest tears are no sign of weakness or failure. In a sense they are a strange celebration of strength; I am here, and that’s a pretty big deal, considering what I have overcome. I only need, in this moment, to be kind to myself and let the tears fall without stress, without anger, gently supporting myself on the strengths I have. Tears pass. There’s plenty to cry over, but it doesn’t need drama – only love.

Autumn is a season of change, a good time to break patterns.

Autumn is a season of change, a good time to break patterns.

Today is a good day to take care of me. Today is a good day to be fully present, and engaged in the moment, even if all I do is flip through a holiday catalog, answer my email, or have a coffee in the chilly autumn garden watching the dawn unfold beyond the fog. Today is a good day to appreciate how far I’ve come, and how good things are right now in spite of pain. Today is a good day to make choices that create the world I really want to live in. How about you? What do you think… shall we change the world?

I woke up tired. I hear the sound of an unattended alarm clock going off, it’s been doing it’s thing now for about 10 minutes. I wonder if its owner is sleeping through it, or walked away having forgotten it was only snoozed, or… I’m sure there are other options in the gigantic database of possibilities and assumptions that makes up some portion of my brain. This  morning I only flip through them casually, and readily acknowledge they are all fictions until and unless one of them turns out to be ‘true’. There’s no assurance that any of them are true, ever, they’re just stories, generally. That’s what a lot of our experience is made up of – stories we tell ourselves.

I slept restlessly, and not very deeply. My arthritis kept me alert and uncomfortable much of the night, and I often found myself flexing my back repeatedly in my sleep – the way I did the night I broke it. The sensation wakes me again and again, feeling vaguely disturbed with the visceral reminder of that painful event. I’m okay, though, just a bit groggy and not very well-rested. No agita or weirdness to it, which is nice. I could do without the headache. I am still unsettled by daylight savings time, and it may take weeks before that isn’t a thing…until next fall. Spring doesn’t seem quite as bad, at least not in the abstract.

I had an interesting conversation with a young non-voter yesterday. She had suggested that voting seemed pretty pointless to her, and expressed her discontent with the way the nation is run. I pointed out that if the only people elected are old rich white guys, then choices, programs, and changes we get are limited to those favored by – and which favor – old rich white guys. We talked through the potential impact if ‘all the young people’ voted, or ‘all the women’, or ‘all the any-particular-uniquely-identified-demographic’ actually. It may have been a light bulb moment for her to realize that there is power in numbers – and the numbers always begin with one. It was an affirming conversation for me, too, but I find that conversations that end in favor of the opinion I have myself generally are. lol

Meditation didn’t quite shake off the irritability this morning; pain makes for a pretty irritating start to the day. My traveling partner sticks his head in the door and gives me a merry good morning greeting. He hears something in the tone of my reply and inquires what’s up. I admit to the pain frankly and simply and get a sympathetic smile and a good-natured “I’ll leave you alone…” It truly sucks on a level I lack language to express that a being so dear to me finds the only positive option on a morning like this is to keep his distance. I can’t fault his reasoning; it is the wiser course. It still sucks. I am grateful to know a love that respects my needs, even when doing so means distance. Love rarely walks hand-in-hand with reason, and I am privileged to love someone who makes that look easy, most days.

I hear the espresso machine grinding beans for shots that aren’t mine. It is a warm and comforting sound of hearth and home. The day begins.

I have no idea what these are... I find them festive and unexpected.

I have no idea what these are… I find them festive and unexpected.

Today is a good day for meditation, and taking time to nurture contentment. Today is a good day to manage pain with great care, and be mindful that I’m not alone in hurting. Today is a good day for sympathy, compassion, and kindness – sharing those doesn’t diminish the quantity on hand. Today is a good day to make good choices, and for harnessing my will to my values through my actions. Today is a good day to meditate more than I planned. Today is a good day to be kind to myself, because kindness kicks ass and I could use some as much as anyone. Today is a good day for perspective, and awareness, and consideration – but every day is, isn’t it? Today is a good day to change the world.