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The Lingering Cough, The Lasting Adventure

September 4, 2023 //
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I’m mostly over my recent bout of whatever miserable illness struck me (and my Traveling Partner, and step-son). I’ve got a lingering cough, which frankly is no surprise to me – it’s nearly always the outcome of any sort of respiratory illness for me. It’s a byproduct of damage incurred from a combination of childhood illness and military injuring (those oil fires did me no good). It’ll pass, just takes me a bit longer than it otherwise might.

The new job starts tomorrow. Exciting. There’s ongoing forward momentum with my Traveling Partner’s business, too. It feels wonderful to support that, and even to help. Today I took next steps getting an Etsy page set up (almost done with that…). One thing at a time. Like any journey, it’s about next steps and incremental progress over time. I think about other details that I can add to the new page… a friendly shop-video walking future customer’s through our shop, and sharing our thoughts about how we make products, and what inspires us, maybe? Additional listings. Things like that – basic stuff.

…A lot of life’s richness and complexity is built on very basic stuff. That seems worth thinking about…

I sit in the studio, with the fragrances of scented shower fizzies filling the room. I am reminded that there are a couple more scents I meant to make batches of this weekend… cucumber-melon, lavender (a favorite), and something that smells like a rainy autumn walk. So many luscious scents to delight me in the shower – I want to make them all! The new batches of chocolate-orange and meadow flowers are lovely. (I find myself wondering if it’s too soon to take another shower, already…?)

In spite of the lingering hints that I’ve been ill recently, I’m enjoying the weekend with my Traveling Partner. Some video gaming. Some video watching. Some cooking. Some laundry. Some crafting and making. Nothing fancy – all of it’s been very “basic” quiet living sort of stuff… but… isn’t that what life is built upon? The small delights? The everyday pleasures? The time and care taken on things that are utterly routine? Life’s lasting adventure is built on small steps forward, not so much the grand gestures or big moments – those are rare, which is fitting for the way they hit our consciousness so much harder in spite of how fleeting they truly are. I find so much value in being present in the small moments and the basic stuff. I savor this one, with my now-cold coffee long-forgotten on the edge of my desk, just one sweet pleasant moment of so many… it’s too easy to overlook how many lovely moments there really are, if I am constantly rushing from one “big deal” to another, without pausing for breath.

…I pause for breath…

Life isn’t “perfect” (see the opening paragraph; I’m still not 100% over being sick, for starters, and on top of that I was born a human primate, so… there’s that). It’s not bad though. Hell, it’s better than bad… it’s good. I sit here smiling quietly. This is enough. More than enough. This is pretty fucking sweet, generally speaking, and I’m contented and sometimes even actually “happy”. That’s a very subjective condition, and it stymies me how similar circumstances are across the entirety of my life – there were a lot of moments in which I could have been far happier than I actually was, but… I wasn’t. At this point, I think that was (in many cases) as much because I just didn’t know how to be that thing we call “happy”, every bit as much as it had anything to do with the specifics of my life in that moment. Kind of a lot, actually. How peculiar. I can’t go back in time and “fix that”… but… you know what I can do? Revisit some of those moments through my recollections, and enjoy that moment then from my perspective of now. I don’t mean to suggest that I’m griefing myself over how I felt at that time – no good would come of that. I’m just taking time to recall something pleasant, doing so in great detail, and also letting go of any lingering baggage that may have become attached to that time, place, or relationship, and just… enjoying what I can about that time, then. It tends to reduce the lasting misery of miserable times, by undercutting the memory of the misery, and giving a wee boost to the memories of joy, however brief, fleeting, or impotent they seemed then. Worthwhile.

I pause again, this time to cough. It’s time to begin again. Some hot tea, perhaps…?

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Categories Allegories, art and the artist, breathe, forgiveness, Free Will, gratitude, health, Healthy Living, inspiration, meditation, Metaphors, Mindfulness, Moments, Perspective, Post Traumatic Stress, Practices, Relationships, Summer, The Art of Being

Building a New Narrative

July 24, 2020 //
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One of the big motherfucker’s of PTSD is the lasting impact, the lasting change to cognition, implicit memory, patterns of thought – all the things that make up the “D” (disorder) in PTSD. It’s hard. Recognizing the damage done, and the way it holds potential to “call our shots”, in the moment, is one of the enormous challenges involved in healing. It’s a lot of work finding – and maintaining – perspective and balance. I don’t point these things out as someone who has found her way, or has some solution, or is “over it. I point them out because I am still affected, even 39 years later. The worst of it, in the here and now, is the way it affects relationships with people dear to me who were in no way involved in the damage done, who mean me no harm, and indeed wish me well and want to share some piece of life’s journey with me.

Fuck PTSD.

It’s a major “begin again” moment, right here. My symptoms flared up completely “out of nowhere” (by that I mean, “predictably, but I wasn’t watching for it because I made foolish assumptions about my current emotional wellness, generally”). I certainly could have handled myself much better than I did. A chill calm morning shattered by tense voices, hurt feelings, frustration, irrational fears… it can feel like ruination. It can feel like more damage is done. It can feel like “spreading it around”. It definitely isn’t “fair”. There is guilt and shame beginning to try to fill the space where those irrational fears had been acting out their moment of drama. It’s fucking hard. It’s very very real.

Mental illness – and mental wellness – may not conform to our idea of what they “should” look like, who “should” be afflicted, or how we think such things “ought to” progress. I’ve learned a handful of things over the time and distance this healing journey has covered, though. Mental illness is commonplace. We’ve all got problems. We all hurt sometimes. No one is immune to communication challenges, or emotions.

I take a deep breath. I exhale. I relax. I let it go. My Traveling Partner alerts me he is going to soak in the hot tub. His tone is no assurance that I’m actually welcome… so I choose to do the hard thing; I open myself up to potential hurt feelings, and suggest I’d like to join him. He doesn’t say “no” or set a boundary. I take a deep breath… and begin again.

We soak together, listen to birds sing, and let the day begin.

It’s some time later, now. Feels like a mostly ordinary, pleasant morning, aside from the very deliberate gentleness and care we are taking with each other as we move on from a difficult moment. Do you love someone with PTSD? Complex PTSD? Bi-polar disorder? Depression? Anxiety? It’s hard, right? It’s not your “fault” – it’s also not their “fault”. Mental illness is hard work for the one afflicted – and hard work for the people who love them. Take a breath. Get some distance if you need it. Ideally… don’t punish each other. I know. Hard. All of it is hard. Good practices help – they take actual practice, and consistency, and they do help. A lot. Good therapy in the care of a qualified clinician helps (not always easy to find the right therapist, and it can be costly, I get it). Working to avoid compounding mental illness with “second dart suffering” and further inflicted hurts unwittingly delivered on each other is so important… and again, so much work. I can only say “keep practicing” and “begin again”. Yes, my results vary. No lie. Sometimes I fall short of my best self. I may never be wholly “well” in a reliable way that I can casually trust – my vigilance (regarding my symptoms) and (good) self-care practices are one thing I can offer my partner(s) to prevent doing them further damage. It’s not always enough… but I can’t take that personally.

I begin again.

So, I’ve got this day ahead of me, and things to do with it. I’ve hit the reset button, and the rest is a big pile of verbs. It’s up to me which of those I grab onto and apply to the day. 🙂

What about you? Are you ready to begin again? You’ve got this!

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Categories anger, Anxiety, Brain Injury, Despair, forgiveness, Free Will, Frustration, gratitude, Love, Mindfulness, Moments, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Summer, The Big 5, Uncategorized

In The Wee Hours

November 26, 2019 //
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I woke about an hour ago. It’s a bit past 3:00 a.m. now. Little point in attempting to return to sleep. No idea what actually woke me. For now, I’m dealing with this sinus headache, but, and this is just real, I’m almost delighted that I can, mostly, just breathe. The vertigo, which I think may be a result of sleeping with my neck at an odd angle, combined with this head cold, is a cruel new addition, and I’m already “over it” (meaning to say, I’d very much like to be done with this whole mess, now, please…).

I worked yesterday, from home, and wrapped up the day about 2 hours early, compared to a typical Monday. I honestly wasn’t good for much. Today, either, potentially, but I am feeling “up to it”, and no coughing or sneezing, so far, and able to breathe (mostly)… I may go into the office today. I sit here sipping icy cold grapefruit fizzy water, wondering if I really will. The advantage is small; I have more monitor “real estate” there, and this allows me to work somewhat faster, with more things open and easy to see. That’s it. The disadvantage? If I am still contagious, I get everyone on my team sick (small office space), and potentially also everyone I talk to. That’s a dick move. I resolve to stay home if I start sneezing or coughing, and decide that if I do go in, I’ll go quite early, and overlap with folks for a much shorter period of time, keeping my hands washed, and wearing a mask. If nothing else, the mask itself will discourage conversation, and reduce risk further.

…I’ll probably work half a day, get the essentials done, take advantage of the efficiency of the big monitors, and cancel live calls/meetings that involve face-to-face participation.

My coffee is very good this morning. I feel content and alert in spite of the ridiculous hour. My body feels mostly pretty comfortable, very little pain. The discomfort I do feel is largely to do with this cold, and I’m clearly getting over that. I find that to be very good news – honestly, I have shit to get done. Not being up to doing things sucks. I keep sipping this coffee, between physical therapy exercises, and wait for this vertigo to clear up; if it doesn’t, I’ll stay home. Driving to the office in the dark, in the rain, and also with vertigo? That just sounds fairly stupid.

Back and forth… water… coffee… work from home? Go to the office? More water. Another sip of coffee. How do I best take care of this fragile vessel? Water. Chicken broth. Tea. Sleep. More sleep. More water. Limited use of cold care remedies, and only those that are definitely effective, and don’t mess with my head. More sleep. More water. More broth. Food when I can eat. I don’t know what works for you – do that, though, I suppose. I do this. 🙂 I’d been going through a record-breaking number of Kleenex’s there for a day or two, but this box next to me has been open now for more than 12 hours, and it’s still half full. Progress.

…Oh, damn, do I enjoy being able to breathe? Oh, yes, yes, I do – so very much. 🙂 It’s nice having that back.

I find myself looking forward to the cold autumn air and the rain fresh breeze, when I step outside, into the pre-dawn darkness of morning. The house is comfortably warm, but not hot. I feel a bit overdressed for the indoor temperature, and remind myself that my coat is in the bedroom closet, my partner still sleeping. Going to work without my coat, in this weather, in this health, seems fairly dumb; I’ll have to go get it, probably waking my partner. :-\ It is what it is. I remind myself he would comfortable do so, himself, were the situation such that he needed a clothing item from the bedroom, while I am sleeping. lol No coat = no commute. 🙂 That’s some solid self-care decision-making right there. 🙂

I look at the time. It’s very early, not quite 4:00 a.m., but getting that kind of head start on the day will be a huge win for reducing exposure to any lingering contagion, so… I guess it’s time to begin again. 😀

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Categories autumn, Brain Injury, Free Will, gratitude, health, Metaphors, Mindfulness, Moments, Perspective, Post Traumatic Stress, Practices, Relationships, Sleepless Nights, The Art of Being

What Now?

September 20, 2018 //
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Well. Shit. And, in some senses of the word, I guess I mean that literally. lol Omg – being a human primate can be so distressingly gross sometimes.

The tickle in my throat night before last wasn’t a thing, I guess, although my throat was a bit raw by the end of the day yesterday… it could have been because I talk too damned much. lol Just as I was forming a “hey, I guess I feel okay…” sort of thought, “other symptoms” hit me and I was making my exit by way of the restroom before I could get to the parking lot and get in the car. (Frankly, that was a good call, and I don’t think I’d have been able to make the drive home without that detour to the restroom!)

I don’t like being sick.

I felt lethargic and drained (lol) all evening. I went to bed very early, and apparently slept deeply through the night. I woke drenched in sweat, hair tangled and knotted, and feeling sort of shaky and weak, but aside from that, sort of mostly okay-ish… I think… So far…

I get through the morning routine pretty easily. That first sip of coffee isn’t treating me very well, though, and I uncomfortably wonder what to do about that?

What strange fragile vessels these meat suits are. My enthusiastic loose plan to hike on the weekend is taking on the shape of a gentle walk along an accessible path. lol My eagerness to see my Traveling Partner becomes a hope that whatever this is does not get shared. I reconsider my plans and place my focus on self-care, wellness, and “recovering”, tacitly admitting to myself that I feel unwell. Ah. Well, there it is, then. Apparently, I’m not well. lol Thanks, Brain, I wasn’t sure where I stood on that topic. Got it. Thanks for clearing up any confusion on that.

My coffee is of no interest; I’m not feeling wholly well this morning. I’d definitely work from home, but didn’t bring my laptop home with me last night – I’m feeling a little stupid over that poor choice – so I at least have to go into the office to get it. lol Fucking hell. Two more work shifts, and then a weekend.

I’m really over being sick on weekends. Damn.

I take a breath, then another; being annoyed over being sick can so easily turn into some bullshit emotional storm of frustration and volatility, and that’s really a pretty pointless waste of time. We are mortal creatures of flesh and emotion, and sometimes being sick is a thing we go through. Beating myself about being ill is fairly foolish, and I am not up to it this morning. I shrug and let it go. The work week is almost over. It makes sense that weekends are as much about recovering from exhaustion or illness as they are about leisure-time recreations.

I notice the time… yeah. I work at resetting my expectations of the day, and finding my way to a new beginning. It’s definitely time to begin again. 😉

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Categories autumn, Brain Injury, health, Mindfulness, Moments, more than a little bit of bitching, Perspective, Post Traumatic Stress

Well, Then This…

October 31, 2017 //
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Staying home yesterday was the right choice. The small amount of effort exerted happily tidying up the smallest bit, while my energy level was high in the early morning, completely wiped me out. Not a set back, specifically, but definitely a clear warning sign that I’m not yet well. By mid-day, symptoms like dizziness, and that infernal headache, had gone completely, and I didn’t need to sleep all day. (Yay!!) So… definitely feeling “better”…but… then, sometime later in the day, the coughing got going on this whole other unnecessarily annoying level…and then… ouch. The muscles supporting my ribs, along my sides, not quite around toward my back, definitely involved in coughing…and… definitely not ready for all of this coughing. Something sprung, or pinched, or tweaked, or… both sides, now, every cough, there’s also muscle pain sharp in my awareness, not quite to the torn muscle severity, but god damn it hurts when I cough. 😦 How the ever-loving-fuck do I avoid coughing as I recover from the fucking flu???

I went to bed. Slept… okay… ish. For most values of “sleep” and “okay”. I woke often. Drinking this much tea, water, coffee… it’s a given. So there’s that. And the coughing. And the pain. I so do not want to go to work today. I could get some shit done here, though… I’m up to that. So it isn’t really the work, itself, that I’m not up to at this point – it’s the environment. I’m not up to it, and it’s not really the appropriate place to bring all this fucking loud coughing. (I sound like I’m literally dying of some horrible disease of the respiratory system, it’s hard to listen to.) (Not only that, but sitting near me would also subject someone to listening to my damned lungs making percolating noises while I breathe. lol Again, not the picture of vibrant health one expects from a coworker, generally.) Nor do I wish to expose others to this (although I already have – and omg, I am so sorry!!). So… this morning, my coffee, the trip to the office to grab my laptop and back home to “go to work”. Like… double the commute. <sigh> Yes, but also… heated seats. My arthritic back does like some time on the heated seat. 🙂

I just want to be well. lol I wake up making childish bargains with the universe (“If you just let me get through today without… “) that never work out (because that’s not how life works). I’m managing to take decently good care of myself, and it was lovely waking up this morning to a tidy little place, a clean kitchen, a sense of order, and a fireplace ready for me when I want it. That was one bonus out of the day, yesterday; the landlord was on site doing winterization stuff around the duplex (and no doubt other locations in the area), and stopped in to turn on the pilot light for the gas fireplace. 😀 It was pretty nice to enjoy the evening in the glow of a merry little fire, then also just switch it off at bed time. I enjoyed it so much that before bed I put a sticky note on the switch that says “this too costs cash”. lol

Still sick. My coffee is good, though (and my sense of taste is returning). I’m decently well-rested in spite of the very interrupted night. I’m clearly in the process of “getting well”, it’s just taking rather longer than I’d like. It’s a good opportunity to bring the work laptop home, and get back to work, even if I am not ready to get back to the office… It’s just time to begin again. Slowly. With great care. 🙂

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Categories autumn, Brain Injury, Free Will, Frustration, health, Healthy Living, Mindfulness, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Sleepless Nights, The Art of Being, The Big 5
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