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The Worst Headache Possible…

January 13, 2024 //
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…I remind myself for perspective that there are worse headaches than this one. The worst headache possible would quite likely be much worse than this. This one’s bad, though, and I didn’t sleep well with it once it developed. I woke cross and irritable and in more pain than usual, and it’s not a good place to be…but… it’s icy and stormy outside, and I’m safe and warm inside, and I guess things could be just so much worse. No bombs falling on my neighborhood, for example. No flood waters rising. No terrible plagues sweeping through the community. I’ve got this good cup of coffee, and this quiet office, and that’s saying something. I’m in a fortunate place. I just happen to also have this really awful headache competing with my arthritis pain for my attention. It’s shitty, but… it could definitely be worse.

…I sip my coffee and try my best not to be obviously irritable. My “best effort” feels incredibly inadequate, and I commit myself (again) to at least going through the motions of being a pleasant human being if I’ve got to interact with my Traveling Partner – but it’s admittedly easier to be alone in my studio, headphones on without music, avoiding the necessity of interacting until called upon for some specific act of support or care that he needs enough to ask for. Some days, I’m recognizably a fairly limited and shitty human being whose “best” is wholly inadequate for “the common good”. Still doing my best. Hoping to outlast this headache without being a shit to my partner.

My tinnitus is incredibly loud in my ears – that’s often the case if I’ve got a worse-than-usual headache. This one is complex, a combination of my brainstem “feeling like it’s on fire”, and intense aching pressure across my forehead, from temple to temple, and behind my eyes. The whole painful mess seems to begin with my neck, up high, against my skull, and deep inside – I find myself wishing it were “only” a tension headache instead; that would almost be a relief. I know my Traveling Partner worries about my headache. I’m overdue to pursue more attention on some of these physical ailments. I admit I’m frustrated to the point of learned helplessness as far as dealing with them, though. I sigh and remind myself not to catastrophize; it’s just a headache, right? It’ll pass.

I sip my coffee – it can’t be helping that I didn’t have my first sip of my first cup of coffee until almost 10:00, when I’m usually drinking coffee by 05:30. That’s one truth to be mindful of; the habits and routines that comfort and support me come with consequences, in some cases quite visceral and real consequences, when those habits or routines are broken.

My coffee tastes good. I barely notice or care. The headache is a major distraction. I feel my occipital neuralgia beginning to flare up across the left side of my face. Fucking hell, this too? Well, the coffee is soothing and welcome, and I try to force my focus back to that experience.

I peek out a window and see snow.

Snow fell during the night. It’s just a dusting, really, but the temperatures fell to well below freezing – 20 degrees at 10:00 am. I’m definitely not dragging my arthritic bones out in this. When I’m feeling less cross, it’ll be delightful to hang out and maybe watch movies or something. Maybe bake a coffee cake. The forecast suggests these cold temperatures may last until Tuesday… I take a minute for heartfelt gratitude that I am able to work from home. I often go into the office, because I can, but it’s definitely something I am grateful to have a choice about. My Traveling Partner put a lot of love and attention into my home office space, and it’s well-prepared for pretty nearly any sort of work I do, whether personal or professional, creative or billable (or both). It’s nice. I take a moment to appreciate the self-love and attentive self-care that have gone into this, too. I didn’t get here without me, any more than I got here without my partner. 🙂

…Good coffee…

How to begin again…?

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Categories Allegories, anhedonia, Brain Injury, breathe, Free Will, Frustration, gratitude, health, meditation, Mindfulness, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Sleepless Nights, winter

Can You Get That?

July 19, 2021 //
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The ringing in my ears is ferocious today. Like a jumbled up combination of a distant (persistent) phone ringing next to a fire alarm, surrounded by chimes. I have the sense that my hearing may even be impaired, though generally that’s a bit of an illusion (tinnitus is very distracting, though). My back aches – arthritis pain. My head aches, too, not sure why, but sometimes “it’s a set” rather than just one something or other hurting.

The work day is behind me, and I sort of feel as though this could/should be a “joyful moment” – but my physical limitations at the moment are aggravating my partner, who is, himself, aggravated by other things – most particularly, his frustration with a new tool that he’d like to upgrade, and has the parts with which to do so, but… sometimes things are not as simple as all that. Real life getting real. Instead of his infectious delight with a new tool, I’m breathing in his profound frustration, which is not at all pleasant. I wish I could help, but aside from offering up one suggestion that seemed to have some small bit of promise, I’m just staying out of the fucking way. It’s the best I can do, right now.

Instead of getting mixed up in his moment, I’ve got mine, right here. My phone has been laggy and less-than-ideally responsive lately, and with the addition of the home automation application – which serves best when it runs smoothly – I am painfully aware of the poor device performance. What I am not, however, is “surprised”. My SD card is 100% absolutely entirely full of photos and videos… and when that happened, some months ago, I haplessly went ahead and told the silly thing to save new ones to the device storage instead. Now that’s full too. Not a little full… I’m talking 10,000+ high resolution images. LOL So, after some apparently-necessary reminding by my partner, I’m cleaning that mess up. With some hesitation (I’ve definitely got some “hoarder ancestry”), I checked “erase after importing”, and clicked “import”… now, it’s a matter of waiting… and writing. 🙂

I take a breath. Relax. Turn my attention to my Traveling Partner when he comes to me with his stress and aggravation. He’s disappointed – it’s an exciting moment to acquire a new tool, and when it doesn’t meet expectations, for some reason, particularly reasons that render the tool no longer a functional tool, it’s a whole other order of magnitude of disappointment. Great customer service was a selling point for the brand… but… so far? Not actually “great”. Well, shit. Here I am, still wishing I could help, still got nothing to offer but my sympathy, my compassion, and my unfortunate empathy. (I say “unfortunate” because I don’t really want to feel this disappointment and frustration alongside him in such a visceral way – it’s unpleasant for both of us to feel this, and my empathy is not helpful or useful, in this instance. He’s having his own experience. I’m mostly working on “being here” for him, and not making it worse, while I have mine.

Fuck. Damn, I was hoping to be feeling the soaring heights of his delight, right about now. Still wishing I could properly help.

…6303 items imported of 10,176. Progress.

My work trip to Seattle fell through. I guess I’m not surprised, although I was momentarily quite disappointed. I’m okay being home. I was able to cancel all the reservations for travel and lodging without any penalties, which was an unexpected success. My partner made a point of mentioning – while also being very grateful and appreciative that I’d be staying home – he would miss having some solo time to work on things around the house. I changed up my plans and found a room on the coast at a reasonable price, and made new reservations for an entirely other experience. I asked for, and got, Friday off to extend the time I can offer my partner for his own purposes.

…My head begins to ache when I recall that he’d asked for that time primarily to work with the new tool that is sure to be returned before I ever check into that room on the coast, and I realize I’m clenching my jaw in sympathetic frustration…

…Was I sufficiently encouraging and supportive…? I wonder to myself and drink more water. (Maybe this headache will go away if I drink more water?)

…Fuck this headache…!

I think over books to read. I think about videos I’ve been meaning to watch. My head pounds in the background. I drink more water.

…My bag was already packed for my business trip. I won’t have to repack it, just swap the shined boots for sandals, and make a point to throw in my sketch book and some pens & pencils, and maybe my watercolors. All I’ve got to do between now and Thursday, to prepare for my short getaway is resist the urge to pull something out of that bag to wear sooner. LOL I think I’ve got this. 🙂 Not that hard.

…8234 items imported…

I feel a moment of trepidation – there likely won’t be any images (of mine) on my phone at all. I could have been more precise, selecting a few to keep on the device for… reasons… (Is this how we accumulate bullshit and baggage? Why yes, I think it is…) I sigh to myself. Breathe. Exhale. Relax. Let go of that lingering attachment – there are always new pictures. Always. 🙂

I watch the final steps of the import process playout as a fast sequence of thumbnails in the import window. Entertaining. I feel the pain medication I took before I sat down start to have the desired effect. I hear my Traveling Partner close a door somewhere else… it wasn’t slammed, so that’s progress. (I still wish I could actually help soothe him and ease his stress and disappointment, but we’re each having our own experience, and there’s no real way to it differently, I think.)

The shards of sharp summer sunlight sneaking through the fabric of the window shade pierce my vision, and add to my headache. I recall the vestiges of a dream I had recently, in which bright sunshine was “shining directly on my brain” through my eyes, and as much as I covered them or dodged the light, I could not escape the blinding pain. Strangely, it wasn’t a nightmare at all, just an odd dream, filled with frustration. The recollection dissipates before I can assemble it more completely, and I lose interest in thinking about it further.

I finish my bottle of water, head still aching. I know that once I get up for another, I won’t return to this… it’ll be the beginning of some other thing I will be doing, then… but I don’t yet know what. I sigh, letting the air out of my lungs, and refilling them completely a time or two. Wondering what to make for dinner.

It’s a good time to begin again.

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Categories Allegories, anger, Anxiety, Brain Injury, breathe, forgiveness, Free Will, Frustration, gratitude, Healthy Living, Love, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Summer, The Art of Being, The Big 5

Shitty Moments

November 3, 2020 //
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Today is turning out to be a less than pleasant day. I mean… it could be worse. I already voted, and it is not a headache to do that in Oregon. So… there’s that. Win? It’s something, at least. I make a point of being aware of the small win. In many other respects today is mostly fairly shitty.

…Well… a whole bunch of the moments are annoying, unpleasant, frustrating, ineffective uses of time, or wasted in a cascade of interruptions when I am struggling to concentrate. I slept badly. It’s been downhill from the moment I woke, although I’m certain that I had choices that could have been chosen rather differently, potentially with better outcomes.

This headache, though. This arthritis pain. Fatigue. Lack of focus. The sensation that I “can’t hear myself think”. A feeling of “falling behind”. The lack of sleep is just the sprinkles on the icing of a relatively crappy day.

…Crappy days are a thing. Everyone gets a few. I try not to take it personally. I try to refrain from allowing my shitty mood to become weaponized. I try not to allow myself to pass on the shitty experience to anyone else.

The work day is almost over. It really hasn’t been “personal”, at all. I’m tired and I’m in pain – that pretty reliably has significant potential to be rendered as “a shitty day”. I imagine shrugging it off, and find myself simultaneously amused and annoyed that the text editor in WordPress does not have a default menu of emoji for day-to-day use, and chuckle to myself when I realize how much I actually do use emoji instead of written word – even at work. Wow. How 21st century am I?

…I guess I’m at least 21st century enough to have a solid grasp of the practices involved in emotional wellness, resilience, and bouncing back from a shitty moment… I know how to begin again. 😉

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Categories Allegories, anger, Anxiety, autumn, Brain Injury, Frustration, gratitude, Mindfulness, Moments, more than a little bit of bitching, Perspective, Post Traumatic Stress, Practices, Sleepless Nights

Something to Remember

June 20, 2019 //
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I woke up easily this morning, a nice change from yesterday. Rather oddly, I woke with the whisper of a dream left behind still resonating in my consciousness. Words lingered, although I could no longer recall the dream. “You’re not the good guy, here.” And, “This isn’t about you, at all.” Interesting observations, suitable for many occasions – but I don’t have any context. The dream had already faded.

I’m not “the good guy” here, though, I’m sure of that; I’m a human being, living my life. Only that. Sure, I like to think I am doing my best. Sometimes I actually am. By many practical measures, it isn’t always the case, though; I could sometimes do more, better. That’s real, and very human.

This isn’t about me, at all. Well, much of it is not, that’s also quite true. Most of it, maybe. Like, seriously, almost any detail of any moment I can be present for, still just isn’t much “about” me. I’m here, living and being, and (in this case) drinking coffee…and even this moment, right here, early in the pre-dawn gloom, isn’t much “about” me. It’s about a typical Thursday morning. It’s about this cup of coffee, and this handful of words. It’s about this headache. It’s about the morning traffic, and the sound of little birds in the hedge beyond the window. I’m such a small part of this moment – and not in any “bad” or diminishing way. It’s just that there is so much more to… all of it. I’m just one consciousness present in this here-and-now. Taken in the larger context of “everything else”, my breath, and my very life force, are minuscule. That’s okay, too; there’s a lot of life to live, and a lot of details to take in. If I spend all of my energy on my small concerns, I’ll miss a lot of other stuff. lol

I stop drinking coffee long enough to meditate. Nice morning for it. Today, it does nothing for the headache. I hadn’t seriously expected that it would, but sometimes it does. If nothing else, it often gives me perspective on life that makes it seem of less consequence.

…I realize rather abruptly that I’d forgotten to take my morning medication when I got up. I go ahead and do that, once I’ve poked around in my recollection of the morning a bit, trying to be sure I’m correct about that (doesn’t do anything good for me to take it twice, I promise you that!) – I wash it down with coffee, feeling vaguely guilty about doing that (it’s supposed to be taken with a glass of water…). I let that petty shit go.

My body is uncomfortable, this morning. This fucking headache. Why do I call it a headache, I wonder? It is also a terrible bit of pain in my neck, and a weird jabby stabby sensation in my ear when I turn my head, sometimes, and also a rather horrible permanently cramped up trapezius, particularly painful along the top, from my neck to my shoulder. These pains all feel related to each other, and nothing much helps, so far. I think I would endure it more easily if I knew what the problem is. I’ve been in significant pain since about 1990, when my osteo arthritis developed, I don’t really expect to ever be entirely “pain free” again in my life… I do my best to care for this fragile vessel skillfully, and ease the pain as much as I am able to without poisoning myself or wrecking my health in some other way. It could be worse. I’d just like an answer to the question “what the fuck??”

Fuck. A glance at the clock reminds me of the work day ahead. Pain and employment are not really the best-ever combination of experiences, and it requires so much to stay ahead of the irritability, the distraction, and the misery of it. I breathe. I let it go. We all walk our own hard mile. We’re each having our own experience. Unavoidably, the pain I live with is the worst pain I can imagine; it’s what I know. Each one of us has our own challenge, and I am certain I have coworkers whose pain is more severe, whose life contains more chaos, who woke this morning frightened, or sad, or angry, or needing a moment of support and consideration. I can, if nothing else, do my best not to add to any of that, myself, and to be considerate, thoughtful, kind, and compassionate. I can, at least, try. Another breath. Another sip of coffee. Another moment to consider how fortunate I am to be mostly fairly healthy, all things considered, and to live with pain that doesn’t debilitate me to the point that I can’t work at all. It could be so much worse.

…Fuck this headache, though! Neck-ache? Whatever. Fuck all of that painful nastiness.

It’s time to begin again. I’ve got to work with “the materials on hand” in this life, and unfortunately, pain is a thing. I breathe through it, finish my coffee, and turn to face the day as the sun rises. 🙂

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Categories gratitude, health, Healthy Living, Mindfulness, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Summer, The Big 5

…I’m Not Dead Yet

April 6, 2018 //
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Nothing like spending 8 hours of precious limited lifetime in the freakin’ ER to remind me how much I enjoy doing just about anything else. LOL

I’m okay. Just middle-aged. 😉

I resented the request to go to the ER, in the first place. I negotiated with my primary care physician like I was making a deal with the devil, when I finally spoke to her. I made work more important than my health and went in to the office yesterday still dealing with the ferocious headache that continues to plague me. The nurse in Neurology finally reached me directly yesterday mid-morning, and was fairly firm about seeing me immediately if possible. Damn it. I interrupted a productive work day figuring I’d go/come back, no problem…

8 hours, 2 blood draws, 2 IV insertions (1 failed), and 3 separate CT scans later… we ruled out most of the scariest stuff for adults in my age group worried about a headache. We’ve narrowed it down to… a headache. <sigh> No, for real? Back to Neurology. I can’t be mad. I got some first-rate care (and one failed attempt at an IV insertion that was both painful, and hurt like fire when imaging attempted to make use of it), and a chance to enjoy “Hospital ER” as a sort of live-action drama with all the pettiness human beings can bring to bear, as I quietly eavesdropped the conversations from the tiny treatment room I spent most of my time in.

Luck of the draw – I got a really good young doctor in residency. Because he’s a psychiatric resident, he “got me” on an entirely other level, and was able to do more to support me as a patient. The noise and lights and aggressively purposeful busy-ness of the ER aggravated other symptoms a lot (a lot), and that could have been a distraction for an MD who didn’t fully understand what seeing a c-PTSD diagnosis in my charts could mean. This one did. I wish he would be my full-time primary care doctor! By the time he actually saw me I was literally in tears from the noise; he took steps to ease it, first thing (ear plugs, a closed door, another closed door). Suddenly the experience was so much easier. I gotta say, hospital ERs are not actually designed to “heal” people as much as “repair” them. The noise, the actual moment-to-moment callousness (seriously, just watch, you’ll see it) of being entirely practical and attempting to be efficient, too, while serving as many customers as possible as quickly as feasible. The bright lights and infernal beeping of machinery and grinding or sliding of automatic doors. The repetitive nature of all of it just hammers at my consciousness – no stillness. Even the waiting is noisy. Nothing soothing. And for a place of healing? Holy crap they are going at such a breakneck pace that simple self-care stuff is entirely overlooked. They keep people there for hours and hours without calories or drinking water. lol Fuuuuuuck. Hospital ERs are no place for the ill.

Today is a whole new day. I’m definitely ready to begin again. LOL

 

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Categories Anxiety, Brain Injury, Free Will, health, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Spring
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