Archives for posts with tag: The Art of Being

I’m packed, except for the laptop. The car is loaded, except for the laptop, and my handbag. Phone is charged. Charging brick is charged (I find it better for “topping off” the phone than the car’s USB port, and I can slip it in a pocket). I feel ready to hit the road, ready to head home. I’ll have a bite of breakfast and a cup of coffee in the hotel breakfast bar, and getting going shortly after, which should put the entire drive in daylight. If all goes to plan (though it rarely does), I should be home before 16:00, and get to enjoy dinner with my Traveling Partner, without hurrying or creating unnecessary stress for myself. 😀

…Funny, the trip down was sunny and mild. The days here were mostly also sunny and mild, with some brief rain showers and coastal fog yesterday. Today? The air is damp, it rained during the night, and the car is icy. The morning air is quite cold. I’ve used up the in-room coffee, and forgotten to ask for more. Definitely time to go home. lol

What a pleasant visit, in spite of the trying circumstances. No one wants to say final goodbyes to cherished friends, but if I’d had to script it, it may very well have gone something like this, and I feel so incredibly fortunate to have had the chance to enjoy my dear friend’s lucid companionship and humor once again. I got pretty lucky. My dear friend was often awake and aware, while I visited. We enjoyed lively conversation, some of it quite deep. I was thoroughly welcomed by her family, gathered to care for her, and make decisions. The only better outcome would likely involve modifications to how mortality works, and some kind of extension of our all too brief human lives, or perhaps some more robust mortal vessel than those we’ve got. Not this year, I guess.

So, I give the room a last look around to avoid forgetting anything. I’m definitely ready for coffee. I guess I’m also ready to begin again.

I’m sitting quietly in my hotel room. It’s well-past any sort of reasonable time (for me) to have a cup of coffee. So… I make a cup of tea. I sip it slowly, hoping it doesn’t cause a restless night, enjoying the warmth of it in my hands, anyway. I breathe, exhale, relax, and wonder how things are over at the hospital? It’s past visiting hours. I stayed with my dear friend for much of the day, after arriving shortly after visiting hours began. It was a good day for both of us, relative to where we each are in our life and circumstances. I took a break at one point to make room for the painful intimacy of important conversations about where and when and things of that sort. I’m not “decision-making family”, so excusing myself seemed the most appropriate way to proceed. Aside from that, we spent the day together, my dear friend and I, while family and her bestie came and went, and even as my dear friend napped, finally getting some restful sleep (she’d been complaining about the sleep deprivation practices that are not uncommon in hospitals and suffering from a lack of healthy deep sleep for some days). Eventually, family and my dear friend’s bestie returned from errands and things that could not be put off for later, and visiting hours began to wind down. I made my goodbye’s all around, and headed back to the hotel.

…I think about something my Traveling Partner said to me in a message earlier today, in response to my bitching about the bare bland beige hospital decor, “Hospitals treat diseases, not people.” I considered the small things I saw not being done (that surely could have created a more healing environment…) the lack of windows with views in patient rooms, the lack of art on the walls, the lack of anything at all to do while… waiting. People in hospitals do a lot of fucking waiting around. People – patients – in hospitals are often incredibly bored. That’s so unhealthy for human wellness, particularly when there is no way to alleviate it. Nothing to do. I remember it from being in the hospital, myself; the endless maddening boredom. Then there’s something hospitals could do without… the fucking endless beeping of various monitors and machinery. G’damn, it was bad. Ceaseless. Inescapable. Nerve-wracking. Through cat-nap after cat-nap, and wrecking every opportunity for deep sleep, I saw my dear friend’s brow furrow with irritation when yet another round of beeping commenced, often in some room several doors down the corridor. Oh sure, those alarms are intended to get attention, but the nurses are human, too, and eventually they tune out the beeping, especially the commonplace beeps that indicate something, but not something urgent. They can tune them out, over time, but how many patients can? The patients haven’t been forced to listen to it long enough to learn to ignore it. If it’s going to get ignored anyway, why the fuck is it being permitted to continue to destroy the rest that vulnerable ill or injured people need so very much?? I admit it – I just don’t get it. It’s fucking dumb, and it’s also rude. While I’m on about this shit, for fucks’ sake don’t let people’s minds just atrophy while they’re struggling with their health! Make a point to engage their minds, and give them a way to entertain themselves! Be patient enough to wait around for the answer to a question you’ve asked, yes even if that patient has trouble speaking or expressing themselves! Wouldn’t you want that? Oh, and also? Fucking let people sleep. I can’t stress enough how fucking annoying it is to finally fall asleep in spite of pain or discomfort to be wakened by a cheery loud voice seeking to take vital signs or worse – to ask if you’re sleeping. Hospitals are not helping with that shit. Good grief.

I’m cross on my dear friend’s behalf. I sip my tea, and think awhile. I breathe, exhale, relax, and then let that go. It’s evening now, and soon enough I’ll be getting packed to the trip home. My dear friend is in the care of family and friends who love her greatly. She is so very loved.

I sit quietly, listening to my tinnitus. My Traveling Partner and I exchange “stickers” back and forth in messages: kisses, hugs, hearts, fun little animated characters showing affection . It delights me, and I feel loved. I’m eager to be home, and back in his arms. Unexpectedly, I noticed how much pain I’m in. The weather turned rainy this morning, and my arthritis flared up. I’ve stay caught up on my Rx’s this entire detour from the routine, which is not always the case when my routine is broken. Health-wise, I’m feeling pretty good, generally, so the pain caught me a bit by surprise (though it isn’t truly surprising). I sit with that awareness for a moment thinking back over the day; did I take my pain meds? Those are not “on a schedule”, and keeping track is very important. I look in my pillbox. Huh. I find myself surprised to see that I hadn’t found it necessary to manage my pain earlier today, at all. I fix that, hoping I got to it early enough to avoid fucking with my sleep. It’s been a long day, filled with “emotional labor”. I’m tired, and it seems likely I’ll sleep just fine, particularly if I don’t let myself get spun up over “what if I don’t sleep?”. lol

I take a deep breath and let it out as a sigh. Actually? I’m already tired, it’s just too early to go to bed. I send more kisses to my Traveling Partner and pick up the book I’m reading… seems like a pleasant evening to read awhile, before calling it night. Tomorrow will be soon enough to begin again. 😀

I’m waiting for in-room hotel coffee to finish burbling its way to being an actual cup of hopefully drinkable coffee. Oh, I know; it’ll likely be pretty crappy, but the hope exists as its own thing, and it’s worth cherishing for its own value. Hope is a good feeling. I like feeling it. Anyway, if you ask someone who doesn’t like coffee in the first place, they’ll tell you how bad it reliably is – all of it. lol. Perspective, too, is a thing that exists.

Yesterday was interesting – and precious. My dear friend woke from her unhealthy repose in the hospital, and we shared some laughs and some lucid conversation. It awoke hope in me, and put my drenching sorrow to rest, and it feels good to connect with a dear friend, even under such trying circumstances. I was also fortunate to get to visit with others dear to her, in one case gently renewing an old relationship that had fallen to circumstances, which was both unexpected and delightful. The friends who had gathered last summer, when I made my trip down the coastal highway in July, gathered again, too, and although the confines of a hotel room were not so merry as relaxing in my dear friend’s home, it almost felt like that party, once again. It was fun. It was also purposeful, as these gathered loved ones were gathering to care for my dear friend together and in turns. I am, in a sense, simply passing through their experience of saying goodbye, to have my own. All for her, this quite wonderful and very dear friend.

I upended my plans, after talking to my Traveling Partner; one more day, another chance to visit, and also a means of taking some pressure off myself to hit the road again almost immediately. It was frankly surprisingly hard on this fragile vessel to make the drive down so directly, all in one shot, in ways it definitely would not have been 3 decades ago. I sit with that thought awhile, and sip my coffee. (Is my coffee as terrible as it seemed likely to be? You don’t know that unless I tell you. Something like the pain of strangers; it probably exists, but you aren’t likely to know unless the information is explicitly shared with you. I don’t know why that feels share worthy – it’s a dark bit of perspective.)(Yes, it’s awful. lol)(The coffee. The coffee is awful.)

I woke at my usual time, this morning, after a pretty good night’s sleep. That bodes well for the trip back tomorrow. I woke missing my Traveling Partner. Missing home. Missing a reliably good cup of coffee on a lazy weekend morning, and I am rather awkwardly aware that I’ve “missed the weekend” entirely. lol I breathe, exhale, and relax – it’s an unimportant detail of the sort that can spin up a heartbreaking amount of pointless stress, so I let that go. Ridiculous bullshit is not welcome this morning. It has proven to be helpful to be open to “success” even in times of sorrow, and I’m welcoming this dawn as I welcome any other; a new day, a new beginning, a new bunch of opportunities and chances. Place your bets, roll the dice – but don’t get attached to the outcome, and don’t bet what you can’t afford to lose. Put that way, this “game” that is life looks so damned easy!! I know, it isn’t – it’s more complicated than a game, and the last hand is always a reminder that we are mortal creatures.

…Maybe this cup of coffee isn’t so bad after all? Perspective…

I’ve learned some other things visiting with my dear friend. Things about mortality. Things about nearing the end of a life. Things about dignity and comfort. Things about health and wellness. Things about… risk management. I’m glad I came down to visit my dear friend. Fucking hell I’m going to miss her, and this visit gives me much to reflect on, myself, for my own purposes, too. I chuckle to myself to realize that even now, under these circumstances, she continues to teach me things I need to know in that gentle and unassuming way she always has. I sip my coffee contentedly. It’s still quite early. I’ve got time to get a walk in, and maybe do some yoga before breakfast. Certainly, it’s time to begin again.

… The clock is ticking. What will you do with the time that is left to you?

I’m having a restless sort of morning. I’ve stepped through the details of my morning routine, my commute, the start of my work day, and I feel… restless. Like there’s “something more” “out there”, or as if I am unsatisfied with life, generally. It’s an illusion, as much as it has any basis in reality. Emotional weather. I breathe, inhaling deeply, and exhaling slowly, feeling my subtle anxiety lurking in the background fall away ever so slowly with each breath. It’s a practice that works to reduce my anxiety, before it can get out of hand, but it does nothing much to change this strange feeling of restlessness.

…I could plan a camping trip… It’s a bit early in the year for (me to be) sleeping on the ground, but I enjoy the exercise of planning, and I don’t mind planning well in advance – in fact, some places I might wish to camp require quite a bit of long range planning (they’re just that popular, I suppose). On the other hand, I’m not feeling any sort of urgent need to be away from home (quite the contrary). This feeling of restlessness is inconveniently timed. I sip my coffee and think about it for some minutes – what am I “running from”? Something? Anything? Am I tussling with unaddressed urges? No doubt I’ve got my share of those…

The morning sky has clouds, and broad streaks of blue between those. The sunrise surprised me with it’s earliness, and was gone before I gave it much thought. It’s definitely morning, bathed in daylight diffused by the cloudy sky. Pretty. I gaze out the windows awhile, watching the streetcar make the trip around the block, from one stop to the next, heading the other direction. As early as it is, there are already people in the park below me, walking, sipping coffee, sitting on a bench. The water features are bland brown blocks of earth tones, not yet reflecting the sky above in any visible way from this distance (and angle of view). I wonder to myself when the Koi fish will be there, again, and where they go when they are not in the pond. I don’t care enough to look into it further, I’m just momentarily curious.

I breathe, exhale, and relax, taking stock of my pain and considering how best to manage it. I sip my coffee, and pull myself more upright, correcting my posture (again). I think about my Traveling Partner, his recovery, and how much I adore him. It’s hard being injured and being patient with the tediously long time recovery can sometimes take. Some injuries don’t heal quickly. I feel for him and kind of regret coming into the office, when I could be working from home where I could easily do things to care for him and make life easier. I sigh and shake my head when I realize I’d also very much like to just go back to bed and maybe nap awhile… Fucking hell? Really? The day has hardly begun…

…I hear a flurry of negative self-talk comments begin to develop in my thoughts, and put myself on pause; there’s literally nothing whatsoever wrong with wistful thoughts of sleeping in and napping, especially for a woman who struggles to get adequate healthy sleep! I laugh out loud in this quiet room and remind myself silently to “be nice” and treat myself with care and kindness – to do otherwise puts me at risk of losing sight of how I treat others. If I’m a dick to myself, how can I expect to treat others gently and with compassion? It’s something I’ve been working on a lot, lately.

Another sip of my almost-cold-now coffee, and my thoughts slide towards far away friends, and a dear friend struggling with mortality. Maybe that’s really the thing driving my restlessness, I realize; I miss far away friends, and I know I will regret not making time to see them (more often than I do). I find myself wondering if I should simply plan a trip to see my ill friend, and make a point of doing so while I can. It clearly matters enough to fuck with my head. I think that over quietly, and the restlessness begins to ease. Okay, so I got there, eventually. Now to do something about it, I suppose…

…I finish my coffee and get ready to begin again.

The commute was ridiculously easy this morning. Very little traffic, and it seemed that every driver was alert, and driving safely. It was… amazing. My Traveling Partner is continuing to recover from his injury, and although there is more recovery yet to come, it seems he’s making good progress. This contributes a lot to my pleasant morning, this morning; it’s comfortingly encouraging. I got a good night’s sleep, and no doubt this is also contributing to my outlook on things as the morning unfolds. I’m grateful for the sleep, and the mood I’m in. My appointment, yesterday afternoon, with a new specialist, went very well. I felt heard. I felt supported. What is most unexpected for me, is that I walked away from that appointment feeling… hopeful. Encouraged. Positive. I feel as if real (physical) healing is not only possible, but also within reach. I haven’t felt that way in a long time.

I sip my cup of ice water (I’ve already had my coffee), and look out at the city, still wrapped in darkness. Hope feels good.

I remind myself to take care not to set myself up for failure by becoming invested in some particular outcome (whether it seems within reach or not). I take a deep breathe and exhale. I do it again. Then again. I feel the calm settle over my body. I’m in some pain today, but my headache does feel somewhat reduced in intensity. Placebo effect from simply being listened to and cared for? Perhaps – but why would I undermine this feeling, even if that were the case? Less pain is less pain. I take a moment to appreciate it. Another breath. Another exhalation. Another moment to relax, to reflect – to begin again.

Later today it’s off to an imaging appointment. More images will ideally mean more – or at least more recent – information about whatever is going wrong with my neck that could be causing (or at least contributing to) my persist headache. I feel cynicism, learned helplessness, and old medical trauma competing with the sensation of hopefulness. I breathe, exhale, relax – and remind myself that it’s okay to unpack some of that baggage, and let it go. I remind myself not to carry past pain into future experiences – often easier said than done, but it’s helpful to put into to words to be more aware of the possibility.

I sip my water. The morning will unfold, as mornings do, and the day will become whatever the day will be. It’s not at all necessary to control everything (it’s not even possible). I prepare to “ride the wave” of whatever the day will bring. I get ready to begin again.