Archives for the month of: August, 2024

He said, almost as an afterthought, “I forget about your brain damage sometimes, because you generally handle things so well.” I don’t recall where that conversation went, now, but the remark itself lingers. A compliment? I think so…? It’s complicated, like finding the right balance between just living life and reminding people now and then that there is brain damage, and that it is very much a part of my day-to-day experience.

… I continue to think about my Traveling Partner’s loving words. Those. Others. 14 years together. We’ve been through some things. This bit of chaos, here, now? Part of the journey. Opportunities to grow, to do better, to become better partners, are plentiful right now. I hope to take advantage of many of them. I see my partner embracing those opportunities, too. We’re both very human, and this is a very human journey.

New beginnings, new perspective.

I started my walk just before sunrise, at first light. My pace is improving, my strength, too. Staying on top of my self-care requires diligence and focus. Sometimes I feel like I’d rather just… sleep.  Yesterday evening, I chose (with my partner’s encouragement) to go to bed early and get a proper night’s sleep. I woke feeling rested and started the day feeling pretty good. Yesterday I also tried a capsaicin patch for a particular pain that seems caused by my neck, and is intensely distracting at its worst. I’m surprised, but it actually did really help. (Please don’t tell me if this is a placebo effect! I’d rather have the relief.)

At some point yesterday, it was difficult to dismiss my partner’s assertion that I was “holding my breath” in response to my pain. I clearly was. I caught myself several times. Annoying. It’s not at all helpful to stop fucking breathing! As I walked this morning I focused on “staying with my breath”. It seems irritating and silly to have to practice breathing for fucks sake, but here I am. Then I laugh out loud; skillful, practiced breath work is part of so many things! Why do I even fuss about it? I sleep with a CPAP machine, because I frequently stop breathing while I sleep. Why would I expect that this concern would somehow just not be a thing simply because I am awake?

A momentary traveling companion along the way.

I breathe, exhale, and relax. My anxiety isn’t bad this morning. My recent “11” is a more manageable “2”, today. Win. I finish my walk, and prepare to begin again.

I take a quick gulp of my iced coffee and lace up my boots to get a quick walk in, before the work day begins. My thoughts are with my Traveling Partner. I am already dealing with feelings of guilt and regret for agreeing to come into the office today. I hope to make it a fairly short day, which causes me some anxiety. No reason for that (the anxiety), really, my boss and my work team have been very supportive of the time I have needed to take to support my partner, first while injured, and now following his surgery.

I breathe, exhale, and relax. I remind myself that anxiety is a liar. I remind myself that my Traveling Partner was okay with me going into the office today, and that he’s been making great progress on his recovery, and even that he won’t be alone all day because he has a friend coming around to visit a little later. I still feel distracted by the distance from my partner, concerned for his well-being, and worried in an abstract persistent way. Perhaps this is a predictable bit of the slow return to normalcy? I sigh and grab my cane; I no longer take walks without it.

Every journey begins somewhere.

I get back to the car, fleece unzipped, warmed through from walking briskly, and pleased to have covered a good distance in half my usual time. Sunrise is just getting going. Daybreak comes much later than a few weeks ago. My back aches this morning and my tinnitus is loud in my ears, but my headache isn’t particularly bad, and that feels like a win. It’s enough to build the day on. I sit for a moment watching the clouds hustle across the morning sky, shades of gray with hints of blue. I sip my coffee and breathe the meadow-sweet air. This is a pleasant moment. I don’t rush it, instead I linger here long enough to really feel it.

Last week is a blur; too much too fast, too tense, too emotional, and too little sleep. I’m glad it’s behind me; it may have been one of the most emotionally difficult weeks of my life. It sure feels that way from this vantage point, but it’s still very “fresh”, and no doubt my perspective is skewed. I breathe, exhale, and relax. I let it go (at least for now; there’s more to learn from that experience).

Hints of pink in the clouds skittering by remind me to check the time. I finish swapping back from boots to shoes. I take my morning meds with a swallow of coffee and silently complain about the pain I’m in, before thinking about the pain my partner still experiences as he heals and the many months of more severe pain he had to endure to get to this point. Perspective. (In spite of the many tense moments between us recently, I miss him dreadfully right now, although I am only 20 miles away, and only for a couple hours at this point.)

I sigh and admit to myself the inevitable; it’s time to begin again.

Like it or not, you’ve got to walk your own mile.

[Some time about 2 hours later]

It sometimes feels as if “life” and “change” are entirely interchangeable words. On my way between my walk and the office, my Traveling Partner phoned. He needed my help, and it really highlighted the necessity. Non-negotiable; I need to be there. I turned the car around immediately and headed back. It’s one thing to be away an hour, maybe two, but all day? I can’t. I really can’t. Not yet. Fuck.

I reach out to my work team and reset expectations. No problem there; everyone’s good with it. I reach out to the Anxious Adventurer; can he be there sooner, and be immediately helpful while I’m on my way back? He can. I feel relieved, and alert my Traveling Partner that help is on the way – and I am, too. Change is.

It’s later. My partner is resting. I’m settled into work. “Nothing to see here.” It’s a Tuesday. I’ve got this cup of coffee, and this day plan in front of me. Routine? Hardly. It is what it is… And what it is, is time to begin again. Again.

Yesterday was… awful. Mostly. Humans being human. I was certainly not at my best. The day seemed too long, my efforts too futile, and the promises of the future too limited. Chaos and damage; once I was triggered in the early morning, my anxiety flared up on this whole almost-forgotten level and continue to struggle with it even now.

My sleep last night was disturbed by mocking nightmares of imminent demise and ruin. I woke abruptly, too early, feeling the full measure of my “baggage” like a weight around my neck. I had trouble catching my breath, so I got up quickly and quietly and slipped out into the pre-dawn darkness to “walk it off” at daybreak.

A glimpse of the full moon, an unexpected delight.

As I waited for enough light to comfortably walk the trail, I took time to meditate. I had hoped it would do more to ease my anxiety than it did. I sit with my thoughts. I breathe, exhale, relax, and take inventory of my physical wellness. Pain? Yeah. Definitely. I take my medication and hope for relief. Rested? Sure, mostly. I’ve added calendar reminders for self-care breaks and healthy calories; I’ve been letting my self-care suffer trying to stay caught up on all the caregiving stuff – and I’m just going to say it; I’m in no way actually up to the task of providing round-the-clock caregiving to another human being (even one that I love dearly).  I’ve got limitations that make that a pretty poor choice, but didn’t understand them in this context until I rather stupidly committed to providing the caregiving. My Traveling Partner needed more from me than I could realistically provide with skill. It’s been a shit show and very difficult few days for me, and more so for my partner. Stupid mistakes, and an astonishing level of inconsiderate bullshit that I honestly didn’t expect from myself.

My back aches and I feel vaguely ill, but my head isn’t stuffy anymore and I can breathe. I’ve got the usual headache and a workday ahead. I feel frustrated and annoyed in advance of any reason for it.

The chaos in the household has been disruptive for everyone. I’m inclined to bear the blame for all of it, because that’s what I tend to do. The truer truth is that there are three human beings in this together, each with their own baggage, their own bullshit, their own challenges and goals and dreams – their own values – and their own very real struggles, right fucking now. It’s hard to forge a comfortably calm genial environment together in less than 6 weeks, and do it in a time period that includes a major move, an incredibly advanced spinal surgery, and changes to medications of one kind or another for everyone involved. I don’t even know why we expected it to be any easier in the first place. (Did we?)

Daybreak comes

It’s a new day. A chance to begin again, if I take it. A new shared experience, if I am willing to be open, vulnerable, considerate, patient, kind, and able to listen with care and compassion. I wish I wasn’t having to fight my anxiety. Wishful thinking won’t change the world. Better to take time to reflect rationally on what I need and expect from the Anxious Adventurer, and on what I can realistically provide to support my Traveling Partner with skill and kindness, and then deal with those realities appropriately.

… I’ve managed to be a complete dick to everyone around me for days, and do so thinking I was behaving quite differently…

I notice the time. Although I am “officially” no longer responsible for my Traveling Partner’s medications (mostly because I have made too many mistakes, which can’t be a thing with meds, but also because he doesn’t need that with the same level of oversight now), I still find myself on alert; it’s time. My anxiety goes through the roof; change is hard. I breathe through it. Exhale, understanding that this level of anxiety over that task should have been a clear indication that I’m possibly not the right person for that task. I walk tensely, picking at my cuticles until I notice that I’m doing it. I stop the picking and keep walking, and breathing. Fuck anxiety.

I walk on, trusting my partner. He’s reminded me multiple times to refrain from jumping in and taking over or trying to do things for him without asking what he needs. (Fucking basic; “nothing about me, without me”, you’d think I’d have that down.)

The sunrise is pretty, beginning with hints of luminous pink. I walk, feeling the chill of autumn ahead. I should have worn a fleece, but didn’t think to grab it as I left, still fighting the residue of my nightmares.

… Some days I feel like I am barely an actual adult…

I walk and breathe and reflect. I pause my halfway point to write. So much to do today. Work. Getting my partner to and from an appointment. Getting prescriptions reordered. Picking those up. I start to feel overwhelmed in advance, but it’s just the anxiety talking. I let it go. I’ll just keep practicing.

… It’s already time to begin again…

I write a lot. It isn’t explicitly and specifically about you. …Or…well…maybe it is? I mean in the most general sense that sooner or later generalities land with us. Some particular thing or another, sooner or later, is going to strike you in a potentially eye-opening or insightful way. The odds are in favor of it. It’s literally how things like the cold readings of a side-show huckster or small town psychic down the road sound so convincingly knowing. Tarot cards. Fortune tellers. Salespeople.

I’ve got a friend who recently remarked how “spooky” it is that I so often seem to be writing about exactly what she’s going through, even though we don’t often hang out these days, and no longer work together. I pointed out that I write – often – in generalities and aphorisms that spring from a shared common human experience. Unconvinced, she pointed out that it’s “all the time, though”. (It isn’t.) When I laughed and reminded her how often she remarks quite conversely that she didn’t get my point at all, she shrugged it off and let the whole thing drop. I’m no mind reader. Most of the time my writing is relatively trivial; casual generalities and interesting (to me) turns of phrase that help me along my own journey. I’m glad there are a few folks (like you) who take time to read what I’ve written. It gives my writing a lot more meaning that it is being read.  (Thank you.)

…But. No, I didn’t write that because you… I mean, not you personally, is all. 🙂 People. Maybe you? Maybe that person over there? Maybe it was just an idea I had that sounded like something you’ve experienced for real, recently? Maybe someone you heard about through a friend of a friend? Maybe it was in a news article (that I also read) or a movie (that I also saw)? Just saying – it’s not you. More likely it’s me. I mean… I can at least try to make a useful or necessary change in my own behavior or in my own life. I can’t do that for you.

It’s very much not “personal”.

…Which is true of most things, actually, and that is probably worth thinking about further.

I tend to take observations and new learning to a bit of a meta place when I think things over, and even when I listen to song lyrics. It is the thing that makes some casual observation become a useful living metaphor (for me), or that allows me to apply some abstract idea to my own circumstances. Because I write in the same way I think, I’ve then opened the door just a bit wider that you might find some handful of words I’ve strung together to either be quite… pointed… or enlightening and useful. I’m not all that wise, actually – just another human primate doing my best to tidy up my chaos and damage and build a good life on the wreckage that came before. You, too? No wonder some of this “rings true”, eh?

Humans being human, each having our own experience, and somehow also all in it together.

I sit with my thoughts on the afternoon of what has proven to be an unexpectedly difficult day between lovers both after the same experience; a shared experience of calm, healing, and contentment. How vexing that we don’t quite get there! So frustrating to feel this unsteady and uncertain and uncomfortable. Try. Try again. Listen. Hear. Begin again. Fuck it all up. Apologize. Listen more. Try to say, but… Listen more. Try again. Do the damned thing differently. Sweep away the eggshells. Begin again. Assume positive intent. Listen more carefully. Begin again, again. No lack of love nor lack of will to try on, and listen longer. Just humans being human and sometimes failing to be our best selves. It’s hard. Caregiving? Yeah, sure, caregiving is crazy hard and demanding on a whole different level, but just now I mean more generally that simply doing our best in the face of everything we’re dealing with. Hard. At least it is for me, today.

I’ll keep practicing. Keep trying. Keep listening and growing from my mistakes. I’ll keep beginning again.

If you have PTSD or cPTSD, what follows may be painfully familiar, and I’m sorry in advance. Maybe skip this one? I don’t want to cause harm. Consider this a trigger warning (I’ll be talking about PTSD and domestic violence).

… I honestly don’t know whether to begin “at the beginning”, or quite when that beginning might actually be. I’m writing while also still triggered, slowly working through my anxiety and stress, and trying to find my way to a calmer place. I have the tools to manage the moment, and I feel pretty confident in the potential that I can, but it’s no easy thing. My heart is still pounding, and I can feel that my breathing is irregular, shallow, somewhere between hyperventilating and struggling to breathe. The first mile of my walk passed quickly, feet hitting the pavement too hard, pace unsustainably aggressive. I finally stop, sit, and work on properly calming myself.

For some context, after a week of providing approximately 24/7 caregiving to my Traveling Partner recovering from surgery, with few breaks, and no opportunity for deep restful sleep (or even more than 2-4 hours at a time, simply due to the timing of medication), I was exhausted, struggling with short-term memory and moments of confusion. I was also dealing with grief, having lost a cherished family member mid-week, and reconfronting the loss of my Dear Friend in the spring on the date of her celebration of life. My self-care was coming up short in places, just due to distractions and fatigue-driven stupidity.

In the evening last night, my Traveling Partner very kindly proposed that he felt up to making sure to take his medication through the night, and suggested I just get some sleep. Beyond grateful (and feeling very loved) I accepted. I even set my wake up time for a little later than usual, to be sure to get the rest I needed. I didn’t manage to sleep through the night, still waking briefly each time my partner woke up and got out of bed, and once because a laxative I had taken decided to do its thing at 04:00 in the morning. (I got a lot more sleep than I’ve been getting for the past 10 days or so, and it seems enough.)

I was soundly deeply asleep when I heard a soft voice ask me to join him in the bathroom. In my sleeping state, the voice sounded “sweetly menacing”, and seemed to me to be the voice of my first husband. A cold chill descended over me, my mouth went dry even as I immediately began getting out of bed. I don’t recall whether I replied or what I said. My consciousness felt paralyzed with dread. (Had I only dreamt my life with my Traveling Partner? Was I still trapped in a living nightmare?) I was already triggered before my Traveling Partner could even speak to me. He was stressed out, himself; one of his meds had just run out completely, which he discovered while preparing his meds for the day ahead. On a Sunday. He was panicking and needed my support – but I was also responsible for him running out of the medication! I’d been tasked with – and accepted responsibility for – ensuring his meds were timely, and available, and that he takes them. His panic expressed itself as anger, or that’s how it reached my still disoriented brain. Triggered and unsure where/when I was, I panicked, too. I fled. I took immediate action in the direction of getting that Rx filled, somehow. I wasn’t thinking efficiently or clearly.

He phoned me feeling angry and left without care. Reasonable, frankly. He gently asked me to come back, make coffee, and make a clear plan, together. I did that, dragging myself through every step, still thoroughly triggered and drenched in stress, dread, terror… None of it “real”. (No one likes being yelled at first thing when they wake, and also, no one wants to begin a Sunday discovering their partner allowed a critical medication to run out!) Nothing about the actual lived experience today actually justifies the headspace I find myself in; this is mental illness. PTSD. I’m a domestic violence survivor. Managing that these days sometimes feels like an afterthought, but this morning it’s way too fucking real.

I made coffee for my Traveling Partner, we settle on an action plan, and I leave the house, again. I’m definitely a threat to his calm and healing time in the condition I’m presently in, and I need time and space to calm myself and get re-anchored to “now”. My stress and anxiety multiply with my shame over failing my partner.

… The pharmacy opens at 10:00…

I hit the trail hard. Aggressive footsteps slamming the ground at an unsustainable (for me, now) pace. I walk myself breathless. I can’t tell if my heart is pounding with the exertion or my anxiety. My first mile passes quickly, unnoticed. I’m stuck in my own head.

I stop, finally, and sit for a minute. Breathe. Breathe. Breathe. “Be here now.” I remind myself. For most values of “okay”, I am okay right now. No one is chasing me. There is no imminent threat. Fuck PTSD. I hate this shit. How am I so terrified right now?

… I remind myself how rare it is to have to face this crap, these days…

I write a while. Meditate. Breathe. Work on calming myself. I reflect on the relationship I have with my Traveling Partner, his gentleness, his love, and our life together. “Be here now.” Now is okay. No physical violence. No being awakened in the night to be beaten. No torture. For most values of okay, I am okay right now. I save my draft and walk on, realizing I really need to pee.

I walk on more gently. I’m still seeking calm. I’m still pretty fucked in the head. My heart is heavy with the stress and hurt that I have caused my partner. It’s incredibly difficult to make amends for this sort of thing and it’s hard to overstate the damage it can do.

I breathe, exhale, and relax (well, I try; I’m still working on that).

I notice the sunshine, the blue sky, the birdsong. I notice the swarm of rally cars in the parking lot as I reach the trailhead. I think about how far I’ve come and how much time has actually passed since my living nightmare ended… 30 years? Hasn’t it been long enough to really let it go?

Brain damage and PTSD… That’s a lot to ask a partner to deal with. I find myself wondering why he stays, and can’t help recognizing that he must love me deeply to endure so much. I’ve managed to fail him too often over these months of injury (and now recovery), and it doesn’t seem fair to him. Good intentions aren’t enough, and sometimes doing my best won’t get the job done. That’s fucking awful and way too g’damned real. I curse my ex under my breath as I walk… but the responsibility for doing more/better now is mine, 100%.

I walk and think and prepare to begin again.