Archives for category: Brain Injury

It’s a Friday. The headlines in my news feed are pretty horrible; more human cruelty, more corruption and greed, more vain human stupidity. I sigh and move on; I don’t have time for that bullshit. I have things to get done, a life to live, and an opportunity to do better, myself, than all of that nonsense. I decide to focus on what I can do as an individual to make life better for my family and my colleagues, and stay present here, now, and attentive to what I can do something about, personally. It feels more productive, and emotionally healthier.

…I have a list of things to do…

First things first, I take care of myself. Coffee. Meditation. A moment for reflection. Then thoughtful time spent on the household budget for the new pay period. I smile to myself, thinking of my Traveling Partner and how helpful he was when we got together, sharing his (much better) approach to such things. I’ve come a long way since then. During the time I lived alone, although we were still together, he wisely “kicked off the training wheels” and insisted I handle my own affairs financially, feeling that I was ready for that (and wanting to feel certain I could take care of myself in this way, come what may). Having a brain injury had long presented significant challenges for me in that area; managing money was hard for as long as I could remember, when I met my Traveling Partner. Making and following a budget was hard. Understanding when and how to flex on a plan was complicated. I didn’t make much money and it always seemed like I needed to stretch it further than it could go. I’d been disadvantaged by relationships with individuals willing to exploit my inexperience or my brain damage for their own benefit. I didn’t understand my worth. I am grateful to my beloved Traveling Partner whenever I sit down on a payday Friday to look over the numbers, make a plan, and prepare for another cycle of bills, expenses, and living life. Paydays used to be terrifying and filled with anxiety – now they’re just days that begin with a spreadsheet, some thoughtful choices, and some notes to share with my partner, and the chance to get his thoughts on the plan and make changes based on those. He has good ideas and we’re a team. I smile, feeling fortunate and loved.

I look over the things I need to get done over the next couple of weeks, and over the coming weekend. Pick up new glasses. Get the oil changed in my car. Grocery shop. Finish the storage move. Prepare the garden for the coming of Spring. I sigh to myself; I failed to properly winterize the garden last autumn, busy with other things that seemed a higher priority at the time. I’ll pay for that now. The Spring prep tasks will be a bit more complicated, a bit more laborious, a bit more tedious. Choices. I laugh softly to myself and sip my coffee. We make our choices and pay the price when we choose poorly. That’s just real.

…I’m excited about having new glasses, my prescription has changed and it’ll be good to see clearly again…

I sip my coffee and do a quick “personal inventory”. My tinnitus is loud in my ears this morning, but I’m not in much pain. I’m feeling the chill of morning, but I’m not especially uncomfortable. I feel relaxed and ready for the day. My chronic headache is only a 2 on a 1-10 scale, which is almost pleasant, all things considered. It’s a good start to the day. I feel rested and calm. It was probably a good choice to avoid the news feed – nothing good comes of added unnecessary stress over terrible shit I can’t change to my sense of self first thing in the morning. Being “present”, and having a sense of “where I’m at” at the start of the day is a useful practice, for me. I’m less likely to unexpectedly find myself mired in chaos and damage, or having some problematic tantrum over bullshit. I can take better care of myself when I know what I need. (That probably all seems pretty obvious…)

Daybreak comes, then dawn, and I see the suggestion of a sunrise behind dense gray clouds. A new day. Looks like a good one, so long as I don’t think about things to do with governments, politicians, billionaires, corporate greed, exploitation of vulnerable populations, or climate change. I sigh to myself and get ready to begin again.

I’m sipping my coffee on a rainy winter morning, feeling cross and irritated and in considerable pain. It’s the pain making me so cranky, but it’s “only” my osteoarthritis (and my perpetual headache), and there’s not much to do about it, really. I live with this. A lot of people live with pain, that’s a real thing. I sigh to myself, as I pull my posture more upright. It helps a tiny bit, though barely noticeable in the moment. The moments add up. I’m grateful to have gotten a good night’s sleep. I’m grateful to have what limited Rx pain relief available to me that I do (and am willing to use).

My reflection stares back at me from the window; it’s not yet daybreak, and I see a middle-aged woman with slightly tousled carelessly-kept long hair, glasses, wrapped in a warm (if a bit frumpy) sweater, looking back at me. She looks pleasant and approachable, relaxed, with a soft smile hinting at a life well-lived, and maybe some interesting stories to tell. She looks just a bit… amused. I don’t see the pain, just the smile, which reaches her eyes. At the corners of her eyes and her smile, laugh lines, no frown lines. She looks… capable. She looks ready for the day and unbothered. I find myself liking what I see reflected there in the window. I sigh again and think “you’ll do”, and take another sip of my coffee. I’m not at all sure how I got “here” – it’s been a difficult journey in spots, and I’ve often wandered off my path – but I’m okay with where I am, and that feels like a win.

I sip my coffee thinking about friends. Thinking about love. Thinking about errands I need to run. I think about hearth and home and all the things that add up to this life I live. It’s not perfect; there’s the pain, obviously. That’s its own difficult experience. I try not to take it personally. Things could be so much worse. Instead of living with this pain, I could have rejected having the surgery to repair my shattered spine, and taken a chance on things “just healing up” more or less, and most likely ended up in a wheel-chair, unable to walk at all. It can be hard to trust the opinion of an expert; we live in cynical times. I’m glad I did – I walk every day, and often see the sunrise from some favorite trail. The pain seems like a price worth paying for that privilege, most of the time. My irritation slips away. I chose this with my eyes open. I may not have understood the full measure of the price I’d be paying when I lay there sedated in the ICU so many years ago, but I knew there’d be a price. TANSTAAFL.

One cold winter night 40 years ago, I ran from a knife wielding man to save my own life. I took the only route available to me, that I could see in the moment, which led me to dangling from a balcony rail, dangerously high above a beautiful tiled patio, slick with ice. That man was my then-husband, who rushed to the balcony to plead with me not to let go. I looked back at him in a moment of unexpected clarity and calm, aware of my agency in a new way. The choice was mine. “I have to,” I said, and I did. The explosion of light in my head and the sudden pain that shot through me and my breath knocked out of my body overcame me only for seconds before adrenaline and terror drove me to my feet to seek help. It was a moment of profound change. One choice. One moment.

I sit with my thoughts a while. “I had no other choice” is reliably a lie. We have choices (many) – I know I’ve made a lot of them. Probably the worst choice(s) I’ve ever made? Telling myself I’ve no other choice, and and following the path that took me down. The menu in The Strange Diner is immense. We choose, on our own, to keep it folded, and to narrow our options willfully. Refusing to consider all the options is also a choice.

We’re born “a blank page”, and although we have little to say about our introduction to life, we have so many choices as we grow, and more once we are adult and free to do as we will. What will you do with it? The menu in The Strange Diner is impressively vast. What will you choose? Will you make your world (and your life) a better place in which to thrive? Will you walk a path that leads you somewhere beautiful? Will you take the steps that carry you to becoming the person you most want to be? Who is that? What will your legacy be? You have choices. Choose wisely. Pay the price. Don’t take the pain personally.

It’s time to begin again.

We’ve all got to walk our own mile. Sometimes it is a difficult journey. Sometimes we’re fortunate enough to share some portion of the journey with other travelers. The company we keep matters. A lot. Walking a difficult path alone may be a better choice than sharing the journey with those who wish you ill ( or even those who simply don’t care whether you stumble).

The way ahead may not be obvious. Conditions may be bleak.

I’ve never understood why someone would choose an unforgiving path in the company of the hostile, mean-spirited, cruel, or other ill-intentioned souls on life’s journey. Sometimes we happen upon such folk, our paths may cross, but why choose to endure miles shared alongside them? What value does it add beyond painful lessons learned? Won’t circumstances deliver enough of that without seeking it out?

Isn’t being alone and walking a solitary mile better than sharing the journey with someone who would mistreat you?

Walk on. Choose the company you keep with care.

It can be a cold and unforgiving journey without also sharing your hard miles with those who wish you ill, or who would misuse your gracious presence for their own ends.

We’ve all got to walk our own mile, whatever the weather. (It’s a metaphor.)

My steps on the trail make a crunching sound as I walk over what’s left of the snow. I feel the snow compress and yield beneath my weight with each step further.  The air is clean and crisp, and feels strangely warm for 36°F. I feel comfortable in my warm sweater and my fleece. My steps feel purposeful as I walk through the fog along the marsh trail. Daybreak has come and the gray of the foggy morning changes hue. No colorful sunrise this morning. I have the trail to myself and I walk with my solitary thoughts, content to be alone.

I am grateful for a partnership that gives me such easy freedom to embrace solitary joy. My Traveling Partner has a standing invitation to join me on my morning walks, any time. (He’s more of an afternoon walk in the sunshine guy.) He doesn’t grudge me this solitary joy, and isn’t inclined to be out here on the foggy winter trail. I’m grateful to share the journey with such an understanding traveler.

My thoughts accompany me through the oak trees along the trail…

My thoughts wander. I smile recalling a time when I wore a favorite T-shirt that said “I don’t f* mean people” – and it was true then, and is still true now. I mean, why would I? Why would anyone? Isn’t it better to be alone? It’s a question I ask myself often, because I see so many people who seem uncomfortable with solitude. I don’t understand that, at all. Even my inner demons are better company than mean-spirited, cruel, or petty people. (I enjoy my own company quite a lot.)

Winter oaks, a foggy trail, and solitude.

I get back to the warmth of the car. Write a few words and reflect awhile on the quiet joy of a solitary mile in my own good company. The company we keep on this journey matters a lot. If you find you’d rather endure ill-intentioned companions than spend your time alone, that may be something worth reflecting on. You could be your own best friend. You could even walk a joyful solitary mile instead of enduring an unforgiving path in poorly chosen company. Isn’t it worth thinking about?

I breathe, exhale, and relax, sitting with my solitary thoughts, contentedly. It’s enough. I find quiet joy in this moment of solitude.

It has been worth it to step off the unforgiving path to walk a very different mile in well-chosen company – or solitude. Worth it to begin again.

I’m working on beginning again. A perfectly adequate reasonably pleasant ordinary sort of moment was poisoned so quickly by frustration. Frustration can be such a toxic thing – it hijacks my experience completely, if I allow whatever momentary bullshit to take over. In this case? The camera on my work laptop. I’m so annoyed by this. Somehow, the “privacy shutter” on this stupid thing is now toggled on, and every help file or article l I look at references some physical or software detail that is not at all how this particular laptop… is.

One suggests I use the small slider above the camera. There isn’t one on this laptop.

Another directs me to use the function key for the camera. This laptop does not appear to have that function key, specifically, and I haven’t yet found any clear guidance on what combination of other keys might get that result.

There are pages and pages and lists and lists of steps I could take, based on operating system – not one of them appears to match the details of this version that I’m using on this laptop.

…This difficulty only presents itself when I am on meetings, and has only done so since the meeting I had yesterday – on Zoom. (“Fuck this stupid bullshit” I snarl to myself, resenting having been talked into installing Zoom for one damned call in the first place.) I sigh to myself. Clear cache. Clear cookies. Uninstall Zoom. Reboot. Check all the privacy and camera settings I can find. All the basics. Minutes tick by unproductively, my frustration builds and spills over to… everything. I am annoyed and cranky.

“Stop.” I tell myself, gently. “Just stop. Give up on it for now, you don’t even have any more meetings today. Let it go. Reset. Begin again. Focus on other things that matter more. Fuck all this noise and bother over nothing.”

The view out the window, a different perspective on a moment.

I breathe, exhale, and relax. I put myself on “pause” and look out the window into the blue cloud-streaked sky.

I sip my afternoon coffee, pleased that it is better than the cup I had this morning. I let that be my focus, for now, just me, this view beyond the window, this cup of coffee. It’s enough. It’s this moment, right here.

The hardest part of toxic frustration is choosing to let it go. Now that I have, though, I can properly begin again. I sit awhile, watching the trees on the other side of the parking lot swaying in the winter wind. They wave back and forth steadily, like inverted pendulums, rocking, waving, hinting at a cold wind I’m grateful I don’t feel. The sun streaming in through the window gives an impression of warmth, though if I put my hand on the glass, I feel the cold come through. Definitely winter.

I remind myself to leave the office early enough to stop at the store for my beloved Traveling Partner and pick up a few things he’s asked for. I’m eager for him to be driving again – soon – but I also greatly enjoy doing little things to be helpful. It’s a small way to show my love and appreciation. I feel needed when he asks for some little thing. He feels loved when I handle it capably. It’s an exchange. I smile to myself, feeling the way our love “balances the scales”. We complement each other in so many ways. We’re so similar, and also so different – we share so much, and enjoy life together so much more than we would without each other. I sigh contentedly; this matters so much more than the earlier frustration.

I finish my coffee, and begin again.

What delights and excites you? There’s a lot of variety in human experience. Me? I like walking. Trails, sidewalks, new paths: I like to walk with my thoughts, seeing things along the way.

Today is Superbowl Sunday. I only know this because I’m interested in the halftime performer this year. I don’t watch (or care about) football. Lots of people do, though. My Dad did. My Mom reliably watched with him, but I don’t know whether she really enjoyed the game the way he did.

Some people like other sports, and there are many. Some people enjoy a sport enough to watch “the big game”, or some playoff or particular matchup between specific teams, but nothing more. Some people enjoy the ferocity of competition and shit-talking, and take things pretty personally, while others are more interested in some human interest details. Some people enjoy gathering together to party and share the excitement, and it’s not really about the game at all.

There are people who passionately follow a team or particular players, and people who memorize all the stats. There are people who collect collectibles and memorabilia, and eagerly hope to hold a signed game ball in their hands or add a particular numbered item to their collection one day.

I’m not especially into sports, myself, in spite of there being so many to choose from, and that’s okay too. There’s room for everyone to live free. I’ve got an on/off appreciation for MMA and boxing, but I don’t care for the hype or the shit-talk, and I’m dismayed when competitors turn out to be terrible human beings. I find myself ethically conflicted by the damage so many sports do to the players, and how little care sporting organizations actually provide to those injured human beings long term. Those details matter to me personally.

…But… Here it is Superbowl Sunday, and I’m not here to stomp on your joy, if football is your thing, or even if you gather for the day to enjoy snacks and cameraderie. Not at all; enjoy your joy! These are difficult times and you could probably use a fun diversion from the stress of watching the world burn.

I’m not particularly competitive, personally. I’m okay with that, too. Just another variety of human experience, eh? I’m walking my own path.

… One thing about sports, though; cheating ruins the game. True in life as well. Don’t cheat. It’s poor form, and aren’t you better than that? (You could be. It’s a choice.) Be an ethical player. Everyone wins when the game is played fairly.

Here’s hoping that the playing field is always level, the referees are honest, and that the rules are always fair, whatever sport you prefer, and in your life, too. Win or lose, I hope you find the game well-played, and that you find joy in the moment. Don’t forget to make room for others to find joy. You may love football, but someone else finds their joy in dressage, cricket, women’s rowing, regatta, kickboxing, MMORPG, esports, or… fishing. There are so many ways to play the game of life. So many ways to find a moment of joy. So many varieties of human experience. Enjoy your joy. Make room for other people to enjoy theirs, too.

I finish lacing up my boots as daybreak becomes dawn. It’s a beautiful foggy morning on the trail along the marsh, and I’m eager to walk it. I’ve got the trail to myself this morning. A crane flies by. It’s time to begin again.