Archives for category: Brain Injury

Short walk. My ankle aches. My back aches. My head aches. It’s okay, it’s physical pain, and aside from that the morning is a pleasant one. I sit listening to the sound of distant traffic through the buzz and whine of my tinnitus. The sky is a threatening assortment of stormy clouds, blues and grays, but the forecast has no rain in it, just a summer warning about heat and wildfires.

No rain expected today.

I sit quietly with my thoughts. Another work day. Weirdly, I simultaneously feel surprised that it is “already Wednesday”, and also annoyed that “it’s only Wednesday”. lol Human primates are hilarious and not wholly rational about such things. Time is kinda “made up” anyway; there’s only “now“. I chuckle, entertained by my own foolishness. It’s that kind of morning.

We’re seriously the sort of creatures that would think up some dumb shit like this. 🤣

I catch myself picking at my cuticles and make myself stop. I watch the clouds move sluggishly across the sky, colors shifting as the unseen sun rises. The leaves and branches of the trees within view are tossed on a lazy breeze that I don’t feel.

… I remind myself to go by the store on my way home, later…

I had the trail to myself. The park is still deserted. It’s just me, here, on a quiet morning. On the other side of the vineyards adjacent to the park, migrant workers are already working. I wonder to myself who would do all the agricultural work, if we stopped allowing migrant workers to come here for that purpose? I don’t know many people willing to work that fucking hard for so little pay. Another solution would be to pay farm workers a living wage… But I don’t know many people who could afford what groceries would cost then, and I am damned sure the big food conglomerates aren’t going to trim back their profits. It’s a hell of a problem. I think about it pointlessly for some minutes. I have no solutions to offer.

… Human greed is some ugly shit…

My mind wanders this morning and I don’t make any particular effort to be more disciplined. I sit quietly and let the thoughts pass through my awareness without interfering. (Breathe.) It feels good to enjoy the stillness. (Exhale.) These few solitary moments are so precious. (Relax .) I savor the quiet time alone with my thoughts. I try but fail to recall quite when my tinnitus developed and when it became so bad… I feel certain I didn’t have it as a child. I definitely had it when my Traveling Partner and I got together. My outburst of laughter makes me choke on my coffee – that’s “only” a span of some 35 fucking years or so to sift through! lol

… The clock ticks on…

Things are starting to settle down at home.  The Anxious Adventurer is moved in. The household is pretty much restored to order. New routines are beginning to develop. I feel genuinely comfortable with taking a couple days away for myself, knowing my injured Traveling Partner won’t be alone. 11 days? 11 days left to wait. I’m counting them down. I’m excited to spend some time alone with my thoughts and my pastels and see what comes of it.

I breathe, exhale, and relax. It’s an ordinary enough Wednesday, and a pleasant summer morning. I don’t need much more than this; it’s enough. I glance at the time and think briefly of work. It’s not yet time…soon though. Another day, another beginning, another opportunity to be the human being I most want to be.

… Another chance to begin again.

Life is beginning to develop a “new normal”. Change is, and it won’t be argued with. We adapt. Shift gears. Adjust routines. Change our habits. Resisting change, generally, is fairly pointless (especially if we chose it). How we cope with it says a lot about who we are.

My Traveling Partner and the Anxious Adventurer seem to be enjoying the new arrangement generally speaking. I’m okay with it, too. It’s pretty nice having some help while my partner is injured. I can now see a time on the horizon of my future when I won’t be chronically exhausted and on the edge of hitting some emotional or physical limitation that shuts me down and reduces my capacity to be helpful. It’s encouraging.

Having still less time to myself and less space of my own to retreat into takes getting used to. This is offset, though, by how much better things can be for my Traveling Partner, how much more skillfully his needs can be met by the two of us splitting up the work of caregiving, and how this makes it so much easier (for me) to also focus on my partner romantically and emotionally (because I am not completely run down by physical labor). Caregiving is more difficult than it may appear to someone not involved in caregiving, themselves. I’ve certainly got a newfound depth of understanding about it, personally!

I sigh quietly to myself, sitting alone on a bench along the trail, watching the sun rise. Pretty morning. Maybe less hot than it has been? I’m grateful for these quiet solitary moments.

As often happens with me, changes in my environment (and living situation) have disrupted my sleep. I wake briefly at odd times, responding to a new noise, or turning over and somehow noticing my orientation in the room is different than it had been previously, or just different than I expect. Sometimes I actually wake, maybe sit up for a moment, or read for a little while. It’s fine. It’ll pass. Annoyingly, one of these new “wake points” is at 03:00, too close to my typical time to wake up such that I can’t easily get back to sleep. lol It’ll pass. Change is, and I do adapt.

Another work day. Soon the weekend. 16 days to my coastal getaway. It’s nice having that to look forward to. There’s quite a bit of work and change to manage between now and then, but… It’s fine. Truly fine. I feel pretty good this morning, in spite of arthritis and headache pain. Pleasant morning.

I find myself missing my Traveling Partner, though we’re separated only by a handful of miles and the few minutes of travel time from finishing my walk to returning home. Humans are strange creatures prone to attachment. lol

The sun continues to rise. It’s time to finish my walk and get on with the day. It’s a good time to begin again.

It’s going to be another hot summer day. I remind myself unnecessarily to drink enough water (meaning, specifically, more than usual). Seems likely that the remaining summers ahead for human kind will continue to be hot and then hotter, unless something changes. Stay cool. Take care of yourself. Avoid punishing manual labor in the heat of the day. Be alert for signs of heat-related illness and take steps sooner than later.

Another hot summer day ahead.

I woke early and slipped away into the earliest hint of dawn. The morning air was still and felt somehow warmer than the 67°F than it was. Yesterday the morning felt warm at 60°F. Tomorrow it’ll no doubt feel warmer still at some higher temperature. The nights are not cooling off completely and the days are getting warmer, too. Summer.

The sun rose an irritable looking orange at the edge of a hazy pink horizon, as I drove to the trailhead. It was vivid and beautiful, particularly the view as I came around a bend in the road, with Mt Hood silhouetted a deep smudgy lavender against the vibrant colors of the dawn. I love that particular view, and I am forced to enjoy it in the moment; there’s no place to stop, there, so no opportunity to get a picture, and I never know ahead of time what beauty may appear – and quickly disappear – as I come around that bend in the road.

So here it is another day. Another hot one. I walked my walk, taking note of the increasingly warm temperatures as I walked. Drinking water. At my halfway point, I sit awhile watching and listening. I update my list of things to get done today. I drink more water. I write these few words. The warm humid morning and sense of sharing the trail (though I don’t see anyone else) push me to maintain a brisk pace, and I am eager to get home and have a shower. I’m unpleasantly sticky with sweat.

I walk on, thinking thoughts of balance, perspective, moderation, and sufficiency. I breathe, exhale, and relax, grateful to have remembered to take allergy medication this morning. I watch the sun rise as I walk, and now I am distracted by having to pee. Still drinking water.

I approached the parking lot (and the restrooms), unsurprised to see it nearly full. It’s clearly time to begin again.

… Stay cool. Be safe. Drink water. Know your physical limits. Wear sunscreen if you’re going outside. Take care of yourself; you matter. Be careful with those spoons…

An update, some time later, same day…

My Traveling Partner woke shortly after I arrived home, and not in a good mood. His sleep was interrupted and less than ideally restful. He’s had a change of medication, too, and it’s causing considerable irritability. He’s aware of it, and alerts me (and the Anxious Adventurer) of the situation, asks for our patience, and suggests we keep our distance as much as possible. Practical advice, and I plan to take it. There’s little about my to-do list that requires participation or even input from anyone, so I figure I can keep myself productively occupied for much of the day.

…First things first, a healthy breakfast salad, and a nice cup of tea…

I queue up my art video playlist for some study time over a bite of breakfast. A good beginning, suited to the day ahead, beating the heat. Next, after breakfast, I’ll tackle the housekeeping chores while the day is still cool… I may even paint with these new pastels, today! 😀 I sip my tea and hope that my partner’s experience of the day improves once he is fully awake, and has had his coffee. If not then, I hope he finds a suitable opportunity to begin again, and finds his success there.

Lovely morning for walking, it is cool and there’s a mist clinging in low places. My thoughts wander here and there, and my musings are guided a bit by pain, which I mostly treat as “inconsequential noise”, trying to keep it in the background.

I find myself thinking about pain as a warning light on my “dashboard” in a driving metaphor for life. When we’re children, in a sense we aren’t even driving our own car, or managing the maintenance of it, at all. We’re dependent on the knowledge and care of the adults around us. Ideally, once we’re “old enough to drive”, we’ve also been taught what we need to know to be a “skillful driver” in life. We need to know when to refuel, what to use for that purpose, and what our vehicle requires for maintenance. Before we ever get on the highway, it’s helpful to ensure the vehicle is safe to operate.

… There’s no owner’s manual in the glove box…

On life’s journey, as the driver of our physical “vehicle”, we do well to pay attention to those dashboard lights… Do we have a full tank (enough energy and stamina)? Is our “check engine light” on?(Seems a suitable metaphor for mental health.) Is there some sort of warning chime pinging away to alert us that some physical detail is amiss? (Thinking about the seatbelt warning, or open door warning as metaphors for pain, perhaps.) I think you get what I am going for at this point, probably. There’s a lot involved in skillful driving before we ever get on the road… And it’s similar in life; before I can even begin again with a next step on life’s journey, it’s a good idea to make a point to check out the “vehicle” for readiness.

…It can be as simple as noticing my tank is on empty before setting off on a long drive far from the nearest gas station. Fuel up! Get enough rest. Eat healthy, nutritionally dense meals with an appropriate balance of macro nutrients. Drink enough water. Take medications on time.

…It could be more complicated… Is that check engine light on? Flickering mysteriously? Maybe it’s time to consider emotional health, stressors, and “work: life balance”? Maybe it’s a good time to see a therapist or spend quality time with a close friend?

…Has “routine maintenance” been handled properly? Good quality sleep, healthy exercise, and good self-care really improve the longevity of the “vehicle” we’re driving down life’s highway.

Once we’re no longer children, it’s a bit like being handed the keys to our first car. There’s a lot to learn and a lot of good practices to build. It’s more important to take good care of our vehicle than most of us understand when we first get behind the wheel. No owner’s manual. No map. For some drivers, not even a sense of where to go, until long after the journey is underway, and we’re many miles beyond and away from where we eventually decide we’d like to be.

Drive carefully. Pay attention to the road ahead. Check your fluid levels. And for fucks sake, do something about those dashboard lights! lol It’s a long drive, and you’ll want to be able to count on your car.

I sip my coffee in the morning sunshine, parked at the trailhead after my walk. I mostly got the rest I needed, but this broken down hoopty I have to rely on these days needs a bit of care. My “check engine light” flickers now and then, and there’s nearly always some warning indicator pinging at me to take care of something. It’s mostly pain and pain management, and I mostly treat it as though it’s the warning light that’s broken, rather than deal with the potential there’s some more serious shit going wrong. Putting it in those words, I find myself concerned that I am being stupidly short-sighted about something potentially serious that could eventually “leave me stranded by the side of the road”.

… I love metaphors…

I sigh quietly and sit with my thoughts, before making a note to communicate with my doctor about my pain and my persistent headache (again). I don’t want to waste time on detours, but I do want to count on this vehicle for a good long time. Self-care matters, but sometimes we need more.

… It’s already time to begin again…

I survived yesterday’s chaos with reasonable grace, I think. I’m okay with the recollection of the day, and the outcomes of various moments. The steady process of handling tasks to do with my Traveling Partner’s son moving in is well-underway, everyone doing their part to get everything done reasonably quickly. It’s a lot to do, and there’s still more. It’ll all get done in due time.

I am finding it quite interesting to see so many things learned over time reflected back at me through the lens of seeing these experiences and practices through observation of someone who has had quite different experiences in life, having not yet learned these things at all. My stepson seems to me a bit of an “anxious adventurer”, willfully and deliberately seeking new experiences and growth, by choice, while also finding the novel situations this puts him in quite uncomfortable and anxiety-provoking. (His results vary.) I’m impressed by his adventurous nature. I’m impressed by his will to fight through his anxiety. I’m concerned by his lack of specific life skills and his lack of exposure to some fundamentals of resilience and emotional wellness. Those concerns are in no way his “fault” and it’s not about blame anyway. He’s a fellow traveler and for the time being, also a family member residing with my partner and me. There’s a lot to learn, to share, to consider…and there’s time for all that. It’s the sort of thing that does take time – and practice.

For my part, the work involved in compressing my personal space to make room for The Anxious Adventurer is sometimes quite poignant. I worked so hard for so long to have some of the luxuries I’ve been able to enjoy these last four years… but my small library uses an entire bedroom (it’s also my meditation space). My art studio, doing double duty as my office, takes another. Somehow, just due to practical logistical considerations, I’ve ended up compressing most of these things into the smallest fucking room in the house. Since it’s not actually possible to do that in a literal sense, the books and shelves of my wee library will be relocated to the main bedroom. It’s fine. It’s all fine. None of this is intended to be permanent (as my Traveling Partner regularly reminds me).

… I do know how reality works, however, and I am familiar with the vagaries of “temporary” arrangements…

A new day

Mostly, I’m just looking forward to whatever the new normal may be, and figuring that out won’t happen until the moving and shuffling around of various things is really finished (likely some weeks after my Traveling Partner has his surgery and has subsequently also recovered).

I woke quite early this morning, ahead of the sunrise entirely. I have a Saturday appointment in the city which I already wish I had cancelled due to the inconvenience of its timing, but it’s an appointment for care with a provider who reliably actually helps. Seems foolish to cancel that, when my day-to-day pain would benefit from it so much. It’s the sort of foolishly short-sighted choice I am prone to make. I’m mostly glad I didn’t cancel, but my anxiety nags at me for “being so selfish” or “letting everyone else down”. (Which is one of the many lies my anxiety tells me.)

… I still find it quite difficult to make my own self-care a high priority, in spite of knowing how important it is…

I slipped quietly out of the house far earlier than necessary, this morning, but I think I managed to do it without waking either my Traveling Partner or the Anxious Adventurer. Win! I arrived at the trailhead just at daybreak. I walked the trail between river and marsh, listening to the birds and the sound of distant traffic (and my tinnitus). It’s been lovely. I had the trail to myself. I took my time. Stopped here and there for a picture or a moment. It’s been quite satisfying and joyful, and a delightful use of my time.

… I needed the break and the solitude…

I got back to the car too early to head to the city. I write a while. I meditate. I think about coffee. Maybe breakfast? In any case, it’s time to begin again.