Archives for posts with tag: pain and pain management

I got my walk in early. I started just at daybreak on this mild Spring morning. I walked a bit aggressively, lost in my own thoughts, eyes fixed on some point ahead,  but without really seeing. I felt cross about the way my morning started (with my Traveling Partner’s aggravation over being wakened and struggling to breathe, as I finished dressing to leave).

…Took me awhile to let it go…

I had wished him well and expressed my hope that he could get back to sleep. He didn’t seem to think he would and expressed that in a way that kept our exchange on my mind as I walked along, over-thinking it unsatisyingly.

…I seriously could have done a better job of letting it go, and letting small shit stay small…

I didn’t really begin to enjoy my walk or adjust my attitude until after he pinged me a cute sticker of a little cat tucked in for sleep, indicating he was going back to bed. Damn, I love that guy. At that point, I was easily able to settle down and sort myself out, with a sigh and a smile and a feeling of gratitude. Shit could be a lot g’damn worse in life (and love).

…We’re each having our own experience…

When I sat down to write, I took a quick look at the “page stats” for this blog (it’s not about numbers so much as insights into what people choose to read, and I often find new relevance in old writing). I found myself re-reading a post from almost 18 months ago, and reflecting further on perspective, change,  and the importance of self-care. It gave me real clarity on the morning, and restored my sense of perspective generally, and how good things truly are. Reading a relevant older post is another way to “be there for myself”, and practice good self-care, and another way to regain perspective. (I say a silent “thank you” to the reader who read that post yesterday; reading it this morning was helpful.)

…My Traveling Partner is on his own journey, having his own experience, and taking that at all personally isn’t a helpful approach to partnership…

Here. Now. Perspective. Sufficiency.

I breathe, exhale, and relax. It’s a pretty morning. The temperature here is a comfortable 50°F or so. The sunshine lights the blades of grass and the trunks of the oaks in the grove where I sit perched on a picnic table enjoying the sunrise. It’s still quite early and I am not rushing back to the house. I’ve got a cup of coffee and this quiet moment to myself and I am enjoying it.

…Sometimes the best thing I can do to take care of myself is to simply take a few quiet minutes to breathe and reflect…

Later today I will take my Traveling Partner to an appointment with a specialist. I hope there is promising news about what can be done and what the long term prognosis for his recovery from his December injury may be. It’s hard watching him suffer and struggle. I feel so helpless so often. I definitely want to do more to alleviate his pain and discomfort than I seem able to. It’s not about me, though; I just want this human being I love so dearly to be okay.

I sigh out loud and catch myself picking at my cuticles anxiously. Yeah… still human. Still prone to worry and stress. I breathe the fresh Spring air deeply and exhale slowly. I can smell the hedge roses that are on the other side of the parking lot adjacent to this park where I am sitting, and the scent of recently cut meadow grass. I enjoy the smell of Spring, grateful that my seasonal allergies are nothing like as severe as my Mother’s allergies, or my Traveling Partner’s. They’re mostly pretty mild, and seem very specific to certain local flowering trees. That time of year is already beginning to pass.

I am in rather a lot of pain this morning. It’s been an issue all week. I take the medication I have for it. I cope the best I can. I remain unwilling to let my pain call my shots and I try to “just live my life” in spite of it. My results vary. I make a point of not complaining much about it, to the point of generally mentioning it only in passing, if I mention it at all, in conversation. It’s not that I find this to be a helpful strategy, it’s just that there’s nothing to do about it, really, that I’m not already doing, and I am very much aware that my partner is in a great deal more pain than I am. I don’t want to make that about me. I just want to do my best to support and care for him while he’s injured and working on recovering. He knows I am in pain, it’s a chronic condition. No point making that “a thing” – right now it’s just a distraction.

I sit with my coffee and my thoughts awhile longer. Soon enough it will be time to begin again.

I’m taking a few minutes, having a mid-morning, post-waffles, cup of tea (Smith’s No.120 Jasmine Nectar, which has a lovely delicate fragrance). The tea is quite good. The moment is… meh. It’s okay. Not great. Not terrible. Just a moment, and it’ll pass and I’ll move on to the next one. I’m in a ferocious amount of pain this morning, which colors every experience in spite of knowing how pointless and unhelpful it is for that to be a thing. I keep having to make a point of not allowing it to seep into every crevice of my awareness and experience. My results vary.

…The waffles were good, though…

I don’t feel inclined to finger-point, lay blame, or even “troubleshoot” this moment (or any previous, this morning), it’s not even about that. We’re each having our own experience. I’m pretty sure my Traveling Partner is in every bit as much pain as I am in, maybe more. That likely colors his experience, too. Probably best to simply acknowledge our individual and mutual discomfort and not take any of that at all personally. I sigh. Breathe. Exhale. Relax. (Fuck I wish I weren’t in so much pain, though… but at least the waffles were good…)

I think about the dishes that need doing. The laundry. Tidying up my office space in preparation for working from this location, generally. It didn’t sound like much to tackle when I woke up this morning. It seems almost too much, now. Nothing has changed but the amount of pain I’m in, and my perspective on the day (that is probably a lot to do with the pain I’m in). I’m glad it’s a long weekend… tomorrow may be better, but regardless, it’s at least another day to work on these “getting back to the day-to-day” sorts of details. I’ll be ready by the time the work week begins. I sure feel tired now.

I think about the wildflowers out on the coast and the ones on along the trail this morning. It’s interesting what a different assortment they are. I look for pictures, and only just now realize I didn’t take any this morning. I sort of just rather purposefully walked down the trail to “there”, and then back. It wasn’t a grim trudge, but it wasn’t notably joyful. I was just… existing. Doing a thing. I was already in pain.

I hear my Traveling Partner laughing in the other room. That brings a smile to my face, even though he’s been a bit cross this morning. He enjoyed the waffles, though – those were good, this morning. It was lovely to share that experience with him. Good waffles. 😀

…The waffles are gone. They were delicious. The moments pass. One by one they go from a moment of being to nothing more than a recollection. Impermanent. A small piece of a larger whole. Any given moment, however good, however difficult, is another chance to begin again. It’s something. It’s enough.

I’m sitting quietly in my hotel room. It’s well-past any sort of reasonable time (for me) to have a cup of coffee. So… I make a cup of tea. I sip it slowly, hoping it doesn’t cause a restless night, enjoying the warmth of it in my hands, anyway. I breathe, exhale, relax, and wonder how things are over at the hospital? It’s past visiting hours. I stayed with my dear friend for much of the day, after arriving shortly after visiting hours began. It was a good day for both of us, relative to where we each are in our life and circumstances. I took a break at one point to make room for the painful intimacy of important conversations about where and when and things of that sort. I’m not “decision-making family”, so excusing myself seemed the most appropriate way to proceed. Aside from that, we spent the day together, my dear friend and I, while family and her bestie came and went, and even as my dear friend napped, finally getting some restful sleep (she’d been complaining about the sleep deprivation practices that are not uncommon in hospitals and suffering from a lack of healthy deep sleep for some days). Eventually, family and my dear friend’s bestie returned from errands and things that could not be put off for later, and visiting hours began to wind down. I made my goodbye’s all around, and headed back to the hotel.

…I think about something my Traveling Partner said to me in a message earlier today, in response to my bitching about the bare bland beige hospital decor, “Hospitals treat diseases, not people.” I considered the small things I saw not being done (that surely could have created a more healing environment…) the lack of windows with views in patient rooms, the lack of art on the walls, the lack of anything at all to do while… waiting. People in hospitals do a lot of fucking waiting around. People – patients – in hospitals are often incredibly bored. That’s so unhealthy for human wellness, particularly when there is no way to alleviate it. Nothing to do. I remember it from being in the hospital, myself; the endless maddening boredom. Then there’s something hospitals could do without… the fucking endless beeping of various monitors and machinery. G’damn, it was bad. Ceaseless. Inescapable. Nerve-wracking. Through cat-nap after cat-nap, and wrecking every opportunity for deep sleep, I saw my dear friend’s brow furrow with irritation when yet another round of beeping commenced, often in some room several doors down the corridor. Oh sure, those alarms are intended to get attention, but the nurses are human, too, and eventually they tune out the beeping, especially the commonplace beeps that indicate something, but not something urgent. They can tune them out, over time, but how many patients can? The patients haven’t been forced to listen to it long enough to learn to ignore it. If it’s going to get ignored anyway, why the fuck is it being permitted to continue to destroy the rest that vulnerable ill or injured people need so very much?? I admit it – I just don’t get it. It’s fucking dumb, and it’s also rude. While I’m on about this shit, for fucks’ sake don’t let people’s minds just atrophy while they’re struggling with their health! Make a point to engage their minds, and give them a way to entertain themselves! Be patient enough to wait around for the answer to a question you’ve asked, yes even if that patient has trouble speaking or expressing themselves! Wouldn’t you want that? Oh, and also? Fucking let people sleep. I can’t stress enough how fucking annoying it is to finally fall asleep in spite of pain or discomfort to be wakened by a cheery loud voice seeking to take vital signs or worse – to ask if you’re sleeping. Hospitals are not helping with that shit. Good grief.

I’m cross on my dear friend’s behalf. I sip my tea, and think awhile. I breathe, exhale, relax, and then let that go. It’s evening now, and soon enough I’ll be getting packed to the trip home. My dear friend is in the care of family and friends who love her greatly. She is so very loved.

I sit quietly, listening to my tinnitus. My Traveling Partner and I exchange “stickers” back and forth in messages: kisses, hugs, hearts, fun little animated characters showing affection . It delights me, and I feel loved. I’m eager to be home, and back in his arms. Unexpectedly, I noticed how much pain I’m in. The weather turned rainy this morning, and my arthritis flared up. I’ve stay caught up on my Rx’s this entire detour from the routine, which is not always the case when my routine is broken. Health-wise, I’m feeling pretty good, generally, so the pain caught me a bit by surprise (though it isn’t truly surprising). I sit with that awareness for a moment thinking back over the day; did I take my pain meds? Those are not “on a schedule”, and keeping track is very important. I look in my pillbox. Huh. I find myself surprised to see that I hadn’t found it necessary to manage my pain earlier today, at all. I fix that, hoping I got to it early enough to avoid fucking with my sleep. It’s been a long day, filled with “emotional labor”. I’m tired, and it seems likely I’ll sleep just fine, particularly if I don’t let myself get spun up over “what if I don’t sleep?”. lol

I take a deep breath and let it out as a sigh. Actually? I’m already tired, it’s just too early to go to bed. I send more kisses to my Traveling Partner and pick up the book I’m reading… seems like a pleasant evening to read awhile, before calling it night. Tomorrow will be soon enough to begin again. 😀

I’m waiting for in-room hotel coffee to finish burbling its way to being an actual cup of hopefully drinkable coffee. Oh, I know; it’ll likely be pretty crappy, but the hope exists as its own thing, and it’s worth cherishing for its own value. Hope is a good feeling. I like feeling it. Anyway, if you ask someone who doesn’t like coffee in the first place, they’ll tell you how bad it reliably is – all of it. lol. Perspective, too, is a thing that exists.

Yesterday was interesting – and precious. My dear friend woke from her unhealthy repose in the hospital, and we shared some laughs and some lucid conversation. It awoke hope in me, and put my drenching sorrow to rest, and it feels good to connect with a dear friend, even under such trying circumstances. I was also fortunate to get to visit with others dear to her, in one case gently renewing an old relationship that had fallen to circumstances, which was both unexpected and delightful. The friends who had gathered last summer, when I made my trip down the coastal highway in July, gathered again, too, and although the confines of a hotel room were not so merry as relaxing in my dear friend’s home, it almost felt like that party, once again. It was fun. It was also purposeful, as these gathered loved ones were gathering to care for my dear friend together and in turns. I am, in a sense, simply passing through their experience of saying goodbye, to have my own. All for her, this quite wonderful and very dear friend.

I upended my plans, after talking to my Traveling Partner; one more day, another chance to visit, and also a means of taking some pressure off myself to hit the road again almost immediately. It was frankly surprisingly hard on this fragile vessel to make the drive down so directly, all in one shot, in ways it definitely would not have been 3 decades ago. I sit with that thought awhile, and sip my coffee. (Is my coffee as terrible as it seemed likely to be? You don’t know that unless I tell you. Something like the pain of strangers; it probably exists, but you aren’t likely to know unless the information is explicitly shared with you. I don’t know why that feels share worthy – it’s a dark bit of perspective.)(Yes, it’s awful. lol)(The coffee. The coffee is awful.)

I woke at my usual time, this morning, after a pretty good night’s sleep. That bodes well for the trip back tomorrow. I woke missing my Traveling Partner. Missing home. Missing a reliably good cup of coffee on a lazy weekend morning, and I am rather awkwardly aware that I’ve “missed the weekend” entirely. lol I breathe, exhale, and relax – it’s an unimportant detail of the sort that can spin up a heartbreaking amount of pointless stress, so I let that go. Ridiculous bullshit is not welcome this morning. It has proven to be helpful to be open to “success” even in times of sorrow, and I’m welcoming this dawn as I welcome any other; a new day, a new beginning, a new bunch of opportunities and chances. Place your bets, roll the dice – but don’t get attached to the outcome, and don’t bet what you can’t afford to lose. Put that way, this “game” that is life looks so damned easy!! I know, it isn’t – it’s more complicated than a game, and the last hand is always a reminder that we are mortal creatures.

…Maybe this cup of coffee isn’t so bad after all? Perspective…

I’ve learned some other things visiting with my dear friend. Things about mortality. Things about nearing the end of a life. Things about dignity and comfort. Things about health and wellness. Things about… risk management. I’m glad I came down to visit my dear friend. Fucking hell I’m going to miss her, and this visit gives me much to reflect on, myself, for my own purposes, too. I chuckle to myself to realize that even now, under these circumstances, she continues to teach me things I need to know in that gentle and unassuming way she always has. I sip my coffee contentedly. It’s still quite early. I’ve got time to get a walk in, and maybe do some yoga before breakfast. Certainly, it’s time to begin again.

… The clock is ticking. What will you do with the time that is left to you?

I’m sitting in my car, listening to the rain falling. It’s a chilly Winter morning. There’s serious Winter weather in the weekend forecast. I think about going to the store to “stock up”, but I find myself wondering if that’s more reflexive than necessary. We’re generally pretty well supplied with day-to-day basics. I could pick up some convenience items I guess, maybe fresh veggies and some chicken…

The pain I am in this morning is “ordinary”. It’s part of my daily experience of life, and it’s difficult to bother bitching about it sometimes. Yes, I’m in pain. Yes, I took something for it. No, that doesn’t really resolve it. I try to avoid letting pain call my shots, because at least for now that’s still an option.

My Traveling Partner is also in pain. He also does his best to manage it. I can’t know directly how much pain he is in, but I feel for him in that “fuck, I wish I could help” kind of way. I feel pretty helpless, though; aside from my concern and general helpfulness I can’t do much about his actual pain. Nor can he, for me.

Physical pain is one of the least pleasant experiences of being alive, I personally think, but it’s also pretty commonplace.

I sit with my thoughts and breathe. The rain falls. The wind blows. Occasional gusts rock the car. The trees along the trail just in front of where I am parked wave as a group in the wind. A very committed runner goes by, headlamp shining brightly and illuminating the path ahead of him. The rain continues to spatter the car.

… I’m so tired. I haven’t been sleeping well. I’d sleep in if I could, but that hasn’t been successful in a while. I feel rundown and overextended. I know I need more/better rest. I don’t actually know how to get that, presently. There’s a lot to get done and with my Traveling Partner injured, a lot of it falls to me. I remind myself I only need to do my best and that has to include taking care of myself. It’s reasonable to fall behind on some things. I make that okay with myself (again), and focus on today, now.

Sometimes life isn’t easy. It’s okay that it isn’t, and it doesn’t need to be made more difficult with a bunch of bullshit expectations of reaching beyond our abilities, time, and energy. It’s okay to slow down (unless you’re being chased by a bear or something, in which case maybe don’t slow down! 😂) It’s important to take care of this fragile vessel. It’s even necessary.

I yawn and look at my calendar. It’s time to begin again.