Archives for posts with tag: pain and pain management

I left the house in the usual way this morning, amused to see a dusting of snow on the car. It hadn’t been sticking on the ground. It was a loose powdery sort of snow that the windshield wipers easily brushed away. Snow was falling as I got into the car. Snow fell as I drove through town, and the streets were white with it in some of the colder places. “Funny”, I thought to myself, recalling the forecast from the night before, “we’re definitely below 500ft”.

…The weather forecast, complete with a winter storm warning, was pretty clear that the chances of snow were near 0 below 500ft, and more likely above 1000ft. Plenty of rain in that forecast, at the elevation where I make my home, which is around 150ft of elevation. Unimpressive as elevation goes. Agricultural low-lands. No particular expectation of snow in the forecast…

I drove to the office grateful that my chains were in the car, at least initially. The snow fell plentifully the first handful of miles. The closer I got to 300ft of elevation, the less snow fell. The peak elevation of my commute to the office is only about 420ft, if that. No snow. The pavement wasn’t even damp. Clear skies and dry pavement the rest of the drive to the office, on the highway and on the side streets, too. “Nothing to see here.” I chuckled to myself. There wasn’t much traffic for a Monday morning, and I felt certain a great many people likely looked at that forecast and made plans to work from home if that were an option (or to be absent from work due to the potential for inclement weather if it wasn’t). The office is empty and quiet.

It’s a useful metaphor for all manner of anticipated or predicted disasters. The plan is not the event. The forecast is not the weather. The map is not the world. Panicking over what is not yet (and may not ever be) is an enormous waste of emotional energy, and a big contributor to stress. We humans tend to expect the worst, generally. I sigh quietly to myself, breathe, exhale, and relax. I pull myself back to “now” – this moment, this very real actual lived moment of my life – right now, and any time I find myself all wrapped up in something that hasn’t even happened, or isn’t happening to or near me. I’m not saying I “don’t care” about what is going on around me, just that it isn’t helpful to get lost in a moment that is not my own, and may not be happening at all. There’s a lot of completely misleading bullshit in the media we consume, that isn’t true or real at all, and often things that are true are presented in a way that provokes far more emotion or demands more attention than is useful or necessary. Perspective is a handy stress-reliever. Non-attachment is a good practice. Finding peace in presence is healthy.

…None of this defies what is true and real; there are some really terrible things going on in the world. It’s just that we may be more able to provide whatever help we can if we’re not freaked out and stressed over the things that are far removed from our lives, or quite abstract, or not actually happening (yet)…

Another breath. I sip my coffee aware of my “winter pain”. The cold and damp make my arthritis so much worse. I take a moment to do the things I know help the most; I stretch, I move around, I take my pain medication, I distract myself with something engaging and positive, I breathe and set my timer for future breaks so that I don’t find myself stiffening up from sitting too still for too long. Practices. No, it’s not enough to get rid of the pain I live with, but the pain would be much worse without taking the steps I do. The rest is “noise”, and I’ve mostly gotten used to it. It’s not ideal, but it’s real; I live with chronic pain, like a lot of people do. Letting it wreck my life moment by moment isn’t helpful, so I do my best to avoid that (when I can). Today is better than a lot of days. Worse than some others. I breathe, exhale, and relax – and let that go. Again.

I think about the snow, this morning. It was so pretty while it fell. A beautiful moment, and like a lot of moments, so brief, so temporary – a lived moment that will never repeat. Ichigo ichie. It’s already time to begin again – here comes the next moment.

This morning is cold and foggy. I slept in (for some values of “sleeping in”), and still arrived at my selected trailhead well before dawn. This trail is lit for much of the distance I walk, but beyond the vineyard, near the river, I still needed my headlamp. I’ve been, and returned, and it is still quite dark, though there is a hint of daybreak on the horizon. It’s not yet visible from the lit area of the trail, or the parking lot. The new artificial lights are much too bright.

A walk through winter fog.

The morning is foggier than I expected, and somewhat warmer (still quite cold, near freezing). The fog makes everything seem quieter and more mysterious in the darkness. I see the headlights of workers arriving to a nearby construction sight, filtered through the fog, before I hear the sounds of their pick-up trucks. I’m okay with that. The dance of the lights over irregular pavement is fascinating, and I don’t care for the noise at all. I walked and watched with wonder, alone with my thoughts.

The Author arrives later this morning. 10:30 or so, though I’m not certain whether that means to the house or at the airport. I didn’t ask for clarification – I guess I’ll know soon enough. lol I’m excited about this visit from a dear long-time friend. It happens too rarely. I think of other far away friends and wonder whether to plan a trip to see some of them in the summer? I wonder whether my Traveling Partner will be up to being without me for a week…or in shape to go with me?

I sit quietly with my thoughts. The sky is beginning to be a hue of deep gray-blue, visibly no longer “night”. A new day. There are things to do, and a visit with a friend to look forward to. I consider getting a coffee somewhere nearby, but I am just as content to sit here, watching the sky slowly lighten as dawn unfolds. G’damn, sometimes I am such a simple and easily satisfied creature. I chuckle quietly to myself. I’m okay with it.

A new day begins.

… It’s time to begin again.

I woke tired from a restless night of strangely lively surreal dreams. My walk felt short, and rushed. My day already feels busy and “crowded” with things that must get done before daybreak tomorrow, and the start of a few days of downtime spent attending to my emotional needs, and indulging artistic inspiration. Self-care is important and worth the time commitment to get a few things done so I can be away without concern, but… good grief I feel so busy right now.

I breathe, exhale, and relax. It’s the start of the workday, and looks to be an easy one. Routine, at least. Then home early enough to take my Traveling Partner to an appointment, then a quick shopping trip, then make (and enjoy) dinner, then pack (omg I should have worked from home today) and load the car, then, if there’s still time, a little time spent just chilling with my partner enjoying the last of the evening. Yeah, it feels like a busy day, but I’ve got a plan, and it’s not really “all that” – it just feels busy. Another breath. Another moment.

I’m in so much pain lately. A few days to myself to sit with that without also feeling like I’ve got to mask it to avoid making everyone around me uncomfortable will be a nice “luxury”. There’s more stress than I want to admit in having to “put a good face on it” when I hurt like this. Pain relief measures only do so much, and I’m not willing to take (nor am I prescribed) the quantities of painkillers it would take to shut down this amount and intensity of my personal combination of arthritis and headache pain. It is what it is. I’m also not willing to let pain call my shots or totally wreck my experience; there’s more to life than the pain I’m in. I remind myself often. Sometimes it helps, sometimes it just annoys me. Sometimes being annoyed about it helps in its own way. My Traveling Partner endures his own pain. Hell, even the Anxious Adventurer deals with pain – and frankly, most people do, to some extent, I guess. The challenge is not being a dick about it, and doing the most we each can to go ahead and live a good life in spite of the pain we’re in, and to remain mindful that we can’t possibly fully understand the pain someone else is in. Ever. Even if they say. We just can’t know their experience the way they do. So…I try to manage mine, and mostly keep it to myself. It’ll be nice to have a couple days to just sit and weep over it, while I paint, if that’s where it takes me, and not be worried that anyone else will be affected by those tears, or my pain.

Beyond the pain, I’m looking forward to a couple days of watching the tide come and go, and sitting with my thoughts – and my grief – and just “getting my head right” in my own way. The holidays are coming. The first in decades that my Dear Friend won’t be part of that experience in any way. That hurts more than I expected it to. No need to think about what to send her. No need to share anecdotes or pictures. No need to message her on Giftmas morning so she doesn’t experience the morning alone. No need to delight her with my curiosity about what my Traveling Partner may have gotten me, or made me, this year. She’s just…not here. My sorrow tries to swamp me every time I remember, and I really need to get past that somehow. It’s a lot. Granny? Gone, too. And Mom. And my long-gone girlfriend, T. There are unshed tears waiting their turn to fall, and I need to allow myself time for that this year.

I’m eager to hit the road, and hit the trail. Eager to walk my own path and feel my feelings (there’s no shame in these honest tears). I’m eager to begin again on the other side; the way out is through.

Well, shit. Every now and then, just when I start feeling like maybe I’m “well” and whole, and not beat down by bullshit and baggage, and perhaps just maybe there’s something like a “happily ever after” potentially lurking around the next bend in the path… I have a day like today. It’s been a wild ride…

I spilled my Traveling Partner’s coffee early in the morning, mere minutes before we needed to leave for an appointment we could not risk being late for. It didn’t take long to clean up, but it disrupted my calm rather a lot.

The drive into the city got going pretty nicely, except for some reason my Traveling Partner’s phone wasn’t pairing, and once it did, it seemed all his personalized settings for the truck were gone. Annoying. Negative emotions carry a certain unfortunate contagion, too. It was less than ideal.

Traffic was routine, but the route the GPS selected, while familiar, was the most likely to be congested, and it was pretty annoying to drive past a turn that could have taken me down pleasant country roads. That’s on me though, eh? I know GPS is not “AI” – no intelligence, no understanding, no context to the decision-making. I could have chosen differently, but decided against it. My reasoning was poor, and I paid for that.

We got to the appointment in plenty of time, but in the process of getting the truck parked…well…I… Let me start by pointing out that a) I never measured the height of the truck with the tire on the roof rack, and also b) the height wasn’t noted anywhere obvious as I pulled in. Yep. I entered the parking garage, and as I turned around the bend to the next level up…I scraped the roof rack, tire and all, right off the top of the truck. 😦 Well, shit. Fuck.

…Not my best moment, not my best day…

…It could have been ever so much worse, and both the truck and I are entirely fine. The roof rack? Not so much.

My Traveling Partner got to his appointment. We managed to also get safely home, mostly in pretty good spirits. I went on with the day, dropping pill containers (shit!), knocking over books, bottles, objects… it’s just been that sort of day. Also… it’s been hot. Like seriously fucking hot, and I am grateful that the day was such that I got to spend most of it indoors, in A/C. Like I said, could have been so much worse.

Yeah. Fucking rough. Some days are. My pain is pretty well managed. Things have calmed down. It’s evening. The house is comfortable, and quiet. I’m fine, for most values of fine… and it’s enough. Tomorrow? Yeah, of course, obviously – I’ll begin again. (Again.)

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.