suffering is the human condition

Last week’s snowstorm feels like a long time ago, not the short 4 days that it was. The long weekend I was so fortunate to enjoy stretched time and gave me an opportunity to really rest, to get a few things done, to enjoy my Traveling Partner (and my life) – and I took full advantage of it. I stayed up later. I slept in a couple times. I even took an afternoon to dive into a long-waiting personal project to do with sorting and filing and tidying up my many digital images of my art work. That was incredibly satisfying. I cooked a couple of really good meals. I enjoyed breakfast or brunch with my beloved each morning. Time well-spent. It wasn’t “fancy” or costly or exotic, it was just… mine. I needed that.

This morning I woke to my artificial sunrise and prepared to head to the office. I didn’t notice until I was almost half way into my commute that I had somehow set my wake up time to… 04:00. Good grief, really?? I definitely did not need to be up that early. No traffic, though… pleasant, quiet drive.

Now I’m at my desk, drinking my coffee, trying to stretch enough to feel… different than I do. I don’t know what I’m going for, maybe, but I think “comfortable” would be good. I feel unexpectedly sleepy, in spite of the coffee (because of it?). I didn’t sleep particularly well last night. I am paying for that, and the early wake up, in physical discomfort and restless sleepiness. My back aches with my osteo-arthritis. My neck aches from degenerative disk disease. My headache is with me this morning, too. My shoulders feel tight in spite of adjusting the height of this adjustable desk several times. The delicious relaxation of the weekend gives way to the subtle tension of the work week. I stay away from the news; it’s all pretty bad, and none of it is “new information”. It’s all stories about shitty people doing terrible things to make a name or profit for themselves, in some cases out of nothing more than pettiness and spite, other people standing around wringing their hands and not doing much of anything helpful about any of it. The usual. Human suffering. Human greed. Human cruelty. No superheroes.

…And I’m fairly fucking over hearing about Elon-fucking-Musk. I mean, seriously? That fucking guy. How he’s managed to con so many otherwise rational-seeming people is just beyond me. Why keep giving him more money for products he will not ever make? Can we not also let him tear down our fucking government? Are his substantial and obvious conflicts of interest not enough to make that clearly a terrible idea?! Fucking hell. Just how fucking stupid and gullible are we?

I pause my writing to hunt for a tissue in the quiet empty office. Noticing how good it feels to actually move around, I wander a bit, and take a walk around the building, outside, stretching, and taking deep breaths as I walk. I bring my attention back to “now” – where I am. This moment, here. Daybreak has come, dawn is here, the sunrise is imminent. It is a new day, filled with new opportunities. I amuse myself with observations of how good self-care sometimes feels. Funny that it can feel so hard to make time for those practices…

I sigh to myself and return to my desk, along with my aches and pains. Typical shit. Most of us deal with some measure of pain, some of us deal with more. It’s part of the human condition, and I try not to take it personally, and also do something about it and get on with my day. I smile fondly when my thoughts return to my Traveling Partner. I hope he gets the rest he needs. (He’s also been sleeping poorly.) I look at my calendar, check over my email, plan my workload for the day… It’s time to begin again.

I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

Necessary Self-Care Sometimes Feels Like a Luxury

Perspective on Lived Experience

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Necessary Self-Care Sometimes Feels Like a Luxury

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Perspective on Lived Experience

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