Archives for posts with tag: taking care of me

I’m sitting with my first coffee of the morning. I came prepared, and although it is instant, it’s a good quality instant, and a good cup of coffee. It’s hot, clean tasting on my tongue, and satisfying.

A rainy coastal Monday.

My first sight upon waking, was the rainy day beyond the balcony of my “ocean view” hotel room (which lacks any hint of ocean view, by virtue of being on the first floor, but offers a lovely view of Siletz Bay). The second thing I noticed was a couple of young… sea otters? Seals? They were relaxing on this side of the bay, quite nearby. I went to grab my camera to get a shot of this not-all-that-common sight (usually they’re on the other side of the bay, too far away to get a good picture with my lens). Returning to the balcony, I see that a man walking his dog has also spotted them. Does he stay well back to let them be? Oh, hell no, he’s American; he quickly moves forward to take his fucking dog closer. Jackass. The sea otters (I think, based on how they moved) slipped back into the water as he closed in on them with his (thankfully leashed) dog. I got a couple of truly pointless shots of the larger pod they are clearly part of, as individuals bobbed above the water, and the pod moved on down the bay. Still – what a fun sight. I take a moment to enjoy that, and I forget about the man and his dog.

I woke early enough that the beach was empty (on a rainy morning), and slept in (for real) late enough to wake well past daybreak, dawn, or even sunrise (although there is no sunrise to see on this gray rainy morning, only a homogenous gray sky). I feel rested. I leave the balcony door wide open to let in the sea breeze and the cool fresh air. I sip my coffee, contentedly. I’m here with my pastels, and I can paint as easily from reference photos and from my imagination, as I can from the actual view, so the rain is nothing to me, and doesn’t change my plans, or upset me in any way. It was lovely to sleep so deeply, and to wake so rested. If that were all I got from this trip away, it would be very much worth it.

I breathe, exhale, and relax. My back aches ferociously. The damp climate of a cool rainy summer day on the coast is hard on my arthritis pain, and for a moment I am “feeling my years”, until I think to recall that I’ve had this arthritis since I was 24 or 25 years old – so for almost 40 years – and it’s nothing at all to do with age or aging. I shrug it off as an annoyance of no consequence, and get on with things anyway. It still amounts to an irritating distraction, but little more than that, so far. My tinnitus is not quite silenced by the wind and the waves – it’s a combination of sounds that sort of “drowns it out” when I’m on the coast, close enough to hear the ocean. It’s a nice break from the aggravation of my tinnitus at full volume. I take a minute to enjoy it with my full attention.

It’s not yet late enough for the hotel breakfast, but I rarely find their strange grab-and-go assorted things for “breakfast” to be satisfying, nourishing, or even particularly “breakfast-y”. Just a cheap convenience, and this trip I am more prepared to take care of this fragile vessel. I’ve got salad greens, blueberries, cashews, and hard-boiled eggs in the room fridge, and I make a simple breakfast salad. My stomach isn’t yet particularly interested in food (it’s a bit soon after waking), but it’ll be lovely to have a “real breakfast” once I’m ready to eat something.

These are such mundane details of such an ordinary life – why bother writing any of this down? I dunno, because maybe someone, somewhere, reading this hasn’t sorted it all out yet? Hasn’t “solved for X” in some of life’s math, perhaps, and simply reflecting on the things that work – or don’t – and what matters most (at least now, to me) may be helpful perspective in some way? In 2013, for example, I don’t think it would have occurred to me how much my own choices in life – simple practical decision-making – were responsible for the vast majority of my personal misery. I don’t know that simply saying “you’re doing this to yourself” would have gotten through to me, but perhaps someone simply reflecting on the things that are working well – small, sustainable, simple choices – might have guided me (or at least made me think)? Besides… I just write. It’s a thing I do. (I’m grateful that you are reading. Thank you.) It’s also “for me”; I often go back and read my writing from other days, other circumstances, with new eyes, or seeking new inspiration, or a reminder that “this too will pass”, or that I’ve “been here before”. (One of the lasting consequences of my TBI is simply that I have some memory-related challenges, and some oddities about how I perceive (or don’t) novelty – sometimes I just don’t recognize that I’ve “been through this before”. Helps to have a reminder.)

…I sit awhile, reflecting on how far this journey has taken me over the past 11 years, from being deeply negative, traumatized, mired in despair, and looking for “an exit strategy”, to where I am now – mostly pretty positive, generally contented, often joyful, enjoying life and love (and even enjoying work), and feeling a deep sense of… joie de vivre. It’s lovely. Each sunrise is worth seeing. Each day has something new to offer. Not only is the journey the actual destination…it’s a journey I find worth taking. That’s a long way to come from those dark days standing on the precipice, ready to decide whether to make a permanent end to my pain. I’m grateful that I made the appointment with the therapist who helped me find my way to a better path. (If you’re in despair, please reach out to someone for help. You matter.)

I stand, stretch, and begin to dress. I haven’t yet gone for a walk on the beach (or taken any walk at all yet, this morning). Seems a pleasant morning for it. The rain has stopped, the sand is firm, and although the tide is coming in, it won’t be a very high tide – plenty of beach to walk. The morning feels oddly “out of order”, with coffee and breakfast ahead of my walk. I chuckle to myself. This is the sort of healthy variation from a routine that serves to keep my brain flexible and young. I go with it. No complaints. Rigidity of thinking does not serve a human primate well. I breathe in the fresh ocean air deeply, and exhale, imaging blowing my pain out with my exhaled breath. I’m not sure it’s an effective strategy, but doing so amuses me and diminishes the power my pain has over my mind. I stand in the open doorway, watching the gulls and crows down on the beach. Somewhere nearby I hear a woodpecker. Now dressed, the day feels that it has more truly begun. I nibble at my salad, and finish my first coffee. There’s more hot water ready, so making a second cup is an obvious next step; there’s no hurry. This is my life. This is my time. This is my experience. Every step on this path is my “next step” – mine to choose, mine to walk, mine to reflect upon at the end of the day. Although our lives are intertwined and we are interdependent social creatures, we’re also each having our own experience. It matters to be and to choose – and to experience this life that I have chosen. I breathe, exhale, and relax.

…The day stretches ahead of me, unplanned, unconstrained, not yet filled with my choices and the verbs required by those choices. I am my own cartographer. The journey is the destination. It’s time to begin again.

I’m parked where I can see the ocean, smell the scents of the seashore, and hear the sound of the waves rolling in. I arrived shortly before sunrise, but well past daybreak. Dense gray clouds cover the sky and obscure the horizon. There will be no dramatic hues of orange nor charming delicate shades of pearly pink or luminous lavender today. It’s all gray skies as far as I can see into the distance in all directions. I’m okay with that, it’s still beautiful.

What’s holding you back? Is it externally imposed, or something of your own doing?

I sit with my thoughts awhile before tackling the steep trail down to the beach. I listen to the gulls and the waves. I breathe the fresh sea air and enjoy the soft breeze and the morning mist. I breathe, exhale, and relax, letting go of the accumulated tension and stress of caregiving, waiting, and worrying. I’m in no hurry to do anything at all. I’m just being here, now, in this pleasant moment, in this lovely place.

The temperature is quite a bit cooler here than in the valley to the east. I dressed with that in mind and I am comfortable in spite of the chill of the seaside at dawn. The air is mild and not actually cold, but definitely suited to the baggy shapeless sweater wrapping me in warmth. I sit contentedly sipping an iced coffee. It’s a couple hours yet before I will check in to my hotel room. I don’t care about that at all, sitting here watching the waves roll in. Sooner or later I suppose I’ll do something about breakfast, but for now I have everything I want; this quiet moment is enough.

I remove my shoes when I reach the beach, and walk a damp mile along the wet edge, where the sand is firm with only a little risk of wetting my feet. The damp sand is cold and it feels at first refreshing, and later, chilly. I don’t mind. I enjoy the way the sand yields to my footsteps. I sigh and smile as I walk. I have this stretch of beach to myself, at least for now. This,too, is enough. More than enough. I drink in the satisfying feeling of contentment and fulfillment. I walk the beach grateful for the moment, and the opportunity to rest and “recharge my batteries”.  I give silent thanks to my Traveling Partner, who is so steadfast in the support of my mental health and self-care, and to the Anxious Adventurer, whose presence in our life and home makes it so much easier to “step away” for a few days to get the downtime I need without continuing to carry the full measure of stress and concern for my injured partner while I am away. I am fortunate, and I am grateful.

… Gratitude feels really good…

Distracted by my thoughts, I stray too close to the incoming tide and soak my feet. I laugh out loud, but turn back the way I came and head back to the car. Dry socks feel luxurious and the warmth of socks and shoes is disproportionately pleasant after the cold walk back up the beach. I sit awhile with my thoughts, and write a bit. The lack of time pressure feels… amazing. I feel my shoulders relax. I feel a steady joyful calm creep over me.

Breathe. Exhale. Relax. It’s enough to be here, now. I sit with my thoughts awhile longer. There’s no hurry. I’m enjoying this. It’s enough. Later, I’ll begin again.

Breathe.

Not much of a countdown left; day after tomorrow I head out for a couple days break from the stress and workload of caregiving, to spend a little quality time in my own head, taking care of me for a couple days. 3. Three days of downtime. I find myself eager and also a little bit anxious.

Before dawn.

I woke a little early. I got to the trailhead before daybreak. I wait for the sun, sitting quietly, writing. It’s a bit chilly this morning and I am grateful for the cozy warm sweatshirt I am wearing. Sunrise is coming later already. The days are definitely shorter than a month ago.

Yesterday was weird and difficult, but for me that was mostly “second dart suffering”, fatigue, and the chemistry of human emotion. It passed, and the conversations that came out of that were needful and handled with love and consideration. I don’t actually recall the end of the evening with much detail, beyond the lingering awareness that it was quite pleasant.

The morning begins well. I’m hopeful about the day ahead. I watch as daybreak shifts the hue of the sky from its darkest blue to lighter blues and a subtle hint of something not quite green and not quite yellow on the horizon. Sunrise soon. I breathe, exhale, and relax. I think of my Traveling Partner, and hope that he is sleeping deeply at home, getting rest that he needs so much. I lace up my boots. There’s enough light now to see the trail…

…It must be time to begin again…

I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

Rain fell during the night. The morning air when I stepped out into the predawn darkness was fresh and humid. The days are already noticeably shorter. Daybreak came and went, revealing stormy clouds that threaten the possibility of thunderstorms.

The first hint of a new day.

I put on my boots at the trailhead, my mind on my walk, my heart feeling light, and hoping that my Traveling Partner got a second night of really restful sleep after a change to his medication. These human bodies are so fragile and complicated, and lack a proper user’s manual.

Yesterday was a good day, productive and sufficiently restful to feel as if I got a bit of a break from the grind. Most of my day was spent supporting the Anxious Adventurer, sorting out his vehicle needs for work, and getting his hoopty sold and out of the way. Easy but time-consuming. I was glad I had gone to the store earlier, and that I had a plan for lunch. The day lasted well-past when I might usually go to bed, but we were having a good time hanging out together, and I went with it. There’s been stress and worry and struggle aplenty lately, and it was good to just enjoy a few moments together.

… I still woke up at 4 a.m. LOL

The stormy sky this morning delights me, as the luminous pink of an unseen sunrise shifts with the clouds. I snap a few shots, thinking about those pastels. Maybe today I’ll spend some time painting?

Like thoughts, shifting.

I walked the trail thinking my thoughts and listening to the passing geese overhead. The air smells like it may rain again. I sit at my favorite spot along the trail and listen carefully. Was that thunder? Makes sense that it could be.

… Definitely thunder…

I think about the day ahead. There are things to do to prepare for the week, and next weekend will see me heading down the highway to the coast for a couple days. I’m eager to go, knowing my Traveling Partner won’t be left home alone this time. That’s very reassuring.

My mind wanders. I don’t stop it. I let my thoughts drift as I drink in the fresh air, and this quiet calm moment. It’s such a small thing, but this is an important self-care practice for me, to simply sit quietly and be for some little while. No criticism or doubt, no negative self-talk or worry, just a few quiet minutes as my thoughts drift by like summer storm clouds. I am awake, aware, and grateful. I breathe, exhale, and relax, listening to the sound of distant thunder.

A fat, warm, unexpected rain drop hits my face, and then another, and another. Will it actually rain? Maybe. Maybe not. The “maybe” is enough to put my mind on finishing my walk, so I finish my thoughts, finish my writing, and prepare to begin again.