Archives for posts with tag: TBI

What a weird day yesterday was. The work day was… shitty. It just was. It’s a thing, it happens. It’s over, and behind me, and today is a new one all its own. We’ll see how this one goes. 🙂 It can’t possibly be as strange, that’s for sure.

The evening was a delightful counterpoint to the work day; no stress, no drama, just two people who love each other, spending time together. It was warm and joyful, and the connection was intimate, fully analog, and entirely in real life. It was sweet. No idea how long my Traveling Partner may stay… he’s thoroughly welcome. I don’t bother to ask what his plan is. He shares details as they occur to him. There’s no point being literal about those words – they often do not become actual experiences, for either of us. He will when he does. lol I am at least able to chuckle about that and give him room to be who he is. 🙂 He does the same, generally, for me.

I sip my coffee. I contemplate the day ahead in the context of being so well-loved. It changes the way I see my experience, to see it in loving context. It’s a positive change that tends to push the negative emotions into the background, and pushes the purposefulness of my endeavors into the foreground, relevant, immediate, and worthy. My results vary. It’s less a matter of “what doesn’t kill me, makes me stronger” and more a matter of “are you kidding me with this shit? have a little perspective” – and that’s enough to nudge me back onto a path of assuming positive intent, and generally enjoying my experience. I like contentment. Ya gotta run pretty fucking fast to “chase happiness” – contentment will let you catch up, no problem, and walk aways with you. 😉 Choose wisely.

I look at the time. It’s already time to begin again. 🙂

I’m relaxing with my morning coffee, ready to start a new week, enjoying a quiet moment before heading to the office. It is, in most ways, wholly routine, as morning’s go. Still, this one lovely moment feels… special. My Traveling Partner sleeps in the other room. 🙂 As “sufficiency” goes, this morning is more than enough. I feel content, and wrapped in love.

This kind of moment is different from the joyful, boisterous, playful, moments of festivals, the busy fun working moments of performance events, the connected intimate moments snatched from those on some visit to spend time together… all those things are lovely. This? This is different. This is calm, and soothed, and heartfelt, and warm, and tender, and gentle, and deep, and enduring… no fleeting bit of fun this moment, here. This is built of stuff that lasts (well, as long as it lasts, and then lingers in memory quite deliciously and poignantly; the best times together manage to be nonetheless quite finite).

I sit with my coffee, enjoying this quiet moment. I don’t need more. I start a playlist that is all love songs this morning, and get ready to begin again. 🙂

It’s time to pay the bill. Every fun thing in life, every journey, every dream ever pursued, involved a cost. An investment in time, will, money, effort – coasting through life is an option, of course, but I suggest taking a second very careful look at the lives of those you think may be “coasting” through life. It’s not likely that they actually are, however different their choices may be from your own. 🙂

There’s a place I know, where the rules are different, and the world seems built of love.

I spent the weekend wrapped in love, in the company of friends and my loving Traveling Partner, in a space temporarily re-made for the purpose. DJs, artists, vendors, and fans gathered. Family. Friends. Artists. Musicians. Dreamers. Visionaries. Performers. A small festival of like-minded folk, gathered in the forest to camp, dance, play, and experience life re-made to an alternate purpose. We celebrated. Even in hard times, celebration is a worthy endeavor – perhaps most of all in hard times. 🙂

Put as much effort into celebrating as you do into working – or bitching – the return on that investment is so worthwhile!

I bailed on the fun a bit early. Friday was amazing, if rainy. Saturday was just… wow. Sunshine, forest, good company (a great breakfast) a feeling of purpose… I felt elevated, uplifted, and if not enlightened, surely I felt “made of light”. It was quite lovely – until my arthritis finally reminded me of years and injuries, and my joints began to stiffen quite irresistibly. I grabbed my cane as soon as my mobility became actually impaired. I didn’t really sleep on Friday night, ever, the music went all night, so did the fun, and although I grabbed a couple naps, it wasn’t enough to keep me from becoming fatigued. By late afternoon Sunday, on top of my arthritis, my legs began to remind me of other issues, and my steps and gait became affected, by those, compounded by my fatigue. The cane wasn’t going to be enough to get me through the night. I checked in with my Traveling Partner about “calling it” early and heading home. We were having so much fun it was a hard choice to make, and I wasn’t up to it without a bit of reassurance that he’d also rather I take the best care of myself, versus forcing myself to stick it out, slowly becoming miserable and putting that delicious vibe at risk, or wrecking my own delightful experience of the weekend. We were having an amazing good time together! It was hard to walk away from that. He is ever the supportive partner, and agreed that if I was already feeling worn down or struggling with impaired movement, it made sense to call it good and head out – if I were up to the drive. He offered me his place if I wanted to just go get some sleep and hit the road in the morning. Something nagged at me that it was likely a better idea to make the drive that evening…

What the hell? I hate late evening driving; it becomes night driving, and my night vision is frankly not ideal. Shit. Really? Am I going to do this? Yep. Doing it. I drank more coffee and hit the road.

The drive was uneventful. I took regular breaks at pre-determined times and locations. At the one point that sleepiness started to blur my vision, I stopped, got a big bottle of cold water (once it was clear iced-coffee was not to be had, there) and got back on the road. Water for the win. I didn’t expect that – and now I know to keep it in mind. I was thirsty, more than sleepy, apparently. I made good time, and the drive was stress free. Win and good.

This morning I woke at 4:30 am. I went back to sleep, after bumbling to the bathroom and back rather awkwardly. The somewhat less than 4 hours of sleep I’d had weren’t going to be adequate rest. I woke again around 6 am. Again, I went back to sleep. I finally woke shortly after 9 am or so, and got up. I experienced a moment of immense gratitude as I stood. It was the right choice to have made the drive the night before; it took real effort to get out of bed. Pain. Stiffness. More effort to slowly go through the motions of a morning routine. I’m still moving terribly slowly, with much effort. Everything hurts. Everything is stiff. Nothing is easy. “Freedom of movement” feels like nothing more than an advertising slogan. I feel as if I were the unfortunate recipient of a serious beating I don’t recall getting. lol This morning, I add sore muscles to the arthritis pain. I nonetheless happily “pay the check” for a delightful weekend of music, dancing, and enjoying the company of friends out in the woods. Totally worth it. I knew it wasn’t going to be any sort of “freebie”, and I took the time off I needed to, to make the best possible recovery before work. (I’m off tomorrow, too. 🙂 )

Painfully sore muscles. Aching joints that don’t move freely. Fatigue. A few hours of driving. A few dollars in gas money, meals, and gear. Time. Totally 100% worth the price spent to enjoy the time I did. I focus on that, and try to sort out which is the wiser choice right now; a nap (I’ve only been awake for 2 hours), or a nutritious meal (that it going to be painful to prepare, but I probably should have something…)? Time to get back to all the adulting. lol

I make another coffee, I start another “to do” list. I begin again.

The world is going to do what the world is going to do. We are mortal creatures, and short-lived ones at that, relative to the vastness of time itself. Humanity may not survive its own poor choices. Seems fair, really; we’ve given a great many other species very little voice in their demise. We are killers. Rapists. Thieves. Liars. Spoiled-rotten bad-tempered children, with little real awareness of the experience of others – at our worst. Our best is something very different from all of that, but we’ve really got to work at it, each of us, quite individually, and generally without any significant encouragement.

This, right now, may be one of those times when we’ll need to work hard to be the human beings we most want to be, and we’re going to have to do it in the face of some brutally clueless, demeaning, fairly horrible bullshit. I’m talking about the Kavanaugh hearings and vote (which I guess will happen today) for his position on the Supreme Court. You just fucking know they are going to vote to confirm him, in spite of all we’ve heard, because they literally do not care about rape, at all (chances are, there are quite a few rapists in office), and do not care about women, and this is something they have stated quite frankly, and voted reliably to prove, time and again. So… yeah. Swallow that one, folks. It’s real, and it’s bitter.

I don’t know what it means for our nation, or for the world, but I know one thing it means for Brett Kavanaugh, if he is confirmed; he’ll spend that lifetime appointment secure in the knowledge that although his privilege as a white male one him his seat, also, like it or not, every woman on the Supreme Court knows precisely who he really is. Every colleague on that court, of any gender or political leaning, knows what his biases are, and that he is a liar, and not to be trusted. I hope it’s tense for him, every fucking day. I hope those women hold his gaze every single day with real contempt in their eyes. (He may not be sharp enough to notice, though, honestly – did you hear the testimony? Fucking hell. Dim bulb there.) Hell, his wife has had a hearty helping of seeing him through the eyes of an outraged nation, and maybe heard some things she did not previously know. I bet there were some uncomfortable car rides home at the end of the day over the past couple weeks.

So, yeah. I would love to be optimistic, and see his nomination turned down. There are other, better, choices for the Supreme Court. It’s not going to be that world we wake up in tomorrow, though; he’ll most likely be confirmed. It’s a strong “legacy boy’s club” there in Washington D.C., but – and this is worth a moment of contemplation – this shit went public in a very loud way, and in many of our own homes, already, right now, the tone is changing with regard to the way women are treated, the way survivors of sexual violence are treated, the way we view rape culture, and yeah – even the way we do or don’t tolerate (and how much, and how well) that crusty partisan legacy boy’s club living out its last days with the Elders of Whitemanistan, there in D.C. This isn’t going to go away. 🙂 Well, until the last of these rich white men in office finally dies off. (Maybe the next batch will be better? You own this. Vote.)

The challenge on our end is real; how to be the best version of the person we most want to be, really, with all this maddening bullshit going on around us? That’s a puzzle all its own. This morning, it is what I am thinking about.

Who do I want most to be, myself? How do I present that in the world? How do I maintain a comfortably authentic experience of self, while also pushing myself for real growth? What matters most? What is just a distraction? Can I change just one thing, today, on this path… and get there sooner, or more skillfully?

There’s a glimmer of real hope always held in the question “what can I change?” It presupposes change is a thing I can do. (Which I can.) I sip my coffee, and meditate on change. It’s a new day. New opportunities. Familiar challenges. I have multiple choices and a choose my own adventure game right in front of me, every day. (You do, too.) What will I choose today? Where will my path take me?

I sip my coffee. Check the time. Begin again.

I woke a bit early. Not early enough to go back to sleep. I got up.

I dithered a bit with my morning routine. One thing at a time. Got through it. Great. Fine. Necessary. Completed.

I sat down, eventually, with my coffee. It’s been awhile. Mostly just… sitting quietly. Scrolling. Done with that, too. Bored? No. Ennui? Not that either.

Anxiety.

Just garden variety anxiety on a Wednesday morning, without specific context or cause. It is the nature of an anxiety disorder, of any sort, really, to deliver some anxiety, however “well-managed”, now and then. Must be my morning for it.

“Anxiety” 10″ x 14″ acrylic on canvas w/ceramic 2011

It’s been with me awhile. “All my life” does not feel like an exaggeration. I take it much less seriously these days, seeing it for the fraud it actually is, and managing its presence more skillfully than I once could. Still… annoying to deal with, every time… and dealing with it is non-negotiable. Deal with it, or fall apart. Deal with it, or break down. Deal with it, or lose my shit completely in some very inconvenient or problematic way. Deal with it – or deal with the consequences of failing to do so. Fuck anxiety.

I don’t need to troubleshoot my anxiety. It’s got a familiar face; work, life, money, “the world”…  I’m real with myself about it. There’s more anxiety about more things than is entirely reasonable (it’s a scary fucking world right now, frankly, being a little anxious seems pretty damned reasonable). I take a deep breath and let myself relax each time I notice it surging forward, bubbling up from my consciousness to become part of my immediate awareness; it helps. It helps, too, not to deceive myself or play soothing mind-games to try to wish it away. I examine what seems to be driving my anxiety. I consider those things with care. Real? Exaggerated? Imagined? Sometimes anxiety is pretty legit, and functions to hold my focus on some concerning detail, until I take an appropriate action. Sometimes anxiety is just… wasted emotion. A reaction without a cause worth acting on. Disordered thinking. Sometimes, of all the irritating things, it is not anxiety at all – sometimes I have conflated the physical experience of excitement with the physical experience of anxiety, and don’t yet realize I’m just excited about something, and could enjoy that moment of anticipation much more, if I stop defining it as anxiety.

I breathe. Relax. Let it go. I let it all go. This thing over here? I let that go. That thing over there? Yep. That, too, I let it go. Another breath. Another concern. Another moment to let shit go. It’s a practice, and it requires practicing, and that means verbs, and that means choices, and that means… working at it.

Still.

So, yeah. Mindfulness is enormously helpful with managing my anxiety. It’s not a “cure”. It’s a tool, and a way of experiencing life, that can be very helpful. I feel much better when I maintain a rigorous meditation practice than when I don’t. I feel much better when I am able to maintain exceptional sleep hygiene, than when I don’t. I feel much better when I am open, authentic, vulnerable, and real with myself – and others – than when I am not. I feel much better when I get out of the house, get plenty of healthy exercise, and a good measure of both social and solo time. It’s not some one practice that eases my anxiety; it’s practicing the ones that work best for me in a consistent way.

Sometimes I fail.

Sometimes I succeed.

I just keep practicing.

It’s one of the challenges of achieving mental and emotional wellness; the work is on my end. I have to do the verbs. I’m going to be the one practicing the practices to improve my own experience. It’s my journey, built on my choices. Incremental change over time is fucking slow as hell, and can be incredibly discouraging; I still have PTSD, a TBI, a broken back, and a very human experience. All the improvement in my experience of self and life I could ever imagine will not change those things. No cure. Just practice, growth, and incremental change over time. 🙂

Sure. I’m anxious this morning. I have an anxiety disorder. I also, unrelated but metaphorically relevant, have a thyroid that failed years ago. I take medication for it, and go on with living my life. Anxiety isn’t really a lot different; I’ve got some fail sauce and messed up wiring in my emotional experience; I practice meditation, breathing, and other assorted practices for that, and go on with living my life. If my thyroid medication doesn’t work ideally well, I go back to my physician, and we make changes. If my anxiety flares up, I go back to my practices (and, in some cases, also back to my therapist), and make changes. “Easy”. (It isn’t, but it is generally adequate.)

I breathe. Relax. Run my writing through a spellcheck (which will reliably miss at least one error, regardless). Hit publish…

…And begin the day. It’s a whole new one, all my own. Fuck anxiety.