Archives for posts with tag: TBI

It’s also not a long blog post.

All my planning wound up completely and utterly upended for this week – and the weekend to come. Yep. I struggle with that, sometimes moment by moment. When the first domino began to topple, my sleep went to hell. I can’t blame the heat; I have AC. Last night I went to bed quite early, and quite tired, figuring I’d “sleep in” by getting a head start…

…About 90 minutes after I fell asleep my Traveling Partner called. Once he was aware he’d woken me, he ended the call, I went back to sleep.

…Some 90 minutes after that, the door bell rang. And rang again. I got up to answer it. It was a… “wrong number” is not the right expression, but it was that situation; a stranger looking for the address next door.

…I woke early. No kidding. I could not fucking believe that shit. Stupid brain. I need more sleep.

I woke, stumbled groggily through my routine holding focus on the upcoming long drive. 250 miles. It’s “not that bad”, but the weather is hot, and the car is crammed to capacity with gear. One part of my planning that still finds me biting my nails is the part where I planned to leave from work – it’s a work day. Now the car is full of equipment…and the office is in a poor choice of neighborhood for street parking. Seriously? How much more of my planning could go wrong here?? I don’t even want to leave the car parked in my own driveway, right now!

Shit. I sip my coffee pensively feeling simultaneously annoyed and fussy, but also pleased and amused to get to use the word “pensively” in a sentence. My life. lol What to do about this journey remains a question. Take the calculated risk of parking the car as it is at the office for 4 hours or so… or take a car service to work, and then again back home, and then leave from the house?

There’s little time left to decide – and I just noticed I have not yet packed anything at all for me. I am annoyed with myself most of all for the way my self-care has completely gone to hell over some changes in a plan that I could have anticipated could not possibly hold up under the dynamic influences of feral friends and spontaneous loved ones. I knew there was little chance my planning would – or could – be respected. That I need that structure for emotional comfort and to help maintain my equilibrium and sense of order in my life (which helps manage my symptoms) isn’t even a blip on the radar of most of my friends – we are each having our own experience. I’m fortunate that generally, day-to-day, it isn’t obvious that I have mental health challenges to deal with, or a brain injury with effects that require day-to-day support and management. I guess I shouldn’t bitch about the occasional bit of upheaval or turmoil. (I’m still going to. I’m very human.)

I’ve missed the window of opportunity to do anything but drive to work. Well then. Fuck. Okay.

It’s time to go.

It’s time to begin again. 🙂

 

Test time, Wanderer of Paths, Taker of Journeys! Life fairly screamed it my ears yesterday when my Traveling Partner reached out to me to find out if I’d found out that the original planning for the weekend had fallen through. Would I still be able to…? The exchange happened while I was also juggling a coworker’s fairly urgent question, a high priority deliverable that was due the day before, and trying to get set up for the day. The timing was inconvenient, and I managed (rather easily, actually) not to lose my shit over it. It was a lot to handle at once, and I’m not good at that (at all).

After working out new details, a new plan, making new arrangements, setting adjusted timing… the day moved on in a rather ordinary, if very busy, way. At the end of the day, I drove to pick up a friend, to pick up some gear that my Traveling Partner needs – since I’m going down to visit, anyway… Hey, look at me – I’m a roadie! lol Eventually, the car is loaded up with all of the things from a list I happily thought to request, and I’ve returned my friend home, and started driving back to my place… long day. Already later than bed time when I finally step across the threshold, and realize the car needs to be in the garage tonight, or needs to be unloaded. Fuck. So. I head to the garage, move a bunch of stuff around, put the car into the garage for the first and possibly only time and call it a night… wait, no… Shit. What about getting to work tomorrow? I’ve been relying on the car to happily avoid the blasting summer heat. That’s not going to work; I don’t feel comfortable leaving the car with the gear loaded into it parked in the neighborhood where the office is. It would be unattended, in an area known for car break-ins. Shit. Fuck. Damn it. All the swears.

So this morning, the alarm clock drags me groggily from less than 5 hours of sleep. I need to do better tonight; it’s a long drive tomorrow. I feel a deep down snarl sort of half-formed swirling around in my consciousness. I dislike having my plans upended so firmly, and being faced with “choices” that feel forced on me. I’ll ride the bus today, leave the car in the garage… short evening. Hot bus ride home. Bit of a walk on the sore foot, in the heat, to get home. It’s not at all what I’d planned for myself this week by way of “self-care”, and I’m sort of quietly seething about it, with no outlet. I meant to wash the car last night – ended up spending the evening making pick up on a car load of gear. Now the car is loaded… still needs to be washed before the trip. I’d meant to get the oil changed. I haven’t the time now. I feel tension and anxiety competing for attention with my basically good mood quietly not interfering.

I begin again a number of times this morning. I pause to breathe. I’m eager to see my Traveling Partner, and getting to do so makes all the rest worthwhile. I haven’t yet figured out how I am also supposed to have (find, make, take…) the time to take care of myself…? It’s like an elaborate practical joke where the punchline is “you weren’t paying attention to the road because you’re exhausted and freaked out – and now you’re dead!!” (Which is what most of my nightmares last night were about, actually.) I guess it is progress that at least I am actually thinking about caring for myself well, even if my actual results vary rather substantially from that goal, this week.

I sip my coffee and chuckle to myself, “damn, this better be a good fucking visit!” and laugh quietly out loud in the stillness of morning. Of course, it will be. 🙂

I look at the time. Fuck, I’ve probably missed that early bus I’d intended to take… so… freak out? Or… don’t give a fuck? I’ll probably land somewhere in between, biting my nails on the way to work, arriving in plenty of time. At any rate… I guess I’ll be giving beginning again another shot this morning. lol My results vary. It’s not unexpected. I’m having my own experience.  🙂

The morning is gentle on my waking consciousness. I’m glad of that. The headache pounding away at my forebrain when I woke has dissipated. I’m glad of that as well. I notice, at the same time I notice my half-finished coffee has fully gone cold, I never opened the blinds (or the window) here in the studio when I opened up the windows to let in the fresh morning breezes. It strikes me as odd, until I also notice my latent noise sensitivity is quite a presence, in fact, and recognize that I had simply not opened the window, to dull the sound of the morning commuter traffic, which I definitely don’t care to hear.

Who am I today? Am I headache-y? Am I well-rested and merry? Am I irritable? I’m not actually certain. I may be all of those things at some point today. Right now, in spite of a leisurely shower, a good yoga sequence, and the fresh forested breezes on a summer morning, I remain rather groggy, somewhat irritable, and annoyed by my stuffy sinuses (which may have been the cause of the headache I’d awakened with). The more I focus on this experience, the more it intensifies, and the more irritable I become. Interesting. Sometimes mindfulness brings uncomfortable experiences into sharper focus.

I breathe. Relax. Pull my posture more comfortably erect as I sit at my desk. My eyes close, and without giving it further thought, my hands rest, quite still, on the edge of my keyboard. I breathe. Relax. My eyes closed. Feeling this space, this moment. My shoulders sink down until they are no longer crammed up against my damned ears. The sound of the traffic blends with my tinnitus. I breathe. Relax. Time passes.

Some time later, some 30 or so minutes, actually, my eyes open. I’m smiling. I needed that moment, I suppose. Just some meditation time, right where I sat, no further fuss or bother. Nothing to disturb me. I feel better than I did. More comfortably aware of the commonplace discomforts that are a thing. I am a mortal creature. This fragile vessel is not always an entirely comfortable thing. lol

The house is nicely cool now. It is sometime past day break. I still have time to water the container garden, do the dishes, make my bed – all the things I like to come home to at the end of the work day. It’s just me, right? So… I gotta do the things. 🙂 That’s pretty much how adulthood works generally; if I want a result, I must do the things. Shopping around for other human beings to do the things on my behalf isn’t nearly as efficient. Partnerships are not a form of indentured servitude, or long-term service, and I’d far rather count on mine for shared experiences I truly cannot have solo in life… sex, shared laughter, intimacy, exchanges of touch and emotion… all stuff I really love, too. How nice to share it! Not to imply that reciprocity with the housekeeping and whatnot isn’t valued – in my relationships it is both valued and required. Everybody eats? Drinks water, coffee, tea, whatever? Everybody showers? Sits on the furniture? Then everyone works to keep the place nice. It’s sort of obvious and non-negotiable. 😀

It’s still early. A good time to begin on the housekeeping. A good time to begin again, living and being, and becoming the person I most want to be.

I am brushing off my practice of not scrolling through Facebook, reading the news, or clicking shared links about events, and giving is a good restart. It messes with my head to be tossed into the festering pool of hate and despair that our political dialogue has become, and first thing in the morning I have little ability to protect myself from being sucked in, and reacting to it. So…  there’s that. No more reading the news in the morning (again). It’s a poor practice for me as an individual.

This morning, I am thinking about the “no words” – boundary-setting language. I am thinking about what works, what doesn’t, and the how/why boundary setting can be so objectionable for some people that they immediately begin to rationalize, manipulate, or defy boundaries that have been set. I don’t know why I’m thinking about this, today; I woke up thinking about it. Well, sort of…

I didn’t sleep well. I was tired fairly early, went to bed “on time”, fell asleep promptly, but… it didn’t last. I woke around 2 am. I never slept particularly well after that, if I slept at all. I wasn’t distressed by my sleeplessness, that no longer plagues me in that fashion. There wasn’t any anxiety or stress over it, even knowing that if it persists for another day or two, I won’t be well-rested to make the 5 hour drive to see my Traveling Partner this weekend. I wasn’t laying awake in the dark thinking about boundary setting, though. Still… it’s what was on my mind as I woke. No idea why.

So I start the morning with my coffee, hot, and ideas to do with boundary setting swirling in my consciousness: agency, consent, saying “no”, saying “yes”, “reasonable” boundaries, consideration, respect… and on it goes. My thinking hasn’t really become anything especially share-worthy. My words this morning are unlikely to excite, inspire, or even to truly communicate. I am adrift in a sea of thoughts about boundaries, and boundary setting. There’s no stress over that, either, it’s rather a calm sea. 🙂

I’ve been struck by the seeming general lack of consideration between and among individuals of late. It’s probably quite subjective. It may not be at all an accurate experience of life. It just seems to me that people I observe are much less considerate than they were rather recently ago…but… when I attempt to take time to prove that assumption for myself, it falls apart when I attempt to show things were previously actually any better. I still subjectively feel that something “has changed”. I don’t know that the change is anything that affects the world… it could just be me. I am, perhaps, more sensitive to inconsiderate behavior, regardless who it affects, than I once was? Consideration is a big deal for me, personally. It’s one of my “Big 5” relationship values – something I value so highly, I both seek to practice it reliably in every relationship and interaction, and also require it, reciprocally, from others. My idea of “decency”, “civility”, and basic good manners requires consideration be a default behavior. Yes, and there are verbs involved.

The sky has grown lighter, and the morning is on the other side of day break. I finish my coffee, and notice that the house has cooled off completely. The morning breezes have blown through the open windows. It’s forecasted to be very hot all week. I’ve been very grateful to have already moved. My last place, without any trees shading the west wall, a floorplan with limited air flow, and no AC, quickly got into triple digits indoors if the outdoor temperature exceeded 86 degrees (F) or so, and if temperatures remained high, it gradually worsened, and reached dangerously high indoor temperatures poorly suited to human life. No joke. (It wasn’t that bad before the property management company cut down all the trees.) The new place is quite different. It is both well-shaded, and also has AC – and a floorplan that allows air to move efficiently through the place. Very livable. I pause to really appreciate how nice this is… and remember that I will need to water the container garden on the deck.

I hear a bird or creature of some sort, just beyond view outside the window. Curiosity pulls me to my feet… and the day begins. 🙂

 

Yesterday I hung a few paintings. I vacuumed, did laundry, did dishes, watered the garden on the deck, hung out a bit with a friend who made the trek out my way, figured out what will hang over the mantle and got it to the framer’s shop. It was a sweet, quiet weekend, and yesterday was every bit as lovely as the day before it.

By evening, I was sort of just chilling with my foot iced and elevated, and staring at the empty book shelves was nagging at me severely; it seemed inconsistent with the rest of the weekend that the bookshelves were empty. One by one I brought in boxes of books, and emptied them onto shelves… which resulted, more than anything else, in a mess of books out, just everywhere, in small stacks here and there, crowding onto shelves that suddenly appeared to be “the wrong shelf for that one” and now my previously tidy living room is messy with books. A lot of books. A tiny library of books gathered over a lifetime, filtered by moves and gift-giving, added to, subtracted from, and the result being about 500 or so books very precious to me worth dragging around over a lifetime of moving.

Books are heavy. By the end of the evening, which snuck up on me rather unexpectedly, I was really tired, and also a lot more moved in… well, aside from (because of?) the mess of books that I created. 😀 I guess next weekend I’ll be connecting the tv and stereo (maybe tonight)…

…It hits me that my weekend is over. Today is a work day. It’s a new work week. I take a moment to get my expectations and sensibilities in order; being late is still something that causes me rather a lot of stress, so avoiding that circumstance is desirable, generally. 🙂 I look at the time. I look at the weather. I make a note to ensure the air conditioning is on, and that the thermostat is set to keep the house comfortable through the upcoming actual not-fucking-around-it’s-summer-for-real heat that is in the forecast for this week. 110 degrees (F)?? In Portland, Oregon? What the fuck is that about? I stick to a promise I made to myself yesterday, and quickly finish my coffee, and fill up my water bottle.

As I head back to my desk I notice a huge spider struggling in the sticky trap at the edge of the kitchen floor. Wow. A big one. There was one in the bathroom trap this morning, too… Curiosity gets to me. There really haven’t been many spiders on this move. Just 4 so far. (I’ve been keeping count, yes.) There are large ones, and some small ones, in every trap I placed over the weekend, after waking up with a single spider bite on Thursday morning. Yeesh. Ick. I sit down in my studio, paintings stacked everywhere (like spider condos…) and a grim chill runs down my spine; there are no sticky traps in here. (I ran out.) I find myself wondering how many spiders are watching me from crevices and corners right now…

I’ve creeped myself out completely now. So. Yeah. Great. It’s time for work. lol

… It’s time to start a new day. I can begin again. 🙂