Archives for posts with tag: TBI

Well…actually, we share a lot of experiences in common, don’t we? I mean, as human primates, generally, we do. We are each having our own experience. We are each pretty well consumed by the experience we are having, and see the entirety of the world through that lens – or is it a filter? I meantion it, because even looking back on myself, I sometimes find myself surprised by what has changed – and what has not.

In 2012, toward the end of the year (December) the news filled up with shock and horror, and set off my PTSD on this whole other level than I could have been prepared for. I found myself teetering on the edge of suicide, and because I struggled to communicate through the fog of all the other things going on in life, I was also largely emotionally unsupported during this time. I planned to end my life, I got my affairs in order, and I committed to making one last attempt at seeking help through therapy (mostly as a courtesy to my traveling partner, who had expressed concern that having gone off all the psych meds over time, I might need some assistance sorting myself out, which seemed reasonable). If you’ve shared this journey with me, here, you may recall that those early months of 2013 were dark times, indeed.

I practiced new practices, though, and I was still waking up every morning, by July 3rd, 2013. It wasn’t easy, and I struggled a lot. My demons fought me every step of the way. Still… I held on to hope, and kept practicing, studying mindfulness, and waking up each day to a new beginning. It was at least something.

I kept at it… practicing good basic self-care, working through my issues, building emotional resilience, beating back the darkness…. I learned to reach out for help when I needed it, with more ease, and more honesty, less fearfully. Trusting can be so hard sometimes. Life wasn’t perfect, and I understood that it wouldn’t be. I began to learn to tear down the heartbreaking foundation of my chaos and damage: the assumptions, expectations, and attachments that allowed the demons in the darkness to so easily call the shots. I began learning to love – to really love, not merely express affection associated with demands for the same to be returned to me. I learned some handy verbs, and began practices that seemed to improve my experience in amazing new ways. I began learning to listen. I began learning to listen to my own heart. I began to understand and I began to open up to new understanding. I began to set very firm boundaries regarding how I can be treated by others. It was an exciting and complicated time, and I had begun the frustrating process of embracing life, of diving in enthusiastically… and was forced to recognize that we’re not all working on that together, and to decide whether I would give up becoming the woman I most want to be… coming to terms with the reality that not everyone wanted me to be me, at all, was another piece of that puzzle.

I ultimately chose to end one relationship that was causing me great pain; we simply were not able to support each other, or grow together, and we didn’t really share any common values. It was painful, and ugly, and hard – moving on from it was harder than I wanted it to be. Sometimes I still feel that poignant moment of heartbreak, the awareness that love is not reciprocated is painful. Taking that step freed me from so much stress! I started thinking perhaps I was ‘well’ at long last, and all would be… effortless. lol Not so. There are still verbs involved. My first really trying emotional challenge after I moved into my own place caught me by surprise…but I had come a long way from 2012… I took care of myself with great care, and tenderness.

It’s a journey, isn’t it? This whole ‘life’ thing is pretty astonishing. When I ended my employment at the end of April, I wasn’t sure at all that I was making the right choice…but it felt a lot like that moment when I looked my first husband in the eyes as I hung from a balcony on a cold spring night – the only ‘safe’ way out of my apartment in that moment of pure terror. “Don’t do this!” he demanded angrily, looking down at me, still holding the knife he’d been threatening me with. “I have to.” I said quietly, just as I let go. Life changed. I’ve got this busted up back now. My scrambled brain is a complicated mess resulting from multiple head injuries – including the concussion that night. My perspective changed. It would change again, many times. Now, here I am, taking care of this fragile vessel on my terms, making things right with the woman in the mirror, nurturing this being of light on this strange journey without map. No idea where this goes, you know… I still have challenges. I keep practicing.

No good segue, sorry, this is… abrupt, but the the ideas that follow are connected, and the sequence I am offering them seems… adequate. I regret how awkwardly I’ve handled it, however. So. Moving along…

At one point, many years ago (decades), in what feels like another lifetime, I’d bought a battered bass guitar in a pawnshop and begun learning to play. I didn’t quite notice when the heartbreak of losing my guitar in the messy divorce also resulted, some-strange-how, in me simply never even picking up another guitar to play, ever. I just… let it go. I didn’t cry. I didn’t grieve. There were worse things to lose – worse things were lost. I told myself any number of things minimizing the importance, value, significance… and with some measure of success. I didn’t play guitar. Didn’t even try. That entire chapter of my experience was shut down. Shut off. Put away. Left largely undiscussed except as ‘once I…’, ‘there was this time when…’, ‘I used to have an awesome bass guitar…’

Some handful of weeks ago, I don’t recall precisely when, I started thinking about music differently. My fingers itched to play guitar. My heart would jump when a favorite bass groove got my attention during the day. I started ‘feeling it’ – the way I did when I first bought my bass, in 1987. I didn’t actually have it that long, when I look at the year – it was lost to me by 1995? 1996? (Do I have even one existing friend who ever saw it? My life broke like a dry twig in 1995 – a clean break with everything that had been, even what few friends I had (all but one) were cut off by drama, and change.) I started shopping around for anything at all bass-guitar-wise that I might be able to afford on my limited resources…  A dear friend had said, recently, when I discussed these feelings with him, “It’s never too late.”

She came home with me yesterday.

She came home with me yesterday.

I’ve been thinking a lot about mortality lately… I’ve long been aware that time is precious, finite, and really – there’s none to waste. It’s defining ‘wasted time’ that’s the challenge, isn’t it? What is worthy… what is not? I’m 53. I’ve started working out again. I’m not likely to get my 21-year-old body back, but it feels good, and being healthier is a win. Is the time wasted? Fairly clearly not. I’m 53. I’m learning to play bass guitar again. I’m not likely to become some esteemed ‘bassist’s bassist’ or renowned musician in the time between today, and whenever Death decides to make an appearance on my timeline. Is the time wasted? Perhaps it might seem so if my goal was fame and fortune… what if my goal is to learn another way to give voice to those things I don’t know how to say with words? Is my time wasted then? If I am doing it solely because it gives me pleasure to do so? Is my time wasted? If it helps me continue to rehabilitate my TBI, or soothe the chaos and damage? What is the value in the things for which we have passion? What is our time worth to us, ourselves?

My perspective is that everything I undertake to do, to learn, to experience, and to explore, has the potential to take me closer to being the woman I most want to be. I’m not sure that I have any other purpose as a being, other than to grow, and to become. Certainly it isn’t about reaching a particular bank balance, or owning a particular style of house, or living in a particular neighborhood… We all die human. Death doesn’t play favorites.

I didn’t understand how hurt my feelings were that I’d allowed a madman to take my guitar from me. I didn’t understand that I delivered that hurt, myself, and held on to it for decades, unaware that I was continuing to hold on to that pain, to build it and to nurture it and to defend it from being healed.  It mattered, and I ignored my pain. What a shitty way to treat the woman I was then – and the woman I am now.

Long post today. 🙂 It’s a good day to take another look at why I’ve held myself back, and to take a step or two on the path of making that right with me. What about you? It isn’t too late to do what you love – or what you yearn for. There will be choices to make, verbs involved – your results may vary. Good luck on the journey ahead – and remember, when you stop to ask directions, that other person doesn’t have a map, either. 😉

 

My morning began quite gently with the rare treat of sleeping in. I emptied the dishwasher while water boiled for coffee. I made a wee celebration of turning the page on the notepad I use for my ‘to do’ list each day, flipping the page over boldly, fully disregarding anything remaining on yesterday’s page (at least for now), and then cheerily walking away from it without writing a single thing on the blank the page. Yesterday wasn’t a bad day at all – it’s still over. Entirely past. Done. Behind me. I’ve turned the page. 🙂

What's left of yesterday? Photographs, memories, and change.

What’s left of yesterday? Photographs, memories, and change.

Today my intention is to keep things simple and enjoy the day. I have committed to some general tidying up, studying, and sorting through my thoughts on a topic that inspires me both as an artist and as a writer. It may be days or weeks in the making, which feels… amazing. It is a topic that pushes me to think differently about connection, intimacy, individuality, identity, interdependence, image, authenticity, and where my value as a being truly lies.

What exactly is an 'individual', anyway?

What exactly is an ‘individual’, anyway?

This seems a nice morning for thinking thoughts, taking notes, making observations, and for balancing presence with insight gleaned from experience over time. (Caution: there are no fewer verbs involved when the work we do is within ourselves!) I enjoy intimacy, connection, communion with others; I am a social creature. I am also an emotionally injured human being. Emotional injuries are those that, whether they are also physical injuries or not, hit us in the deep down places where our being resides, seemingly safe. The result? Mental illness. Post traumatic stress. “Anger management issues.” Difficulties connecting, attaching, and being intimate. Difficulties being comfortable, trusting, being social, sharing, cohabiting. Hurt feelings. Drama. Weirdness. Strange negative assumptions and expectations. Fear. I mean…maybe not all of those, for everyone, every time, but… yeah.  The effort to clean up the chaos and damage, find a better way to live, maybe even find a way to actually thrive in life… it’s slow going, not easy, requires practice – a lot of it – and verbs – too many. (Totally worth it.) The point I think I’d like to make is that sometimes it feels as lonely and distancing to be working on cleaning up the chaos and damage, as it does to have it in the first place. That’s okay – it’s a bit of a solo hike, sometimes. It sort of has to be. 🙂

Look closer. How many individuals are in this picture?

Look closer. How many individuals are in this picture?

It’s reassuring to consider that I’m not really in this alone. I’ve felt so alone sometimes. But… Really? I’m not – it’s an illusion, one that is, itself, part of the chaos and damage, isolating me and suggesting I am too broken to be accepted as a human being, too broken even, perhaps, to be loved. My results vary, and there are verbs involved, and sometimes it seems damned slow going – but I’m learning to go beyond being warily, passively open to connection (hoping for the best, certain no good can come of it), to being willing to reach out, to actually being open. It’s a very different thing. To be open requires a measure of vulnerability and authenticity that can feel pretty scary… What if it isn’t reciprocated?? I find some solace and security in the awareness that individuality, however defined, isn’t sufficient to fully undermine how interconnected we also are as creatures; we are not alone. I’m okay with that. Sometimes it’s nice to share the journey – it’s a long one.

I am my own cartographer, keeper of the list, and adult-in-charge, in this life that is mine.

I am my own cartographer, keeper of the list, and adult-in-charge, in this life that is mine.

This morning, I am alone with my time and my chores. Later? So not alone. 🙂 It’s ‘date night’, and I’ll spend the evening in the charming company of my traveling partner, filling my moments with love and laughter. The time has come to set aside the morning in favor of the day… Today is a good day to pause and enjoy progress over time, and to appreciate and enjoy the woman in the mirror.

…To escape myself, and I walked another mile to be alone with my thoughts, and I walked a mile after that to achieve a goal. Along the way I discovered, again, that my baggage goes with me on every journey I take, that my thoughts have no substance that I don’t give them myself, and that goals are chosen – often rather randomly (and sometimes achieving them fails to satisfy). 🙂

The thought of a goal, of a  destination, is no more real than any other thought.

The thought of a goal, of a destination, is no more real than any other thought.

I was excited to read that there is now a public transportation option to reach Multnomah Falls – how cool is that?! I was also fairly earnestly needing some time away in the trees… The opportunity seemed a good fit, and I took it.

The map is not the world. The fantasy is not the reality.

The map is not the world. The fantasy is not the reality.

It was a crowded trip over on a shuttle bus just filled to bursting with corporate douchebags on vacation. What is it that makes people just keep talking louder in a noisy place, thereby increasing the volume and density of the wall of noise? What makes videos on cell phones more interesting than beautiful mountain scenery? What makes a firm, over-confident, absolutely-no-risk-of-error tone of voice so often associated with colossal bores and aggravating asshats? lol By the time the shuttle pulled into the parking lot, I knew a great deal more about many of my traveling companions than I cared to, and was already bored with the movies some of them are purportedly making. lol (And, for what’s it’s worth, Dude, although I didn’t say so in-real-time, it’s really just not actually any of your business what her career choices are, or what they are ‘about’, and I sure wish you could have stopped yourself dissecting them because I’m pretty sure the woman you were insulting ‘behind her back’ was the one sitting close enough to hear you, based on her silent, visibly evident fury as you spoke.) Have I bitched enough about the shuttle ride? I could also take a moment to mention how awesomely convenient it was, and how pleasant and skilled the drivers were. 🙂

Hey, Everyone - look at this! lol

Hey, Everyone – look at this! lol

I’d forgotten that the ‘real’ reason I rarely travel to these trails is less about distance or convenience, and more about crowding. As with any popular landmark or location, Multnomah Falls is crowded. Really crowded. In spite of the rain that poured continuously from the moment the shuttle pulled away, this water fall is so popular that dense crowds line even the narrow rocky trail beyond the first walk-up view-point, and the bridge above it, too. Even at the top of the falls, a slippery, rainy, steep mile high or so, the crowds were…crowding. It was a first-rate opportunity to see how well (or poorly) our society works together… some parents gently/firmly cautioning their kids to stay on the trail (as also directed by signage), others completely disregarding their feral offspring darting here and there between moving adults, on and off the trails, over and around barriers, walking the tops of walls, running, jumping, shouting… Yeah, I didn’t find it a particularly pleasant hike. I struggled to find balance, peace, stillness – the trees themselves seemed impatient with the noise. And it rained. It rained hard enough, continuously enough, that not only did I need the rain gear I inevitably stuff into my pack, but also hard enough that my camera wasn’t very useful.

In spite of aggravation all around, there is still beauty.

In spite of aggravation all around, there is still beauty.

I found myself relying heavily on practices for managing stress. Finding any quiet spot was a challenge.

There is time for beauty - I only have to take the time I need to enjoy it.

There is time for beauty – I only have to take the time I need to enjoy it.

With the rain falling, it was difficult to make the best use of my camera, and I found that to be one actually okay thing about the day’s hike; I was there every moment. 🙂

So many people looking at the same thing, taking the same pictures...

So many people looking at the same thing, taking the same pictures…

By far the best pictures from yesterday’s hike were all the many pictures I simply couldn’t take because of the rain; they are the memories of the moments, and the day, and at least for now they are as clear and sharp as any photograph. “Wow” sights that would be difficult to photograph (for me)… bits of jovial conversation among strangers on a rainy crowded trail… the smell of wildflowers… laughter… and a couple good miles toward my fitness goals, all worth experiencing, no camera required.

I headed home much sooner than I might have, had the location been quiet, comfortable, and less (much less) crowded. The shuttle back was quieter; most people riding it clearly were not the sort to spend many miles on their feet, and there was a lot of napping going on. I enjoyed the quiet, and the scenery.

One last picture.

One last picture…my favorite of the day, taken by mistake while I fussed with the camera to take a different picture altogether – that didn’t turn out. There’s a metaphor in there, somewhere. 🙂

The rain continued to fall… until I stepped off the light rail, close to home.

It was an unsatisfying hike, as hikes go. It was a peculiar day, spent crowded together with strangers – when I had been seeking solitude and peace. How very strange to make the choices I did. I sip my coffee and consider it further; it seems clear I could have anticipated all the details that were uncomfortable, and could easily have chosen differently. What was I thinking? It’s not a matter of discontent – and I’m not actually ‘bitching’, more… curious. It was an interesting adventure – and I realize as I consider the day in the context of living life that it has more value that I thought to give it, initially; I now know how easily I can reach those more distant gorge trails – and that’s pretty sweet. Just beyond the crowds? The wilderness. 🙂

Eventually, steps add up to miles, miles add up to distance, and distance traveled eventually becomes a lifetime of experience. I still have to take all the steps, do the verbs, practice the practices… and some days it rains. 🙂

I woke in pain this morning, to a chilly gray rainy day. Yesterday’s sunshine is a memory. Today, pain takes a firm determined step forward; I am often in a lot of pain on the rainy days I love so much. It’s an arthritis thing, I suppose. Still, it’s a lovely morning so far in spite of that, and I sip my coffee and make my list contentedly. I look at my list and realize I’ve jotted down a task I’m unlikely to be physically able to do today…I cross it off. Tomorrow, maybe.

Yesterday's sunshine...no more real now than any other memory unless I savor it and make it my own.

Yesterday’s sunshine – a lovely memory.

It’s early, still. Meditation, yoga, a walk, and a shower – the morning is well underway. My physical pain distracts me. I pull my mind back to other things – things that matter more to me; it’s ‘date night’ with my traveling partner. Our time together is so genuinely at ease, so deeply connected and passionate, so emotionally supportive, so playful… I’m still awed by this amazing love we share. 🙂 It’s worth pausing often to appreciate it, especially with impermanence being what it is, and change being a thing. I don’t know what obstacles may exist on the path ahead, or what twists life may sneak into future of love. I am learning to enjoy what is, without wailing over what isn’t – or taking every damned thing so personally that I am unable to understand that we are each having our own experience. Incremental change – incremental progress. 🙂 I keep practicing.

We choose our path, but sometimes the way ahead is not obvious until conditions are right.

We choose our path, but sometimes the way ahead is not obvious until conditions are right.

There’s plenty to practice, isn’t there? Life is rich with complexity, full of stress, and so busy it all seems to happen so fast – too fast, sometimes. Yesterday morning, I could feel how very precariously poised I was, between a full on meltdown, and something different from that. I was uncertain I would be able to maintain emotional balance, perspective, and contentment in the face of the numerous stressors piling up, and the growing feeling of being overwhelmed somehow. I took the day, and I took care of myself. Meditation. A walk in the sunshine. More time meditating. Time spent in the garden among green living things. Some time enjoying coffee in the sunshine on the patio. Meditation. Healthy nutritious meals made from whole fresh ingredients. Adequate sleep. Mediation. Comfortable clothes. An orderly environment. Appropriately timed medication. I spent the day being purposefully kind to myself, and as much as possible taking action, rather than reacting. By mid-afternoon, I felt reliably, sustainably content, comfortable in my body, safe with my thoughts, and secure physically and emotionally. 🙂 My results vary – it could have gone quite differently, and I was prepared that it might.

There's more than one path, more than one way, more than one choice; there are a lot of verbs involved.

There’s more than one path, more than one way, more than one choice; there are a lot of verbs involved.

So here I am today. Today seems nice so far… the pain is not relevant to that, and it may not be an impediment to enjoying the day in relative comfort. Even here there’s a balance to be found, the balance between distracting myself from hurting, and being sufficiently aware of it to take appropriate measures at regular intervals: moving around, taking those effective pain relief measures available to me, taking ‘yoga breaks’… It’s easy to get mired in the sensation of pain and overlook that it would ease if I got up and did something else for a few minutes. 🙂

I keep practicing.

I keep practicing.

Even my heart is at ease today. That was not so much the case yesterday. Ah, but it isn’t yesterday now, is it? I begin again. Today is a good day to take care of me. Today is a good day to enjoy the things about life that I find most enjoyable – and maybe find some new things to enjoy as well. Today I begin again – again. 🙂

Yesterday was an odd day. Once it got going, it seemed fractured, busy, filled with distractions and generally just a bit too much. It was difficult to maintain focus on the job interview scheduled in the afternoon, and I was fighting a sense that “I don’t want this!” that was also ‘unsourced’ and more a vague impression than a clear signal something was amiss…did I ‘not want’ the stress and distraction of waiting for the scheduled interview? Did I ‘not want’ the interview itself, the job, the opportunity… or something completely unrelated? I handled the day without regard to the sensation, and set it aside for later consideration. I expected the interview might go poorly, based on my state of mind going into it.

I was incorrect. The interview went very well. This proved to be equally problematic, frustratingly, because I found myself completely over-excited, like a kid going to a favorite theme park; the clue is in the feeling, and I recognized that much of the excitement was anticipatory, which also means it isn’t a feeling about things happening now, as much as the potential for things that have not yet occurred to occur in the future…which is also not super helpful in the moment I’m in. When I found myself escalating in emotional intensity very quickly, I went a step beyond enjoying the experience, and made room for the awareness that for me, this pleasurably intense experience also held great potential risk that when I ‘crashed’ from the delicious emotional cocktail, I could find myself unmanageably irritable or frustrated by something small, as well as more reactive than responsive (considering the existing highly reactive, though pleasant, state of being at the time). What to do?

There was a time when my understanding of managing emotional highs and lows was that it required me to cut off the highs, because it was a necessary byproduct of any attempt to cut off the lows; the basics of Rx mood management using existing pharmaceuticals sometimes relies on this unfortunate trade-off. Sadly, I didn’t find the strategy particularly effective. I still had the highs and lows. The lows were still… yeah… okay, let’s not talk about the lows just now. The highs, while they felt pretty splendid to me, were not necessarily always comfortable for loved ones or coworkers, and nearly always put me at greater risk of ‘saying the wrong thing’. I was still very volatile and reactive, still prone to horrible tantrums, prolonged crying jags, confrontational levels of irritability…and on those medications, although the difficult days were somewhat less difficult, and possibly less frequent…so were the good days both less enjoyable, and less frequent. It wasn’t working for me…and mid-way through 2013, my strategy had changed/was changing a lot, in favor of learning to be more mindful, and to treat myself with greater care and consideration. It has changed a lot of things for me. It changed my yesterday.

Still the most powerful Rx for treating the chaos within...

Still the most powerful Rx for treating the chaos within…

Yesterday, feeling the surging excitement and finding myself restless, filled with nervous energy I struggled to harness productively, and concerned by the potential for my mood to crash suddenly, I put myself on pause and emailed my partner that I’d be going offline for awhile and difficult to reach (good expectation-setting prevents needless worry). I practiced the one and (currently) only practice that addresses an escalated state of over-enthusiasm, child-like extreme excitement, and eagerness run amok and becoming chaos; I took a seat on my meditation cushion, no distractions, no agenda, no music, no plans. I meditated. Nothing fancy; I focused on my breath, and brought my mind back each time it wandered, with patience and genial contentment, and without frustration. I failed a lot. I began again each time. My mind would wander. I’d reel it back in. I fussed and fidgeted. I calmed myself and began again. It works. It’s easier over time. In this case, easier over about 2 hours time, which I followed with a leisurely soak in a deep hot bath with Epsom salts. (Looking back on that, reversing the order may have been a more efficient choice…)

It wasn’t as if there weren’t things I could be doing. Now I could do them. I finished off the tasks I’d planned for the day, and enjoyed a gentle evening, having regained a sense of perspective and calm. I smile now, thinking that there are no doubt people who would balk at the mere suggestion that meditation might take 2 hours of time out of the evening, or away from their family, or any number of other reasons it’s too much time to invest in one’s self… but… 2 hours? The length of a movie? The amount of time typically consumed watching back to back TV shows that won’t even linger in memory? Seriously? And for pharmaceutical-free mood management and mental health support? Seems worth it to me. (What do I know? I am not an educated mental health professional. I’m not a scientist, or clinician. It’s an opinion, relevant entirely to my own experience… Your results may vary. Mine do. But… seems worth trying. Maybe trying again.)

The evening wasn’t fancy, but it also wasn’t broken. It was a lovely quiet one. I enjoyed the evening as it began to wind down.

Yesterday's sunshine.

“The Alchemyst” blooming in yesterday’s sunshine.

This morning I woke gently, and without much pain. It seems an ordinary and pleasant morning. I smile noticing that those two qualities are now paired in my experience day-to-day: ordinary and pleasant. I’m not sure when that change occurred. “When” doesn’t matter as much as that it is a thing that exists now. Incremental change over time is worth the practicing, worth the self-care, worth the attention to details that matter to no one but me in the moment – and it’s worth being patient for. There are still verbs involved. I know I’ll likely still have difficult dark days when I struggle to choose well, even when I see the choice that will serve me best spelled out in front of me. I’ll begin again. No doubt it will be necessary to begin again sometime after that, too. It’s ‘practice’ because there is no ‘perfect’; it is the nature of journeys to continue. I’m okay with that. 🙂

Walking my own path, one step at a time.

Walking my own path, one step at a time.

I don’t know what today holds… Most likely it will be enough. 🙂