Archives for category: Brain Injury

I slept well, and deeply, and even slept through the night. My coffee is prepared – I haven’t tasted it yet. This morning, like so many mornings, is pleasant and quiet. The morning seems to lack any connection to the stress and weirdness of the night before. That’s pretty pleasant, itself, and represents a significant improvement in outcome. Practice may not make ‘perfect’, but it definitely has the potential to change things; I know to be thoughtful about new practices, mindful of the new outcomes, and careful about attempting to choose wisely what will meet my needs best over time.

Last night it was basic self-care and self-compassion for the win, and I am okay. I was okay last night, before I went to bed. Hell – I was ‘okay’ even while I was crying, really. The emotional moment passed – I knew it would. Nothing so intense is really sustainable. And, as is often the case after the fact, I’m not at all sure now what it was that was actually upsetting me so much. There is no requirement that I have certainty about what may have caused prior tears; deep-diving those details is just asking for more, and it is a process that generally lacks the value it seems it might have…or feels as if is should have. There are other, more effective practices, and certainly there are other, more pleasant, uses of my time on a quiet morning.

Summer berries, summer sky.

Summer berries, summer sky.

So. Here it is morning, again, and another lovely one. I’m content with having made progress such that pleasant mornings are so commonplace. I miss my traveling partner – that’s not uncommon in the mornings, although I also very much value the deep quiet of solitude, greatly; it’s very good for writing. Still…we do well together in the mornings, and I miss having the occasional unexpected quite exceptional latte, made by loving hands. It was my traveling partner who taught me the value of quiet leisurely mornings, so of course I do associate the experience with him, even though it is quite rare that he is up so early, himself. Shared mornings are less common living apart, making them even more precious when they occur.

That’s one element of living alone that I treasure beyond words; the profound way my traveling partner and I are able to make every moment together count. There hasn’t been a single trivial argument – or any argument, actually – and so little stress between us that I can’t recall it at all, since I moved into my own place. We just don’t waste time on negative bullshit, or drama these days. The time we share is limited, precious, and put to the very best use: love and loving. Mortal lives are short – there really is no time to waste on contentious foolishness or game playing. Letting go of that sort of thing has resulted in a life that feels rich, warm, and uplifting most of the time, resulting in an environment that really promotes growth and healing – we are on a shared journey, with shared goals. It isn’t really relevant that we live in different buildings at all. Cohabitation doesn’t dictate the quality of a relationship – and a building isn’t the essence of ‘home.’ You probably already knew this stuff – I’m very much a beginner in the School of Life. (Did you know there actually is a School of Life on the internet? It’s pretty awesome.)

Oh hey…I got distracted by thoughts of love…and sex… lol. Time has passed. The morning begins with smiles and thoughts of love – that’s a good start to the day. There remains time enough to hit ‘publish’, and do a little housework; I love coming home to a well-kept tidy home, and I love waking up to one. Each morning I do some housework to prepare for coming home from work…each evening (often before bed) I do a bit more, so that when I wake I step into a lovely orderly space. This suits me. It is ‘my way’.

Summer flowers.

Summer flowers.

Today is a good day for beginnings, and good practices. Today is a good day to appreciate love and lovers. Today is a good day for gratitude, awakenings, and growth. Today is a good day to heal. Today is enough.

 

 

I had a lovely dinner with my traveling partner, after a very productive and thought-provoking appointment with my therapist. “Effective” is a good word. Maybe follow that one with “important” and “relevant”, maybe add “needful”… now I am alone. Alone is hard right now.  I don’t even know why I’m crying, right now… It is a measure of progress that I know it won’t last and that trying to stop the tears has other, sometimes profoundly negative, consequences. The tears themselves serve a purpose, the science says, and will reduce my (apparently high) cortisol levels faster than most other things might.

The a/c is on, and the house is cool. The day has been very hot. I got home with a headache from the heat, and more than a little noise-sensitive, uncertain if I might be ‘dealing with the appointment’ – there is often a delay between the appointment dialogue itself, and ‘when it hits me’ later. Often. More often than not.

It passes. I remind myself that it will. I breathe. I let the tears fall. I feel grateful that I didn’t get to this place while hanging out with my traveling partner – he is supportive on a supremely deep and connected level, but I know that going through these things with me is hard on him, too. It is, frankly, one of the reasons I moved into my own place – some of this is ‘easier’ to face alone. Sometimes is just harder, in general, to face it at all.

I have all the usual choices in front of me. All the practiced practices supporting my emotional resilience – much improved over the past two years – and I feel equipped to take care of me, even now – but fuck it’s harder than I want it to be. I think back to the morning’s contentment and ease. There is another morning tomorrow, and surely I will not still be weeping. I don’t understand why I am weeping now…unless it is simply that some stuff really is worth crying over – at least once – and some of it I just never got to that part at that time. I was too busy enduring, surviving, overcoming, managing, withstanding, and holding on to whatever fragments of self I could maintain in the chaos. The damage piled up, and now I am crying. So. Okay. Now what?

A bit like squinting at fruit I can't reach, with the sun in my eyes.

A bit like squinting at fruit I can’t reach, with the sun in my eyes.

A few more deep breaths. A big drink of water – it’s a hot day and the headache itself is enough to make me weep. A cooling shower…comfy clothes…yoga…meditation…medication (medical cannabis, I’m looking your way on this one!)…and being gentle with this fragile vessel and the tender hurt thing resting within it. We’ll be okay, this woman in the mirror and I; we’re making this journey together – and we aren’t traveling alone; I’m never far from my traveling partner’s thoughts. I could call, right now, and he would answer.

Hell…incremental progress over time is – and in fewer than 500 words, harder already seems a bit easier. I wonder for just a moment whether posting this is “necessary” and realize…maybe that isn’t about me, at all. It wouldn’t be a very complete narrative if I just take the bits I don’t find comfortable out of it. Isn’t that part of what hasn’t worked for me before? It seemed ‘too easy’ – and not relevant to the very real ups and downs. The failures. The struggles. How much harder it sometimes seems…the tears. I get back up. I start again. I let it pass.

It rained the other day, quite a lot. It isn't raining now.

It rained the other day, quite a lot. It isn’t raining now.

This morning I woke with the alarm, and having shut it off, lay quietly a moment – and nearly fell asleep again, then couldn’t recall if the alarm had gone off… or perhaps I’d only dreamt that it had? I checked the clock somewhat reluctantly, not really wanting to find out what I already knew; it’s morning, and yes, the alarm went off. I rose without giving the matter further thought, and was already in the shower before I realized my arthritis pain is much less today – hot weather? It’s in the forecast, so, probably.

The a/c was off through the night, and the apartment felt a bit stuffy – another sign of a hot day to come – so I opened the patio door to let the pre-dawn chill fill the place. I looked out over the lawn, lit in places by the lights along the walkway between buildings and the pool; there are rarely any other windows with light showing at this hour. I spotted … a large long-haired cat? No – a raccoon. Quite the largest raccoon I’ve ever seen in my life. She sat very still, watching me watching her, then – rather strangely I thought – she started slowly moving toward me. How peculiar…or…oh. Not peculiar at all. Half a dozen or so guinea-pig sized youngsters were playing on my patio, quite near my feet, without a care in the world – they’d found some stray gladiolus bulbs in my garden gear – apparently those are quite the fun objects for play, for small raccoons at dawn. I went for my camera – I definitely wanted a picture of the racoon family visiting this morning… They were still there! I remembered the flash, too – I was as excited as a little girl, and it was hard not to bounce, giggle, exclaim, or otherwise inadvertently terrorize my wild neighbors. Camera ready….and…

...and I forgot to open the screen door. The flash warned off the racoons, who quickly departed.

…and I forgot to open the screen door. The flash warned off the racoons, who quickly departed.

My coffee still tastes good. I still got to watch what appeared to be a small herd of wee raccoons enjoying the morning on my patio, so near to me I could potentially scoop one up to cuddle it (which, I’m just saying, seems like a very poor choice of action in practice, and I did not attempt it; that mother raccoon was simply huge and entirely fearless). I still have a lot to learn about taking pictures. 🙂

Surprises and happenstance work like that, don’t they? Opportunity, chance, coincidence – the unlikely win, the happy accident, “good luck”? There are wonders to be seen, and great things to experience – but when I am not aware, observing, and present in the moment I miss out on a lot of loveliness, fun, and experience – and overlook so much of my good fortune. I’m learning to let spontaneity have its moment; I find it a bit scary to face life without some structure and planning…but raccoons don’t seem to mind, and the missed shot with my camera reminds me of something important; it’s the experience itself that really matters, that has substance and value in my recollection – the picture is a memory in a share-able format, nothing more really. The map is not the world. The documentation is not the circumstance. So many of life’s richest and most precious moments can’t easily be captured in a photograph.

There is a lot of wildlife nearby Number 27. I have a lot to learn about taking pictures of animals living their lives; they don’t take direction well, and do insist on simply going about their own affairs. Certainly, I am doing the same, and don’t ‘set up the shot’ when I am living my life. There’s probably a lesson in there some where.

I did get a rare picture of my very shy clown pleco, yesterday morning - catching a glimpse of him so unexpectedly delighted me.

I did get a rare picture of my very shy clown pleco, yesterday morning – catching a glimpse of him so unexpectedly delighted me.

Similarly, on the commute, I had a chance to enjoy the company of a fairly large squirrel, enjoying his morning stroll along the commute to work.

Similarly, on the commute, I had a chance to enjoy the company of a squirrel, enjoying his morning stroll along the commute to work.

From the commonplace to the fantastic, there is more to life than I have the ability to experience all at one moment, even when I’m “really watching”. Awareness – mindful presence in the moment – is the thing that brings so much of what I do experience into my field of view. Self-involved rumination, and obsessive mental gear-grinding definitely result in a much narrower world-view with fewer ‘points of interest’ to delight me. Frankly, if I’m chewing my nails and worrying grimly about this or that, I’m just not looking around me at the world. There are verbs involved – and now, raccoons!! 😀 (I still grin every time I recall seeing those tiny raccoon faces looking up at me, just at my feet – I almost missed them – and they were so tiny and adorably cute!)

One concern I had when I moved into Number 27 was that I might find myself living a life of such routine, and rigid habit, in order to be assured of taking good care of myself, that I might not easily distinguish one day from another, and that life would be wasted on the mundane without forward momentum… just… time… passing… until, inevitably, death. Grim. It hasn’t been that way at all – neither has life unraveled until chaos took over. It’s seeming to be quite well-lived, with sufficient structure to feel secure, safe, and comfortable, and sufficient looseness of habit, and prominence of spontaneous use of will to be an everyday adventure… every day. I’m quite enjoying it.

Most days I drink my coffee black; it is my habit.

Most days I drink my coffee black; it is my habit.

Sometimes I choose differently - whim, or choice? Are those different?

Sometimes I choose differently – whim, or choice? Are those different?

Now and then I do unspeakably delicious excessive things with coffee and ice cream... also a choice... and a very tasty reason to have good habits, generally. :-)

Now and then I do unspeakably delicious excessive things with coffee and ice cream… also a choice… and a very tasty reason to have good habits, generally.  (Kids, don’t try this at home…or…if you do, skip the rest of your meals; this one is ‘calorie rich’!) 🙂

 

I expected to be painting more, sooner – but there is no lack of creative inspiration, or the drive to follow through on it – I am simply more focused on my writing for the time being, and often combine those experiences to write little note cards to friends, family, and loves with sketches and fun doodles, bits of poetry and such. I remember quite fondly how much I enjoyed writing letters when I was much younger – before the world was digital. I remember, too, how meaningful such things were when received from far away (particularly during war-time). Here too, in the smaller routines and experiences of daily life, being comfortably free with my choices makes so much difference; I harm no one to choose writing over painting, or sketching over poetry, or yoga instead of dancing, or reading instead of meditating… there are so many ways to take care of me, and meet my needs over time. It matters most simply that I do – and there are verbs involved.

Sometimes it's less about the individual details than it is about the feel of things, generally.

Sometimes it’s less about the individual details than it is about the feel of things, generally…

...but the details do matter, and there are wonders within reach if I am willing to see them.

…but the details do matter, and there are wonders within reach if I am willing to see them.

It’s a lovely morning. I’m quite content. That’s enough. 🙂

I woke ahead of the alarm, and almost immediately my thoughts turned in a dark direction, filling with negativity, doubt, imagined hurts – all in the seconds after waking, before my broken brain really has a chance to boot up and fight the demons in the darkness. With a sigh I flip on the light – and reach for the alarm clock. No way to I want to hear it go off – my internal alarm bells were already clanging away.

I took my morning medication and went straight for the music – “Bitch Don’t Kill My Vibe” for openers, first thing, and loud enough to hear in the shower. In this case, the ‘bitch’ in question is the woman in the mirror – and I sing along, right to her face, all through my shower and getting dressed for the day. Seriously? Acknowledging the power of my own freedom to choose, and the potential it has to color my experience, means on a morning when my own brain attempts a sneak attack – it’s totally okay to call me on my bullshit, myself. By the time my coffee is ready, I expect to be past the difficult waking moment, without using up the emotional reserves necessary to deep dive the chaos and damage; it’s enough to recognize that I have more than my share, and understand that it can make for some challenges now and then. (At least, that’s definitely enough at 4:30 am on a work morning, before I am even completely awake!)

By the time my coffee is ready – I’ve recovered my now-utterly-routine peaceful leisurely morning. I celebrate with my favorite bounce back anthem. Dancing from the kitchen with my coffee, singing along as I cross the room with a wink and a smile at the woman in the mirror – that crazy bitch knows I am not taking her bullshit today! lol [Reminder: there are no literal voices in my head, and I am just this one person right here – but I do find it handy to face the woman in the mirror on terms that allow me to communicate more easily with myself across the chasm of this injury and the vast piles of chaos and damage left behind from other experiences with other people.]

It’s a morning for music, I guess. I am moved.  Listening to “Love Sex Magic” when it comes up in the playlist, I grin and feel the residual heat and fervor of my love for my traveling partner…and on some other level, my pure delight and animal enthusiasm for healthy adult play, generally. Few things chase the demons back into the darkness like a really good playlist. 🙂

Aside from the complicated moments immediately after waking, it’s a lovely morning. My coffee is tasty, smooth, hot – and I managed it without spilling boiling water on the counter when I moistened the filter, or getting dust from ground coffee all over the floor – I often do both. It’s okay; I’m learning not to take my own humanity personally, or treat small such ‘mistakes’ as any reflection on my worth as a human being, a partner, a lover, artist, writer, or woman – hell, it’s not even “about” having a brain injury. Every human, everywhere, has moments of clumsiness, makes mistakes, causes a mess by mistake, or falls short of their own vision of who they can be on some occasion. Perfect? It’s not a thing in real life. I’m over that. I haven’t lost anything but some needless heartache to let go of emotionally brutalizing myself over ever action or outcome that could be viewed as a mistake – and with good reason, frankly; too many of them turn out to be, if not utterly necessary in some unanticipated fashion, just not a big deal at all, and definitely unworthy of the drama, turmoil, and hurt. I figure, over time, continuing to treat myself well in this fashion will also result in having the reaction, itself, come up far less often. That tends to be how incremental change over time works out.

My arthritis is hurting a lot this week. Dancing helps – hurts, but it does help, and the easiest way to overcome the inertia of pain is to find movement irresistible – that’s dance, right there, isn’t it?  Turning on the music this morning was a good call for my body, as well as my heart and mind. My playlist is mostly dance tracks, hip hop, crunk, and couple of other favorites that ‘don’t really belong here’ (Santana, Billy Idol, Skrillex) … only… this is my playlist, and they do ‘belong’. How much easier would so much of life be with practices that made the practicing itself irresistible? There’s often a real thrill or moment of gratification associated with experiences in life that present the greatest risks of negative outcome… sex… money… rage… That’s more than a little bit inconvenient for a woman with a dis-inhibiting brain injury, trust me. I’m glad I can yield to the urge to dance without concern for adverse consequences. 🙂

A summer day, a journey that continues.

A summer day, a journey that continues.

The point this morning, as much as anything, is that I am often in my own way more than anything else is. Injuries do happen. Pain is part of the human experience. The constant struggling is a choice. Learning to make my choices differently is a process. Today is a good day to practice the practices that are working best for me. It’s a good day to remind the woman in the mirror I won’t be taking her shit, either; we need each other, but I won’t be allowing her chaos and damage to call the shots, when I can avoid it with other choices. Today is a good day to enjoy the journey.

This morning my arthritis pain is…well, it is. But it isn’t as much so as yesterday, and the improvement is the foundation on which my smile is built, this morning. My coffee is hot and tasty, and the morning is chilly – this seems a pleasant combination, and tends to reinforce the smile. On my way to make coffee, I spotted my rather shy clown pleco (Panaqolus maccus) scooting out of view and I grin from ear to ear to have seen him at all. He has his favorite hiding spots and generally only ‘comes out’ when he’s pretty sure no one is watching.

The only picture I've gotten of my clown pleco since I moved.

The only picture I’ve gotten of my clown pleco since I moved.

So far, a basically pleasant morning, filled with small things to smile about, and some arthritis pain. I start to think ‘not bad for a Monday’ and catch myself rolling my eyes rather dismissively; there’s nothing ‘wrong with’ Mondays – and setting those expectations, even in a back-handed way, is no way to treat myself, particularly on an actual Monday. I find my thoughts wandering to ‘how did we find our way to a place where Mondays are given such a poor reputation?’ We can get pretty worked up about how shitty Monday’s might be (or tend to be, or seem to tend to be, or are rumored to seem to tend to be), but in practice, are Mondays actually any worse than any other days? Maybe Mondays are worse for people coming off a weekend bender and having to drag themselves through an ugly commute into the office to commit acts of servitude in corporate purgatory…but even that…I feel kinda bad for poor Monday having to listen to people talk shit on her all the time. Pretty good that she’s not a person.

This particular Monday seems to be starting well, at least for me. I am not reading the news – even the articles linked by friends on Facebook get no attention from me this morning. They’ll be there on Tuesday, no doubt. I am enjoying my coffee, my yoga, my meditation, my writing. I am enjoying an email from a dear friend. I am enjoying a pedicure, and a foot rub – oh sure, I know as well as anyone else that a foot rub I give myself doesn’t feel ‘as good’ as a foot rub given to me by someone else…but living alone doesn’t mean I simply go without everything that feels good. lol. That would suck, wouldn’t it? (I assure you, a foot rub I give myself still feels pretty damned good.) I woke a little ahead of the alarm this morning, and feeling well-rested, I got up. There’s more time in my morning, and on a Monday I suppose I could go to work early…but damn, what does the job ever do for me that I didn’t straight up earn in the first place? Nothing. I do verbs of a variety of sorts, for a variety of purposes and persons, all the time, and certainly I am worthy of investing in my own needs and pleasure on a Monday morning; the job will still be there at the usual time. I choose to put my time and my effort where it will be most appreciated this morning – in myself, and meeting my own needs.

The sun rises noticeably later each Monday. It is still summer, but this morning is not a hot one, and I am pleased to wear something less…sleeveless, for a change. The morning is comfortably cool. I smile, noticing the time; it’s only now the time I usually wake up, a leisurely Monday morning, indeed – with plenty of smiles.

I spent much of the weekend, in spite of pain, puttering around the apartment continuing to ‘move in’ – smaller tasks, now, but the details are part of what makes this place “home” for me. In the rush of having to move ahead of schedule (my safety is more important than financial concerns, honestly), details that I would have handled quite differently got…’managed’ hastily and without much forethought: paperwork stuffed into drawers, unrelated items packed into boxes that were not well-labeled, and on moving in some cupboards were stuffed with things that “don’t really go there”, just to reduce visual clutter enough to create a sense of order, and momentum to continue unpacking.  I love creating order from chaos. I love the sorting process of figuring out where things most ideally go for both storage and use. I love creating this space that “feels like I live here”. The small details of moving in delight me – my comfort, built on my choices. It’s lovely to have this autonomy after so many years of conversations resulting in me compromising what works for me so that someone else can have what works for them. I guess that sounds pretty selfish… for now I am okay with that. I have lived a lot of years making do in living arrangements not well-suited to the issues I have, or set up such that daily life is an impediment to therapy, or rehabilitating this injury. I’m overdue to enjoy things “my way” for a while. (First, I’ve had to figure out what that is…) 🙂

Monday? It’s a good day to spend time with the woman in the mirror. It’s a good day to take a ‘no compromise’ approach to treating myself well. It’s a good day for simple pleasures, and for bringing a smile into the office – and into the world.