Archives for category: Brain Injury

I’ve spent the day relaxing in this quiet room, and providing my Traveling Partner with caregiving. It’s detail-oriented personal service work, providing care to this human being I love so deeply. Still, it has been a day with ample time for reflecting on life and love and what I have learned along the way.

Here are 61 lessons from my mortal lifetime thus far:

  1. There’s always something more to learn.
  2. Change is a constant.
  3. Zest for life is closely tied to experiences of wonder and awe.
  4. Self-care matters.
  5. Meditation is an effective practice.
  6. We become what we practice.
  7. We each have the power to define success for ourself.
  8. Setting boundaries is a self-care practice.
  9. Our values are not what we say they are; they are what we live and practice.
  10. Taking the time to do something well is reliably more efficient than having to do it more than once.
  11. Anxiety is a liar.
  12. Chasing happiness does not result in greater happiness.
  13. Lust is mostly a matter of biology.
  14. Savoring life’s small joys and making time for gratitude builds emotional resilience.
  15. Human primates operate “emotion first”.
  16. Our quality of life is more dependent on the quality of our relationships than the size of our paychecks.
  17. Assumptions are not facts.
  18. Expectations are not facts.
  19. Opinions are not facts.
  20. Beliefs are not facts.
  21. The catchiness of a slogan has no bearing on its truth or usefulness.
  22. Very few of life’s stressful moments have lasting impact.
  23. I probably need to drink more water.
  24. “Wealth” is relative.
  25. The person who throws the punch doesn’t get to decide whether it hurt.
  26. We are each having our own experience.
  27. A lot of the crap that bothers us most is shit we totally made up in our own heads that has no actual basis in reality.
  28. Self-reflection can help develop perspective.
  29. Rumination can be really damaging, and tends to limit perspective.
  30. The difference between rumination and self-reflection can be subtle.
  31. Emotional intelligence has real-world value.
  32. Getting enough rest is as important as drinking water, eating healthy food, and exercise.
  33. Solitude can be rich, beautiful, satisfying, and nurturing.
  34. Few people recognize their own confrontational, hostile, angry, or escalated tone of voice.
  35. Forgiving someone is a thing we do for ourself, not for the person being forgiven.
  36. People notice when someone isn’t paying attention.
  37. Distracted driving is potentially lethal.
  38. What we think we understand about human behavior isn’t reliably accurate, and can’t be assumed to apply to all people in every circumstance. It doesn’t.
  39. People are people.
  40. We’re all in this together.
  41. The journey is the destination.
  42. Your lived experience is yours. My lived experience is not yours.
  43. How you behave when you think no one is watching will tell you what your values truly are.
  44. Rationalizing poor behavior doesn’t make the behavior any better.
  45. We feel our own pain the most.
  46. Our ability to understand the world is limited by our perspective.
  47. Being a dick to people is a poor practice with predictably poor outcomes.
  48. Thriving and surviving are two very different experiences.
  49. Reading is an incredibly useful skill, the benefits of which are multiplied by enjoying it.
  50. Art is a way of expressing the things we don’t have words for.
  51. Language functions by agreement.
  52. Carefully defining the terms in a discussion prevents a lot of arguments and misunderstandings.
  53. Apologizing without sincere contrition isn’t really an apology.
  54. Apologizing while making excuses for how the offense is justified, understandable, or must be overlooked isn’t really an apology.
  55. An effective apology is 100% focused on the person hurt and how they were affected, and 0% about how the offender feels about it.
  56. Listening deeply is a powerful relationship building tool which takes time, practice, and effort to develop.
  57. Hijacking a conversation to talk about yourself instead is rude.
  58. Waiting for a turn to talk while someone else is talking is rude.
  59. Interrupting someone while they are speaking is rude
  60. Manners and civility are key to quality of life and cultured society.
  61. Life is worth living.

It’s not science. These are things I’ve learned myself, over a lifetime. I’m not even saying these observations and learnings are “all there is” (what would you add?)… these are just a few things I’ve learned that continue to serve me well.

It’s your journey, up ahead. I’m over here walking my own path. May your path be smooth and the way ahead illuminated.

Every sunrise is a chance to begin again.

I’m sitting alone on the side of a favorite local trail. I’m tired. I’ve been crying. My head aches, and I am in a pretty grim place, emotionally. I’m also grateful to be here, now, rather than having this moment as the woman I was 11 years ago. Yes, it’s fucking hard. Yes, I’m pretty g’damned unhappy right now, but… I can also recognize that this is simply a moment. It will pass. The future is unwritten. The trail ahead isn’t always within view.

I breathe, exhale, and relax. I rather stupidly try to will my tinnitus to quiet down. No surprise that doesn’t work.

My Traveling Partner’s surgery went very well and he’s home resting and continuing to recover.

The drive home was emotionally difficult, and ended on an unpleasant note. The actions leading there were mine, so the fault is mine as well. (Hard to hold someone who just had surgery and is deeply medicated “responsible” for much of anything at all, whatever the circumstances.) By the time we got home I didn’t really want to interact with other human beings. I’ve been in pain all day, no end in sight, and I am tired and still kind of angry, though, as I said, how is someone so heavily medicated responsible for their words or behavior at all? Why would I be angry? I don’t think they can be held to everyday standards for sure. Accommodations must be made. Understanding and compassion are required. Forgiveness is a good approach. But… That has to include…for me, from me.

… It’s been so very worrying for so long to see my partner suffering, I probably needed to prepare for this moment quite differently somehow…

I sigh out loud, my ears ringing so loudly it seems certain I am missing other information. I promise myself to get my hearing checked. My back aches in spite of medication. (The chairs at the hospital are not sufficiently comfortable for an all day stay.) I’m tired and the walking isn’t satisfying. I’m just going through the motions. Literally.

My Traveling Partner pings me. I respond promptly; I still have responsibilities. I think about the woman I most want to be. What would she do, right now? I sigh again and get to my feet. She’d begin again.

Well, shit. Every now and then, just when I start feeling like maybe I’m “well” and whole, and not beat down by bullshit and baggage, and perhaps just maybe there’s something like a “happily ever after” potentially lurking around the next bend in the path… I have a day like today. It’s been a wild ride…

I spilled my Traveling Partner’s coffee early in the morning, mere minutes before we needed to leave for an appointment we could not risk being late for. It didn’t take long to clean up, but it disrupted my calm rather a lot.

The drive into the city got going pretty nicely, except for some reason my Traveling Partner’s phone wasn’t pairing, and once it did, it seemed all his personalized settings for the truck were gone. Annoying. Negative emotions carry a certain unfortunate contagion, too. It was less than ideal.

Traffic was routine, but the route the GPS selected, while familiar, was the most likely to be congested, and it was pretty annoying to drive past a turn that could have taken me down pleasant country roads. That’s on me though, eh? I know GPS is not “AI” – no intelligence, no understanding, no context to the decision-making. I could have chosen differently, but decided against it. My reasoning was poor, and I paid for that.

We got to the appointment in plenty of time, but in the process of getting the truck parked…well…I… Let me start by pointing out that a) I never measured the height of the truck with the tire on the roof rack, and also b) the height wasn’t noted anywhere obvious as I pulled in. Yep. I entered the parking garage, and as I turned around the bend to the next level up…I scraped the roof rack, tire and all, right off the top of the truck. 😦 Well, shit. Fuck.

…Not my best moment, not my best day…

…It could have been ever so much worse, and both the truck and I are entirely fine. The roof rack? Not so much.

My Traveling Partner got to his appointment. We managed to also get safely home, mostly in pretty good spirits. I went on with the day, dropping pill containers (shit!), knocking over books, bottles, objects… it’s just been that sort of day. Also… it’s been hot. Like seriously fucking hot, and I am grateful that the day was such that I got to spend most of it indoors, in A/C. Like I said, could have been so much worse.

Yeah. Fucking rough. Some days are. My pain is pretty well managed. Things have calmed down. It’s evening. The house is comfortable, and quiet. I’m fine, for most values of fine… and it’s enough. Tomorrow? Yeah, of course, obviously – I’ll begin again. (Again.)

It’s late. Or, it’s early. I suppose it’s a matter of perspective – and expectations. I expected to be asleep right now. From my perspective, it’s quite late. Too early to be awake, by far. It’s just a bit after midnight. I could be sleeping right now… I expected to be sleeping right now… I am not sleeping.

The guest in the room next door (or perhaps directly above me, it’s hard to tell) has left the fan on in their bathroom for what now seems an unreasonable amount of very noisy time. It surprises me that anyone could be sleeping through this ridiculously noisy fan. I’m certainly not. I’m quite wide awake.

I breathe, exhale, relax… and try to “get used to” the noise so I can maybe go back to sleep… (Am I even actually still tired, after “sleeping in” yesterday, and multiple delightful naps today?) I’m not adding annoyance or any particular amount of stress to being wakeful over the noise of a bathroom fan that is not mine, so… I could potentially go back to sleep at any point, once I’ve managed to get past being wakened by this noise. By itself, the noise could be super aggravating (once upon a time definitely would have been). For now, it’s just… well, I’m awake. That’s it. lol I’m awake, and I expected to be asleep.

I sip on a bottle of icy cold water. It’s refreshing. Eventually, I’ll go back to sleep. A couple more hours of sleep, and I’ll wake, shower, have coffee, have breakfast, and get packing to return home. I miss my Traveling Partner. I’m eager to be home. I feel rested and recharged, and were it not for this rather annoyingly timed bit of human misadventure, my away time has been quite nearly perfect (from my perspective). Fucking hell, I do wish someone would turn that fan off, though. LOL I keep sipping on this bottle of water; it is both too late and too early for more coffee.

I stepped outside on the balcony for some air, and it was delightful. I could see the stars – so many stars – and even the Milky Way. Wow. I stood there quietly, breathing in the cool ocean air, listening to the waves.

…Why is there always some asshole leaving a bathroom fan on in a hotel room??…

I sigh, and let go of my expectations. I breathe, exhale, and relax. I’m here. Now. Yeah, there’s a fan going, and that’s not ideal, but it will, eventually, pass. Probably. Maybe. Or I’ll get used to it vibrating noisily in the background. I laugh to myself, and put on my noise canceling headphones for a while. I could probably sleep in these, they’re pretty comfortable…

…I’ll try this sleep thing again…

I’m sitting with my first coffee of the morning. I came prepared, and although it is instant, it’s a good quality instant, and a good cup of coffee. It’s hot, clean tasting on my tongue, and satisfying.

A rainy coastal Monday.

My first sight upon waking, was the rainy day beyond the balcony of my “ocean view” hotel room (which lacks any hint of ocean view, by virtue of being on the first floor, but offers a lovely view of Siletz Bay). The second thing I noticed was a couple of young… sea otters? Seals? They were relaxing on this side of the bay, quite nearby. I went to grab my camera to get a shot of this not-all-that-common sight (usually they’re on the other side of the bay, too far away to get a good picture with my lens). Returning to the balcony, I see that a man walking his dog has also spotted them. Does he stay well back to let them be? Oh, hell no, he’s American; he quickly moves forward to take his fucking dog closer. Jackass. The sea otters (I think, based on how they moved) slipped back into the water as he closed in on them with his (thankfully leashed) dog. I got a couple of truly pointless shots of the larger pod they are clearly part of, as individuals bobbed above the water, and the pod moved on down the bay. Still – what a fun sight. I take a moment to enjoy that, and I forget about the man and his dog.

I woke early enough that the beach was empty (on a rainy morning), and slept in (for real) late enough to wake well past daybreak, dawn, or even sunrise (although there is no sunrise to see on this gray rainy morning, only a homogenous gray sky). I feel rested. I leave the balcony door wide open to let in the sea breeze and the cool fresh air. I sip my coffee, contentedly. I’m here with my pastels, and I can paint as easily from reference photos and from my imagination, as I can from the actual view, so the rain is nothing to me, and doesn’t change my plans, or upset me in any way. It was lovely to sleep so deeply, and to wake so rested. If that were all I got from this trip away, it would be very much worth it.

I breathe, exhale, and relax. My back aches ferociously. The damp climate of a cool rainy summer day on the coast is hard on my arthritis pain, and for a moment I am “feeling my years”, until I think to recall that I’ve had this arthritis since I was 24 or 25 years old – so for almost 40 years – and it’s nothing at all to do with age or aging. I shrug it off as an annoyance of no consequence, and get on with things anyway. It still amounts to an irritating distraction, but little more than that, so far. My tinnitus is not quite silenced by the wind and the waves – it’s a combination of sounds that sort of “drowns it out” when I’m on the coast, close enough to hear the ocean. It’s a nice break from the aggravation of my tinnitus at full volume. I take a minute to enjoy it with my full attention.

It’s not yet late enough for the hotel breakfast, but I rarely find their strange grab-and-go assorted things for “breakfast” to be satisfying, nourishing, or even particularly “breakfast-y”. Just a cheap convenience, and this trip I am more prepared to take care of this fragile vessel. I’ve got salad greens, blueberries, cashews, and hard-boiled eggs in the room fridge, and I make a simple breakfast salad. My stomach isn’t yet particularly interested in food (it’s a bit soon after waking), but it’ll be lovely to have a “real breakfast” once I’m ready to eat something.

These are such mundane details of such an ordinary life – why bother writing any of this down? I dunno, because maybe someone, somewhere, reading this hasn’t sorted it all out yet? Hasn’t “solved for X” in some of life’s math, perhaps, and simply reflecting on the things that work – or don’t – and what matters most (at least now, to me) may be helpful perspective in some way? In 2013, for example, I don’t think it would have occurred to me how much my own choices in life – simple practical decision-making – were responsible for the vast majority of my personal misery. I don’t know that simply saying “you’re doing this to yourself” would have gotten through to me, but perhaps someone simply reflecting on the things that are working well – small, sustainable, simple choices – might have guided me (or at least made me think)? Besides… I just write. It’s a thing I do. (I’m grateful that you are reading. Thank you.) It’s also “for me”; I often go back and read my writing from other days, other circumstances, with new eyes, or seeking new inspiration, or a reminder that “this too will pass”, or that I’ve “been here before”. (One of the lasting consequences of my TBI is simply that I have some memory-related challenges, and some oddities about how I perceive (or don’t) novelty – sometimes I just don’t recognize that I’ve “been through this before”. Helps to have a reminder.)

…I sit awhile, reflecting on how far this journey has taken me over the past 11 years, from being deeply negative, traumatized, mired in despair, and looking for “an exit strategy”, to where I am now – mostly pretty positive, generally contented, often joyful, enjoying life and love (and even enjoying work), and feeling a deep sense of… joie de vivre. It’s lovely. Each sunrise is worth seeing. Each day has something new to offer. Not only is the journey the actual destination…it’s a journey I find worth taking. That’s a long way to come from those dark days standing on the precipice, ready to decide whether to make a permanent end to my pain. I’m grateful that I made the appointment with the therapist who helped me find my way to a better path. (If you’re in despair, please reach out to someone for help. You matter.)

I stand, stretch, and begin to dress. I haven’t yet gone for a walk on the beach (or taken any walk at all yet, this morning). Seems a pleasant morning for it. The rain has stopped, the sand is firm, and although the tide is coming in, it won’t be a very high tide – plenty of beach to walk. The morning feels oddly “out of order”, with coffee and breakfast ahead of my walk. I chuckle to myself. This is the sort of healthy variation from a routine that serves to keep my brain flexible and young. I go with it. No complaints. Rigidity of thinking does not serve a human primate well. I breathe in the fresh ocean air deeply, and exhale, imaging blowing my pain out with my exhaled breath. I’m not sure it’s an effective strategy, but doing so amuses me and diminishes the power my pain has over my mind. I stand in the open doorway, watching the gulls and crows down on the beach. Somewhere nearby I hear a woodpecker. Now dressed, the day feels that it has more truly begun. I nibble at my salad, and finish my first coffee. There’s more hot water ready, so making a second cup is an obvious next step; there’s no hurry. This is my life. This is my time. This is my experience. Every step on this path is my “next step” – mine to choose, mine to walk, mine to reflect upon at the end of the day. Although our lives are intertwined and we are interdependent social creatures, we’re also each having our own experience. It matters to be and to choose – and to experience this life that I have chosen. I breathe, exhale, and relax.

…The day stretches ahead of me, unplanned, unconstrained, not yet filled with my choices and the verbs required by those choices. I am my own cartographer. The journey is the destination. It’s time to begin again.