Archives for category: Frustration
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Perspective on Lived Experience

July 25, 2024 //
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I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

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Categories Allegories, Anxiety, breathe, forgiveness, Free Will, Frustration, gratitude, health, Healthy Living, Love, meditation, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being, The Big 5

Pain and Practices

July 22, 2024 //
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My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.

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Categories breathe, forgiveness, Free Will, Frustration, health, Love, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Practices, Relationships, Sleepless Nights, solo hiking, Summer, The Art of Being, The Big 5

The Great Household Shuffling of 2024

June 29, 2024 //
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I survived yesterday’s chaos with reasonable grace, I think. I’m okay with the recollection of the day, and the outcomes of various moments. The steady process of handling tasks to do with my Traveling Partner’s son moving in is well-underway, everyone doing their part to get everything done reasonably quickly. It’s a lot to do, and there’s still more. It’ll all get done in due time.

I am finding it quite interesting to see so many things learned over time reflected back at me through the lens of seeing these experiences and practices through observation of someone who has had quite different experiences in life, having not yet learned these things at all. My stepson seems to me a bit of an “anxious adventurer”, willfully and deliberately seeking new experiences and growth, by choice, while also finding the novel situations this puts him in quite uncomfortable and anxiety-provoking. (His results vary.) I’m impressed by his adventurous nature. I’m impressed by his will to fight through his anxiety. I’m concerned by his lack of specific life skills and his lack of exposure to some fundamentals of resilience and emotional wellness. Those concerns are in no way his “fault” and it’s not about blame anyway. He’s a fellow traveler and for the time being, also a family member residing with my partner and me. There’s a lot to learn, to share, to consider…and there’s time for all that. It’s the sort of thing that does take time – and practice.

For my part, the work involved in compressing my personal space to make room for The Anxious Adventurer is sometimes quite poignant. I worked so hard for so long to have some of the luxuries I’ve been able to enjoy these last four years… but my small library uses an entire bedroom (it’s also my meditation space). My art studio, doing double duty as my office, takes another. Somehow, just due to practical logistical considerations, I’ve ended up compressing most of these things into the smallest fucking room in the house. Since it’s not actually possible to do that in a literal sense, the books and shelves of my wee library will be relocated to the main bedroom. It’s fine. It’s all fine. None of this is intended to be permanent (as my Traveling Partner regularly reminds me).

… I do know how reality works, however, and I am familiar with the vagaries of “temporary” arrangements…

A new day

Mostly, I’m just looking forward to whatever the new normal may be, and figuring that out won’t happen until the moving and shuffling around of various things is really finished (likely some weeks after my Traveling Partner has his surgery and has subsequently also recovered).

I woke quite early this morning, ahead of the sunrise entirely. I have a Saturday appointment in the city which I already wish I had cancelled due to the inconvenience of its timing, but it’s an appointment for care with a provider who reliably actually helps. Seems foolish to cancel that, when my day-to-day pain would benefit from it so much. It’s the sort of foolishly short-sighted choice I am prone to make. I’m mostly glad I didn’t cancel, but my anxiety nags at me for “being so selfish” or “letting everyone else down”. (Which is one of the many lies my anxiety tells me.)

… I still find it quite difficult to make my own self-care a high priority, in spite of knowing how important it is…

I slipped quietly out of the house far earlier than necessary, this morning, but I think I managed to do it without waking either my Traveling Partner or the Anxious Adventurer. Win! I arrived at the trailhead just at daybreak. I walked the trail between river and marsh, listening to the birds and the sound of distant traffic (and my tinnitus). It’s been lovely. I had the trail to myself. I took my time. Stopped here and there for a picture or a moment. It’s been quite satisfying and joyful, and a delightful use of my time.

… I needed the break and the solitude…

I got back to the car too early to head to the city. I write a while. I meditate. I think about coffee. Maybe breakfast? In any case, it’s time to begin again.

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Categories Allegories, Anxiety, art and the artist, Brain Injury, breathe, forgiveness, Free Will, Frustration, gratitude, Healthy Living, Love, meditation, Metaphors, Mindfulness, Moments, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being

Summer Rain and Practice

June 27, 2024 //
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The air was still fresh from the drenching rain during the night when I stepped out of the car at the trailhead. Drops falling from the trees occasionally spattered my face and hoodie, which I sensibly wore thinking it might be a cool morning. I breathed deeply, filling my lungs with the rain-fresh air. I walked briskly, alone with my thoughts, my arthritis pain, and my headache. Only one of these things mattered much to me, the rest I did my best to ignore as inconsequential.

Yesterday’s appointments, first with my therapist, and later with my physician, were an interesting study in perspective. I showed up to both prepared to discuss stress and anxiety and how best to manage these lingering mental health concerns, only to be firmly told by both that my levels of stress and anxiety, at least under the current circumstances, seem quite reasonable and even appropriate. Well… Shit. I’m not nearly as well-practiced at managing reasonable-not-a-sign-of-mental-illness stress and anxiety. lol In each conversation it’s agreed that similar techniques and continued practice are helpful. No change to medications or recommendations. Just… Keep managing. Keep up self-care efforts properly. Keep breathing and keep cutting myself some fucking slack, eh? It’s still a lot to handle, but apparently that’s pretty fucking reasonable under the circumstances. It was peculiarly helpful to hear that.

…It doesn’t make things any easier…but it does take a bit of pressure off…

I’ve been hard on myself a lot lately. Sometimes my self-talk is pretty negative, even though I know how cruel and unhelpful that is. I’ve carried some shame and disappointment that I am not a more skilled caregiver for my Traveling Partner, when he needs so much from me while he’s been injured. I’ve labored under the additional burden of my disappointment with myself over not having more energy, more capacity to labor on, more ability to get everything done, every day. I’ve been angry with myself just for not being younger, more able, and for needing rest and care, myself.

…My Traveling Partner, on the other hand, has been kind and appreciative, and generally far more impressed and grateful for my help every day, so this shit is definitely me…

I breathe and keep walking. My Traveling Partner pings me, letting me know he’s awake. I stop on the trail and exchange a few messages before continuing. Time to head back to the car and start the work day. There’s a lot to do, and it sounds like my partner’s son will arrive later, sometime this evening.

Fuck, I’m so tired… A good night’s sleep doesn’t restore my energy these days and every day seems to start with a longer list of shit that needs attention… And I keep putting myself last on my list! Not helpful. lol No wonder I’ve been stressed and anxious. I breathe, exhale, relax… And get ready to begin again.

This is all pretty real stuff. Life. Sometimes it’s a bit much, but it’s better than the current alternatives. I breathe, exhale, relax, and walk on. I’ll get where I am going, eventually. It’s a journey. Incremental progress is still progress. One step forward is still forward momentum. Making a point of being kind to myself doesn’t take any time or cost any money. Worth doing and I’m sure it’ll be helpful stress-management-wise.

… This too will pass…

… It’s time to begin again.

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Categories anger, Anxiety, Brain Injury, breathe, forgiveness, Free Will, Frustration, gratitude, health, Healthy Living, Love, meditation, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being, The Big 5

Treading Water

June 24, 2024 //
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Busy, productive weekend. Even feels like my Traveling Partner and I connected more deeply in some important ways than we have in a while. That feels pretty good. Fucking hell, though, life is a bit stressful and I am so tired. It’s just ordinary human fatigue of the sort that results from pushing one’s self too hard to do too much for too long. It’s a familiar feeling, though it has been awhile since it could “so easily” pull me down like this.

… I woke disoriented, unclear about when or where I was this morning, confused by the clothes I had laid out for today (“Where’s my uniform…?) and feeling the purposeful “relaxed tension” of military readiness – until I moved, and my aching back reminded me that time has passed and I am not that strong, aggressive, laser-focused, mission-driven, can-do young woman who thought she understood who the good guys are, and what the point of it all might be. lol Weird way to wake up. I feel exhausted before the day begins, and there is already (still) so much to do… I could definitely use the energy of that younger self!

…and also? Fuck this headache.

Emotionally, I feel like I am treading water, not yet at risk of drowning, but too fucking far from shore to feel secure facing this predicament. Life is “a lot”, right now. I’m doing my best. Sometimes, maybe even most of the time, it’s enough, but I sure don’t feel like I can count on that.

It’s fine. I’m fine.

Work is fine. Love is fine. Life is… complicated. 2 out of three in the “wins” column? I probably shouldn’t bitch, I’ve had it much worse. Hell, life isn’t bad, just complicated right now. There’s a lot going on, and change is in motion (some of it I chose myself, and while I can certainly question my timing, I can’t really complain about getting what I asked for).

I breathe, exhale, and relax. Self-care becomes huge at times like these, and I tend to do well if I already have firm reliable self-care practices in place that are habitual and just part of everyday life. I’m kicking myself a bit over self-care failures over time, recently, but trying to also be kind to myself. “Just begin again. Keep practicing.” I remind myself.

The morning feels chilly, though it’s a mild 51°F this morning. I don’t need a jacket as I walk, but quickly notice the cool of morning when I paused to take pictures. Sitting here at the halfway point, I regret the sleeveless top I’m wearing, though I know it will feel like a good choice in the heat of the afternoon, later.

I sit with my thoughts. I won’t sit for long. I’m filled with restless energy that needs an outlet. That’s okay, it’s a work day, and my to-do list is rather long, presently – there’s no shortage of shit to do, or things that need my attention. I’m presently faced with a to-do list that continues to grow slightly faster than I am working it off, so running out of shit to do? Not a challenge I have to deal with. lol I guess I am grateful? I probably should be.

The sun rises above the hills on the horizon, golden and bright. A new day ahead. What will I do with it? When night comes, will I be satisfied with how I spent my time? How will I care for this fragile vessel? Can I tread water long enough to reach the shore? (Metaphorically speaking, swimming might be a better choice…)

I breathe, exhale, and relax. Soon it will be time to begin again, to face the next challenge, the next moment, and the expectations of the woman in the mirror. I’ll do my best – that will have to be enough.

We become what we practice. Feels like a good day to practice maintaining perspective, and non-attachment, a good day to practice kindness, compassion and consideration. I’m definitely going to need the practice… I’m very human and my results vary.

…Change is. Are you ready for it? Time is short, and the clock is ticking…

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Categories Allegories, Anxiety, art and the artist, Brain Injury, breathe, Free Will, Frustration, gratitude, grief, health, Healthy Living, Love, meditation, Metaphors, Mindfulness, Moments, more than a little bit of bitching, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Sleepless Nights, solo hiking, Summer, The Art of Being, The Big 5
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