Archives for category: more than a little bit of bitching

Well, shit. Every now and then, just when I start feeling like maybe I’m “well” and whole, and not beat down by bullshit and baggage, and perhaps just maybe there’s something like a “happily ever after” potentially lurking around the next bend in the path… I have a day like today. It’s been a wild ride…

I spilled my Traveling Partner’s coffee early in the morning, mere minutes before we needed to leave for an appointment we could not risk being late for. It didn’t take long to clean up, but it disrupted my calm rather a lot.

The drive into the city got going pretty nicely, except for some reason my Traveling Partner’s phone wasn’t pairing, and once it did, it seemed all his personalized settings for the truck were gone. Annoying. Negative emotions carry a certain unfortunate contagion, too. It was less than ideal.

Traffic was routine, but the route the GPS selected, while familiar, was the most likely to be congested, and it was pretty annoying to drive past a turn that could have taken me down pleasant country roads. That’s on me though, eh? I know GPS is not “AI” – no intelligence, no understanding, no context to the decision-making. I could have chosen differently, but decided against it. My reasoning was poor, and I paid for that.

We got to the appointment in plenty of time, but in the process of getting the truck parked…well…I… Let me start by pointing out that a) I never measured the height of the truck with the tire on the roof rack, and also b) the height wasn’t noted anywhere obvious as I pulled in. Yep. I entered the parking garage, and as I turned around the bend to the next level up…I scraped the roof rack, tire and all, right off the top of the truck. 😦 Well, shit. Fuck.

…Not my best moment, not my best day…

…It could have been ever so much worse, and both the truck and I are entirely fine. The roof rack? Not so much.

My Traveling Partner got to his appointment. We managed to also get safely home, mostly in pretty good spirits. I went on with the day, dropping pill containers (shit!), knocking over books, bottles, objects… it’s just been that sort of day. Also… it’s been hot. Like seriously fucking hot, and I am grateful that the day was such that I got to spend most of it indoors, in A/C. Like I said, could have been so much worse.

Yeah. Fucking rough. Some days are. My pain is pretty well managed. Things have calmed down. It’s evening. The house is comfortable, and quiet. I’m fine, for most values of fine… and it’s enough. Tomorrow? Yeah, of course, obviously – I’ll begin again. (Again.)

It’s late. Or, it’s early. I suppose it’s a matter of perspective – and expectations. I expected to be asleep right now. From my perspective, it’s quite late. Too early to be awake, by far. It’s just a bit after midnight. I could be sleeping right now… I expected to be sleeping right now… I am not sleeping.

The guest in the room next door (or perhaps directly above me, it’s hard to tell) has left the fan on in their bathroom for what now seems an unreasonable amount of very noisy time. It surprises me that anyone could be sleeping through this ridiculously noisy fan. I’m certainly not. I’m quite wide awake.

I breathe, exhale, relax… and try to “get used to” the noise so I can maybe go back to sleep… (Am I even actually still tired, after “sleeping in” yesterday, and multiple delightful naps today?) I’m not adding annoyance or any particular amount of stress to being wakeful over the noise of a bathroom fan that is not mine, so… I could potentially go back to sleep at any point, once I’ve managed to get past being wakened by this noise. By itself, the noise could be super aggravating (once upon a time definitely would have been). For now, it’s just… well, I’m awake. That’s it. lol I’m awake, and I expected to be asleep.

I sip on a bottle of icy cold water. It’s refreshing. Eventually, I’ll go back to sleep. A couple more hours of sleep, and I’ll wake, shower, have coffee, have breakfast, and get packing to return home. I miss my Traveling Partner. I’m eager to be home. I feel rested and recharged, and were it not for this rather annoyingly timed bit of human misadventure, my away time has been quite nearly perfect (from my perspective). Fucking hell, I do wish someone would turn that fan off, though. LOL I keep sipping on this bottle of water; it is both too late and too early for more coffee.

I stepped outside on the balcony for some air, and it was delightful. I could see the stars – so many stars – and even the Milky Way. Wow. I stood there quietly, breathing in the cool ocean air, listening to the waves.

…Why is there always some asshole leaving a bathroom fan on in a hotel room??…

I sigh, and let go of my expectations. I breathe, exhale, and relax. I’m here. Now. Yeah, there’s a fan going, and that’s not ideal, but it will, eventually, pass. Probably. Maybe. Or I’ll get used to it vibrating noisily in the background. I laugh to myself, and put on my noise canceling headphones for a while. I could probably sleep in these, they’re pretty comfortable…

…I’ll try this sleep thing again…

I walked the trail in the chill of the morning. I walked with my thoughts and my tinnitus and my pain, contemplating how easily we “understand” each other without actually being able to truly understand each other. We’re each having our own experience.

It’s pretty easy to think I understand my Traveling Partner’s pain. I have pain myself, and it is chronic and a substantial part of my experience. But, and this is important, we experience our individual pain quite alone. I can’t feel his. He can’t feel mine. Our sympathy, empathy, and compassion are built on our good intentions, our desire to be helpful and understanding, and our perspective on our own pain, which is what we know. Our lived experience may provide us with useful insights, but it may also limit our ability to truly understand.

… It’s fucking hard sometimes…

Yesterday I watched the Anxious Adventurer express understanding of my Traveling Partner’s pain – through the lens of his own ordinary aches and pains, as if the pain of a spinal injury would compare at all. I catch myself doing it, and although the pain of my persistent headache, spinal arthritis, and degenerative disk disease in my neck likely get me closer to real understanding, it’s still not the pain my partner experiences. I can’t know that, I can only guess, listen when he talks about it, and do the work of being humane and supportive and kind. It’s fucking hard sometimes, especially just accepting the fact that truly we can’t know each other’s pain.

… Pain sucks and pain management is complicated by our very broken healthcare system, in which doctors also seem to lose sight of how little they can actually “understand” a patient’s pain, beyond listening, themselves.

We’re each having our own experience. Don’t be a dick about someone else’s pain. You can’t know what they’re going through, really, and it isn’t a fucking competition. It doesn’t matter at all whose pain is “the worst”. Our own pain is always the worst we’ve ever personally experienced, and if all you’ve known is occasional sore muscles or stubbed toes, you certainly don’t know anything much about pain. Be kind. Be patient. Be compassionate. Be gentle. People are suffering and hurting. You can’t know what they don’t share, and you don’t know much even when they do.

I hurt this morning. The chill makes my bones ache. I walk on. It could be worse. I’m doing my best not to take my own pain personally. I have my own way of dealing with my pain. It’s not always effective but it’s mostly enough, most of the time; a complex assortment of practices, medication, and pure seething anger about being in pain in the first place. I push through when I can. When I can’t… I cry. Like… A lot.

… It’s hard seeing my Traveling Partner in pain. I feel so helpless…

… My own pain is barely managed day-to-day…

I sigh and keep on walking. I stop to answer angry frustrated pings from my partner, who is in pain. Pain shrinks his world. It’s most of what’s going on for him, until he has his surgery and moves on to recovery and rehabilitation. It’s a complicated journey. I wish I could do more. I try not to be a dick about his pain and the way it affects him…

There’s another work day ahead, then one more, and a day to run errands… Then I get a short (but very needed) break from caregiving and from my partner’s pain, before his surgery.

… I still have my own…

I take a few minutes to write and reflect. It’s not satisfying. My Traveling Partner is awake and pinging me and needing emotional support. This is a difficult experience and I do what I do; I push my own needs to the side to provide support. I’m irked with the Anxious Adventurer, who hasn’t figured out a morning routine that respects my partner’s need to rest. I’m annoyed in a very human way because this affects my morning experience too. This shit is hard.

… I stifle my frustration. None of this is personal…

This is an endurance race, not a sprint. I try to look at the morning through the lens of opportunity for growth… I just have to begin again…

It’s chilly this morning.

I woke up quite early, ahead of my alarm. My Traveling Partner was already awake (woke me inadvertently), and in pain. We hung out for a little while before I left for work and for my morning walk. I almost left without my laptop, and did entirely overlook grabbing a fleece, sweater, or hoodie. Did I mention it’s chilly this morning?

I hate seeing my partner in pain. He hates being in the pain he’s in, and even more than that, he hates the limits pain places on his activities and cognitive abilities. There’s so little either of us can do about it. We wait together for his surgery, angry about a medical system that places so many limitations on doctors and patients and the medical care available to people in need. It’s inhumane and ineffective, inefficient and frankly terrible. We endure. Surgery soon, then the painful and annoying recovery journey can begin.

…We travel together…

Sometimes shit is hard. Sometimes less so. Life is complicated. I feel fortunate to have my Traveling Partner on life’s messy and painful journey. We’re in this together.

The morning chill caught me by surprise and I hustled down the path briskly to warm myself. There’s a mist clinging to the low places along the marsh. I walk on with my thoughts.

Misty morning.

This mortal life has limitations imposed by circumstances and events or enterprises beyond our individual control. We often place additional, unnecessary, limits on what we do, don’t do, can or can’t do, or have, or be, or experience. It’s a bit strange, isn’t it? I walk thinking about self-imposed limits. I remember a much younger me, talking myself out of trying pastels, when I was first “developing my voice” as an artist. Why? I judged myself (in advance of practical experience) to be “too messy” for pastels. I never gave them a chance, in spite of being fascinated by the luminous purity of the pigments. Life would later place other limits on my artistic endeavors, but truly? I got there first with my own. (Why?! Dunno. It’s very human, I suppose.)

I walked along thinking about the journey that life has taken me on. The journey I share with my partner. The limitations of the paths we’re on, individually and together. Sometimes it’s not at all clear where the path leads, or why we face the limits we do.

… Next weekend, some solo time on the coast, with my pastels, my tinnitus, and my thoughts. I don’t know what will come of it, and I find myself wondering if I am being a dick to go, with my Traveling Partner suffering as he is. The Anxious Adventurer will be home, and providing caregiving… But is that even reasonable to ask, really? I’m suddenly overcome with self doubt, even though I know how much I need the downtime.

… It’s an endurance race, not a sprint…

… Self-care really matters…

… I turn back up the trail to head to the car. It’s time to begin again, again… already…

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.