Archives for posts with tag: arthritis pain and suffering

I got my walk in early. I started just at daybreak on this mild Spring morning. I walked a bit aggressively, lost in my own thoughts, eyes fixed on some point ahead,  but without really seeing. I felt cross about the way my morning started (with my Traveling Partner’s aggravation over being wakened and struggling to breathe, as I finished dressing to leave).

…Took me awhile to let it go…

I had wished him well and expressed my hope that he could get back to sleep. He didn’t seem to think he would and expressed that in a way that kept our exchange on my mind as I walked along, over-thinking it unsatisyingly.

…I seriously could have done a better job of letting it go, and letting small shit stay small…

I didn’t really begin to enjoy my walk or adjust my attitude until after he pinged me a cute sticker of a little cat tucked in for sleep, indicating he was going back to bed. Damn, I love that guy. At that point, I was easily able to settle down and sort myself out, with a sigh and a smile and a feeling of gratitude. Shit could be a lot g’damn worse in life (and love).

…We’re each having our own experience…

When I sat down to write, I took a quick look at the “page stats” for this blog (it’s not about numbers so much as insights into what people choose to read, and I often find new relevance in old writing). I found myself re-reading a post from almost 18 months ago, and reflecting further on perspective, change,  and the importance of self-care. It gave me real clarity on the morning, and restored my sense of perspective generally, and how good things truly are. Reading a relevant older post is another way to “be there for myself”, and practice good self-care, and another way to regain perspective. (I say a silent “thank you” to the reader who read that post yesterday; reading it this morning was helpful.)

…My Traveling Partner is on his own journey, having his own experience, and taking that at all personally isn’t a helpful approach to partnership…

Here. Now. Perspective. Sufficiency.

I breathe, exhale, and relax. It’s a pretty morning. The temperature here is a comfortable 50°F or so. The sunshine lights the blades of grass and the trunks of the oaks in the grove where I sit perched on a picnic table enjoying the sunrise. It’s still quite early and I am not rushing back to the house. I’ve got a cup of coffee and this quiet moment to myself and I am enjoying it.

…Sometimes the best thing I can do to take care of myself is to simply take a few quiet minutes to breathe and reflect…

Later today I will take my Traveling Partner to an appointment with a specialist. I hope there is promising news about what can be done and what the long term prognosis for his recovery from his December injury may be. It’s hard watching him suffer and struggle. I feel so helpless so often. I definitely want to do more to alleviate his pain and discomfort than I seem able to. It’s not about me, though; I just want this human being I love so dearly to be okay.

I sigh out loud and catch myself picking at my cuticles anxiously. Yeah… still human. Still prone to worry and stress. I breathe the fresh Spring air deeply and exhale slowly. I can smell the hedge roses that are on the other side of the parking lot adjacent to this park where I am sitting, and the scent of recently cut meadow grass. I enjoy the smell of Spring, grateful that my seasonal allergies are nothing like as severe as my Mother’s allergies, or my Traveling Partner’s. They’re mostly pretty mild, and seem very specific to certain local flowering trees. That time of year is already beginning to pass.

I am in rather a lot of pain this morning. It’s been an issue all week. I take the medication I have for it. I cope the best I can. I remain unwilling to let my pain call my shots and I try to “just live my life” in spite of it. My results vary. I make a point of not complaining much about it, to the point of generally mentioning it only in passing, if I mention it at all, in conversation. It’s not that I find this to be a helpful strategy, it’s just that there’s nothing to do about it, really, that I’m not already doing, and I am very much aware that my partner is in a great deal more pain than I am. I don’t want to make that about me. I just want to do my best to support and care for him while he’s injured and working on recovering. He knows I am in pain, it’s a chronic condition. No point making that “a thing” – right now it’s just a distraction.

I sit with my coffee and my thoughts awhile longer. Soon enough it will be time to begin again.

I’m taking a few minutes, having a mid-morning, post-waffles, cup of tea (Smith’s No.120 Jasmine Nectar, which has a lovely delicate fragrance). The tea is quite good. The moment is… meh. It’s okay. Not great. Not terrible. Just a moment, and it’ll pass and I’ll move on to the next one. I’m in a ferocious amount of pain this morning, which colors every experience in spite of knowing how pointless and unhelpful it is for that to be a thing. I keep having to make a point of not allowing it to seep into every crevice of my awareness and experience. My results vary.

…The waffles were good, though…

I don’t feel inclined to finger-point, lay blame, or even “troubleshoot” this moment (or any previous, this morning), it’s not even about that. We’re each having our own experience. I’m pretty sure my Traveling Partner is in every bit as much pain as I am in, maybe more. That likely colors his experience, too. Probably best to simply acknowledge our individual and mutual discomfort and not take any of that at all personally. I sigh. Breathe. Exhale. Relax. (Fuck I wish I weren’t in so much pain, though… but at least the waffles were good…)

I think about the dishes that need doing. The laundry. Tidying up my office space in preparation for working from this location, generally. It didn’t sound like much to tackle when I woke up this morning. It seems almost too much, now. Nothing has changed but the amount of pain I’m in, and my perspective on the day (that is probably a lot to do with the pain I’m in). I’m glad it’s a long weekend… tomorrow may be better, but regardless, it’s at least another day to work on these “getting back to the day-to-day” sorts of details. I’ll be ready by the time the work week begins. I sure feel tired now.

I think about the wildflowers out on the coast and the ones on along the trail this morning. It’s interesting what a different assortment they are. I look for pictures, and only just now realize I didn’t take any this morning. I sort of just rather purposefully walked down the trail to “there”, and then back. It wasn’t a grim trudge, but it wasn’t notably joyful. I was just… existing. Doing a thing. I was already in pain.

I hear my Traveling Partner laughing in the other room. That brings a smile to my face, even though he’s been a bit cross this morning. He enjoyed the waffles, though – those were good, this morning. It was lovely to share that experience with him. Good waffles. 😀

…The waffles are gone. They were delicious. The moments pass. One by one they go from a moment of being to nothing more than a recollection. Impermanent. A small piece of a larger whole. Any given moment, however good, however difficult, is another chance to begin again. It’s something. It’s enough.

I’m sitting in my car, listening to the rain falling. It’s a chilly Winter morning. There’s serious Winter weather in the weekend forecast. I think about going to the store to “stock up”, but I find myself wondering if that’s more reflexive than necessary. We’re generally pretty well supplied with day-to-day basics. I could pick up some convenience items I guess, maybe fresh veggies and some chicken…

The pain I am in this morning is “ordinary”. It’s part of my daily experience of life, and it’s difficult to bother bitching about it sometimes. Yes, I’m in pain. Yes, I took something for it. No, that doesn’t really resolve it. I try to avoid letting pain call my shots, because at least for now that’s still an option.

My Traveling Partner is also in pain. He also does his best to manage it. I can’t know directly how much pain he is in, but I feel for him in that “fuck, I wish I could help” kind of way. I feel pretty helpless, though; aside from my concern and general helpfulness I can’t do much about his actual pain. Nor can he, for me.

Physical pain is one of the least pleasant experiences of being alive, I personally think, but it’s also pretty commonplace.

I sit with my thoughts and breathe. The rain falls. The wind blows. Occasional gusts rock the car. The trees along the trail just in front of where I am parked wave as a group in the wind. A very committed runner goes by, headlamp shining brightly and illuminating the path ahead of him. The rain continues to spatter the car.

… I’m so tired. I haven’t been sleeping well. I’d sleep in if I could, but that hasn’t been successful in a while. I feel rundown and overextended. I know I need more/better rest. I don’t actually know how to get that, presently. There’s a lot to get done and with my Traveling Partner injured, a lot of it falls to me. I remind myself I only need to do my best and that has to include taking care of myself. It’s reasonable to fall behind on some things. I make that okay with myself (again), and focus on today, now.

Sometimes life isn’t easy. It’s okay that it isn’t, and it doesn’t need to be made more difficult with a bunch of bullshit expectations of reaching beyond our abilities, time, and energy. It’s okay to slow down (unless you’re being chased by a bear or something, in which case maybe don’t slow down! 😂) It’s important to take care of this fragile vessel. It’s even necessary.

I yawn and look at my calendar. It’s time to begin again.

I’m relaxing. Enjoying the evening. I’ll probably be up rather late; I collapsed into a foggy, dreamy, lush nap shortly after I got home from work (and after making a short trip to a favorite local pie spot to pick up a pie – why not? I like pie…). I woke refreshed, and found my Traveling Partner had slept through the time I was napping, himself, relaxing on the couch. We must have needed the sleep. Dinner was simple, nothing fancy.

…There’s nothing about this that is significant, important, or, probably, even interesting. It’s just a quiet evening with nothing much going on. It’s pleasant, and that’s enough.

I’m in a lot of pain tonight. It’s not “new pain”. Just my arthritis. Chronic. Predictable. But not new. I mean, shit, I first started feeling the twinges of what would become my “constant companion” in… 1988? 1989? Something like that. About 35 years ago. At first I thought there was “something seriously wrong” with my spinal fusion – no one explicitly warned me about the likelihood that osteoarthritis might set in, in the adjacent vertebrae, or gave me any idea what to expect when it did… until after it was part of my experience. Not much of a fucking “warning”, but what could have been done? It’s not like a warning about arthritis would have caused me to decline the surgery that lets me walk, stand, and get around as well (and go as far) as I do. So… I hurt. I mostly don’t mention it out loud to other people. I probably minimize it more often than I should when I’m talking to my Traveling Partner. I don’t like him to worry, or stress over it, and for fucks sake, what could he even do about it? Basically nothing. So… why bitch? I just deal with it and try to move on. Take medication when I need it. Keep myself moving (because being too still too much of the time definitely makes things worse over time – a lesson learned decades ago). Sometimes it’s hard. Life, too. So… yeah. So what?

I distract myself with entertaining videos. I write. I listen to music. Play video games. Read books. I enjoy life. It’s already likely to seem far too short. 🙂

No one likes to hurt. Pain sucks. I remind myself how common it is that we do. For sure there are people who have it much worse, more of the time, than I do. Perspective; it is so much more profound to experience contentment and joy, because I definitely do know what it feels like to be mired in pain and misery. Maybe it’s enough.

…Be kind to people. It’s not always obvious how much pain someone is in, and how it defines their experience. We’re all just people. Pain is part of being human.

Live. Work. Sleep. Wake. Repeat.

It’s time to begin again.

It took awhile to get here, today. At this point, I am relaxed, content, and more or less comfortable. I spend the day in pain, working, doing the things needing to be done, dodging interruptions and distractions as well as I could – some of them are my own doing, purely a product of being human, and enjoying that moment of connection with other humans. I probably need a few of those, anyway. 🙂 The commute home was routine. Nothing terrible… well… no more so than usual, and somehow less aggravating.

Today was fairly shitty. It was hard, and I hurt all day. It was hard to smile. It was an effort not to complain. It was a struggle to fight back tears, more than once. I feel awkward and graceless on my cane. I feel old to be struggling with pain, and mobility challenges. Did I mention what a shitty day it was? I was mired in it all day.

I endured. I mostly endured through successful application of a favorite very portable practice (and I’m pretty sure that this particular practice, in part, resulted in the better-than-average commute experience, just saying). It’s too simple. Please don’t laugh…

It’s hard to stay angry or be annoyed with life when I am experiencing gratitude. Just that. Feelings are tricky, though, and faking it doesn’t work. I start with things that seem obvious to appreciate – and I take a moment to appreciate them. Continue until I’m not in a bad mood. Repeat as needed. It’s not any more complicated than that, really, although it can take a bit of practice to get comfortable and easy with it; sometimes it feels like I really want to be mad about shit. That’s hard to let go of.

I start with something immediate and in-the-moment… some small comfortable detail that, by itself, isn’t crappy at all. Like… looking out the window at the office to the workers on the roof across the way; I’m not working outside in the wind and cold. Yeah, okay – I’m grateful for climate controlled indoor work, for sure. Oh, and indoor plumbing, and potable drinking water from a tap any time I want it. The rest room at the office stocks feminine hygiene supplies. I don’t need that stuff on this side of menopause, but I really appreciate that we provide such obvious basic necessities. I value the basic day-to-day courtesy and consideration of our work culture. I have a coworker who sits near me who good-naturedly lifts my spirits on the regular with light-hearted banter. I am grateful for the decency and humor of my colleagues. On it goes. I can continue to list things I am grateful for, until gratitude has filled me up entirely and I have no room for anger, irritation, or surly bullshit.

One note of caution; this is a positive thing, this gratitude thing. I find it more effective to focus on positives for that reason, so, while it is definitely worth being grateful that I don’t have malaria (and it’s amusing to say as much, in any number of contexts), it’s sort of askew from the point of the practice. More useful, perhaps, to note that I am grateful to have had anti-malarial drugs available when I did work in an area that put me at risk of getting it… an observation that tends to lead me down the path of other medical tools, practices, experiences, skills, and medications which I am grateful exist. Yay! More gratitude. That’s the thing with being grateful for the lack of something, or the negation of something else; it’s hard to build on a negative without slowly becoming more negative. Well… that’s my own experience. Your results may vary. Negativity definitely has more comedic potential, if that’s what you are going for. I just wanted to feel better, and enjoy my experience more easily while enduring so much pain.

I got home still managing my pain with little more than my positive attitude. Medication was a huge, if not immediate, relief. It’s an Rx pain reliever tonight. I feel grateful to have it available. I feel grateful that it works. I feel grateful that it ensures I can get some better quality rest (it’s hard to sleep through pain).

I’m grateful that tomorrow I can begin again.