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Such Loving Words

August 21, 2024 //
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He said, almost as an afterthought, “I forget about your brain damage sometimes, because you generally handle things so well.” I don’t recall where that conversation went, now, but the remark itself lingers. A compliment? I think so…? It’s complicated, like finding the right balance between just living life and reminding people now and then that there is brain damage, and that it is very much a part of my day-to-day experience.

… I continue to think about my Traveling Partner’s loving words. Those. Others. 14 years together. We’ve been through some things. This bit of chaos, here, now? Part of the journey. Opportunities to grow, to do better, to become better partners, are plentiful right now. I hope to take advantage of many of them. I see my partner embracing those opportunities, too. We’re both very human, and this is a very human journey.

New beginnings, new perspective.

I started my walk just before sunrise, at first light. My pace is improving, my strength, too. Staying on top of my self-care requires diligence and focus. Sometimes I feel like I’d rather just… sleep.  Yesterday evening, I chose (with my partner’s encouragement) to go to bed early and get a proper night’s sleep. I woke feeling rested and started the day feeling pretty good. Yesterday I also tried a capsaicin patch for a particular pain that seems caused by my neck, and is intensely distracting at its worst. I’m surprised, but it actually did really help. (Please don’t tell me if this is a placebo effect! I’d rather have the relief.)

At some point yesterday, it was difficult to dismiss my partner’s assertion that I was “holding my breath” in response to my pain. I clearly was. I caught myself several times. Annoying. It’s not at all helpful to stop fucking breathing! As I walked this morning I focused on “staying with my breath”. It seems irritating and silly to have to practice breathing for fucks sake, but here I am. Then I laugh out loud; skillful, practiced breath work is part of so many things! Why do I even fuss about it? I sleep with a CPAP machine, because I frequently stop breathing while I sleep. Why would I expect that this concern would somehow just not be a thing simply because I am awake?

A momentary traveling companion along the way.

I breathe, exhale, and relax. My anxiety isn’t bad this morning. My recent “11” is a more manageable “2”, today. Win. I finish my walk, and prepare to begin again.

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Categories Allegories, Anxiety, Brain Injury, breathe, gratitude, health, Healthy Living, Love, meditation, Mindfulness, Moments, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, The Art of Being

Here. Now. Breathe.

August 20, 2024 //
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I take a quick gulp of my iced coffee and lace up my boots to get a quick walk in, before the work day begins. My thoughts are with my Traveling Partner. I am already dealing with feelings of guilt and regret for agreeing to come into the office today. I hope to make it a fairly short day, which causes me some anxiety. No reason for that (the anxiety), really, my boss and my work team have been very supportive of the time I have needed to take to support my partner, first while injured, and now following his surgery.

I breathe, exhale, and relax. I remind myself that anxiety is a liar. I remind myself that my Traveling Partner was okay with me going into the office today, and that he’s been making great progress on his recovery, and even that he won’t be alone all day because he has a friend coming around to visit a little later. I still feel distracted by the distance from my partner, concerned for his well-being, and worried in an abstract persistent way. Perhaps this is a predictable bit of the slow return to normalcy? I sigh and grab my cane; I no longer take walks without it.

Every journey begins somewhere.

I get back to the car, fleece unzipped, warmed through from walking briskly, and pleased to have covered a good distance in half my usual time. Sunrise is just getting going. Daybreak comes much later than a few weeks ago. My back aches this morning and my tinnitus is loud in my ears, but my headache isn’t particularly bad, and that feels like a win. It’s enough to build the day on. I sit for a moment watching the clouds hustle across the morning sky, shades of gray with hints of blue. I sip my coffee and breathe the meadow-sweet air. This is a pleasant moment. I don’t rush it, instead I linger here long enough to really feel it.

Last week is a blur; too much too fast, too tense, too emotional, and too little sleep. I’m glad it’s behind me; it may have been one of the most emotionally difficult weeks of my life. It sure feels that way from this vantage point, but it’s still very “fresh”, and no doubt my perspective is skewed. I breathe, exhale, and relax. I let it go (at least for now; there’s more to learn from that experience).

Hints of pink in the clouds skittering by remind me to check the time. I finish swapping back from boots to shoes. I take my morning meds with a swallow of coffee and silently complain about the pain I’m in, before thinking about the pain my partner still experiences as he heals and the many months of more severe pain he had to endure to get to this point. Perspective. (In spite of the many tense moments between us recently, I miss him dreadfully right now, although I am only 20 miles away, and only for a couple hours at this point.)

I sigh and admit to myself the inevitable; it’s time to begin again.

Like it or not, you’ve got to walk your own mile.

[Some time about 2 hours later]

It sometimes feels as if “life” and “change” are entirely interchangeable words. On my way between my walk and the office, my Traveling Partner phoned. He needed my help, and it really highlighted the necessity. Non-negotiable; I need to be there. I turned the car around immediately and headed back. It’s one thing to be away an hour, maybe two, but all day? I can’t. I really can’t. Not yet. Fuck.

I reach out to my work team and reset expectations. No problem there; everyone’s good with it. I reach out to the Anxious Adventurer; can he be there sooner, and be immediately helpful while I’m on my way back? He can. I feel relieved, and alert my Traveling Partner that help is on the way – and I am, too. Change is.

It’s later. My partner is resting. I’m settled into work. “Nothing to see here.” It’s a Tuesday. I’ve got this cup of coffee, and this day plan in front of me. Routine? Hardly. It is what it is… And what it is, is time to begin again. Again.

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Categories Allegories, Anxiety, Brain Injury, breathe, forgiveness, Free Will, gratitude, health, Healthy Living, Love, meditation, Metaphors, Mindfulness, Moments, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being

Reset, Restart, Reconsider

August 19, 2024 //
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Yesterday was… awful. Mostly. Humans being human. I was certainly not at my best. The day seemed too long, my efforts too futile, and the promises of the future too limited. Chaos and damage; once I was triggered in the early morning, my anxiety flared up on this whole almost-forgotten level and continue to struggle with it even now.

My sleep last night was disturbed by mocking nightmares of imminent demise and ruin. I woke abruptly, too early, feeling the full measure of my “baggage” like a weight around my neck. I had trouble catching my breath, so I got up quickly and quietly and slipped out into the pre-dawn darkness to “walk it off” at daybreak.

A glimpse of the full moon, an unexpected delight.

As I waited for enough light to comfortably walk the trail, I took time to meditate. I had hoped it would do more to ease my anxiety than it did. I sit with my thoughts. I breathe, exhale, relax, and take inventory of my physical wellness. Pain? Yeah. Definitely. I take my medication and hope for relief. Rested? Sure, mostly. I’ve added calendar reminders for self-care breaks and healthy calories; I’ve been letting my self-care suffer trying to stay caught up on all the caregiving stuff – and I’m just going to say it; I’m in no way actually up to the task of providing round-the-clock caregiving to another human being (even one that I love dearly).  I’ve got limitations that make that a pretty poor choice, but didn’t understand them in this context until I rather stupidly committed to providing the caregiving. My Traveling Partner needed more from me than I could realistically provide with skill. It’s been a shit show and very difficult few days for me, and more so for my partner. Stupid mistakes, and an astonishing level of inconsiderate bullshit that I honestly didn’t expect from myself.

My back aches and I feel vaguely ill, but my head isn’t stuffy anymore and I can breathe. I’ve got the usual headache and a workday ahead. I feel frustrated and annoyed in advance of any reason for it.

The chaos in the household has been disruptive for everyone. I’m inclined to bear the blame for all of it, because that’s what I tend to do. The truer truth is that there are three human beings in this together, each with their own baggage, their own bullshit, their own challenges and goals and dreams – their own values – and their own very real struggles, right fucking now. It’s hard to forge a comfortably calm genial environment together in less than 6 weeks, and do it in a time period that includes a major move, an incredibly advanced spinal surgery, and changes to medications of one kind or another for everyone involved. I don’t even know why we expected it to be any easier in the first place. (Did we?)

Daybreak comes

It’s a new day. A chance to begin again, if I take it. A new shared experience, if I am willing to be open, vulnerable, considerate, patient, kind, and able to listen with care and compassion. I wish I wasn’t having to fight my anxiety. Wishful thinking won’t change the world. Better to take time to reflect rationally on what I need and expect from the Anxious Adventurer, and on what I can realistically provide to support my Traveling Partner with skill and kindness, and then deal with those realities appropriately.

… I’ve managed to be a complete dick to everyone around me for days, and do so thinking I was behaving quite differently…

I notice the time. Although I am “officially” no longer responsible for my Traveling Partner’s medications (mostly because I have made too many mistakes, which can’t be a thing with meds, but also because he doesn’t need that with the same level of oversight now), I still find myself on alert; it’s time. My anxiety goes through the roof; change is hard. I breathe through it. Exhale, understanding that this level of anxiety over that task should have been a clear indication that I’m possibly not the right person for that task. I walk tensely, picking at my cuticles until I notice that I’m doing it. I stop the picking and keep walking, and breathing. Fuck anxiety.

I walk on, trusting my partner. He’s reminded me multiple times to refrain from jumping in and taking over or trying to do things for him without asking what he needs. (Fucking basic; “nothing about me, without me”, you’d think I’d have that down.)

The sunrise is pretty, beginning with hints of luminous pink. I walk, feeling the chill of autumn ahead. I should have worn a fleece, but didn’t think to grab it as I left, still fighting the residue of my nightmares.

… Some days I feel like I am barely an actual adult…

I walk and breathe and reflect. I pause my halfway point to write. So much to do today. Work. Getting my partner to and from an appointment. Getting prescriptions reordered. Picking those up. I start to feel overwhelmed in advance, but it’s just the anxiety talking. I let it go. I’ll just keep practicing.

… It’s already time to begin again…

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Categories Anxiety, Brain Injury, breathe, forgiveness, Free Will, Frustration, gratitude, grief, health, Healthy Living, meditation, Mindfulness, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Relationships, solo hiking, Summer, The Art of Being, The Big 5, weight loss secrets

It Isn’t About You

August 18, 2024 //
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I write a lot. It isn’t explicitly and specifically about you. …Or…well…maybe it is? I mean in the most general sense that sooner or later generalities land with us. Some particular thing or another, sooner or later, is going to strike you in a potentially eye-opening or insightful way. The odds are in favor of it. It’s literally how things like the cold readings of a side-show huckster or small town psychic down the road sound so convincingly knowing. Tarot cards. Fortune tellers. Salespeople.

I’ve got a friend who recently remarked how “spooky” it is that I so often seem to be writing about exactly what she’s going through, even though we don’t often hang out these days, and no longer work together. I pointed out that I write – often – in generalities and aphorisms that spring from a shared common human experience. Unconvinced, she pointed out that it’s “all the time, though”. (It isn’t.) When I laughed and reminded her how often she remarks quite conversely that she didn’t get my point at all, she shrugged it off and let the whole thing drop. I’m no mind reader. Most of the time my writing is relatively trivial; casual generalities and interesting (to me) turns of phrase that help me along my own journey. I’m glad there are a few folks (like you) who take time to read what I’ve written. It gives my writing a lot more meaning that it is being read.  (Thank you.)

…But. No, I didn’t write that because you… I mean, not you personally, is all. 🙂 People. Maybe you? Maybe that person over there? Maybe it was just an idea I had that sounded like something you’ve experienced for real, recently? Maybe someone you heard about through a friend of a friend? Maybe it was in a news article (that I also read) or a movie (that I also saw)? Just saying – it’s not you. More likely it’s me. I mean… I can at least try to make a useful or necessary change in my own behavior or in my own life. I can’t do that for you.

It’s very much not “personal”.

…Which is true of most things, actually, and that is probably worth thinking about further.

I tend to take observations and new learning to a bit of a meta place when I think things over, and even when I listen to song lyrics. It is the thing that makes some casual observation become a useful living metaphor (for me), or that allows me to apply some abstract idea to my own circumstances. Because I write in the same way I think, I’ve then opened the door just a bit wider that you might find some handful of words I’ve strung together to either be quite… pointed… or enlightening and useful. I’m not all that wise, actually – just another human primate doing my best to tidy up my chaos and damage and build a good life on the wreckage that came before. You, too? No wonder some of this “rings true”, eh?

Humans being human, each having our own experience, and somehow also all in it together.

I sit with my thoughts on the afternoon of what has proven to be an unexpectedly difficult day between lovers both after the same experience; a shared experience of calm, healing, and contentment. How vexing that we don’t quite get there! So frustrating to feel this unsteady and uncertain and uncomfortable. Try. Try again. Listen. Hear. Begin again. Fuck it all up. Apologize. Listen more. Try to say, but… Listen more. Try again. Do the damned thing differently. Sweep away the eggshells. Begin again. Assume positive intent. Listen more carefully. Begin again, again. No lack of love nor lack of will to try on, and listen longer. Just humans being human and sometimes failing to be our best selves. It’s hard. Caregiving? Yeah, sure, caregiving is crazy hard and demanding on a whole different level, but just now I mean more generally that simply doing our best in the face of everything we’re dealing with. Hard. At least it is for me, today.

I’ll keep practicing. Keep trying. Keep listening and growing from my mistakes. I’ll keep beginning again.

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Categories anger, Anxiety, Brain Injury, breathe, Despair, forgiveness, Free Will, Frustration, gratitude, health, Healthy Living, Love, meditation, Moments, more than a little bit of bitching, pain, Perspective, Post Traumatic Stress, Practices, Relationships, The Art of Being

Lightning and Raindrops

August 17, 2024 //
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The past 48 hours are mostly a blur of smudgy unclear recollections and emotional impressions. Keeping up with my Traveling Partner’s care, particularly making sure medications are all taken on time, at proper intervals and dosages, is keeping me pretty busy. Juggling those details with work, and the self-care required to keep up with “all the things” has resulted in interrupted sleep, emotionality, and a generous helping of “stupid” moments. This too will pass; it’s a temporary situation. It’s generally enough to do my best.

… The tl;dr is that I’m tired, so tired, and haven’t slept well, deeply, or for more than a couple hours at a time these past couple of days…

Sunrise and a new beginning.

I woke ahead of my alarm this morning and watered the lawn, and helped my partner with his medication. I’d have rather gone directly back to bed and tried to get more sleep, but I also knew my partner had a difficult night of interrupted sleep himself. Better for his ability to rest for me to give him some quiet time. I slipped away to catch the sunrise on the trail, and the Anxious Adventurer left for work moments later.

… And here I am…

The sun rose a bold magenta betwixt thunder clouds. Once or twice lightning flashed across the sky. By the time I got here to the trailhead, thunder was breaking the quiet of the morning, frequently. No rain. Not right now, anyway, though it appears that some rain fell during the night. I find myself wishing for rain. (Thunder storms without rain this time of year are a deadly threat of wildfires.) I sit for a moment before lacing up my boots for a walk.

My head aches ferociously this morning, a combination of my “usual” headache, and lack of rest. I breathe, exhale, and relax. It’s less than ideal to let it become the focus of my day; I have too much shit to do.

My longtime friend, The Author, had planned to visit this weekend, but got COVID and if he makes it at all, the timing is yet to be determined. Disappointing. My Dear Friend’s celebration of life memorial is today, but I won’t make it; I’m not up to the long drive at the last minute, and regardless, my Traveling Partner needs my care and support. While I am considering these circumstances, a drenching tropical sort of rain begins to pound the car (I pull my feet back into the car and close the door). I think about the recent (Wednesday, 3 days ago) death of my Aunt…

…Then the tears begin to fall, with the rain…

Sometimes it just all feels like too much. I sigh, letting the tears fall without taking them personally. No reason to fight the moment. This is “my time”, and if this is what I need right now, okay. After some minutes, I blow my nose and just sit listening to the thunder and the rain, wondering about the lightning strike risk on the trail… It wouldn’t do to get hit by lightning today, I just don’t have time. lol

This morning I feel very mortal and very much aware how temporary it all really is. Life. So brief. So precious.

… I didn’t come prepared to walk through a drenching downpour, but I am sure enjoying just sitting here listening to the storm…

A different sort of quiet moment.

I sit listening to the rain, fighting the confusion and dimwittedness of fatigue. I could probably get a couple things done, since it doesn’t look like I’ll be walking… My mind feels numb. What is on my list, anyway? I scrounge around in my consciousness rather halfheartedly, instead of just looking at my damned list. The growl and loud crack of thunder along with a dazzling flash of very close lightning startles me. It seemed “just over there”, visibly, identifiably nearby. Scary. Distracting.

G’damn beginning again is easier when I get the rest I need… I don’t quite manage to laugh, and sigh again instead. I decide to quietly take my time sorting myself out, before tackling some task or another. There’s no reason to rush. I’ve got time to take care of myself. Self-care matters, too.

I sit for some unmeasured amount of time, reflecting on gratitude and joy. Thinking over the best of recent moments and savoring the recollections. I feel so grateful for my Traveling Partner, and the enduring love we share. It gets us through a lot. We’ve managed to snarl at each other far too often the last few days, as pain, fatigue, and frustration overcame our good nature in some difficult moment. We get past it. Exchange apologies. Make amends when we can. Our hearts know the way, even when we go astray – very human. All things considered, I guess we’re doing pretty well, generally. It’s hard sometimes, but there’s no lack of love. Humans being human; sometimes it’s complicated.

It’s probably time to begin again, but…

… I’m enjoying listening to the rain fall. That’s okay too.

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Categories Allegories, anger, Anxiety, Brain Injury, breathe, Free Will, Frustration, gratitude, grief, health, Love, meditation, Metaphors, Mindfulness, Moments, Oregon Trails, pain, Perspective, Post Traumatic Stress, Practices, Relationships, Sleepless Nights, Summer, The Art of Being, The Big 5, War and News of War
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