Archives for posts with tag: caregiving is hard

My head is pounding. My ears are ringing. My back aches furiously and I didn’t get enough sleep. I stayed up later than I planned pushing myself harder than I should, getting shit done I had planned to do today, while working from home. I’m sitting at the trailhead now, waiting for the sun, and on the other side of a walk, it’ll be one more work day in the office. I made these changes to give my Traveling Partner a day of chill time without dealing with anyone’s stress but his own, assuming the Anxious Adventurer takes his father’s firm, clear, directive to find something to do elsewhere today as seriously as it was intended.

I’m a bit annoyed about the whole thing, honestly. I manage my planning (and how I get shit done), with a careful eye on my physical and emotional limitations, and my limited energy. All of that went out the fucking window yesterday because the Anxious Adventurer sat around being loud for hours (apparently), preventing my Traveling Partner from being able to relax. It’s not as if my partner can jump in his truck and go for a drive himself right now! Fucking hell the lack of basic awareness and consideration irritate the shit out of me. (Caregiving is hard. Being human is hard.) Yet again, I’m dealing with a hearty helping of unnecessary bullshit and OPD (Other People’s Drama), and it limits my ability to effectively juggle caring for my partner and caring for myself.

I breathe, exhale, and relax. I knew going into this that it wasn’t going to be easy. I’m disappointed by how often I find myself doing more work, not less, in spite of an additional adult human being in the household. I reexamine my expectations yet again. I’m so fucking tired and I’m in a stupid amount of unmanaged pain this morning… but the laundry is done. The shopping got handled. I even got to (eventually) spend some chill time with my beloved before I take off for a few days to rest, care for myself, and hopefully recover more than a single day’s worth of emotional resilience.

…Life doesn’t always follow my fucking plan…

The Anxious Adventurer has a good heart, he just also has limited life experience, no experience managing a household or caring for another human being (as far as I know, and based on observation), and hasn’t figured out the basics of who he wants most to be or… basic manners and interpersonal communication. Fuck. You know what I didn’t sign up for? Parenting. Somehow, here we all are. :-/  I’m not any more skilled at basic parenting than I am at caregiving. This shit? Also hard.

… It isn’t personal, it’s just reality…

I breathe, exhale, and relax. I work on letting this shit go, at least enough for my own mental my health. My partner’s limited ability to manage his stress and his reaction to other people’s emotions is frustrating and difficult, however relatable, and is a predictable outcome of the combination of meds he’s been taking for months. I get it; becoming disabled is a difficult experience, and working to taper off some of the medications he’s on is also difficult, and dealing with other people’s bullshit is difficult, and he’s pretty much trapped at home dealing with all of it, all at once, all the time, at least for now. That seriously sucks and I want to help – and I will do a better job of that if I refrain from becoming fused with his experience. I’m having my own as it is. Fuck this shit is complicated and difficult.

Another breath. Another exhalation. I bring myself back to this moment. Daybreak peaks over the horizon, just barely. The morning traffic rushes by on the highway. I sit quietly with my pain, boots on, ready to take a short walk in the dim light of dawn before heading to work. The Anxious Adventurer confirms he is working today; my partner will get some quiet time. It makes the upheaval and aggravation worth enduring. I take my morning medication, grab my cane and my headlamp, and stare into the morning darkness. It’s time to begin again. Already.

I time traveled in my dreams last night. I revisited a time and place and lifestyle so different than my life now it is hard to reconcile the experiences as being those of one singular individual human lifetime. Peculiarly, although I had not yet met my Traveling Partner at that time, my dreams rewrote the recollections to include him, sometimes as my partner, sometimes as a stranger met through circumstances. I woke feeling vaguely disoriented, wondering how I hadn’t recognized him then, before fully realizing I was dreaming.

I drove to the trailhead this morning, listening to music. Instead of the bluegrass and country-ish music on the thumb-drive my Traveling Partner made for me, I paired my cell phone with the car, loaded my “favorites” playlist, and rolled up the road bumping bass-heavy EDM tracks, and house music. How unlike me. lol I generally prefer to drive without any distractions at all, including music.

I found myself in a strange here-and-now moment sort of juxtaposed with a younger me, dark shades, fast car, soft black leather driving gloves – a “cool”, determined, emotionally disciplined me who only felt free when she was alone on the highway between distant destinations. She was broken, but hiding it pretty skillfully (a very lonely way to exist).  Funny to remember her in such a visceral way, connected by the music we both love. Her “real life” was pure misery and terror, work, and those moments of blissful freedom out on the Texas highways, alone. I remember her. I’m thankful we don’t have much in common beyond the continuity of a lifetime. That thread broke, in 1995. I’m grateful to have moved on from there, then, and her.

My life now is so different. Mostly pretty pleasant. I might even say quite wonderful, many days (or moments). I still have my challenges. I’m still dragging around some baggage. The chaos in my head persists. I’m still damaged. Nonetheless, most of the time, most days, life is mostly better than okay. I’m good. Life is… good. Not “perfect”, and I don’t think “perfect” is a reasonable goal. Good is enough.

…”The journey is the destination”…

Driving with music on is a different experience. More relaxed? I think so, generally, and I silently agree with my Traveling Partner, still sleeping at home, who recommends it to me regularly for staying relaxed while I’m driving. It does tend to let “the driving part” of my brain handle the driving while giving the busy, excitable, chatty part of my brain something else to do. It also stops me from being too much in my own head. I get to the trailhead before dawn, thinking about dreams, and driving as a metaphor. I sit quietly thinking about a woman I once was, and the woman I have become over time. I think about the woman I hope to be… with more practice.

…Nice morning for thinking…

I breathe, exhale, and relax. I reconnect with here, now. I listen to the sound of occasional cars passing by on the quiet Saturday highway, and my tinnitus. I’m not in much pain yet, but it’s been a difficult few days of it. Walking doesn’t really help with my pain lately, not in any obvious way, but I still enjoy walking. I do it in spite of pain, and these days I reliably walk with my cane. The inevitable slow loss of progress vexes me sometimes. I know I have to keep at it though, walk on, keep practicing… the journey is the destination. We become what we practice and a lot of our skills and abilities are very much “use it or lose it” sorts of things.

I sit thinking about my Traveling Partner on his own journey to come back from what turned out to be a pretty profound injury. The time, dedication, and practice that requires is much. I’m proud of him for the progress he’s made so far, and impressed by his commitment to push on, in spite of the weight of his emotions. It’s a difficult, complicated experience. The verbs are many. The effort required is intimidating. It’s fucking hard. Hard to contemplate, hard to undertake. His persistence and pure will are certainly some of the things I love about him. I remember my own long-ago journey to recover from injury and physical trauma. I quietly consider ways I could be a more effective, more supportive partner, and a better friend, while he goes through all this.

… I’m tired, though, not gonna lie; caregiving is a lot of work and giving. Time. Effort. Attention. Care. So many verbs, and an endless 24/7 to-do list. I’m looking forward to my upcoming break on the coast to rest, care for this fragile vessel, and paint for a couple days. I definitely need it. I’m grateful for a partner who supports me taking care of myself. I am beyond grateful (and delighted) that he’s made sufficient progress that I can consider taking a real break at all. I need it more than I want to, and I have pushed myself harder than is ideal. I need some rest.

Daybreak and a chance to begin again.

I breathe, exhale, and relax. Nice morning to walk the trail along the marsh and watch another sunrise. Nice morning for self-reflection and gratitude, for perspective and love. I wonder where the day will take me? I’m grateful for my Traveling Partner on this complicated journey that is a mortal lifetime. I’m grateful for quiet mornings alone, too. My heart fills with wonder and love songs as a deep orange smudge develops on the western horizon. I’ve got my boots on, and my cane in my hand… It’s time to begin again.

The journey is the destination.

I’m sitting quietly, waiting for the sun.. short walk today and then hurrying home. It’s an important appointment day for my Traveling Partner and I took the day off. No time pressure beyond leaving on time.

I’m sitting comfortably in my partner’s pick-up truck, instead of cozily in my Mazda. I feel safe and it’s an interesting shift in perspective. I took the truck to more efficiently prepare for the hour long drive a little later; I filled the gas tank and cleaned the windows. The Mazda’s stiff sporty suspension makes for an uncomfortable ride for someone with an injury. I won’t make that mistake again!

Breathe, exhale, relax.

Today is 100% about getting my Traveling Partner where he needs to go and taking care of his needs. Once we’ve returned home, I can take care of mine. I took the entire day off in part because yesterday afternoon was so much intense manual labor (moving all the furniture around in the bedroom for more efficient use of the space, at my Traveling Partner’s request), I was just too exhausted to face starting the work week after also hustling to get to and from the appointment in the morning. I’m just not up to it, and I need more time to take care of myself, too.

Today though…an opportunity to demonstrate love and provide care. This is sometimes difficult shit. Injured (or sick) people are often not their best selves. The demands can be substantial and difficult to meet satisfactorily. It’s complicated. Am I up to the challenge? Today I am hoping to avoid taking small moments of discord personally. I’m committed to being pleasant, agreeable and available to support my partner. I’m hoping to avoid being a bitch about… anything, really, but most particularly the basic care my partner truly needs and which I committed to providing. It’s hard sometimes. It’s a lot. It’s okay; this too will pass.

So, a new day begins with a new sunrise. I’ll walk a familiar trail – and follow my path with care and love and willing to begin again, as often as I must. Probably won’t be a perfect effort; I’m not a perfect person. My results vary. I have choices. I hope to make wise ones.

…I remind myself to breathe…

It’s time to begin again.

It’s a quiet start to the day. The morning air feels subtly autumnal. I find myself regretting that I didn’t wear my fleece hoodie. The walking warms me up though.

One perspective on the morning.

There’s a low mist clinging to the ground along the river when I begin my walk. It drifts over the meadow adjacent to the trail, becoming a thin fog. It’s very quiet this morning. I don’t hear any birds, or traffic, only my footsteps and my breathing.

It is a routine work day, possibly a busy one. There is a project to be done, later, and later still an evening meal to prepare. I sigh quietly as I walk. The to-do list is long. Having the Anxious Adventurer in the household lifts a measure of the everyday housekeeping burden, but greatly increases the “mental workload” and emotional labor landing on me day after day, on top of the increases associated with caregiving for my Traveling Partner. I’m less physically exhausted than I had been…but… I often find myself very much “over” dealing with people at all, far sooner than I typically might. It’s a struggle to get enough time alone, unbothered by what everyone else needs moment to moment, and undistracted by pings, questions, or requests for my thoughts on the various topics. I often end up feeling like a bitch just trying to get a moment alone with my thoughts.

… I’m grateful for this solitary time in the mornings (and I am pretty certain it’s keeping me sane).

I turn the last bend on the trail and sit down for a moment to think and to write. “This too will pass,” I remind myself. I breathe, exhale, and relax. It’s time to begin again… I head down the trail towards the car, and the beginning of the work day.

I take a quick gulp of my iced coffee and lace up my boots to get a quick walk in, before the work day begins. My thoughts are with my Traveling Partner. I am already dealing with feelings of guilt and regret for agreeing to come into the office today. I hope to make it a fairly short day, which causes me some anxiety. No reason for that (the anxiety), really, my boss and my work team have been very supportive of the time I have needed to take to support my partner, first while injured, and now following his surgery.

I breathe, exhale, and relax. I remind myself that anxiety is a liar. I remind myself that my Traveling Partner was okay with me going into the office today, and that he’s been making great progress on his recovery, and even that he won’t be alone all day because he has a friend coming around to visit a little later. I still feel distracted by the distance from my partner, concerned for his well-being, and worried in an abstract persistent way. Perhaps this is a predictable bit of the slow return to normalcy? I sigh and grab my cane; I no longer take walks without it.

Every journey begins somewhere.

I get back to the car, fleece unzipped, warmed through from walking briskly, and pleased to have covered a good distance in half my usual time. Sunrise is just getting going. Daybreak comes much later than a few weeks ago. My back aches this morning and my tinnitus is loud in my ears, but my headache isn’t particularly bad, and that feels like a win. It’s enough to build the day on. I sit for a moment watching the clouds hustle across the morning sky, shades of gray with hints of blue. I sip my coffee and breathe the meadow-sweet air. This is a pleasant moment. I don’t rush it, instead I linger here long enough to really feel it.

Last week is a blur; too much too fast, too tense, too emotional, and too little sleep. I’m glad it’s behind me; it may have been one of the most emotionally difficult weeks of my life. It sure feels that way from this vantage point, but it’s still very “fresh”, and no doubt my perspective is skewed. I breathe, exhale, and relax. I let it go (at least for now; there’s more to learn from that experience).

Hints of pink in the clouds skittering by remind me to check the time. I finish swapping back from boots to shoes. I take my morning meds with a swallow of coffee and silently complain about the pain I’m in, before thinking about the pain my partner still experiences as he heals and the many months of more severe pain he had to endure to get to this point. Perspective. (In spite of the many tense moments between us recently, I miss him dreadfully right now, although I am only 20 miles away, and only for a couple hours at this point.)

I sigh and admit to myself the inevitable; it’s time to begin again.

Like it or not, you’ve got to walk your own mile.

[Some time about 2 hours later]

It sometimes feels as if “life” and “change” are entirely interchangeable words. On my way between my walk and the office, my Traveling Partner phoned. He needed my help, and it really highlighted the necessity. Non-negotiable; I need to be there. I turned the car around immediately and headed back. It’s one thing to be away an hour, maybe two, but all day? I can’t. I really can’t. Not yet. Fuck.

I reach out to my work team and reset expectations. No problem there; everyone’s good with it. I reach out to the Anxious Adventurer; can he be there sooner, and be immediately helpful while I’m on my way back? He can. I feel relieved, and alert my Traveling Partner that help is on the way – and I am, too. Change is.

It’s later. My partner is resting. I’m settled into work. “Nothing to see here.” It’s a Tuesday. I’ve got this cup of coffee, and this day plan in front of me. Routine? Hardly. It is what it is… And what it is, is time to begin again. Again.