Archives for posts with tag: caregiving

Not much of a countdown left; day after tomorrow I head out for a couple days break from the stress and workload of caregiving, to spend a little quality time in my own head, taking care of me for a couple days. 3. Three days of downtime. I find myself eager and also a little bit anxious.

Before dawn.

I woke a little early. I got to the trailhead before daybreak. I wait for the sun, sitting quietly, writing. It’s a bit chilly this morning and I am grateful for the cozy warm sweatshirt I am wearing. Sunrise is coming later already. The days are definitely shorter than a month ago.

Yesterday was weird and difficult, but for me that was mostly “second dart suffering”, fatigue, and the chemistry of human emotion. It passed, and the conversations that came out of that were needful and handled with love and consideration. I don’t actually recall the end of the evening with much detail, beyond the lingering awareness that it was quite pleasant.

The morning begins well. I’m hopeful about the day ahead. I watch as daybreak shifts the hue of the sky from its darkest blue to lighter blues and a subtle hint of something not quite green and not quite yellow on the horizon. Sunrise soon. I breathe, exhale, and relax. I think of my Traveling Partner, and hope that he is sleeping deeply at home, getting rest that he needs so much. I lace up my boots. There’s enough light now to see the trail…

…It must be time to begin again…

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.

Rain fell during the night. The morning air when I stepped out into the predawn darkness was fresh and humid. The days are already noticeably shorter. Daybreak came and went, revealing stormy clouds that threaten the possibility of thunderstorms.

The first hint of a new day.

I put on my boots at the trailhead, my mind on my walk, my heart feeling light, and hoping that my Traveling Partner got a second night of really restful sleep after a change to his medication. These human bodies are so fragile and complicated, and lack a proper user’s manual.

Yesterday was a good day, productive and sufficiently restful to feel as if I got a bit of a break from the grind. Most of my day was spent supporting the Anxious Adventurer, sorting out his vehicle needs for work, and getting his hoopty sold and out of the way. Easy but time-consuming. I was glad I had gone to the store earlier, and that I had a plan for lunch. The day lasted well-past when I might usually go to bed, but we were having a good time hanging out together, and I went with it. There’s been stress and worry and struggle aplenty lately, and it was good to just enjoy a few moments together.

… I still woke up at 4 a.m. LOL

The stormy sky this morning delights me, as the luminous pink of an unseen sunrise shifts with the clouds. I snap a few shots, thinking about those pastels. Maybe today I’ll spend some time painting?

Like thoughts, shifting.

I walked the trail thinking my thoughts and listening to the passing geese overhead. The air smells like it may rain again. I sit at my favorite spot along the trail and listen carefully. Was that thunder? Makes sense that it could be.

… Definitely thunder…

I think about the day ahead. There are things to do to prepare for the week, and next weekend will see me heading down the highway to the coast for a couple days. I’m eager to go, knowing my Traveling Partner won’t be left home alone this time. That’s very reassuring.

My mind wanders. I don’t stop it. I let my thoughts drift as I drink in the fresh air, and this quiet calm moment. It’s such a small thing, but this is an important self-care practice for me, to simply sit quietly and be for some little while. No criticism or doubt, no negative self-talk or worry, just a few quiet minutes as my thoughts drift by like summer storm clouds. I am awake, aware, and grateful. I breathe, exhale, and relax, listening to the sound of distant thunder.

A fat, warm, unexpected rain drop hits my face, and then another, and another. Will it actually rain? Maybe. Maybe not. The “maybe” is enough to put my mind on finishing my walk, so I finish my thoughts, finish my writing, and prepare to begin again.

Well… Not literally “no words”…cuz here I am, eh? Words. I’ve got a fair few of these fuckers (words) laying about. May as well use them…but… This morning I’ve nothing much to say, really.

… I’m tired, and there’s this damned headache and this ringing in my ears…

“Anhedonia”. Now there’s a fucking word. Anhedonia is more or less simply a loss of delight, of interest, of the will to engage with pleasant and interesting things. It’s not “boredom”, and it most definitely is a “mental health issue”. Sometimes it’s simply that circumstances grind me down until I just fucking give up on a “just don’t give a shit” level that transcends even irritation, leaving me without the will to resist or try to overcome it at all. Here I am this morning.

… I’m just that tired, cognitively and emotionally…

Caregiving is hard work, and I’m learning that a great deal of the work involved is in the form of emotional labor. I have profound respect for people who are caregiving a loved one for years. I’ve only been doing it for months. It’s fucking hard, and it’s draining. 8 days until my coastal getaway, and I definitely need it, but… I’ll also need to really get away from the emotional labor of caregiving to get the rest I need so badly. Most of the brief opportunities for downtime since my Traveling Partner’s injury haven’t given me the rest I really needed, because I failed to leave the emotional labor behind, and returned home to still more. I didn’t understand that I needed to put that down, and didn’t understand what a large portion of the caregiving it really is. (I’m pretty new to taking on a caregiving role, and have never had a child.) I failed myself in this way, and by extension ended up also failing my Traveling Partner – in two ways.

1. I failed my Traveling Partner by not taking care of myself sufficiently well to ensure I am up to the challenges and requirements of caregiving over time. It’s an endurance race, not a sprint.

2. I failed my Traveling Partner by not setting clear boundaries with regard to emotional labor generally, or communicating clearly when the burden is too great for my limited human capacity.

I can see how these are both also failures of self-care, too. No wonder I’m fucking exhausted.

This morning I got to the trailhead and just sat in my car weeping quietly for some unmeasured amount of time. I really didn’t feel like walking, at all. Anhedonia is a difficult challenge to overcome, but eventually I got out of the car and trudged down the trail irritably. The rising sun only annoyed me and my sour mood followed me down the trail. I spitefully didn’t stop to sit and write in my preferred location, choosing instead to annoy myself by sitting uncomfortably elsewhere. (Good grief, really?! Fucking stupid.)

I’m sitting. Writing. Feeling irritable because my back aches, my head aches, my tinnitus is loud, and my Traveling Partner is injured. From the perspective of this moment it feels very much that there is “no end in sight”, and despair threatens to rear its head. I sigh deeply, and just let the unwanted tears fall.

This shit is hard.

…It could all be so much worse…

This shit is hard.

I breathe, exhale, and relax. Eventually, I even stop crying, and even mostly stop feeling overcome by anhedonia. I clearly need to get some downtime, some relief, a real break… Which makes me feel like an asshole; my Traveling Partner gets no break from being injured and in pain and needing my help. Fuck.

… Did I mention that this shit is hard?

I’m okay for most values of okay. My Traveling Partner is, too. He’s got surgery scheduled. This is, thankfully, a temporary situation, and we’ve got the additional help of the Anxious Adventurer now (which is greatly appreciated and very much needed). I make a point to reset my perspective, my expectations, and my awareness. It’s not helpful to become mired in pain – particularly someone else’s, and especially when I’ve also got to manage my own. It’s hard, sure, but it truly could be worse, and in some respects it isn’t even as bad as it sometimes feels. We’re fortunate: I’m employed, we have health insurance, we’ve got help, and this isn’t a terminal health issue.

If I were better at this caregiving stuff, I might be more easily able to lift my Traveling Partner from his pain-focused funk, when he gets stuck there. I sit with that thought for a few minutes. I think about the many years of therapy and skilled mental health care I’ve been fortunate to receive. I think about mindfulness practices, meditation, and CBT.

… I remind myself that I can’t do the verbs for anyone else, and that we’ve each got to walk our own hard mile…

I breathe, exhale, and relax. Sometimes the best thing I can do to care for my partner is to care for myself. I think about the day ahead, and the things I’d like to get done. I think about my partner, and what he may need today, and consider how best to be there for him.

It’s a new day. The sun is warm on my back. I hear voices coming down the trail. It’s time to begin again…

Yesterday went sideways fast, mostly a byproduct of pain (mine, and his), and associated emotional volatility. Mine. His. It sucked and generally speaking the entire day was pretty much wrecked by it. Oddly, from an outside perspective, apparently, the details of the day amounted to “a great day” characterized by numerous successes, but the emotional qualities of the experience were wildly out of touch with any of that. Being human is complicated sometimes.

As bad as the day seemed, generally, it began and ended well. Not my usual experience, and it seems (on reflection) somehow associated with the addition of the Anxious Adventurer to the household dynamic. Interesting. Looking back on the day it “doesn’t seem so bad”, but good grief I am glad it’s behind me and I am hoping for better today. I’m in less pain… A promising start.

Here comes another opportunity!

I hit the trail just at daybreak. The morning had a slight chill to it that felt refreshing. The sunrise began as a smudgy streak of a reddish hue, like a wound becoming infected. The air was still, and hazy in the distance. My tinnitus was far louder in my ears than the sound of distant traffic. I walked along, listening to my own steps, thinking my solitary thoughts.

…10 days until my coastal getaway…

The case I purchased to hold, protect, and transport my pastels arrived yesterday and I took a moment to put the delicate sticks of colorful pigments into their new home. No more small boxes – just one tidy case. I’m delighted with the result, and feel more prepared for my upcoming trip to the coast to paint. I sit at the halfway point of my walk, thinking about art, love, and inspiration, and watching the sun rise. The work day will begin soon enough, and I’ll turn my thoughts to work when it does. For now, my time is my own.

I’m looking forward to the weekend, though it seems likely to be quite a busy one. I’ve got a number of boxes set aside, filled with small objects and items quickly packed and moved out of the way to make room for the Anxious Adventurer. Now that things are settling down, it’s time to take a closer look, to dispose of what lacks value, to display noteworthy curiosities and decorative things, where space permits, and more carefully pack those things worth keeping but for which the time is not now. Then whatever boxes there are will go to storage for a while. It’s a process that can be a bit emotional, and although I am not dreading it, I’m also not looking forward to it.

I breathe exhale and relax. The sun is deep luminous orange as it rises above the horizon. I save my draft and turn back up the trail. The sunrise dazzles my eyes as I walk through the oaks.

Don’t stare into the sun!

The air is already warming up. I’m thinking about coffee and new beginnings, and change. I’m feeling pretty good this morning, aside from the headache that accompanies me most days.  Getting to the car, I sit on a nearby picnic table to finish my writing, change my boots for softer shoes, and sit for a moment, just being. I watch the sun through the trees and contemplate how I would compose the scene on paper and how that might work in pastel. Old thoughts, new medium.

…Fuck, my tinnitus is so loud. I make a point to listen to myself breathing, which helps “put the tinnitus in perspective” and anchor my awareness to externally audible sounds.

…My Traveling Partner pings me…

It’s hours later. My plans were upended pretty quickly. My morning walk had served to give my partner a bit more time to get the rest he needs, but the Anxious Adventurer has his own routine, and his own work hours, and his own plan, and my partner was awake earlier than he’d hoped, with no likelihood of getting more rest if I were to be working from home, as I’d intended. It was early enough in the morning to make a change, easily, with no particular stress and I offered to do so, and hastened home to grab my laptop and head to the office. It’s nice to have the option. My day ends up starting a bit later than I planned, which means it will end later than I’d like, but if my Traveling Partner gets the rest he needs, it’s a win for both of us.

…The necessity to begin again comes in a lot of forms. The willingness to make a change based on circumstances is a useful first step. Then, by beginning where I actually am, I can proceed to the next thing, the next need, the next plan… the next moment. So far, it’s still a lovely day – and all I had to do was begin again. 😀