Archives for posts with tag: caregiving

I woke with the alarm this morning. It almost felt like sleeping in. I stepped out onto the trail just at daybreak. The morning air has a chilly quality and the sky was clear and starry. Nice morning for walking. I’m glad I wore a warm sweater. Feels like fall is just around the next bend.

The sunrise begins with hues of orange and a hint of lavender down low on the edge of the horizon. Pretty. I walk on, watching the sky lighten and the colors change as the sunrise continues.

There’s a lot of promise in a sunrise.

Most of any “free time” this weekend has been spent on quality of life improvements like building new bookshelves for my Traveling Partner, and running routine errands or doing chores. I wouldn’t call it restful at all, just different kinds of work than what I would be doing on a work day. With my partner still needing post-surgical recovery support, there’s not room for much else in a day besides work… and other work.

I sigh as I walk, feeling the depth of my frustration with the limitations of a 24-hour day. I’d really like to be painting. I feel inspired by my walks, and by my thoughts, and there just aren’t enough moments left over in a day by the time all the errands and housekeeping are done. Having the Anxious Adventurer on hand is no small thing and I am grateful; I’m no longer facing exhaustion moment by moment, I just don’t have time for anything but essentials, aside from a few spare minutes here and there when I can pick up the book I am reading, and read another page or three (rarely more than that before someone wants my attention). It’s not ideal, but it’s temporary and I am managing to mostly make it work.

…I stop at my halfway point to write and reflect…

I’m looking forward to a return to some kind of normalcy when I can read, paint, camp, and be – on my own terms, doing what I love, for myself. Another sigh and a big breath of fresh morning air. Being real about things, it’s probably weeks or months away, and then the busy holiday season will be here.

… Well, shit. My Traveling Partner pings me a greeting and a request to come home and make coffee. Maybe I’ll get a second walk in later today. Looks like, for now, I’ll need to begin again. I finish this sentence and head back to the car.

The past 48 hours are mostly a blur of smudgy unclear recollections and emotional impressions. Keeping up with my Traveling Partner’s care, particularly making sure medications are all taken on time, at proper intervals and dosages, is keeping me pretty busy. Juggling those details with work, and the self-care required to keep up with “all the things” has resulted in interrupted sleep, emotionality, and a generous helping of “stupid” moments. This too will pass; it’s a temporary situation. It’s generally enough to do my best.

… The tl;dr is that I’m tired, so tired, and haven’t slept well, deeply, or for more than a couple hours at a time these past couple of days…

Sunrise and a new beginning.

I woke ahead of my alarm this morning and watered the lawn, and helped my partner with his medication. I’d have rather gone directly back to bed and tried to get more sleep, but I also knew my partner had a difficult night of interrupted sleep himself. Better for his ability to rest for me to give him some quiet time. I slipped away to catch the sunrise on the trail, and the Anxious Adventurer left for work moments later.

… And here I am…

The sun rose a bold magenta betwixt thunder clouds. Once or twice lightning flashed across the sky. By the time I got here to the trailhead, thunder was breaking the quiet of the morning, frequently. No rain. Not right now, anyway, though it appears that some rain fell during the night. I find myself wishing for rain. (Thunder storms without rain this time of year are a deadly threat of wildfires.) I sit for a moment before lacing up my boots for a walk.

My head aches ferociously this morning, a combination of my “usual” headache, and lack of rest. I breathe, exhale, and relax. It’s less than ideal to let it become the focus of my day; I have too much shit to do.

My longtime friend, The Author, had planned to visit this weekend, but got COVID and if he makes it at all, the timing is yet to be determined. Disappointing. My Dear Friend’s celebration of life memorial is today, but I won’t make it; I’m not up to the long drive at the last minute, and regardless, my Traveling Partner needs my care and support. While I am considering these circumstances, a drenching tropical sort of rain begins to pound the car (I pull my feet back into the car and close the door). I think about the recent (Wednesday, 3 days ago) death of my Aunt…

…Then the tears begin to fall, with the rain…

Sometimes it just all feels like too much. I sigh, letting the tears fall without taking them personally. No reason to fight the moment. This is “my time”, and if this is what I need right now, okay. After some minutes, I blow my nose and just sit listening to the thunder and the rain, wondering about the lightning strike risk on the trail… It wouldn’t do to get hit by lightning today, I just don’t have time. lol

This morning I feel very mortal and very much aware how temporary it all really is. Life. So brief. So precious.

… I didn’t come prepared to walk through a drenching downpour, but I am sure enjoying just sitting here listening to the storm…

A different sort of quiet moment.

I sit listening to the rain, fighting the confusion and dimwittedness of fatigue. I could probably get a couple things done, since it doesn’t look like I’ll be walking… My mind feels numb. What is on my list, anyway? I scrounge around in my consciousness rather halfheartedly, instead of just looking at my damned list. The growl and loud crack of thunder along with a dazzling flash of very close lightning startles me. It seemed “just over there”, visibly, identifiably nearby. Scary. Distracting.

G’damn beginning again is easier when I get the rest I need… I don’t quite manage to laugh, and sigh again instead. I decide to quietly take my time sorting myself out, before tackling some task or another. There’s no reason to rush. I’ve got time to take care of myself. Self-care matters, too.

I sit for some unmeasured amount of time, reflecting on gratitude and joy. Thinking over the best of recent moments and savoring the recollections. I feel so grateful for my Traveling Partner, and the enduring love we share. It gets us through a lot. We’ve managed to snarl at each other far too often the last few days, as pain, fatigue, and frustration overcame our good nature in some difficult moment. We get past it. Exchange apologies. Make amends when we can. Our hearts know the way, even when we go astray – very human. All things considered, I guess we’re doing pretty well, generally. It’s hard sometimes, but there’s no lack of love. Humans being human; sometimes it’s complicated.

It’s probably time to begin again, but…

… I’m enjoying listening to the rain fall. That’s okay too.

Not much of a countdown left; day after tomorrow I head out for a couple days break from the stress and workload of caregiving, to spend a little quality time in my own head, taking care of me for a couple days. 3. Three days of downtime. I find myself eager and also a little bit anxious.

Before dawn.

I woke a little early. I got to the trailhead before daybreak. I wait for the sun, sitting quietly, writing. It’s a bit chilly this morning and I am grateful for the cozy warm sweatshirt I am wearing. Sunrise is coming later already. The days are definitely shorter than a month ago.

Yesterday was weird and difficult, but for me that was mostly “second dart suffering”, fatigue, and the chemistry of human emotion. It passed, and the conversations that came out of that were needful and handled with love and consideration. I don’t actually recall the end of the evening with much detail, beyond the lingering awareness that it was quite pleasant.

The morning begins well. I’m hopeful about the day ahead. I watch as daybreak shifts the hue of the sky from its darkest blue to lighter blues and a subtle hint of something not quite green and not quite yellow on the horizon. Sunrise soon. I breathe, exhale, and relax. I think of my Traveling Partner, and hope that he is sleeping deeply at home, getting rest that he needs so much. I lace up my boots. There’s enough light now to see the trail…

…It must be time to begin again…

My morning is off to a rough start. I slept poorly (my Traveling Partner slept poorly, too). I woke with my headache, worse than usual, and although I slipped away quietly, early, for my walk without waking my partner, the Anxious Adventurer was up soon after. He rattled about sufficiently noisily to wake my partner, who commenced pinging me with information about his pain, his responses to new medications and details he’d like communicated to his doctors. It’s a new day.

… It was good weekend, generally, but there’s a lot of bitching coming up in this bit of writing (maybe skip it)…

After finishing the conversation with my partner, I could finally get out on the trail. Nearby construction had already gotten going. My tinnitus is loud in my ears and the morning seems a very noisy one. I feel irritable and frustrated.

… I breathe, exhale, and relax. I pull my focus back to the rising sun, the silhouetted trees, and the scents of summer meadow flowers.

… My Traveling Partner pings me again…

I sit down to handle the additional communication. Looks like it is going to be a steady effort through the day if I’m going to get what I need for myself from the limited time a day has to offer. It’s the most complicated detail about caregiving for me, personally; continuing to manage my self-care and support my own needs. I don’t get much help from my partner on that presently; he’s pretty consumed by his needs and also needs my help. He’s injured and his surgery is still weeks away. It’s a hell of a puzzle. I feel inadequate and wholly made of fallible human stuff.

… This solitary morning time is so precious to me. It has become an essential component of my self-care, and is often literally the only time (outside a bathroom break) that I can call my own over the course of a busy work day. Today, it’s looking like I’m not going to get much out of it…

…Ping…

I resume my walk, feeling distracted, as if waiting for the next ping. The sun is up. Daybreak has passed. The sun rise is over. I missed my chance to watch the full moon set. Fuck. I take notice of my negative thoughts and aggravation, and let it go. Again. I breathe. Exhale. Walk on. I pull my focus back to my steps, my breath, the sensations of this body, my awareness of the world around me. Clusters of yellow and white flowers sway above the meadow grass. A turkey vulture rides the air currents overhead. The oaks along the trail stand tall overhead as I walk through the grove at the edge of the meadow.

I take my focus off my pain and irritation, and focus on the trees, the horizon, the colors of the morning sky. I keep walking, making mental notes, observations, for later writing when I get to my halfway point – I can just see the bend in the trail up ahead.

…Ping…

Pain is a difficult challenge. It’s very much part of the human experience and it also very much sucks to experience it. Pain “shrinks our world”, and unmanaged pain is a pretty horrible experience to have to endure. Do OTC pain relievers help? Sometimes. What about Rx pain relievers, do those ease pain? Sometimes. Even so, it’s more a reduction in pain or loss of awareness, than any kind of real solution. In fact, just about every potential remedy for pain is only somewhat helpful. Pain tells us something is wrong with this fragile vessel, and it’s pretty fucking difficult to silence that warning without fixing the underlying cause (which may not always be possible at all). Physical therapy, chiropractic treatments, meditation, acupuncture, CBT… 100% of all of these have helped someone at some point, and I promise you that none of them is 100% effective, ever, for anyone living with chronic pain. I personally use most of the available options, based on the circumstances of a given day, trying to find the best balance, trying to strictly limit my use of prescription strength pain killers, because…consequences. There are reliably tradeoffs. I breathe, exhale, and relax. I walk on.

…It doesn’t make things easier that American healthcare is so completely broken where treating pain is concerned…

I do my best to manage my pain skillfully. Sometimes I just have to “look past it” and do my best to prevent pain from calling my shots. I’m not even saying I’m always successful. My results vary. I live with pain. A lot of people do. Sometimes all I have available to manage my pain is pure seething rage, resentment, and force of will. It’s hard. I keep at it. My results vary.

… My Traveling Partner pings me again, I stop again to read his message…

My partner’s whole world is his pain today. I find myself struggling to prevent his pain from also becoming my whole world. (I’ve got my own to deal with too.) Another breath. Another step. How do I get the emotional distance I need to maintain my resilience for this marathon…? I tried to communicate a boundary regarding this time that is so critical to my wellness… I definitely don’t feel heard*. My irritation competes for my attention with my love and sympathy for my partner. He’s suffering and there’s so little I can really do. It sucks.

…”Put your own oxygen mask on first.”… Super good advice, but if the traveler next to you is clawing your mask out of your hands while you try to put it on (metaphorically speaking)… What then? I mean, in a legit air emergency whereupon oxygen masks are required, that would be a very different question. Here, now? I rather frustratedly allow my self-care to be completely undermined in order to care for my partner. It’s not healthy or sustainable, I just can’t see myself not being there for him. Caregiving is hard.

I sigh as I write. My Traveling Partner pointed out that I could have chosen to ignore all his messages until I finished my walk. It never even occurred to me; he’s home injured. It doesn’t sound wise to ignore a message if there’s potential he could have fallen…

Today feels like the sort of day that will require every practice, every moment, and may test everything I have learned about managing my pain, my mental health, and my ability to care for another human being with love and compassion. I don’t feel ready for this sort of test, and I know my results vary.

… Maybe I should take the day off work to deal with this shit…?

… I can at least begin again. Sometimes that’s enough. (Your results may vary.)

*Later, after I got back to the house, my Traveling Partner made it very clear he did hear me, does get it, recognized the boundary I set, supports my need to set that boundary, understands the necessity of my taking care of myself and the value of that quiet morning time for my emotional and physical wellness… all the things. He’s also having his own experience, and doing his best. Sometimes this shit is just hard. I feel heard, supported, and loved. It’s a journey, and we’re on it together.

Rain fell during the night. The morning air when I stepped out into the predawn darkness was fresh and humid. The days are already noticeably shorter. Daybreak came and went, revealing stormy clouds that threaten the possibility of thunderstorms.

The first hint of a new day.

I put on my boots at the trailhead, my mind on my walk, my heart feeling light, and hoping that my Traveling Partner got a second night of really restful sleep after a change to his medication. These human bodies are so fragile and complicated, and lack a proper user’s manual.

Yesterday was a good day, productive and sufficiently restful to feel as if I got a bit of a break from the grind. Most of my day was spent supporting the Anxious Adventurer, sorting out his vehicle needs for work, and getting his hoopty sold and out of the way. Easy but time-consuming. I was glad I had gone to the store earlier, and that I had a plan for lunch. The day lasted well-past when I might usually go to bed, but we were having a good time hanging out together, and I went with it. There’s been stress and worry and struggle aplenty lately, and it was good to just enjoy a few moments together.

… I still woke up at 4 a.m. LOL

The stormy sky this morning delights me, as the luminous pink of an unseen sunrise shifts with the clouds. I snap a few shots, thinking about those pastels. Maybe today I’ll spend some time painting?

Like thoughts, shifting.

I walked the trail thinking my thoughts and listening to the passing geese overhead. The air smells like it may rain again. I sit at my favorite spot along the trail and listen carefully. Was that thunder? Makes sense that it could be.

… Definitely thunder…

I think about the day ahead. There are things to do to prepare for the week, and next weekend will see me heading down the highway to the coast for a couple days. I’m eager to go, knowing my Traveling Partner won’t be left home alone this time. That’s very reassuring.

My mind wanders. I don’t stop it. I let my thoughts drift as I drink in the fresh air, and this quiet calm moment. It’s such a small thing, but this is an important self-care practice for me, to simply sit quietly and be for some little while. No criticism or doubt, no negative self-talk or worry, just a few quiet minutes as my thoughts drift by like summer storm clouds. I am awake, aware, and grateful. I breathe, exhale, and relax, listening to the sound of distant thunder.

A fat, warm, unexpected rain drop hits my face, and then another, and another. Will it actually rain? Maybe. Maybe not. The “maybe” is enough to put my mind on finishing my walk, so I finish my thoughts, finish my writing, and prepare to begin again.