Archives for posts with tag: get help

I’m sitting with my first coffee of the morning. I came prepared, and although it is instant, it’s a good quality instant, and a good cup of coffee. It’s hot, clean tasting on my tongue, and satisfying.

A rainy coastal Monday.

My first sight upon waking, was the rainy day beyond the balcony of my “ocean view” hotel room (which lacks any hint of ocean view, by virtue of being on the first floor, but offers a lovely view of Siletz Bay). The second thing I noticed was a couple of young… sea otters? Seals? They were relaxing on this side of the bay, quite nearby. I went to grab my camera to get a shot of this not-all-that-common sight (usually they’re on the other side of the bay, too far away to get a good picture with my lens). Returning to the balcony, I see that a man walking his dog has also spotted them. Does he stay well back to let them be? Oh, hell no, he’s American; he quickly moves forward to take his fucking dog closer. Jackass. The sea otters (I think, based on how they moved) slipped back into the water as he closed in on them with his (thankfully leashed) dog. I got a couple of truly pointless shots of the larger pod they are clearly part of, as individuals bobbed above the water, and the pod moved on down the bay. Still – what a fun sight. I take a moment to enjoy that, and I forget about the man and his dog.

I woke early enough that the beach was empty (on a rainy morning), and slept in (for real) late enough to wake well past daybreak, dawn, or even sunrise (although there is no sunrise to see on this gray rainy morning, only a homogenous gray sky). I feel rested. I leave the balcony door wide open to let in the sea breeze and the cool fresh air. I sip my coffee, contentedly. I’m here with my pastels, and I can paint as easily from reference photos and from my imagination, as I can from the actual view, so the rain is nothing to me, and doesn’t change my plans, or upset me in any way. It was lovely to sleep so deeply, and to wake so rested. If that were all I got from this trip away, it would be very much worth it.

I breathe, exhale, and relax. My back aches ferociously. The damp climate of a cool rainy summer day on the coast is hard on my arthritis pain, and for a moment I am “feeling my years”, until I think to recall that I’ve had this arthritis since I was 24 or 25 years old – so for almost 40 years – and it’s nothing at all to do with age or aging. I shrug it off as an annoyance of no consequence, and get on with things anyway. It still amounts to an irritating distraction, but little more than that, so far. My tinnitus is not quite silenced by the wind and the waves – it’s a combination of sounds that sort of “drowns it out” when I’m on the coast, close enough to hear the ocean. It’s a nice break from the aggravation of my tinnitus at full volume. I take a minute to enjoy it with my full attention.

It’s not yet late enough for the hotel breakfast, but I rarely find their strange grab-and-go assorted things for “breakfast” to be satisfying, nourishing, or even particularly “breakfast-y”. Just a cheap convenience, and this trip I am more prepared to take care of this fragile vessel. I’ve got salad greens, blueberries, cashews, and hard-boiled eggs in the room fridge, and I make a simple breakfast salad. My stomach isn’t yet particularly interested in food (it’s a bit soon after waking), but it’ll be lovely to have a “real breakfast” once I’m ready to eat something.

These are such mundane details of such an ordinary life – why bother writing any of this down? I dunno, because maybe someone, somewhere, reading this hasn’t sorted it all out yet? Hasn’t “solved for X” in some of life’s math, perhaps, and simply reflecting on the things that work – or don’t – and what matters most (at least now, to me) may be helpful perspective in some way? In 2013, for example, I don’t think it would have occurred to me how much my own choices in life – simple practical decision-making – were responsible for the vast majority of my personal misery. I don’t know that simply saying “you’re doing this to yourself” would have gotten through to me, but perhaps someone simply reflecting on the things that are working well – small, sustainable, simple choices – might have guided me (or at least made me think)? Besides… I just write. It’s a thing I do. (I’m grateful that you are reading. Thank you.) It’s also “for me”; I often go back and read my writing from other days, other circumstances, with new eyes, or seeking new inspiration, or a reminder that “this too will pass”, or that I’ve “been here before”. (One of the lasting consequences of my TBI is simply that I have some memory-related challenges, and some oddities about how I perceive (or don’t) novelty – sometimes I just don’t recognize that I’ve “been through this before”. Helps to have a reminder.)

…I sit awhile, reflecting on how far this journey has taken me over the past 11 years, from being deeply negative, traumatized, mired in despair, and looking for “an exit strategy”, to where I am now – mostly pretty positive, generally contented, often joyful, enjoying life and love (and even enjoying work), and feeling a deep sense of… joie de vivre. It’s lovely. Each sunrise is worth seeing. Each day has something new to offer. Not only is the journey the actual destination…it’s a journey I find worth taking. That’s a long way to come from those dark days standing on the precipice, ready to decide whether to make a permanent end to my pain. I’m grateful that I made the appointment with the therapist who helped me find my way to a better path. (If you’re in despair, please reach out to someone for help. You matter.)

I stand, stretch, and begin to dress. I haven’t yet gone for a walk on the beach (or taken any walk at all yet, this morning). Seems a pleasant morning for it. The rain has stopped, the sand is firm, and although the tide is coming in, it won’t be a very high tide – plenty of beach to walk. The morning feels oddly “out of order”, with coffee and breakfast ahead of my walk. I chuckle to myself. This is the sort of healthy variation from a routine that serves to keep my brain flexible and young. I go with it. No complaints. Rigidity of thinking does not serve a human primate well. I breathe in the fresh ocean air deeply, and exhale, imaging blowing my pain out with my exhaled breath. I’m not sure it’s an effective strategy, but doing so amuses me and diminishes the power my pain has over my mind. I stand in the open doorway, watching the gulls and crows down on the beach. Somewhere nearby I hear a woodpecker. Now dressed, the day feels that it has more truly begun. I nibble at my salad, and finish my first coffee. There’s more hot water ready, so making a second cup is an obvious next step; there’s no hurry. This is my life. This is my time. This is my experience. Every step on this path is my “next step” – mine to choose, mine to walk, mine to reflect upon at the end of the day. Although our lives are intertwined and we are interdependent social creatures, we’re also each having our own experience. It matters to be and to choose – and to experience this life that I have chosen. I breathe, exhale, and relax.

…The day stretches ahead of me, unplanned, unconstrained, not yet filled with my choices and the verbs required by those choices. I am my own cartographer. The journey is the destination. It’s time to begin again.

Life is beginning to develop a “new normal”. Change is, and it won’t be argued with. We adapt. Shift gears. Adjust routines. Change our habits. Resisting change, generally, is fairly pointless (especially if we chose it). How we cope with it says a lot about who we are.

My Traveling Partner and the Anxious Adventurer seem to be enjoying the new arrangement generally speaking. I’m okay with it, too. It’s pretty nice having some help while my partner is injured. I can now see a time on the horizon of my future when I won’t be chronically exhausted and on the edge of hitting some emotional or physical limitation that shuts me down and reduces my capacity to be helpful. It’s encouraging.

Having still less time to myself and less space of my own to retreat into takes getting used to. This is offset, though, by how much better things can be for my Traveling Partner, how much more skillfully his needs can be met by the two of us splitting up the work of caregiving, and how this makes it so much easier (for me) to also focus on my partner romantically and emotionally (because I am not completely run down by physical labor). Caregiving is more difficult than it may appear to someone not involved in caregiving, themselves. I’ve certainly got a newfound depth of understanding about it, personally!

I sigh quietly to myself, sitting alone on a bench along the trail, watching the sun rise. Pretty morning. Maybe less hot than it has been? I’m grateful for these quiet solitary moments.

As often happens with me, changes in my environment (and living situation) have disrupted my sleep. I wake briefly at odd times, responding to a new noise, or turning over and somehow noticing my orientation in the room is different than it had been previously, or just different than I expect. Sometimes I actually wake, maybe sit up for a moment, or read for a little while. It’s fine. It’ll pass. Annoyingly, one of these new “wake points” is at 03:00, too close to my typical time to wake up such that I can’t easily get back to sleep. lol It’ll pass. Change is, and I do adapt.

Another work day. Soon the weekend. 16 days to my coastal getaway. It’s nice having that to look forward to. There’s quite a bit of work and change to manage between now and then, but… It’s fine. Truly fine. I feel pretty good this morning, in spite of arthritis and headache pain. Pleasant morning.

I find myself missing my Traveling Partner, though we’re separated only by a handful of miles and the few minutes of travel time from finishing my walk to returning home. Humans are strange creatures prone to attachment. lol

The sun continues to rise. It’s time to finish my walk and get on with the day. It’s a good time to begin again.

The air was still fresh from the drenching rain during the night when I stepped out of the car at the trailhead. Drops falling from the trees occasionally spattered my face and hoodie, which I sensibly wore thinking it might be a cool morning. I breathed deeply, filling my lungs with the rain-fresh air. I walked briskly, alone with my thoughts, my arthritis pain, and my headache. Only one of these things mattered much to me, the rest I did my best to ignore as inconsequential.

Yesterday’s appointments, first with my therapist, and later with my physician, were an interesting study in perspective. I showed up to both prepared to discuss stress and anxiety and how best to manage these lingering mental health concerns, only to be firmly told by both that my levels of stress and anxiety, at least under the current circumstances, seem quite reasonable and even appropriate. Well… Shit. I’m not nearly as well-practiced at managing reasonable-not-a-sign-of-mental-illness stress and anxiety. lol In each conversation it’s agreed that similar techniques and continued practice are helpful. No change to medications or recommendations. Just… Keep managing. Keep up self-care efforts properly. Keep breathing and keep cutting myself some fucking slack, eh? It’s still a lot to handle, but apparently that’s pretty fucking reasonable under the circumstances. It was peculiarly helpful to hear that.

…It doesn’t make things any easier…but it does take a bit of pressure off…

I’ve been hard on myself a lot lately. Sometimes my self-talk is pretty negative, even though I know how cruel and unhelpful that is. I’ve carried some shame and disappointment that I am not a more skilled caregiver for my Traveling Partner, when he needs so much from me while he’s been injured. I’ve labored under the additional burden of my disappointment with myself over not having more energy, more capacity to labor on, more ability to get everything done, every day. I’ve been angry with myself just for not being younger, more able, and for needing rest and care, myself.

…My Traveling Partner, on the other hand, has been kind and appreciative, and generally far more impressed and grateful for my help every day, so this shit is definitely me…

I breathe and keep walking. My Traveling Partner pings me, letting me know he’s awake. I stop on the trail and exchange a few messages before continuing. Time to head back to the car and start the work day. There’s a lot to do, and it sounds like my partner’s son will arrive later, sometime this evening.

Fuck, I’m so tired… A good night’s sleep doesn’t restore my energy these days and every day seems to start with a longer list of shit that needs attention… And I keep putting myself last on my list! Not helpful. lol No wonder I’ve been stressed and anxious. I breathe, exhale, relax… And get ready to begin again.

This is all pretty real stuff. Life. Sometimes it’s a bit much, but it’s better than the current alternatives. I breathe, exhale, relax, and walk on. I’ll get where I am going, eventually. It’s a journey. Incremental progress is still progress. One step forward is still forward momentum. Making a point of being kind to myself doesn’t take any time or cost any money. Worth doing and I’m sure it’ll be helpful stress-management-wise.

… This too will pass…

… It’s time to begin again.

The commute was ridiculously easy this morning. Very little traffic, and it seemed that every driver was alert, and driving safely. It was… amazing. My Traveling Partner is continuing to recover from his injury, and although there is more recovery yet to come, it seems he’s making good progress. This contributes a lot to my pleasant morning, this morning; it’s comfortingly encouraging. I got a good night’s sleep, and no doubt this is also contributing to my outlook on things as the morning unfolds. I’m grateful for the sleep, and the mood I’m in. My appointment, yesterday afternoon, with a new specialist, went very well. I felt heard. I felt supported. What is most unexpected for me, is that I walked away from that appointment feeling… hopeful. Encouraged. Positive. I feel as if real (physical) healing is not only possible, but also within reach. I haven’t felt that way in a long time.

I sip my cup of ice water (I’ve already had my coffee), and look out at the city, still wrapped in darkness. Hope feels good.

I remind myself to take care not to set myself up for failure by becoming invested in some particular outcome (whether it seems within reach or not). I take a deep breathe and exhale. I do it again. Then again. I feel the calm settle over my body. I’m in some pain today, but my headache does feel somewhat reduced in intensity. Placebo effect from simply being listened to and cared for? Perhaps – but why would I undermine this feeling, even if that were the case? Less pain is less pain. I take a moment to appreciate it. Another breath. Another exhalation. Another moment to relax, to reflect – to begin again.

Later today it’s off to an imaging appointment. More images will ideally mean more – or at least more recent – information about whatever is going wrong with my neck that could be causing (or at least contributing to) my persist headache. I feel cynicism, learned helplessness, and old medical trauma competing with the sensation of hopefulness. I breathe, exhale, relax – and remind myself that it’s okay to unpack some of that baggage, and let it go. I remind myself not to carry past pain into future experiences – often easier said than done, but it’s helpful to put into to words to be more aware of the possibility.

I sip my water. The morning will unfold, as mornings do, and the day will become whatever the day will be. It’s not at all necessary to control everything (it’s not even possible). I prepare to “ride the wave” of whatever the day will bring. I get ready to begin again.

I’m in a pleasant place, at the end of a pleasant day. It’s been a lovely break from the routine, and I’ve enjoyed it. Doesn’t do anything to improve the pain I’m in, that’s just real, and as much as possible I’m past letting it call my shots in life(except when it just does) – but it doesn’t mean I’m not in pain. Here’s the thing, though… we’re each having our own experience, and pain (or suffering) is part of the human condition. (Wait around long enough, you’ll get yours.) (And, I’m sorry in advance, cuz it’s definitely going to be a thing, if it isn’t already.)

I’m in pain. My Traveling Partner is also in pain. We have different pain, and different reasons why. We both hurt, and it can be super annoying. Pain tends to shrink one’s world down to just the pain we experience, ourself. It’s very human to filter someone’s shared experience through the lens of our own lived experience – without any reason to assume that these might be at all similar (they’re often not sufficiently similar to justify that approach). It makes for shitty listeners and a poor experience when seeking support. 😦 I remind myself to do better.

I’m sure we’ve both done all the things we know to do when we’re in pain. Doesn’t really do more than maybe improve things a bit. Doesn’t treat the underlying condition or cause. Doesn’t result in a uniformly pleasant experience from that point. Doesn’t make communicating about it any easier. Neither does being apart. Quite the contrary, being apart when we want support from our partner is extra frustrating. Not ideal for communication – or pain management. Stress amplifies pain. Pain causes stress.

Human primates being human primates, we tend to make some pretty stupid assumptions (and then act upon those instead of something we can confirm is truly the case) when we’re stressed, frustrated, hurt, or hurting. It’s no wonder I like the occasional getaway all alone; human primates vex me. (All of them, pretty reliably, at some point.) I’m not any better, being that I’m also a human primate. This evening I am, in fact, vexed with myself and my ongoing very human communication challenges. It sucks and I’m cross about it. How the fuck do I so reliably say things that I think demonstrate how much I care, only to have the person I’m speaking to behave as though I’ve been ignorant, insensitive, or just somehow wrong? Super annoying. I’d definitely like to do better.

I’d like to do more to “be there” for my Traveling Partner. I failed pretty seriously, and I think all I was really being asked to do was listen for awhile. That should be easier. (I definitely need more practice.) Over text, my communication challenges are complicated by how much slower I type out a text than my partner does. (I also tend to do several edits or rewrites of a response, and often still working on that, seeking to be careful with my words, considerate, wise… and then his messages start stacking up, and I’m not yet done with the first reply. Awkward. By the time I hit send, what I’ve said no longer makes sense. It’s problematic, and I definitely think conversations that require care and consideration do best irl rather than as text messages. Just my opinion, my experience. I want to help support him, and help him get the support he needs (or treatment) to be really well through and through. I also want that for myself, but don’t know how to get it. It’s hard, sometimes.

…Some things don’t have a tidy diagnosis with a conveniently positive resolution…

Now I’m distracted and annoyed by this situation, and struggling to focus on my book at all. I breathe, exhale, relax, check my meds – yep. Time for the next round. I sigh out loud. A few minutes ago my partner was telling me how much he misses me. I wonder if that’s still true right now? I hope we both sleep well and get good rest, and wake up in less pain. That’d be nice for both of us.

It’s evening. Already time to begin again.

…………..

I rarely “follow-up later”. This is me doing that. Hours later. I’m still in pain. He’s still in pain. We’re still apart from each other, and it’s… night. I miss him. He misses me. A few terse words and a bit of misunderstanding don’t change that (even when it may feel, momentarily, that it might). A quick reset – a chance to “begin again” – isn’t just a phrase. It’s a practice. I took some time, got past my bullshit. Distracted myself in a healthy way to avoid ruminating over bullshit. I “broke the spiral”, and got my evening back on track.

I’m tired, but not yet sleepy. I finished one book, and took time to sit with that world and its adventures, for a little while. I’d go to sleep, but I’ve had an “unfortunate amount” of coffee (4 cups? Maybe 5?) – and yes, it likely affects my ability to fall asleep quickly at my usual somewhat early hour. All good. I’ll rest, anyway. Maybe start the next book…? Then finally, get some sleep.

I’m eager to return home. Another opportunity to begin again. 😀