Archives for posts with tag: human

The morning was chillier than usual when I stepped out of the house. The air had a certain dry bite to it when I inhaled. The car sparkled under the street light. Frost. The first frost this year has come. My eye wanders over the flower beds as I pass them. “Time to prune the roses and woody herbs,” I remind myself. The car door opens with a frozen crackle. It doesn’t take long to defrost the windshield and warm up the car – it’s cold, but only 34 degrees (F), barely cold enough to frost things over.

I head up the highway with my thoughts. I’m cautious and alert for frozen stretches of roadway. There is little traffic, and the drive is a pleasant one. Nice start to the day, and I find myself smiling as I drive, relaxed and unbothered.

…”Relaxed and unbothered”… an almost ideal state of being in 2025, and it feels like a stroke of luck, and a luxury. I make a point to enjoy it, aware of how precious this moment really is…

I breathe, exhale, and relax. It’s a good beginning. Sometimes that’s enough.

I sip my coffee and think about the holidays ahead. There’s no stress over it, really, and I don’t have any lavish costly plans. I’m looking forward to a simple holiday at home, a chance to relax with my beloved Traveling Partner, share joy, tasty treats, and festive moments. That, too, is enough. His birthday is between Thanksgiving and Giftmas, and I often find it challenging to find something worthy to celebrate him, but that challenge is a “me thing”. Although he is particular, he is not demanding, nor ingracious, and he knows how to receive a gift well. I’m excited about my choices this year. I think about holiday baking, and setting up the tree on Thanksgiving weekend. I think about the Thanksgiving dinner, and the simple and tasty classic menu we decided on for this year. I’m hoping for a low stress holiday – no one needs more stress these days. I think about Giftmas, too, and selfishly, like a child, I think about gifts under the tree and stockings hung on the mantle. I’m hoping for fuzzy soft spa socks and books, and maybe something for the garden, or the kitchen.

My keyboard begins vexing me with some crazy bullshit. It’s wireless… Low battery maybe? No.  Some update not yet installed? Nope, not that either. It’s weird; the actions of the keys seems to change randomly. Restarting the laptop clears it up temporarily, but in a few keystrokes the problem returns. I find myself more distracted than frustrated, which seems promising, all things considered. I turn my attention to troubleshooting and the work day ahead.

… It’s apparently time to begin again.

.

.

.

…If you’re curious what the issue turned out to be with the keyboard, my function key was apparently sticking. Resolved. Feeling grateful to have done some time in a technical support role, once upon a time. Handy skills.

My head is pounding. My ears are ringing. My back aches furiously and I didn’t get enough sleep. I stayed up later than I planned pushing myself harder than I should, getting shit done I had planned to do today, while working from home. I’m sitting at the trailhead now, waiting for the sun, and on the other side of a walk, it’ll be one more work day in the office. I made these changes to give my Traveling Partner a day of chill time without dealing with anyone’s stress but his own, assuming the Anxious Adventurer takes his father’s firm, clear, directive to find something to do elsewhere today as seriously as it was intended.

I’m a bit annoyed about the whole thing, honestly. I manage my planning (and how I get shit done), with a careful eye on my physical and emotional limitations, and my limited energy. All of that went out the fucking window yesterday because the Anxious Adventurer sat around being loud for hours (apparently), preventing my Traveling Partner from being able to relax. It’s not as if my partner can jump in his truck and go for a drive himself right now! Fucking hell the lack of basic awareness and consideration irritate the shit out of me. (Caregiving is hard. Being human is hard.) Yet again, I’m dealing with a hearty helping of unnecessary bullshit and OPD (Other People’s Drama), and it limits my ability to effectively juggle caring for my partner and caring for myself.

I breathe, exhale, and relax. I knew going into this that it wasn’t going to be easy. I’m disappointed by how often I find myself doing more work, not less, in spite of an additional adult human being in the household. I reexamine my expectations yet again. I’m so fucking tired and I’m in a stupid amount of unmanaged pain this morning… but the laundry is done. The shopping got handled. I even got to (eventually) spend some chill time with my beloved before I take off for a few days to rest, care for myself, and hopefully recover more than a single day’s worth of emotional resilience.

…Life doesn’t always follow my fucking plan…

The Anxious Adventurer has a good heart, he just also has limited life experience, no experience managing a household or caring for another human being (as far as I know, and based on observation), and hasn’t figured out the basics of who he wants most to be or… basic manners and interpersonal communication. Fuck. You know what I didn’t sign up for? Parenting. Somehow, here we all are. :-/  I’m not any more skilled at basic parenting than I am at caregiving. This shit? Also hard.

… It isn’t personal, it’s just reality…

I breathe, exhale, and relax. I work on letting this shit go, at least enough for my own mental my health. My partner’s limited ability to manage his stress and his reaction to other people’s emotions is frustrating and difficult, however relatable, and is a predictable outcome of the combination of meds he’s been taking for months. I get it; becoming disabled is a difficult experience, and working to taper off some of the medications he’s on is also difficult, and dealing with other people’s bullshit is difficult, and he’s pretty much trapped at home dealing with all of it, all at once, all the time, at least for now. That seriously sucks and I want to help – and I will do a better job of that if I refrain from becoming fused with his experience. I’m having my own as it is. Fuck this shit is complicated and difficult.

Another breath. Another exhalation. I bring myself back to this moment. Daybreak peaks over the horizon, just barely. The morning traffic rushes by on the highway. I sit quietly with my pain, boots on, ready to take a short walk in the dim light of dawn before heading to work. The Anxious Adventurer confirms he is working today; my partner will get some quiet time. It makes the upheaval and aggravation worth enduring. I take my morning medication, grab my cane and my headlamp, and stare into the morning darkness. It’s time to begin again. Already.

Time to get back to the office. I’m okay with that. My Traveling Partner is pre-occupied with work right now, and when I am at home working, focused on work, the day-to-day communication challenges associated with my brain injury can be a little more obvious, and, I guess, a little more frustrating. Neither of us need that headache right now.

…Having a TBI that affects how I communicate is more than annoying, sometimes, for everyone dealing with it (not just me). It’s doubly hard when so much about “me” makes it super easy to forget, most of the time, that I have some of these issues…then… fuck. There they are. “Issues”. Damn it. I’m not sure which thing is more frustrating… is it that I often ask for clarification because context is not enough to narrow down the meanings of words to just the one thing intended? (So many words have multiple, or nuanced, meanings, and I “hear them all” when people are talking.) Maybe it is that I sometimes “answer the wrong question” (Okay, I do this a lot, and it is super comical until it becomes super aggravating.) – meaning, that, if you ask me a “when” question, I may give you the “why” – and yes, if you humorously reply by asking me the “why” question, indeed, without skipping a beat, you’re likely to get the “when” of it, without me immediately noticing what I’ve done. :-\ I wish it always just stayed funny, though. It’s not like I’m “doing it on purpose”.

…Then there is the seeming “evasion” when asked a question, and I literally just… go blank. Overloaded trying to both understand and answer, usually in circumstances where there is a clear expectation that I will “get it right” because it is “easy” and “should be right there”. I catch up, sure, but by then I’ve somehow communicated a lack of trustworthiness that can seep into even those interactions with people familiar with me for a long time, and aware of my injury. Aggravating for all concerned. Super painful for me to deal with. Way too many opportunities for hurt feelings, all around.

…And how about those opposites? Omg, yeah. I work with numbers – and this particular challenge is painful, and common; I sometimes say the literal opposite of what I am actually thinking (positive vs. negative, yes vs no, even “opposite colors”, and concepts). Like a cruel prank on myself. Fuck that shit. At least this is one I commonly catch, in the moment, myself. It’s just so hard, sometimes. I want to be heard, valued, and accepted, and I want my words to do credit to my thinking. Realistically, I’m not going to get that any more often, or any more easily, than anyone else. Sometimes, it’s just not there for me. Real talk. Sometimes I sound like a complete dumb ass.

My head aches with trying to manage my headaches, on top of staying on top of all the cognitive disarray, get complicated, and although I do okay sitting here at a keyboard… if you’ve been paying close attention, you’ve probably seen it, too. :-\ It’s not getting better as I age, I assure you. In fact, in spite of continued rehabilitative work, specific to improving these sorts of things, I recognize that there are some indications some of this is getting worse, very slowly, over time. Certainly, that last transient ischemic attack (July? 2013? 2014?) was notable, and obvious, in my writing, and I still see it in “wrong endings” of words – a type of “spelling mistake” that isn’t about spelling at all, and cropped up immediately after that TIA, and persists, to a lesser degree, even now. Brain damage? Yeah. Brain damage. It is what it is.

…How long before the frustration of friends and loved ones isolates me completely, relegated to fond memories, and deliberately patient, tolerant, excuses for putting up with me… or… just… not. Just quiet sorrow, and regrets…

I sigh heavily in the quite room, listening to David Bowie, “I’m Afraid of Americans” (but only because it was next on this playlist, although… yeah). Glum thoughts over good coffee. Feeling a bit anxious about life, generally, and about aging, specifically, and what it may mean for my relationships. My brain attacks me immediately, and with real force, “he’s not going to love you forever, not like this, not if you can’t communicate; you’ve already lost your looks, what’s even left now…?” My brain whispers my worst fears and insecurities to me.

“Fuck. For real? Right now? I’ve got work you know.” I silently chastise my personal demons, and have another sip of coffee as the tears slide down my face. “I’m not having it, you vile bitch, just go ahead and head on back to The Nightmare City, I just don’t have time this morning.” I frown into my coffee, annoyed with myself, my insecurities, my vulnerabilities… my humanity.

I switch up my playlist to something lighter, and hope for the best as my tears dry. It’s a place to start…and it’s time to begin again. This morning, that’s got real meaning; it’s an opportunity to acknowledge my fears and insecurities, accept that these are experiences and feelings I need to address in an authentic, honest, and gentle way with myself. I take a couple of deep cleansing breaths, exhaling slowly and evenly after each, until it feels comfortable. I feel myself relax a bit. I make a point to fill my thoughts with recent positive interactions with my Traveling Partner, and the delight of a recent long email from a dear friend, and the recent triumphs and achievements at work… there’s a lot to be grateful for, to be satisfied with, and to enjoy.

I finish my coffee. I start my day.