Archives for posts with tag: Fragile

How am I still so fragile? After all this time? Tears come and go. At this point, after days of it, I’m not even sure why. Post-menopause, it “shouldn’t be” hormones… but… I keep fucking about trying to “fix shit” with my body as I age, so… I don’t know. Anything I take to remedy some ailment or condition has potential to fuck with my body’s systems and my emotional balance, so… yeah. I just know the world is too much for me. Just… all of it.

…I keep finding myself weeping and in real emotional pain… but why, for fucks’ sake, why??

…I mean… I guess it’s enough that the world is this messy strange violent circus of nightmares, with an ever-increasing body count. That, by itself, is worth weeping over. I just can’t sustain doing all the fucking crying, by myself. It would make more sense to stop the killing, wouldn’t it? I drink more of this bottle of water sitting next to me. Tears = drink more water. A lot more.

…I have the strange slightly hilarious thought that maybe the water drinking itself is causing the tears somehow. That’s ridiculous, it’s just a passing notion.

My sleep is chronically disturbed and restless, this isn’t new, it’s just… yeah… chronic.

Ping…ping…ping…ping… work pings on my consciousness. My Traveling Partner pings me eager to iron out details for this or that, or share something cool. Ping. Scam calls. Ping. Another email. Ping. An announcement in a Slack thread at work. Ping. A walk-up co-work colleague with a question. Ping. Ping. Ping. Ping. Everyone, everything, seems to want a piece of my attention, or a moment of my time. I feel overwhelmed, but it’s all quite ordinary. There’s nothing to see here.

A long time ago, in another life, a 14 year old me, feeling something similar, packed a small bag, and lacking any notable experience of the world, just sort of … walked away from her home, her family, and her life, headed… nowhere. Away. I didn’t have a plan exactly… I was “going to Florida”. Why? A rock star I was crushing on lived there, and… I don’t know. I thought I needed a destination? I was fortunate; I survived the adventure to return home to commonplace misery. I survived to see adulthood, to go on to survive domestic violence, military service, warfare, trauma… you know, life. I’m almost 60 now. Still holding on.

…Shit… is this about that? I don’t feel any obvious angst over turning 60, specifically, it’s more… the issues hang on right along with me. How much further does this journey go? How many more verbs are there? G’damn it – when can I relax and just fucking be?? I’m so tired…

Why do I feel so trapped?… Why does this all feel so fucking pointless??

…I’ve got tools. I’ve got verbs. Choices. This isn’t “hopeless”… just hard.

…I’ve just got to begin again. Again.

Time to get back to the office. I’m okay with that. My Traveling Partner is pre-occupied with work right now, and when I am at home working, focused on work, the day-to-day communication challenges associated with my brain injury can be a little more obvious, and, I guess, a little more frustrating. Neither of us need that headache right now.

…Having a TBI that affects how I communicate is more than annoying, sometimes, for everyone dealing with it (not just me). It’s doubly hard when so much about “me” makes it super easy to forget, most of the time, that I have some of these issues…then… fuck. There they are. “Issues”. Damn it. I’m not sure which thing is more frustrating… is it that I often ask for clarification because context is not enough to narrow down the meanings of words to just the one thing intended? (So many words have multiple, or nuanced, meanings, and I “hear them all” when people are talking.) Maybe it is that I sometimes “answer the wrong question” (Okay, I do this a lot, and it is super comical until it becomes super aggravating.) – meaning, that, if you ask me a “when” question, I may give you the “why” – and yes, if you humorously reply by asking me the “why” question, indeed, without skipping a beat, you’re likely to get the “when” of it, without me immediately noticing what I’ve done. :-\ I wish it always just stayed funny, though. It’s not like I’m “doing it on purpose”.

…Then there is the seeming “evasion” when asked a question, and I literally just… go blank. Overloaded trying to both understand and answer, usually in circumstances where there is a clear expectation that I will “get it right” because it is “easy” and “should be right there”. I catch up, sure, but by then I’ve somehow communicated a lack of trustworthiness that can seep into even those interactions with people familiar with me for a long time, and aware of my injury. Aggravating for all concerned. Super painful for me to deal with. Way too many opportunities for hurt feelings, all around.

…And how about those opposites? Omg, yeah. I work with numbers – and this particular challenge is painful, and common; I sometimes say the literal opposite of what I am actually thinking (positive vs. negative, yes vs no, even “opposite colors”, and concepts). Like a cruel prank on myself. Fuck that shit. At least this is one I commonly catch, in the moment, myself. It’s just so hard, sometimes. I want to be heard, valued, and accepted, and I want my words to do credit to my thinking. Realistically, I’m not going to get that any more often, or any more easily, than anyone else. Sometimes, it’s just not there for me. Real talk. Sometimes I sound like a complete dumb ass.

My head aches with trying to manage my headaches, on top of staying on top of all the cognitive disarray, get complicated, and although I do okay sitting here at a keyboard… if you’ve been paying close attention, you’ve probably seen it, too. :-\ It’s not getting better as I age, I assure you. In fact, in spite of continued rehabilitative work, specific to improving these sorts of things, I recognize that there are some indications some of this is getting worse, very slowly, over time. Certainly, that last transient ischemic attack (July? 2013? 2014?) was notable, and obvious, in my writing, and I still see it in “wrong endings” of words – a type of “spelling mistake” that isn’t about spelling at all, and cropped up immediately after that TIA, and persists, to a lesser degree, even now. Brain damage? Yeah. Brain damage. It is what it is.

…How long before the frustration of friends and loved ones isolates me completely, relegated to fond memories, and deliberately patient, tolerant, excuses for putting up with me… or… just… not. Just quiet sorrow, and regrets…

I sigh heavily in the quite room, listening to David Bowie, “I’m Afraid of Americans” (but only because it was next on this playlist, although… yeah). Glum thoughts over good coffee. Feeling a bit anxious about life, generally, and about aging, specifically, and what it may mean for my relationships. My brain attacks me immediately, and with real force, “he’s not going to love you forever, not like this, not if you can’t communicate; you’ve already lost your looks, what’s even left now…?” My brain whispers my worst fears and insecurities to me.

“Fuck. For real? Right now? I’ve got work you know.” I silently chastise my personal demons, and have another sip of coffee as the tears slide down my face. “I’m not having it, you vile bitch, just go ahead and head on back to The Nightmare City, I just don’t have time this morning.” I frown into my coffee, annoyed with myself, my insecurities, my vulnerabilities… my humanity.

I switch up my playlist to something lighter, and hope for the best as my tears dry. It’s a place to start…and it’s time to begin again. This morning, that’s got real meaning; it’s an opportunity to acknowledge my fears and insecurities, accept that these are experiences and feelings I need to address in an authentic, honest, and gentle way with myself. I take a couple of deep cleansing breaths, exhaling slowly and evenly after each, until it feels comfortable. I feel myself relax a bit. I make a point to fill my thoughts with recent positive interactions with my Traveling Partner, and the delight of a recent long email from a dear friend, and the recent triumphs and achievements at work… there’s a lot to be grateful for, to be satisfied with, and to enjoy.

I finish my coffee. I start my day.