Archives for posts with tag: osteoarthritis

Many many years ago, in what now feels like an altogether different life, lived as if by an entirely different person, I made a choice to “save my own life” through extreme means (in that moment). My ex-husband was coming after me with a very large knife, in a small apartment in Germany. The front door was locked from the inside, and I could not open that door to escape down the stairwell. I dashed to the patio, barely ahead of him, and rolled over the balcony rail. He reached me as I dangled there in that moment between actions, and his face wore a look of astonishment and alarm, “Don’t!” he demanded urgently. “I have to,” I said quietly, and then I let go.

I hit the slick paved patio below quite hard. My ears rang, I felt something snap. I “saw” an explosion of lights behind closed eyes. I felt nauseatingly dizzy. I saw him looking down, then retreating from the balcony rail quickly – I knew he was on his way and I panicked. I jumped up from the pavement, disregarding all sensations, and climbed a fence and a hedge to get to the nearest neighbor whose lights were on. I couldn’t remember a word of German in that moment other than “polizei”, and so that’s who they called. The police arrived, locked and loaded, and told the neighbors (whose English was better than my German) that an ambulance from the American hospital had been called. The police went after my ex husband, and once they found him he was arrested.

When the ambulance arrived, the medics quickly determined I’d likely broken my back (and there I was sitting upright in a lawn chair, flexing my spine uncomfortably and commenting that I could not figure out why I was so “uncomfortable” – I didn’t understand that I was in shock). They insisted I be still. They put me on a back board, and on a stretcher, and rushed me to the ER. I wasn’t there long, barely long enough for X-rays, and for the Military Police investigators to arrive to interview me, while the doctor reminded them that I was heavily medicated and badly injured, and to keep their questions to a minimum. A helicopter arrived, and I was medevacked to the big regional Army hospital to the north, where there was a larger team more capable of treating spinal injuries. That was when I realized I was actually badly injured. The flight was short, and the strange air mattress they had me on was more comfortable than the back board or the hospital bed. When we arrived at the big hospital ER, they went to take me off that air mattress (I guess it belonged with the helicopter) and I cried and pleaded that they please let me stay on it. I still didn’t know “how bad it was” (or wasn’t) and I was starting to feel pain, again.

…It was pretty bad. My back was broken in two places, a spinous process from one smashed vertebrae had gotten shoved into my spinal canal, and I had a concussion and a broken wrist. I’d be in that hospital for a couple of months after 16+ continuous hours of surgery to fuse the damaged vertebrae and install bizarre and uncomfortable hardware to hold those surgical sites still while healing happened. (A year later, that hardware would all come out… except for a ferrous surgical wire that to this day prevents me having an MRI; the wire was woven through the fusion to hold things together.) I’ve got a long scar down my spine, a visible reminder, and an uglier, shorter one on my left hip where the bone grafts were taken to build my fusion. I don’t care about the scars; I lived. I’m still walking.

Funny thing about all of this; the longer term consequences were not within view. I had no idea that I would struggle to form healthy attachments or build trust with lovers, possibly ever again. I didn’t know that the nightmares would plague me for decades to come – some to do with the domestic violence, some to do with the medical terror of the surgery itself, during which the medical team had to wake me up to verify that I was responding to stimuli. There have been few things more openly terrifying in my life than being awake during spinal surgery, intubated, on life support, surgical incisions open, and being asked questions that required answers. There have been other consequences… the pain of my arthritis reminds me regularly of the choice I made. A choice to live, sure, but also… a choice that came with profound consequences. I paid a high price for this life of mine.

I pause for a moment to reflect on the value of a life. This life. My life. The choice I made to keep it, to trudge on, to try again, reaches so far back beyond that despairing moment in 2013 when I thought to abandon it. It has been a worthy journey, consequences and all. Sometimes it’s hard. Sometimes it’s easy.

…Some nights I still have nightmares. Some mornings I still wake up in pain. When I look back, though, I don’t regret that terrible lonely desperate choice to let go of a balcony rail and fall to my… freedom. Some choices just extract a big price. It’s a question I think few of us ask or answer before we choose; will the price be worth it? It’s hard to know, isn’t it? It’s probably worth wondering, for at least a moment… but there’s no map on this journey. We’re each walking our own hard mile.

Choose your adventure. Pay your price. Begin again. The journey is the destination.

I’m relaxing. Enjoying the evening. I’ll probably be up rather late; I collapsed into a foggy, dreamy, lush nap shortly after I got home from work (and after making a short trip to a favorite local pie spot to pick up a pie – why not? I like pie…). I woke refreshed, and found my Traveling Partner had slept through the time I was napping, himself, relaxing on the couch. We must have needed the sleep. Dinner was simple, nothing fancy.

…There’s nothing about this that is significant, important, or, probably, even interesting. It’s just a quiet evening with nothing much going on. It’s pleasant, and that’s enough.

I’m in a lot of pain tonight. It’s not “new pain”. Just my arthritis. Chronic. Predictable. But not new. I mean, shit, I first started feeling the twinges of what would become my “constant companion” in… 1988? 1989? Something like that. About 35 years ago. At first I thought there was “something seriously wrong” with my spinal fusion – no one explicitly warned me about the likelihood that osteoarthritis might set in, in the adjacent vertebrae, or gave me any idea what to expect when it did… until after it was part of my experience. Not much of a fucking “warning”, but what could have been done? It’s not like a warning about arthritis would have caused me to decline the surgery that lets me walk, stand, and get around as well (and go as far) as I do. So… I hurt. I mostly don’t mention it out loud to other people. I probably minimize it more often than I should when I’m talking to my Traveling Partner. I don’t like him to worry, or stress over it, and for fucks sake, what could he even do about it? Basically nothing. So… why bitch? I just deal with it and try to move on. Take medication when I need it. Keep myself moving (because being too still too much of the time definitely makes things worse over time – a lesson learned decades ago). Sometimes it’s hard. Life, too. So… yeah. So what?

I distract myself with entertaining videos. I write. I listen to music. Play video games. Read books. I enjoy life. It’s already likely to seem far too short. 🙂

No one likes to hurt. Pain sucks. I remind myself how common it is that we do. For sure there are people who have it much worse, more of the time, than I do. Perspective; it is so much more profound to experience contentment and joy, because I definitely do know what it feels like to be mired in pain and misery. Maybe it’s enough.

…Be kind to people. It’s not always obvious how much pain someone is in, and how it defines their experience. We’re all just people. Pain is part of being human.

Live. Work. Sleep. Wake. Repeat.

It’s time to begin again.

Stop.

Seriously, just put it all on pause for a minute or two. You’ll be fine. The work will wait. The pings and texts will wait too. That urgent whateverthefuck you just have to get done right now? Yep, even that will wait for a couple minutes. Take care of you for a minute. Breathe. Exhale. Relax.

Turn off the music. Quiet as much of the noise as you can control. Just sit for a minute. Another breath. Need a timer? I’ve got you… here, try this one. You’ve got two minutes for you, right?

…<sigh>… Feels good. Just a quiet minute or two…

There’s a lot to get done. Life sometimes feels so crazy busy that I walk around with a chronic lingering sensation of something being incomplete, unfinished, or forgotten. Sometimes, when I stumble on the thing driving that sensation, it’ll turn out to be something forgettably unimportant like being interrupted while reading a receipt, and having the sensation of “an unfinished conversation” that turns out to be with myself. lol I’ve found, more than once, that the “secret” to feeling less busy, less frantic, less consumed by the details… is to slow down. So. Do that.

Do it again.

Set expectations with yourself and others about how much you really can (or are really willing) to do. Take care of yourself. “Human” comes with some known limitations. Respect your limitations – and your boundaries. Tired? Rest. Hurting? Heal. Cross with the world? Take a step back and enjoy you for a little while. Recognize that everyone around you needs those same things – rest, healing, and time to just be who they are, and enjoy that experience.

Look, I’m not telling you what to do. I’m telling you what I’m doing – and going to do, and planning to continue to practice until I get properly good at it. It just doesn’t make any damned sense to be the person in the world treating me the worst. lol I am practicing treating myself – and my loved ones – as well as I know how to treat anyone at all. Every day. Every interaction. Moment by moment. I expect to fall short of my goals – maybe a lot. Failure is an option – pretty commonplace, actually – and we learn more from failures than from successes, so… there’s that. 🙂 You’re gonna fail at some things. That has to be okay. Start over. Begin again. Understand where things went amiss, and do something different or change the context. Just don’t give up on yourself. You have room to grow – and even that journey can be fun, and even pleasant, and rewarding, and filled with love. 🙂 Worth exploring, I think.

…I’m in so much pain today. Arthritis in my spine. Cervicogenic headache. The consequences of injuries, aging, and cold weather… and it seems so completely ordinary as to defy being worth bitching about…but here I am. I think I’ll just begin again, myself. 🙂 I’m certainly too busy to let pain tell me what to do. 😉

The ringing in my ears is ferocious today. Like a jumbled up combination of a distant (persistent) phone ringing next to a fire alarm, surrounded by chimes. I have the sense that my hearing may even be impaired, though generally that’s a bit of an illusion (tinnitus is very distracting, though). My back aches – arthritis pain. My head aches, too, not sure why, but sometimes “it’s a set” rather than just one something or other hurting.

The work day is behind me, and I sort of feel as though this could/should be a “joyful moment” – but my physical limitations at the moment are aggravating my partner, who is, himself, aggravated by other things – most particularly, his frustration with a new tool that he’d like to upgrade, and has the parts with which to do so, but… sometimes things are not as simple as all that. Real life getting real. Instead of his infectious delight with a new tool, I’m breathing in his profound frustration, which is not at all pleasant. I wish I could help, but aside from offering up one suggestion that seemed to have some small bit of promise, I’m just staying out of the fucking way. It’s the best I can do, right now.

Instead of getting mixed up in his moment, I’ve got mine, right here. My phone has been laggy and less-than-ideally responsive lately, and with the addition of the home automation application – which serves best when it runs smoothly – I am painfully aware of the poor device performance. What I am not, however, is “surprised”. My SD card is 100% absolutely entirely full of photos and videos… and when that happened, some months ago, I haplessly went ahead and told the silly thing to save new ones to the device storage instead. Now that’s full too. Not a little full… I’m talking 10,000+ high resolution images. LOL So, after some apparently-necessary reminding by my partner, I’m cleaning that mess up. With some hesitation (I’ve definitely got some “hoarder ancestry”), I checked “erase after importing”, and clicked “import”… now, it’s a matter of waiting… and writing. 🙂

I take a breath. Relax. Turn my attention to my Traveling Partner when he comes to me with his stress and aggravation. He’s disappointed – it’s an exciting moment to acquire a new tool, and when it doesn’t meet expectations, for some reason, particularly reasons that render the tool no longer a functional tool, it’s a whole other order of magnitude of disappointment. Great customer service was a selling point for the brand… but… so far? Not actually “great”. Well, shit. Here I am, still wishing I could help, still got nothing to offer but my sympathy, my compassion, and my unfortunate empathy. (I say “unfortunate” because I don’t really want to feel this disappointment and frustration alongside him in such a visceral way – it’s unpleasant for both of us to feel this, and my empathy is not helpful or useful, in this instance. He’s having his own experience. I’m mostly working on “being here” for him, and not making it worse, while I have mine.

Fuck. Damn, I was hoping to be feeling the soaring heights of his delight, right about now. Still wishing I could properly help.

…6303 items imported of 10,176. Progress.

My work trip to Seattle fell through. I guess I’m not surprised, although I was momentarily quite disappointed. I’m okay being home. I was able to cancel all the reservations for travel and lodging without any penalties, which was an unexpected success. My partner made a point of mentioning – while also being very grateful and appreciative that I’d be staying home – he would miss having some solo time to work on things around the house. I changed up my plans and found a room on the coast at a reasonable price, and made new reservations for an entirely other experience. I asked for, and got, Friday off to extend the time I can offer my partner for his own purposes.

…My head begins to ache when I recall that he’d asked for that time primarily to work with the new tool that is sure to be returned before I ever check into that room on the coast, and I realize I’m clenching my jaw in sympathetic frustration…

…Was I sufficiently encouraging and supportive…? I wonder to myself and drink more water. (Maybe this headache will go away if I drink more water?)

…Fuck this headache…!

I think over books to read. I think about videos I’ve been meaning to watch. My head pounds in the background. I drink more water.

…My bag was already packed for my business trip. I won’t have to repack it, just swap the shined boots for sandals, and make a point to throw in my sketch book and some pens & pencils, and maybe my watercolors. All I’ve got to do between now and Thursday, to prepare for my short getaway is resist the urge to pull something out of that bag to wear sooner. LOL I think I’ve got this. 🙂 Not that hard.

…8234 items imported…

I feel a moment of trepidation – there likely won’t be any images (of mine) on my phone at all. I could have been more precise, selecting a few to keep on the device for… reasons… (Is this how we accumulate bullshit and baggage? Why yes, I think it is…) I sigh to myself. Breathe. Exhale. Relax. Let go of that lingering attachment – there are always new pictures. Always. 🙂

I watch the final steps of the import process playout as a fast sequence of thumbnails in the import window. Entertaining. I feel the pain medication I took before I sat down start to have the desired effect. I hear my Traveling Partner close a door somewhere else… it wasn’t slammed, so that’s progress. (I still wish I could actually help soothe him and ease his stress and disappointment, but we’re each having our own experience, and there’s no real way to it differently, I think.)

The shards of sharp summer sunlight sneaking through the fabric of the window shade pierce my vision, and add to my headache. I recall the vestiges of a dream I had recently, in which bright sunshine was “shining directly on my brain” through my eyes, and as much as I covered them or dodged the light, I could not escape the blinding pain. Strangely, it wasn’t a nightmare at all, just an odd dream, filled with frustration. The recollection dissipates before I can assemble it more completely, and I lose interest in thinking about it further.

I finish my bottle of water, head still aching. I know that once I get up for another, I won’t return to this… it’ll be the beginning of some other thing I will be doing, then… but I don’t yet know what. I sigh, letting the air out of my lungs, and refilling them completely a time or two. Wondering what to make for dinner.

It’s a good time to begin again.