Archives for posts with tag: pain management

I’m sipping my coffee as the day begins. My walk this morning was pleasant, uneventful, and frankly rather ordinary. The day is cloudy, and looks like rain. I’m in a thoroughly manageable amount of pain (for now), and I make a point of appreciating how (relatively) comfortable I am. In a life where chronic pain is a day-to-day experience, it is critical to really pause and be aware of it when pain is not a characteristic of the moment. Most of us don’t actually experience “chronic pain” as 100% of always every moment of every day all the time – it does come and go, and the severity varies. Our implicit memory and sense of “how things are” is notably affected by what we hold on to as “how we always feel” – so making room to be mindful and aware of a lack of pain becomes incredibly important for managing the whole experience of pain over time. Perspective matters. So, I sip my coffee, noticing how (relatively) little pain I am in right now, and make room for gratitude; it could be so much worse (and often is).

I breathe, exhale, and relax. I think about sunrises and sunsets, and views of distant horizons. I think about miles I have not yet walked, and contemplate trails I’ve yet to try. I think about camping, and I wonder when I might next spend a couple days on the coast, painting. I sip my coffee, and let my diffuse feeling of general contentment grow larger in my awareness. My eye falls on a small Hue Forge “painting” my Traveling Partner did from a photograph I’d taken. I feel loved and visible and appreciated as a person, as an artist, and as a partner.

Hue Forge rendering of a sunrise, Mt Hood silhoutted on the horizon.

That distant horizon is a good metaphor for goals and progress and walking my own path; there it is, just out of reach, that thing I think I want to get to. A goal, a vision, a destination – it could be any of those things, or just a place to camp that happens to be within view, but quite far away. What’s on the horizon? I never actually know, I only imagine, based on what I think I see. I have an idea, and a limited view. The closer that thing seems to get, the more detailed and real it may become – but it changes as it comes into closer view, more subject to scrutiny. Is it what I imagined? Is it actually what I want? Am I actually going to get “there” – or is that “there” quite different than I expected it might be? Am I being true to myself, and staying on my path, or has something fantastical on that distant horizon distracted me from my sense of purpose? Is it even real, or only something I thought I saw?

I sip my coffee feeling surprisingly content with “now”. Nice moment for it. Sure, the work day is ahead, but I don’t find that I mind. I’m fortunate to have a job I enjoy, working with a team of people I appreciate and respect (and even like), I feel appreciated in return. We get shit done. I’m working from home, which has the lovely quality of taking my breaks in my garden, or being able to run a quick errand during the day, and not finding myself quite so exhausted when the day finally ends. Nice “now” – I feel fortunate, and pause for gratitude; this too could be so much worse. Most of us do have to work to keep the bills paid and the pantry stocked, and it’s a difficult world. It’s not uncommon to have to endure a terrible work environment in servitude to a company whose values one can’t respect, simply to keep the lights on and the gas tank filled. It’s a lucky few who do jobs they love for companies they appreciate in an environment of mutual respect while being paid a good wage. If you’ve got it, be sure you appreciate it. Change is. Be kind to those who struggle with shit jobs for terrible bosses – it could be you at some point.

…Good cup of coffee…

My Traveling Partner gave me an early birthday gift last night. A new cookbook, and one that I’d spotted thinking “oooh, I’d like to have this one!” quite recently. I thought I’d added it to my wishlist, and was delighted that he had selected it. More delighted still – and a little amazed – when I discovered that I had not added it to my list at all. He knows me so well. I feel loved. This morning when my mind wanders, it is often to the kitchen, and thinking about what new adventures I may find there, between the pages of a new cookbook. 😀

Life can be experienced as a journey. I find it a useful metaphor. No map, lots of choices, and the path is mine to choose for myself. The horizon never really gets any closer – but it’s out there in the distance, tempting me onward. It’s a worthy journey – each step down the path has the potential to reveal some new delight, or to teach me a lesson I probably need to learn. We are mortal creatures – at some point, this journey will come to an end. Hopefully, I’ve learned all I could, experienced much worth sharing, and made a point to jot down some notes for anyone who may follow me down the trail (or simply wonders where I wandered off to).

I glance at the time. The clock is always ticking, and there are things to be done. It’s time, again, to begin.

My walk this morning was short, local, and drizzly. It is a drizzly morning. I walked with my thoughts, and headed home to begin the day. The drive back to the house felt peculiarly nostalgic – something about the drizzle, and the way the sheen of water on the road reflected the light of the gray skies over head – and I found myself thinking about sick days on rainy Spring mornings as a kid. How is it that all my recollections of missing school due to being sick seem to be rainy days? I guess with the average number of rainy days where I grew up being about 111 days per year, falling primarily in the months between March and November, it would be better than a 1 in 3 chance of any given sick day being a rainy one. Maybe they really all were? lol

When I started down the trail, it wasn’t raining. Change is.

I arrived home to find my Traveling Partner awake, and it was lovely to see him. I made coffee for us both, and headed to my office to begin the day. All so very ordinary, so routine that the days sometimes seem to blur together except that the precious loving moments we share stand out, each unique and worth appreciating. It’s strange that when I look back on my childhood, there are really only a small handful of recollections I can count on as “my own”, and many of those are rather archetypical – conflations of many similar events becoming just one “memory”. When I look back on the past 15 years with my Traveling Partner, it’s not that way. There are many many memories, each built on small details that linger in my recollection. I don’t know whether this is a sort of before/after contrasting what remains of my memory after my head injury with how my memory works now, but there it is; I have relatively few childhood memories, and some of those are rather suspiciously recalled “in the third person”, as though I am remembering something I was told, not really remembering something I experienced.

I think about memory awhile, and rainy sick days. I remember those almost fondly. The rainy gray drive to the doctor’s office. Bundled up at home with chicken soup, saltine crackers, and a book to read. Sitting at the dining room table playing with Play-Doh, or coloring in a favorite coloring book. Napping. Waking. Reading. Before my head injury, my sick-day recollections are mostly to do with headcolds or the flu. After my head injury they are more often about headaches. I missed quite a bit of school, even through high school, over headaches. I don’t miss much work over headaches as an adult; I’ve learned to live with them. It’s an uneasy truce, some days, and I’d for sure prefer not to have a headache at all, but since I generally do (of one sort or another), it’s probably best that I don’t just give in and quit, eh?

You’re not alone with your pain. Not really. We’ve all got some kind of pain – well, most of us, I feel fairly certain. There are no doubt those rare few individuals with charmed lives of such good fortune that pain hasn’t become a thing to endure day after day after day after day after… You know? I’m not even sure those people are to be envied; they may lack some useful perspective on endurance, and what they are truly capable of, perhaps. (I don’t know; I’ve never lived that life.) I sip my coffee and notice that my mind has wandered on to other things. The garden. The roses. Pain management. Nutrition, diet, and exercise. The shit I’ve got to get done today. The things I’m eager to do for myself once the needful tasks of the day are behind me. My garden. Work. Life. Love. I let my mind wander on for a few minutes of self-reflection before I get started on work in earnest. Sometimes self-reflection feels a little self-indulgent, but it is actually an important bit of self-care (at least for me); it tends to keep me “on my path”.

…What are you doing to care for yourself? What are you practicing?

I breathe, exhale, and relax. The clock ticks on. The rain continues to fall. I notice that it is time to begin again.

This headache is vexing me. I feel as if I’ve done all I can to ease my discomfort. Have I? A bad headache can limit my ability to think clearly and make wise self-care choices. I let my Traveling Partner know that I’ve got this pretty terrible headache. Doing so isn’t only to feel less alone with it, nor is it solely about making sure he knows if something goes seriously wrong. As much as anything else, it is to get any helpful suggestions of things to do about it that I may have over looked; thinking through the pain is difficult. I know I’m not at my best.

My beloved does indeed think of something I could do that might help some. A hot shower. That does sound soothing. Maybe a soak in the hot tub, too?  I stretch – maybe movement will help. I correct my posture. I adjust the lights. I make myself relax (again). I drink more water. I have some magnesium. I eat a banana (potassium). I take an OTC headache remedy. I limit the noise in my work space. Item by item, I go down the list.

… This too will pass…

Headaches tend to be temporary. Soon enough the work day will end and I can focus on me. I’ll have that shower, a soak, maybe lay down for a few minutes. A great many of my headaches are to do with my neck. Degenerative disk disease is painful and inconvenient, and like the name says it gets progressively worse over time. I try not to think about that. The thought brings tears to my eyes and I feel suddenly helpless and childlike.

…It will pass (for most values of that idea, if only temporarily)…

Not what is generally expected of office decor, but it’s my office and I’ll decorate as I like. lol

I think about this cozy friendly welcoming space I’m in… It’s quite soft and nice and filled with colors and curves and soft places. It’s a very nice spot to lay down with a book (or a headache). It was my studio, it is my home office – my quiet space. Everywhere I look there are reminders that I am loved and valued: helpful or beautiful things my beloved has made for me, precious things collected over time, souvenirs of a life well-lived, and my own art work. It’s a nice spot to enjoy a quiet moment.

I sip my icy cold glass of water. Ice water might not be ideal for some headaches – this one doesn’t care about that. It doesn’t react to the temperature of the water at all. Noises are a bigger deal. The position I’m in matters more. I’m fairly confident this headache is coming from my neck; my left ear itches ferociously deep inside without any obvious cause. Nerve damage. It’s all quite unpleasant, but saying so is better than hiding it, and caring for this fragile vessel helps more than ignoring the pain ever could.

I sigh to myself and get back to work. The work day is nearly over – then I can begin again.

I overlooked writing at all yesterday. I mean, to be clear, I “wrote” quite a lot, as a function of the work I do for a paycheck. A lot. What I failed to do was any other sort of writing: introspective, meditative, creative, nothing of that sort. I arrived home from work wholly exhausted, brain fatigued, dragging myself along on pure willpower alone, and the awareness that if I didn’t do this or that task, no one else would either.

… I managed to hold enough in reserve to make dinner…

I’m still tired this morning. My last several nights have been restless and my sleep interrupted and full of nightmares and stressful dreams of failure, futility, and pointlessly chasing unachievable goals. Hell, Elon-fucking-Musk even made an appearance in one of my unpleasant dreams and he was just as big a clueless out-of-touch douchebag in my dream as he is reported to be in life. Bleh. G’damn I hope I sleep better tonight.

I’m in a ferocious amount of pain and filled with resentment at insurers who don’t want to cover long-term services that maintain better quality of life and reduce pain, but without “fixing” anything. My occipital neuralgia flared up some days ago after quite a long time of only dealing with it occasionally; it’s clear that the additional care I had been receiving was actually reducing my pain. “Fuckers,” I snarl quietly, but I don’t know who I am most angry with – my insurance company or the rich assholes who built this stupid entirely profit-focused system. This is a fucking dumb way to approach medicine.

I sigh quietly. Let it go. I’m paying out of pocket for the care I need, today. It’s not a sustainable choice. I can’t do it often, but I definitely need some help managing the pain right now, after three exhausting work weeks that I am happy to put behind me.

Dawn on the marsh

It’s a new day. Boots on, cane in hand, this trail isn’t going to walk itself. For now I’ve got the place all to myself, a treat for my fatigued consciousness. Solitude. No people. No need to speak or hear words. I breathe, exhale, and relax. Today, self-care first. Then, I’ll begin again.

Some 15 months ago or so, I drained the hot tub, planning to clean and refill it, which I didn’t do before winter had come. It stood empty quite a long while. Shortly after the Anxious Adventurer moved in back in July, he refilled it and adjusted the chemistry – very promising – only to discover a notable leak. Well, shit. I’ve been without the joy of being immersed in hot water for all this time, and last night after repair work, and tinkering, and cleaning, and filling, and adjusting chemistry, the hot tub was back to fulfill its purpose; being full of hot water. Oh damn that was so nice, just to soak in hot water, floating gently, watching the sky overhead. See, the thing about a bath tub is that the water inevitably begins to cool, a less than ideal outcome. lol

I still woke up crazy stiff and hurting, this morning, lovely moment soaking in the hot tub being a profound pleasure but not a cure for anything. I’m not even annoyed. It’s just part of the experience.

I drove in to the office feeling merry, without regard to the pain I’m in. I stopped at the top of a hill to see a beautiful sight before driving on (I rarely allow myself that luxury).

Mt. Hood, Venus, a crescent moon.

Nice morning for it. I’ll get a walk later. My head aches and I could do with a cup of coffee. It’s a busy day ahead. I work on taking things as they come, this morning, and refrain from reading things into the moment, or anticipating challenges that don’t yet exist. I’m just floating. Present. Observing. Mindful. Enjoying this moment as it is, without demanding that it do or be more than whatever it happens to be, now. Allowing sufficiency to be enough.

strawberry blossoms

I think about dinner, later. I think about my garden, now. Neither of these things are part of my experience of this moment, here. That’s very much part of the challenge, isn’t it? Living “now” doesn’t have to be about hedonistic excess (probably shouldn’t be about that, really), but neither is it “about” the moments and experiences that are presently out of reach. Yearning is not productive. Planning is. How best to find the balance between those things is work in progress, at least for me. I remind myself to make room for other experiences, other lives, other ways, other journeys, while I walk my own path. I breathe, exhale, and relax. (How am I so tired this morning?)

I sip my coffee, finding some amusement in how much I miss my Traveling Partner this morning, and my garden, and the cup of coffee I’d make for myself… simple experiences of profound joy, readily available when I work from home. Things are fine in the office, and there is nothing to complain about. I even have a pleasant view of a lovely Spring morning out this window in front of me. I’m neither content with where I am, nor am I wishing to be elsewhere. I’m just here, living this moment, and it’s fine. I feel fairly positive, and mostly merry, I just hurt and my attempts to avoid that sensation are fatiguing and have the potential to make me cross as the day wears on. I’m restless. Thinking about my garden is preferrable. Thinking about my beloved is uplifting. I end up spending rather a lot of time “in my own head”. No complaints; it has become a pretty pleasant place, generally.

…I’m stalling. There’s an entire day ahead and I have a list of things to get done in these handful of mortal hours. The clock is ticking and it is time to begin, again.