Archives for posts with tag: TBI

I’m sipping my coffee contemplating the busy work day ahead. I’m okay with it. I’m fortunate to have a job I enjoy. I’m grateful for that; I know too well what it feels like to be trapped in some day-to-day grind because the paycheck is necessary and the options are few. I’m sneezing, though – allergies – and not really looking forward to interacting with people all day. Another hot summer day ahead, too, and the AC in the office already sounds like it is “working too hard”, which does not bode well for comfort. Add to that, my pharmacy has still not been able to refill my Ozempic, and now I’m 3 days overdue for a shot that should be done weekly at about the same time each week. On top of simply being annoyed by that, I’m starting to “feel effects” of going without medication that does so much more than provide a little help with weightloss. This medication, for me, successfully manages my blood sugar, my blood pressure, and helps with certain consequences of my brain injury, too (which was unexpected but very much valued and at this point, relied upon). I sigh and drink my coffee – at least I’ve still got coffee in the morning, though I wonder how long that will last?

I breathe, exhale, and relax. The lack of my medication is not likely to become life-threatening (I hope), but I’m angry that the medical needs of real people matter so little, in comparison to profits, or supply chain efficiency, or systems and processes within large corporate hierarchies. (Looking your way, global pharmacy systems, and fuck you for not caring about the people you serve.) Another breath. Another slow steady exhalation. Another attempt at relaxing and letting small shit stay small. It requires practice.

I’m not in a great mood this morning, and I remind myself again (and thank my Traveling Partner for his patient reminders yesterday evening) that this abrupt change in my medication is going to affect things like mood (and mood management) and impulse control, and all sorts of seemingly unrelated “little things” that taken together don’t always feel small at all. Knowing I’ll be “dealing with people” all day, I calm myself with meditation, and a few minutes of quiet reflection on the moment and the day. Things are fine for most values of “fine”, and I’m okay in most practical senses of that word. This will pass.

I did try to arrange to have my prescription filled at a different local pharmacy within the pharmacy chain I generally use, and that looked do-able from the perspective of yesterday. This morning the pharmacy app indictes that my refill remains “delayed” with no expectation that it will be filled before tomorrow at 3 pm – an availability commitment that continues to be pushed back every day. The pharmacist said, yesterday, that they just haven’t been receiving this medication in their orders, in spite of ordering it repeatedly. “It’s not available.” (I wonder if it is the heat? It is a temperature sensitive medication, and degrades quickly once not refridgerated. We’re in the middle of summer heat that comes with a hazard warning, although it isn’t being discussed as a “heat wave”… I could see that potentially stopping shipments of some kind, but g’damn, we’re talking about fucking medication here!)

Another sigh. Another cycle of breath. Another attempt to get my mind (and mood) to move on from this irritation… my results vary. My coffee is tasty, though, and I focus on that pleasant detail, here, now. A breeze tosses the branches of the trees beyond the window, and the lush green leaves flutter and twist. Pretty. There’s a clear blue sky overhead. The morning is already warm. My head aches. My tinnitus is loud. This room is quiet, aside from the woosh of the AC in the background. Breathe, exhale, relax… repeat. I still feel bitchy and cross, and I’d really like very much to complain about… something, but I’m aware that it really could be worse, and that as things go generally it’s fine. I think of my Traveling Partner at home, probably still sleeping, and I smile to myself; just knowing he exists in the world is a thought that fills me with love and delight. I’m fortunate. Perspective.

Choose your experience; we’re live and unscripted.

We can’t necessarily change the circumstances we find ourselves in, but we can change how we react and respond to those circumstances. We can make choices that improve our experience. There’s a lot of power in that. I sit with that thought awhile. How would I respond to these circumstances if I were indeed the woman I most want to be? Can I make that happen, in these circumstances, now? What would that look like? What practices can I count on to get me there? We become what we practice.

…No AI anywhere can help you with that; you’ve got to practice the practices yourself, and do the verbs…

Practice the practices that take you closer to being the human being you most want to be.

It’s a new day. Another chance to be the woman I most want to be. Another opportunity to live well and treat others with kindness and compassion. Another day to do my best. I make a note on the notepad beside me, a reminder for later. It’s time to begin again.

It’s rare to put things in order such that some need of my own really “comes first”. I usually put specific key responsibilities at the top of my list, obligations to home and hearth, family or colleagues, because doing the needful matters, and people are counting on me. Last night I chose to play a current favorite video game for a little while, instead of tidying up or hanging out with the family. This morning I’m writing before I do the budget (it’s a payday). Choices have consequences, and as I sip my coffee I find myself feeling like a jerk for putting myself first last night; I forgot to make tuna salad for my Traveling Partner, which he had specifically and fondly requested (he really likes the way I make it).

…Well, shit…

I sigh to myself and make a note to include an apology with my morning greeting, later. I could do better. Very human; my results vary. But, it’s also not helpful to kick myself over it for any length of time, once I’ve acknowledged my error, commit to making amends, and am ready to move on contrite over the miss, but also grateful that I did take a moment to treat myself well. I’ve just got to do a little better at balancing such things.

…I’ll keep practicing…

I sip my coffee listening to a bit of music, and getting my thoughts organized for the day ahead. The weekend is almost here. It’s a lovely summer day. I feel a peculiar pang of nostalgia for long lazy summer days of adolescence, hanging out at the edge of the woods with my boom box, listening to Atlanta Rhythm Section or Van Halen. Funny to feel it so sharply from this office desk, simultaneously feeling the gratitude and joy of living a substantially better life than I knew in those earlier times. Humans are weird. We cling so tightly to illusions of what was, forgetting for the moment the realities that hurt us so deeply. I guess it’s better than being mired in sorrow. I smile to myself, as I listen to a favorite song from a long gone time ago.

Another day, another set of choices, and new steps on this journey to becoming the person I most want to be. I know I can count on my results to vary, and I’m grateful for each new opportunity to begin again. Change is. This path definitely leads somewhere. I guess it’s time…

I’ve got an old song stuck in my head from a long long time ago. No idea why – it wasn’t even a song I really liked when it came out in 1978 (I was too young to understand much about nostalgia). Strange time for me then; I was 15, and that’s a strange time for anyone. lol

So, I’m sipping my coffee and watching the storm clouds, dark and threatening on the eastern horizon, and listening to this song (to get it out of my head), and wondering “what the hell?” A glance at the Billboard Top 100 from that year shows me songs that would do a better job of “taking me back”. This old Al Stewart track doesn’t even make that list. lol Why is it in my head? I don’t suppose that really matters – it’s gone now. 😀

The weather forecast says it’ll be another summer day. There’s no rain in the forecast, but I’m not sure how much I can (or should) trust the weather forecast these days, with all the recent indiscriminate staffing cuts in relevant government agencies. I watch the clouds begin to break up, revealing streaks of a clear robin’s egg blue sky beyond. Summer. It’ll probably just be hot, and maybe a little muggy (like yesterday). I lose interest almost immediately; I’m indoors, and the office has AC. I’ll return home in a vehicle that has AC, to a home that has AC. I sit with that thought awhile; I’m very fortunate. I take time for gratitude, and to consider how many places in the world suffer with terrible heat, and how many people must endure it without AC, or any sort of indoor climate control at all. I remember the stifling heat and humidity of my childhood (no AC) in Maryland – and that was years and years before people were seriously discussing climate change as a problematic force to be reckoned with (and “hot” was cooler than it is now). I’m fortunate to enjoy this good iced coffee, looking out on a hot day ahead from this comfortable place. Hell, I could be drinking my coffee hot and it wouldn’t feel like any sort of hardship or inconvenience at all – I’d still be enjoying the experience, and grateful to have coffee still available. My anxiety about that concern surfaces briefly; can we really expect coffee (and similar luxuries) to remain available in the face of profound climate change and bullshit government shenanigans that impair both the supply chain and the value of… everything? I feel certain that we are facing real potential that something as simple as a cup of coffee could become a luxury on the order of a fucking Birkin bag in the relatively near future… I try not to get spun up over it. It is A. not a thing yet, and B. not a thing I could directly change, even if it were imminent. I breathe, exhale, and relax. If my brain is going to attack me from the inside with my anxiety, it’s damn well going to have to work harder than that. lol

I skimmed the headlines this morning. Hilariously enough, it’s become unnecessary, generally, to bother with reading the articles. Many of the most reputable sources are behind paywalls, and I’m not going to pay for more subscriptions (can’t afford to be careless with such things these days), and the less reputable, more readily available sources often appear to be copying one single source with nearly identical articles (why bother reading that), others are clickbait (no thank you), and what is left over gives enough information in a headline that I often already know the basic facts and where I stand on matters that require an opinion at all. No point reading AI slop, or bad writing. I catch myself responding silently to the headlines – in some cases just correcting obviously poor grammar or poorly chosen words that don’t mean what the author intended (sometimes it’s obvious). I silently push back on the misuse of “how”, when the author clearly wrote about “why”; that sort of thing really vexes me for some reason. Funny thing about the internet and social media; it has tended to make most of us behave as though “the world” gives a shit about our dumb opinions on all manner of topics that we maybe don’t even know anything about (or not enough to have an opinion worth hearing). We earnestly want to be heard, and social media gives us an outlet to let ourselves feel that we are (whether anyone is actually listening or not). I include this, right here. Does my opinion actually matter, when I share it? Are we in silent agreement or silently arguing? I won’t ever actually know. I chuckle to myself for no reason. I don’t have solutions to these things, if they are problems to be solved at all.

I sit for a moment considering how little the small ripples on still water when a rock is thrown in actually matter when they reach the shore. I sip my coffee, content to be here, now.

The work day is planned and waiting for me. The clock is ticking. Condensation on my coffee cup drips down the sides like sweat and pools around the bottom. “You should put that on a coaster…” I think to myself with a sigh. There are things to do, and verbs involved, the future is not written, but I’ll become what I practice – eventually. The woman reflected back at me in the window smiles. It’s time to begin again. The day is waiting.

I’m sipping an iced coffee and readying myself for the day ahead. I’m also browsing the pictures in the “gallery” app on my phone, and enjoying pleasant recollections of my recent day trip to the coast. I am thinking about goals and intentions, and forward momentum, and how different an object on the horizon looks compared to what I may see up close when I arrive at that destination – and how easy it can be for something along the way to distract me as I travel.

The horizon, a distant smudge. How far away is that?

I sigh out loud and rub my neck. My headache was with me when I woke this morning. It’ll probably be with me all day. Doesn’t matter, really, and there’s not much I can do about it. I breathe, exhale, and relax, and let that go.

A destination, a goal, and idea – what does it take to get there?

It’ll be another hot summer day, today. I’m okay with that. I’m grateful for the air conditioning that makes that a comfortable idea, at all. I’m fortunate to have that luxury available to me, and I sit with my gratitude for some little while, thinking about other times and places when I was not so fortunate.

Where we thought we’d like to go may be less achievable than we anticpated, or require more of us to reach than we planned. It’s okay to change our path – or to work for our goal. The choice is ours.

I feel a little tired before the day even begins, which surprises me, until I realize that there is this subtle awareness in the background of my thoughts of a world in chaos: genocides, acts of war, terrible cruelty, lives lost, lives wasted, and terrible people doing terrible things. Is my fatigue simply the unavoidable awareness wearing me down, or a sign that I am fighting that awareness too much with too little positive result? I think about that awhile, too, and ponder the critical need for skillful self-care. What do I need from myself this morning to nurture this fragile vessel and this valiant heart?

When I take a closer look, I am sometimes surprised by what I find. Definitely look closer (it’s a metaphor).

…For starters, I would do well to drink more water than coffee on such a hot day, eh? (I remind myself to get some water when I finish this.)

…Maybe make a point of getting up from my desk every hour and stretch or walk around a bit rather than sit here hyper-focused on work that absolutely can wait on a wee break. (I put a couple break intervals on my work calendar and mark myself “busy” for those, and set reminders so I don’t forget.)

…My mental and emotional health will benefit from reconnecting with distant friends, and checking in with those dear to me who are nearer, too. (I smile and think of people I enjoy and who are dear to me. I’m grateful there are so many.)

I sip my coffee content to have a forward path and some idea what sorts of things will nurture me and lift me up, that also easily fit into a busy work day. It’s a start. More often than not, a beginning is enough to get me going – if nothing else, it’s where I begin (again). 😀 That’s enough. The clock is ticking… it’s time to get on with it.

Big or small, we choose what we put our attention on – and our choices matter.

It is the wee hours, and I’m awake. I haven’t yet fallen asleep, but I’ve enjoyed some lovely quiet time reading (re-reading a favorite classic, Siddhartha by Herman Hesse).

…I expected to fall asleep quickly.

An experience is very much what we make of it, and reality has no particular relationship to our expectations at all. I chuckle about it in the darkness. I’m unconcerned about having my device in front of my eyes right now, having dimmed the display to less than 25% and only “stopping by” while I drink some water and finish this cough drop to soothe my still irritated throat.

I was not wholly surprised to find myself wakeful. Different pain meds. Substantial changes in routine (to prepare for surgery), which included giving up supplements, and limiting or changing the timing of various medications and over-the-counter remedies. Of course I’m not asleep. I slept in this morning. I was drugged or unconscious much of the morning due to surgery. I slept for unmeasured hours after I was released to go home. Why would I even expect to actually be tired beyond the fatigue of injury itself? (Every healing surgery is also an experience of being injured, and systems interfered with!)

So. I’ve stirred myself enough to get some water. A cough drop. A change of position. (Picked another book, just in case sleeplessness persists.) I’ll meditate, then try sleep again and see where things stand when a new day dawns. That’ll be soon enough to begin again. First I need to take care of me (and brush aside these expectations cluttering things up my thinking, too, eh?).

Once upon a time there was a rose…

Morning of a new day. Why that picture? Because the damned deer ate my roses (again) and I was thinking about that during the night. I’d waited 4 years for that rose (Golden Opportunity) to bloom! I’m glad I got to see her. The deer only eat tender new growth… many roses bloom on new growth – you see the problem? Could be little cages for every rose next year except those that the deer don’t favor (I suspect they are either too thorny, or don’t taste good for some reason).

My cup of coffee is good this morning. Hot. Well and carefully made. Exactly as I like it. I’m grateful, but apparently I inconsiderately left the counter a mess (everything is just a bit more difficult with my left hand impaired, but that’s no excuse for not noticing that I had dripped coffee and grounds on the counter and failed to clean them up). So human. My Traveling Partner called it out with some annoyance; no one likes waking up to a mess. He was kind enough to clean it up as he made his own coffee. I’m annoyed with myself for leaving it, though. I hope our morning together is pleasant otherwise. I’m mostly myself this morning, but still recovering, and a little impaired. I remind myself to slow down and be patient with myself and alert to my surroundings.

I finally slept last night. I slept until I woke, much later than I generally would. My timing all feels off. It’ll pass. There’s no pressure; I’m off work today to recover. I take my time doing the budget and payday stuff; I’m typing with only 9 fingers, presently, and it feels awkward with the finger that is not available being an index finger. This will also pass. A lot of the details of our human experience are quite temporary. Too temporary for a lot of fuss and bother or agitation, generally. It’d be nice if that were an easier idea to hold onto in a stressful moment! It takes practice – and the practice is in the lived experiences; results will vary. I sip my coffee and think about that. We become what we practice – there is persistence implied, and continued repetition over time. Effort. Verbs. Will.

It’s pleasant to have a Greek yogurt drink (peach) with my coffee this morning. I didn’t enjoy having to go to “clear liquids” only, for the 24 hours before my surgery. lol It was more about the loss of the sensual delight in tasting something good, less about hunger or blood sugar – the Ozempic definitely did it’s job there. Turns out that, at least for me, the experience of food and meals and tasting things is one of life’s real joys, and the day felt stripped of something precious without it. It wasn’t actually a big deal, it’s just genuinely nice not having to go without, and I’m appreciating that. There is real value in taking a moment to appreciate something, to feel it, to enjoy it, to be in that moment, so I make it a point to do that. It has tended to result in an implicit experience of life as pleasant and positive, generally, instead of the bleakness and feeling of futility that once characterized how I experienced my life. A very good practice (for me) and a change I’m very glad I made.

Yesterday was quite nice, after the surgery. I mostly slept, but when I woke it was to an experience of being cared for. My Traveling Partner was wonderful, (going with me to my surgery, bringing me home and caring for me all day) and the Anxious Adventurer did his part as well (bringing me a very nice sorbet to soothe my throat on his way home from work and taking care of dishes and trash and housekeeping stuff), and it was so nice to chillax over silly videos and munch pizza together at dinner time. No idea what today holds, really, nothing complicated – I’m giving myself the best chance I can to heal well and thoroughly without complications. I use my hands a lot. I’m grateful to have the use of them.

I think things over another few minutes. I hear my partner call to me from the other room, checking on me. It’s time to begin again.