Archives for posts with tag: TBI

The car was already packed when I woke up on Thursday morning. I had planned a new route, unnecessarily long, detouring through autumn forest and along less-traveled state highways to reach the coastal highway (Hwy 101) at a different point, to enjoy a drive I don’t recall ever taking. It more or less doubled the length of the drive, but I was specifically not in any hurry, and I knew my “early check-in” wasn’t going to be available that early, anyway. I took my walk close to home, on a familiar trail, well-maintained, well-traveled, level, familiar and easy. It was a good plan. I hit the road heading to the coast comfortably after daybreak, to enjoy the fall colors.

It was a lovely morning for a drive. Along the way I thought about my Granny, and the many drives we took together, and the detours and side trips she loved so much. I saw so many things and enjoyed so many adventures with my Granny. She raised me through my tumultuous high school years, and I realize now that she surely knew about my brain injury, though she didn’t discuss it with me explicitly. She gave me the love and the safe environment I needed, to learn and grow and – recover. Was she a perfect person? No, of course not. Taking my own Mother and my aunts at their word, she was maybe not even a very good mother to her own daughters, at all. She was raising 4 (and later more) kids, and often as a single mother, in an era when women were still very much viewed as needing to be attached to some man or another. She was strong – to the point of ferocity – and she could be unyielding. I never doubted that she loved me dearly though, and I value her love and guidance to this day.

I pass by the remnants of an old fort. It’s the sort of place she would have stopped. She’d drive an hour on a Sunday morning just to enjoy “the best cinnamon buns in the USA!” in a town rather farther away than most folks would drive for a cinnamon bun, and she’d make a 4 hour detour on a long drive just to see an old schoolhouse. lol She took me to see historic sights all over, everywhere she lived. She would dig in and do more research, and share what she learned, sometimes sneaking a cutting of a rose bush growing there, to plant at her house when we returned. I drove thinking about the drives we shared over the years that I lived with her. So many miles. So many sights. So much wisdom and perspective and shared conversation. Looking back, I know I must have been fucking insufferable. lol Teenagers often are. It’s a feature, not a bug, and trying out new perspectives is one of the ways we become who we will be. She was so patient with me. So willing to talk – and to listen. I pay attention to the sights along my drive, and it becomes a way to honor her memory.

A stop along the way. I feel like I’ve been here before…

I stop at a wayside with a view of the ocean. I take a couple pictures and just stand there enjoying the view, before reading all the signs. It’s not that I had any particular use for the information, I stopped for the view and to stretch my legs. I found some of the information interesting, like the map showing all the nearby other sights and way points, and places to camp. I smile to myself; I think my Granny would have liked the signage. I chuckled to myself as I got back on the road. No traffic – my timing was excellent and the weather was lovely.

I drove on thinking about the contrast in my relationship with my Granny, and my Mother (her daughter, and eldest child). My Mother always seemed, to me, to be intensely practical, but it was finding her college binder of her poetry, written in ink in that familiar handwriting, that inspired me to write long before my Granny’s writing of children’s stories (that never were published) would later inspire me to continue writing. My Mother’s poetry was poignant and romantic, moody and emotional – like the poetry of young women often is. Her poetry revealed a stranger to me. When she caught me reading it, the moment was awkward and filled with quiet tension. She took the notebook from my hand. I never found it again, though I searched the bookcases and the drawers of the secretary for it over and over again.

I don’t think I ever truly understood my Mother, and we were never very close (as I understand closeness, myself). She seemed “cold” to me in my adolescence. Reserved and private, and reluctant to share confidences when I was an adult. We never really “clicked” – or perhaps we were too much alike for her to feel entirely comfortable with me? I never knew. We were in touch on and off throughout my life and to the end of hers, though it was clear from conversations with my sister that my Mother didn’t speak of it. There were even years when she told strangers and new acquaintances that she had “two children” instead of three. I never asked why. She never mentioned it to me. My Mother was, in many ways, a closed book with a fascinating cover. I regret that we weren’t closer, but I learned from her that such things can’t be forced. I learned a lot from her. I learned from her to believe people when they tell you who they are. I learned from her that “family” is a word. Just a word. I learned from her that there’s real lasting value in learning to count on myself, and that no one can take my education from me – though it may not pay off in the way I may have expected it to.

…I learned from my Mother than choices have consequences.

There was a lot to my Mother, and I never knew her well. She remains quite a mystery to me, though she had quite a lot to do with becoming the woman I eventually did become, and the woman I am today. I drove on, thinking about these two women and the woman I am, myself. I think about their expectations, their encouragement – and my choices.

It was an interesting drive. Time well-spent. I’ve continued to think over the life lessons I learned from these women (and others), as I rest and relax and reflect – and grieve. I feel inspired, but… it’s slippery. The paintings I want most to paint feel “just out of reach”. I play in the colors, and let the memories come and go. I’ve needed this quiet time to reflect and consider and sift through the emotions. It’s been an emotional year, and I honestly wasn’t ready for all of it. I needed some time alone with the woman in the mirror.

Sun setting on a headache.

Yesterday, sometime in the early afternoon, I found myself stalled with a terrible headache, and had a panick attack on top of that. It was severe and made me feel sick with dread and overwhelmed with pain and emotion and I ended up “doing all the things” to manage it, with limited success. I finally just went to bed, hoping to wake feeling better (which I did). I spent a restless night of strange dreams, listening to the wind and the rain, waking now and then, and returning to sleep. I woke at daybreak, and watched the soggy sunrise, gray and wet and featureless. The day has been a good one, aside from the blustery stormy weather, which I don’t really mind. The views have been pretty spectacular. I’ve taken some good pictures.

A break between passing storms, a gray day.

Evening has come. I watched the light dwindle and fade away. More rain. More wind. Another night of it. This time no headache, and I’m enjoying that. I listen to the sound of a fire crackling on a hearth – it isn’t “real”, just a video, nonetheless I feel warmed by it, which amuses me. I sit with a cup of tea – finding a couple tea bags of my favorite tucked into my overnight bag, forgotten from my last trip, was a delightful moment. Enjoying it now is pleasantly satisfying and soul nurturing. I write awhile, thinking about these women who loved me and helped me along life’s path at a tender age, and how far I’ve come since then. It’s been a hell of a journey, and it’s not over yet. There’s so much still to see along the way.

Tomorrow I’ll begin again.

I woke tired from a restless night of strangely lively surreal dreams. My walk felt short, and rushed. My day already feels busy and “crowded” with things that must get done before daybreak tomorrow, and the start of a few days of downtime spent attending to my emotional needs, and indulging artistic inspiration. Self-care is important and worth the time commitment to get a few things done so I can be away without concern, but… good grief I feel so busy right now.

I breathe, exhale, and relax. It’s the start of the workday, and looks to be an easy one. Routine, at least. Then home early enough to take my Traveling Partner to an appointment, then a quick shopping trip, then make (and enjoy) dinner, then pack (omg I should have worked from home today) and load the car, then, if there’s still time, a little time spent just chilling with my partner enjoying the last of the evening. Yeah, it feels like a busy day, but I’ve got a plan, and it’s not really “all that” – it just feels busy. Another breath. Another moment.

I’m in so much pain lately. A few days to myself to sit with that without also feeling like I’ve got to mask it to avoid making everyone around me uncomfortable will be a nice “luxury”. There’s more stress than I want to admit in having to “put a good face on it” when I hurt like this. Pain relief measures only do so much, and I’m not willing to take (nor am I prescribed) the quantities of painkillers it would take to shut down this amount and intensity of my personal combination of arthritis and headache pain. It is what it is. I’m also not willing to let pain call my shots or totally wreck my experience; there’s more to life than the pain I’m in. I remind myself often. Sometimes it helps, sometimes it just annoys me. Sometimes being annoyed about it helps in its own way. My Traveling Partner endures his own pain. Hell, even the Anxious Adventurer deals with pain – and frankly, most people do, to some extent, I guess. The challenge is not being a dick about it, and doing the most we each can to go ahead and live a good life in spite of the pain we’re in, and to remain mindful that we can’t possibly fully understand the pain someone else is in. Ever. Even if they say. We just can’t know their experience the way they do. So…I try to manage mine, and mostly keep it to myself. It’ll be nice to have a couple days to just sit and weep over it, while I paint, if that’s where it takes me, and not be worried that anyone else will be affected by those tears, or my pain.

Beyond the pain, I’m looking forward to a couple days of watching the tide come and go, and sitting with my thoughts – and my grief – and just “getting my head right” in my own way. The holidays are coming. The first in decades that my Dear Friend won’t be part of that experience in any way. That hurts more than I expected it to. No need to think about what to send her. No need to share anecdotes or pictures. No need to message her on Giftmas morning so she doesn’t experience the morning alone. No need to delight her with my curiosity about what my Traveling Partner may have gotten me, or made me, this year. She’s just…not here. My sorrow tries to swamp me every time I remember, and I really need to get past that somehow. It’s a lot. Granny? Gone, too. And Mom. And my long-gone girlfriend, T. There are unshed tears waiting their turn to fall, and I need to allow myself time for that this year.

I’m eager to hit the road, and hit the trail. Eager to walk my own path and feel my feelings (there’s no shame in these honest tears). I’m eager to begin again on the other side; the way out is through.

So far pretty nearly everything this morning has gone at least a little bit wrong, starting with the restless night of poor quality sleep that preceded the start of the day. Realistically, I know to expect some days will be like this, and this one is certainly one of those.

I woke up on time, and even remembered the errand my Traveling Partner asked me to handle before I went to the office (getting the mail), while kindly expressing reservations about asking me to do more, out of concern for my fatigue and the amount of pain I’ve been in day-to-day. That was a pretty good start, and I would leave it there and overlook the smaller stuff (I tried), but as shit started going wrong, it got harder…

… I’d failed to lay out clothes for the work day and stumbled through my morning routine self-conscious about the noise I was obviously making…

… I spilled iced tea all over the floor while setting up my partner’s morning beverages…

…as I was picking up the mail, i dropped it into the street as I returned to the car and then shut my hand in the car door while trying to put my seatbelt on, to return the mail to the house…

… the coffee place I prefer (lowest price, best black coffee) was closed – the opening barista never showed up…

… the backup coffee stand was slow, and the coffee is pretty awful…

… traffic was bad and I got stuck behind a line of cars all stuck behind a truck going 40 mph on the highway during the commuter “rush”…

…I got to the trailhead too late to get a walk in at all (or write)…

… my medication alarm went off as I prepared to give up on my routine altogether, startling me, and my shaking hands fumbled my pillbox, tossing my entire day’s meds all over the floor of the car, much of which I never did find at all…

The drive to the office was thankfully entirely uneventful in every way. I’m not sure I could have endured another misstep this morning!

A less than ideal start to the day, for sure, and I’m “still dealing with it”, like ripples on a pond after throwing a rock into still water. I breathe, exhale, and relax. The office is quiet – and also uncomfortably cold. G’damn, what is with this day?? I sigh, and think of my Traveling Partner’s voice, saying “I’m worried about you. I depend on you. Slow down. Take care of you.” He’d be right to suggest that I slow down, although I don’t feel any sense of moving quickly, it surely couldn’t hurt to slow down and be measured and considerate with my movements, decisions, and even my thoughts.

I take the time to make a pour-over in the office break kitchen – a properly good cup of coffee will help, just by being a comforting ritual, and a pleasant moment. I remind myself, for perspective, that there will be other sunrises, other walks, and more pleasant easier other mornings – no need to take this one so personally. It definitely isn’t personal, just circumstances. Another breath, and a renewed commitment to non-attachment is also helpful. I make time to meditate, and let the morning’s aggravation fall away. It’s behind me now. I can begin again. It’s so easy to burn through limited emotional resilience in a few minutes of aggravation over small shit – and it can be challenging to restore what has been lost, but it’s for sure not impossible. I slow down, slower, and let myself have a few minutes to write and reflect and gain perspective. I breathe, exhale, and relax – and repeat as needed. I make a point to notice that I arrived at the office very much “on time” in every sense of the word, and in theory this puts the whole day back on track, aside from the spilled pills.

…No use crying over spilled milk pills…

I smile, and feel some of my tension dissolve; I’ve got a small assortment of “back up meds” that I keep in the office, mostly to ensure I don’t miss them if I forget to grab the day’s medication on my way out of the house some morning. Part of coping with a brain injury is an assortment of “tactical practices” that anticipate common challenges. My results vary – but I’m familiar with my most common “fail points”, and it’s a small thing to plan ahead for such occurences, so I do. (I mean, I try; my results vary.) My sense of “timing” still feels a little off, and somehow this cup of coffee tastes vaguely like curry (which is super weird, but fortunately I don’t find that to be an unpleasant flavor). I’m okay for most values of “okay”, and restarting the day feels within reach.

…So I do that…

It’s a new day. There are no bombs dropping on my town. There are no wildfires burning nearby. The autumn weather is relatively mild and rather pleasant. My pain seems to be at a relatively ordinary and rather manageable level today. I missed my walk, sure, but the sun will rise shortly, and the office is in a safe neighborhood; I can walk over my lunch break. I have a good sense of what I need to get done today at work, and that feels manageable, too. I make some oatmeal, sip my weird coffee, and begin again.

I’ve always liked my appearance seen as a reflection in a window. I don’t know why this is, somehow it just seems to be “the best view” of myself, a little diluted, a little less specific somehow, softened a bit… less “real”. I almost always find myself quite beautiful as a reflection in a window. I don’t see myself quite that way in a mirror, or a photograph. Peculiar. Today is no different. I see my reflection and marvel at that woman, there, seen as if through the trees beyond the window, somehow younger than my years, and no hint of the tears in my eyes, or on my face.

…Crying in my office, again? What is this, the 00s??

Things seem harder than necessary lately. By “lately”, I mean most of the last year, honestly. It comes and goes. It’s been the worst since late February, since my Dear Friend died. Yeah, okay, so – grieving is hard. We don’t control how that goes, it just goes. I’m learning more about actual loneliness than I ever imagined I could. I wasn’t particularly prone to feelings of loneliness, before. I’m so very very prone to them now. With my Traveling Partner having the challenges he is, and the one woman I’d have felt free to discuss it with, without reservations, simply… gone… I feel so incredibly alone, now. I chastise myself for a moment; I could have done a better job of maintaining other cherished friendships and preserving more closeness with more dear friends than I have. I enjoy my solitude, and I’ve taken too much for granted. I still enjoy my solitude…but when I need someone, I’m often going to find myself going it alone nonetheless. Often. I’m not bitching – it’s not a bad life, and things could be so much worse. I’m just feeling my years, and feeling lonely as I face inevitable mortality, seeing some vague younger version of me reflected in a window, and wondering what the point of any of this actually is… yeesh. Grim. I ache with it. And also just with pain, physical pain. Fucking hell that just blows. Fuck pain.

…Oh, right… I maxed out all my pain management medication yesterday and here I am today, managing on less, and not hurting quite so much, but… now my mind is altered, and I’m feeling very blue, partly because I did so much yesterday to attempt to manage yesterday’s pain, and I’m paying the price emotionally, now. So… am I actually feeling “lonely”, or is this just “the down” from opiate pain management? Fuck. This shit is complicated. I simultaneously want very much to simply be entirely alone with this crap, and also very much miss someone to talk to about it – and about life, and how difficult some of this very human crap very much is. Too real. Fuck pain. Fuck drama. Fuck this particular moment, right here.

I put my head down on my desk and cry for awhile. This too will pass. Feelings are feelings, only that. Emotional weather. Small frustrations pile on top of other small frustrations and assorted inconveniences; it feels like a big pile. Heavy. Tears flow after other tears. Moments follow other moments. The clock is ticking. Eventually tears dry. Eventually, I can begin again.

This morning I walked in the dark, with the light of my headlamp making a small visible circle ahead of me, bobbing along with my steps. I walked with my thoughts, and not much else. I was thinking about a question I’d proposed to myself recently (“How does my partner see me, in the abstract, and how does this differ from the woman I am?”), but this morning, I flipped it around and asked myself “who do I understand my Traveling Partner to be, in my recollections, when we are not together, and how does that differ from my lived experience with him when we are together?” It seems useful to understand the variances that may exist, and maybe where those may come from, and what purpose they serve (or problems they may create). Am I holding space for my Traveling Partner to be the man he truly is? Do I love that man, or just a fantasy of who I think he may be? Do I give him the freedom (and support) to change over time and become the man he most wants to be? Do I have an opportunity to be a better lover, friend and partner through understanding him more…accurately? Am I making it more difficult for us to really enjoy each other by holding on to romanticized adolescent notions of the man he is – or worse perhaps, not recognizing his real self with gratitude and delight because I’ve “got baggage”? These seem to be worthwhile questions. I walked along reflecting on them.

The days continue to shorten, and I finished my walk in darkness and hustled on to the office to start the work day. Writing had to wait on a later moment; there were more important things to do, and to think about, as I began this day. I never saw the sun rise, and when it eventually did it rose on a gray cloudy day that looks like it might rain. I wouldn’t call it “bland and uninteresting”, but it wasn’t the colorful display of recent mornings, at all.

Yesterday, I was still pretty under the weather, and I had managed to pass on the ick to my Traveling Partner, likely by way of my happy-to-be-home kiss and embrace on Sunday morning, just based on timing. I’m already pretty much over it – sufficiently so to feel comfortable going in to the office today. I’m hopeful that he’ll soon be over it, too. It sucked having to reschedule his appointments, around which my away plans had been built in the first place. lol Change is. Reality does not give a shit about my damned plans.

…Later…

I took a break. Enjoyed a moment to catch up with a colleague I rarely see in person. Exchanged some cute “stickers” via messaging with my Traveling Partner. Tackled some priority workload. Finally found myself once again in this other here and now, feeling just a bit as if it is a sort of “alternate reality” in which I am always relaxed, thoughtful, and contented. lol. “Living the dream.”

How is it already time to begin again…?