Archives for posts with tag: TBI

It’s a Friday. The headlines in my news feed are pretty horrible; more human cruelty, more corruption and greed, more vain human stupidity. I sigh and move on; I don’t have time for that bullshit. I have things to get done, a life to live, and an opportunity to do better, myself, than all of that nonsense. I decide to focus on what I can do as an individual to make life better for my family and my colleagues, and stay present here, now, and attentive to what I can do something about, personally. It feels more productive, and emotionally healthier.

…I have a list of things to do…

First things first, I take care of myself. Coffee. Meditation. A moment for reflection. Then thoughtful time spent on the household budget for the new pay period. I smile to myself, thinking of my Traveling Partner and how helpful he was when we got together, sharing his (much better) approach to such things. I’ve come a long way since then. During the time I lived alone, although we were still together, he wisely “kicked off the training wheels” and insisted I handle my own affairs financially, feeling that I was ready for that (and wanting to feel certain I could take care of myself in this way, come what may). Having a brain injury had long presented significant challenges for me in that area; managing money was hard for as long as I could remember, when I met my Traveling Partner. Making and following a budget was hard. Understanding when and how to flex on a plan was complicated. I didn’t make much money and it always seemed like I needed to stretch it further than it could go. I’d been disadvantaged by relationships with individuals willing to exploit my inexperience or my brain damage for their own benefit. I didn’t understand my worth. I am grateful to my beloved Traveling Partner whenever I sit down on a payday Friday to look over the numbers, make a plan, and prepare for another cycle of bills, expenses, and living life. Paydays used to be terrifying and filled with anxiety – now they’re just days that begin with a spreadsheet, some thoughtful choices, and some notes to share with my partner, and the chance to get his thoughts on the plan and make changes based on those. He has good ideas and we’re a team. I smile, feeling fortunate and loved.

I look over the things I need to get done over the next couple of weeks, and over the coming weekend. Pick up new glasses. Get the oil changed in my car. Grocery shop. Finish the storage move. Prepare the garden for the coming of Spring. I sigh to myself; I failed to properly winterize the garden last autumn, busy with other things that seemed a higher priority at the time. I’ll pay for that now. The Spring prep tasks will be a bit more complicated, a bit more laborious, a bit more tedious. Choices. I laugh softly to myself and sip my coffee. We make our choices and pay the price when we choose poorly. That’s just real.

…I’m excited about having new glasses, my prescription has changed and it’ll be good to see clearly again…

I sip my coffee and do a quick “personal inventory”. My tinnitus is loud in my ears this morning, but I’m not in much pain. I’m feeling the chill of morning, but I’m not especially uncomfortable. I feel relaxed and ready for the day. My chronic headache is only a 2 on a 1-10 scale, which is almost pleasant, all things considered. It’s a good start to the day. I feel rested and calm. It was probably a good choice to avoid the news feed – nothing good comes of added unnecessary stress over terrible shit I can’t change to my sense of self first thing in the morning. Being “present”, and having a sense of “where I’m at” at the start of the day is a useful practice, for me. I’m less likely to unexpectedly find myself mired in chaos and damage, or having some problematic tantrum over bullshit. I can take better care of myself when I know what I need. (That probably all seems pretty obvious…)

Daybreak comes, then dawn, and I see the suggestion of a sunrise behind dense gray clouds. A new day. Looks like a good one, so long as I don’t think about things to do with governments, politicians, billionaires, corporate greed, exploitation of vulnerable populations, or climate change. I sigh to myself and get ready to begin again.

I have a lot of pictures. Too many. Some of them are no longer meaningful. Some of them are reminders of times and people perhaps best forgotten or allowed to fade into the seldom recalled past. It’s strange that most of these pictures only reach back into the relatively recent past, around 2004 or so, and most are since 2010, when I got my first smartphone. Technology allowed me to accumulate clutter in the form of images. My hard drives and cloud storage are further cluttered by copies of backups, trying to preserve something meaningful of a life lived. I spent a lot of years struggling to account for the risk my poor memory represents, and admittedly overreacted quite commonly by saving yet another backup of something I’d forgotten I’d already backed up.

…More than 50k unique images, in 2800+ folders, across multiple drives, a cloud storage service, and a NAS on our home network, amounting to about 2TB of stored images, and a few gigs of written work, and I’d lose it all if humanity lost the power grid upon which we are so reliant….

Like a paved trail on a sunny day, some of this may seem obvious; it doesn’t hurt to check the map once in awhile, anyway.

… What is it all good for? What will become of it when I am gone? Will any of it matter at all? Who even gives a fuck about a random photograph from a walk along a trail on a sunny summer day, or yet another picture of a rose?

Roses on a sunny day. Impermanent. Like moments.

The pictures are not the experience (or even the memory). The map is not the world. Moments are unavoidably fleeting, and each is unique like a step on a trail, or a rose. Trying to capture them all in pictures so that I “don’t lose my memories” is (rather sadly) a wasted effort. I catch myself surprised again and again when I look over old pictures. Where was that? Who is that in this picture? Where did I live then? What was I doing at that time? Oh! I remember that – I’d forgotten all about that. The details are lost, in spite of having the picture. The pictures, then, would likely benefit from somewhat stricter curation, perhaps? I have too many pictures of some given moment, and too many that I’ve kept in spite of being poorly shot, out of focus or composed badly. In some cases, the backups of backups are (hilariously) nested within each other, pointlessly taking up digital space. Very few exist in any printed format at all. Once I’m gone, more than likely, someone at some point will simply “hit delete”, and it will all be gone.

I thought about this a lot over the weekend. I spent time cleaning up my archive of art images specifically, and while I was at it, I deleted several redundant backups (after checking carefully that they were truly copies of the one valued, useful backup). I looked at pictures of moments I’d forgotten, and enjoyed the refreshed recollection. I found moments for which I’d taken far too many nearly identical pictures, and kept the one I liked the best and deleted the rest. I found pictures of times long past I’d just as soon forget about, and deleted those without concern or trauma. I found entire folders of pictures that weren’t actually my own; I’d held on to them for some other person no longer part of my life, and happily deleted those too. No rumination, tears, or heartache, it was simply time to let a bunch of this garbage go. Digital hoarding is just as objectionable and problematic as any other sort; evidence of chaos and damage. I let a lot of stuff go, and it felt good.

The strangest ones were moments captured that lacked any sort of context at all. Why had I taken that picture of that moment? It wasn’t always clear what the point was, or what was going on. A picture of a lovely flower is reliably a beautiful thing of its own, and needs no explanation, but… a picture of a thing, place, or person that isn’t well-composed or interesting or beautiful on its own? What then? What was that about? What have I forgotten – and does it even matter now?

What was I hoping to remember?

Creating order from chaos is nearly always time well-spent. It provided helpful perspective to be reminded that there will always be things forgotten, and that not everything is worth preserving. Moments are fleeting – and it is a common characteristic of a moment. Fighting it doesn’t change that. Living the moment creates the memory. Being present is what matters, I think. I smile over my coffee, remembering the peculiar feeling of satisfaction and sanity that came of tidying up my digital archives. There’s more work to do there; there are so many pictures. I take fewer, these days, and I think about that too. I’m more likely to select a well-considered few on a particular theme, and create a wee photo book for someone (or for myself) to keep or share the memories that matter most, and provide them with some amount of context along the way. One day, perhaps when I’m quite old, those photo books will be a lasting thing I can hold in my hands and enjoy, and the digital images may be long gone and forgotten. There’s something to learn from that.

As the calendar turned toward 2023, I took a moment to let my paper journals of many years go. It was a process of “putting down baggage” and letting go of past moments and trauma, and beginning again. It was a way of reducing the clutter in my life and in my mind. It was about giving up a body of written work that had become “content without context”. As with the photographs, those journals had lived beyond their value to me. It was a strange moment to reach, and I’ve rarely regretted the choice at all. This process of sorting through old images and doing some digital “tidying up” feels quite similar, with fewer tears being shed, and less hesitation or uncertainty.

We become what we practice. If we practice clinging to images and words (or objects) without context or value, we become… hoarders. That’s not healthy. Isn’t sufficiency enough? Creating order from chaos, and keeping only what is useful and what matters most seems a much healthier practice. I sip my coffee and think my thoughts. Useful perspective.

Time to begin again. Again.

I’m sipping my coffee on a rainy winter morning, feeling cross and irritated and in considerable pain. It’s the pain making me so cranky, but it’s “only” my osteoarthritis (and my perpetual headache), and there’s not much to do about it, really. I live with this. A lot of people live with pain, that’s a real thing. I sigh to myself, as I pull my posture more upright. It helps a tiny bit, though barely noticeable in the moment. The moments add up. I’m grateful to have gotten a good night’s sleep. I’m grateful to have what limited Rx pain relief available to me that I do (and am willing to use).

My reflection stares back at me from the window; it’s not yet daybreak, and I see a middle-aged woman with slightly tousled carelessly-kept long hair, glasses, wrapped in a warm (if a bit frumpy) sweater, looking back at me. She looks pleasant and approachable, relaxed, with a soft smile hinting at a life well-lived, and maybe some interesting stories to tell. She looks just a bit… amused. I don’t see the pain, just the smile, which reaches her eyes. At the corners of her eyes and her smile, laugh lines, no frown lines. She looks… capable. She looks ready for the day and unbothered. I find myself liking what I see reflected there in the window. I sigh again and think “you’ll do”, and take another sip of my coffee. I’m not at all sure how I got “here” – it’s been a difficult journey in spots, and I’ve often wandered off my path – but I’m okay with where I am, and that feels like a win.

I sip my coffee thinking about friends. Thinking about love. Thinking about errands I need to run. I think about hearth and home and all the things that add up to this life I live. It’s not perfect; there’s the pain, obviously. That’s its own difficult experience. I try not to take it personally. Things could be so much worse. Instead of living with this pain, I could have rejected having the surgery to repair my shattered spine, and taken a chance on things “just healing up” more or less, and most likely ended up in a wheel-chair, unable to walk at all. It can be hard to trust the opinion of an expert; we live in cynical times. I’m glad I did – I walk every day, and often see the sunrise from some favorite trail. The pain seems like a price worth paying for that privilege, most of the time. My irritation slips away. I chose this with my eyes open. I may not have understood the full measure of the price I’d be paying when I lay there sedated in the ICU so many years ago, but I knew there’d be a price. TANSTAAFL.

One cold winter night 40 years ago, I ran from a knife wielding man to save my own life. I took the only route available to me, that I could see in the moment, which led me to dangling from a balcony rail, dangerously high above a beautiful tiled patio, slick with ice. That man was my then-husband, who rushed to the balcony to plead with me not to let go. I looked back at him in a moment of unexpected clarity and calm, aware of my agency in a new way. The choice was mine. “I have to,” I said, and I did. The explosion of light in my head and the sudden pain that shot through me and my breath knocked out of my body overcame me only for seconds before adrenaline and terror drove me to my feet to seek help. It was a moment of profound change. One choice. One moment.

I sit with my thoughts a while. “I had no other choice” is reliably a lie. We have choices (many) – I know I’ve made a lot of them. Probably the worst choice(s) I’ve ever made? Telling myself I’ve no other choice, and and following the path that took me down. The menu in The Strange Diner is immense. We choose, on our own, to keep it folded, and to narrow our options willfully. Refusing to consider all the options is also a choice.

We’re born “a blank page”, and although we have little to say about our introduction to life, we have so many choices as we grow, and more once we are adult and free to do as we will. What will you do with it? The menu in The Strange Diner is impressively vast. What will you choose? Will you make your world (and your life) a better place in which to thrive? Will you walk a path that leads you somewhere beautiful? Will you take the steps that carry you to becoming the person you most want to be? Who is that? What will your legacy be? You have choices. Choose wisely. Pay the price. Don’t take the pain personally.

It’s time to begin again.

I went to bed with a headache. I woke up with a headache. It’s not even unusual anymore, and as close to “permanent” as chronic seems to get. I mostly have this headache. It’s not what I want to have on my mind, this morning, but here I am sipping my coffee and thinking through (and about) this headache. Like so many things, it is what it is (nothing more, nothing less, and only that).

I breathe, exhale, relax. I double-check that I actually took my pain medication this morning; it does nothing much for the headache, really, but not taking it would definitely contribute to making the headache worse. I get up, stretch, get more coffee. The office coffee is pretty mediocre, but this morning it isn’t actually bad. That’s something. I take a minute to appreciate that, and to be grateful. How much longer will coffee even be affordable? Or… available at all? Will I live to see coffee fade into obscurity, a legengary delight of a bygone era? I know I’ll live to see it become more expensive, perhaps unaffordably so for someone of modest means, such as I am. What strange disturbing times we live in. It saddens me, and I let my sorrow and rage wash over me momentarily before I sigh and make a point to let it go. It’s a work day, there are other things that need my attention.

A shadow of myself.

Another breath, another moment, another thought. The morning sunshine casts my shadow on the bare wall beyond the desk. “Nothing to see here,” I chuckle to myself and my shadow.

…This headache, though…

Valentine’s Day is coming. I’ve said this about that. On the other hand, my beloved Traveling Partner actually has made a practice of getting me a gift and taking a moment to honor the sentiment of the day with me, every year for rather a long while. I enjoy that time together. I enjoy celebrating love in an authentic and romantic way. Last year was… not any of that sweet stuff. lol No idea why, it just wasn’t a great day. “Human” is not always easy and our path is neither paved nor even.

I sigh to myself. I’ve got a lot to be grateful for – even this headache does not diminish that. I sip my coffee grateful for love, most especially. (I wonder what my Traveling Partner got me for Valentine’s Day…?) I turn my thoughts to work. It’s time to begin again – already.

I’m sipping my coffee in the quiet of the office before dawn on a Monday morning, listening to a favorite jazz singer crooning softly in my ears. I find myself reflecting on the last time I listened to this particular woman’s voice, before “rediscovering her” recently, searching for a particular song to share with a friend going through some things. I lived a very different life at that time. Most of the music I listened to then was jazz. That realization got me thinking about the many different “versions of me” I have lived over a lifetime, through the lens of the music I listened to.

Using music to differentiate from one version of myself to another, I can see myself change over time, through career changes, addresses, partnerships, personal philosophy and points of view, economic circumstances, the books I read, the language I used, the way I painted, and even preferences in how I dressed, and who I hung out with. Change is. I’ve grown over a lifetime of choices, opportunities, and circumstances. Some of my changes have been inflicted upon me, some were choices. In some sense, I have been many women.

“Lichen II” watercolor on paper, 8″ x 10″ 1984 (painted while listening to jazz)

That woman who listened mostly to jazz lived with domestic violence, which she carefully hid from the view of colleagues. She had few friends. She was physically beautiful – as beautiful as she would ever be, but her mind was a mess. Her values and philosophy in life reflected the strained jigsaw puzzle of thinking errors and mental gymnastics needed to rationalize her experience. She lived a strange sleepless life, traumatized and anxious, and always vigilant. Music – particularly jazz – was always “a safe topic” at home. An acceptable shared pleasure. Her home was compulsively meticulously neat, always. It had to be. She was young – in her 20s – and a soldier on active duty. Respected at work, mistreated and tormented at home, she kept people at a distance, except those occasions when she “let it all go” and hit the club looking for a moment of affection in a stranger’s embrace, when circumstances permitted. It was a life of confusion, and as her mental health eroded, her substantial collection of jazz CDs increased. I listen to that music now with mixed emotions, when I listen to it at all. I find beauty in the music, and distress in the memories. I am a lifetime away from that young woman, and a very different person. I make different choices. I think different thoughts. I believe different things and understand the world differently.

I chose change many times before I ever put myself on this path. Searching for something different, and finding differences, but not wellness, contentment, or joy. For a long time I blindly chased “happiness”, finding mostly misery.

“Communion” acrylic on canvas w/ceramic details, 24″ x 36″, 2011 (painted listening to a mix of EDM tracks)

I’d found myself mired in futility long before I met my Traveling Partner. His friendship pulled me back from the brink of despair more than once, before we were ever lovers. His love was literally “life changing” – because it changed my thinking, and my choices. I’ve come so far! I smile to myself, and change the music. I’ve “changed the music” many times in this one mortal lifetime (it’s a metaphor). I’m grateful to have had that opportunity. I smile and listen to wise words in a favorite song. We can choose change. Sometimes change is forced upon us. Change is. I’m grateful for this enduring love (and partnership) along the journey.

“Siletz Bay Pink Sunrise II” pastel on pastelbord, 7″ x 9″, 2024 (painted listening to love songs)

…The journey is the destination. There is no map. If you stray from your path, begin again.