Archives for posts with tag: TBI

I’ve gotten some decent sleep this weekend, even ‘slept in’ two days in row. This morning I slept until nearly 9:00 am. I woke abruptly, some noise most likely, but truly I was well-rested and returning to sleep was neither likely, nor would it be a healthy choice; the day had begun. I woke in considerable physical pain, and moments into the morning it was clear that I was not yet sufficiently able to maintain emotional balance to be casually interacting with people – I was genuinely hurt by the initial interaction with one member of the household, this morning, and it was not worth all that; it was a just moment of insensitivity and callousness common to people before they are completely awake, first thing in the morning, and I myself was also just waking up and prone to taking things excessively personally. It wasn’t personal, but I was – and perhaps still am – unprepared to deal with it appropriately, although I think I did okay with it. Pain management is a very big deal for good emotional resilience; if my pain is not well-managed I tend to take things more personally, and also struggle with being very emotionally needy. I chose a wiser path, and took my coffee with me into a quieter space, to take time for meditation, then catch up on email…and now, here I am.

Choose your experience; we're live and unscripted.

Choose your experience; we’re live and unscripted.

Good sleep. Appropriate pain management. Taking medication on time. Taking time to meditate. Recognizing and distinguishing between internal and external stressors. Calories. Exercise. There are a lot of pieces to the self-care puzzle, and they all matter. The challenge is practicing good self-care even when I am in a crappy mood, in pain, feeling ill, or distressed with PTSD symptoms. Today shouldn’t be that difficult…the major challenge today is ‘merely’ physical pain. I hurt, but I hurt pretty much all winter long, every year, and have for many years. I’m not bitching; other people hurt more often, and hurt worse than I do. I have a lot to be grateful for, and I don’t take those things for granted these days; they really matter, and taking care to appreciate the good things, and be grateful for what I have, and what works, and what feels good is a practice that is tending to ‘adjust’ my implicit memory, and my ‘default settings’ regarding how I experience my life in a more positive direction. I’ve made a lot of progress down this path – I both enjoy a better experience, generally, than I used to most days – and I can tell that my experience is improved, too.  (It’s not much help when things get objectively better, but do so in the absence of being able to recognize that improvement!)

It’s an interesting puzzle that what I want in life, the things I yearn for most fervently, can so easily sap me of my emotional resilience and self-sufficiency, and undermine a good experience I have by drawing my attention away from what is good right now, and putting the focus on some moment of discontent – that in some cases actually only exists in my thinking, without any anchor in some element of my experience in life.

Discontent joins the emotions on the short list of ’emotions I just don’t enjoy or find value in’…worry, guilt, jealousy, disappointment, and discontent amount to a lot of dark days for a lot of human primates. I don’t put anger or fear on that list – they both serve obvious purposes ‘used in moderation’; they are legitimate warning klaxons to improve my chances of survival. Moving away from what frightens me may mean my surviving some dangerous moment in the world. Being moved to anger tends to keep my awareness aligned to my values, but for now I can’t do much more to describe anger’s potentially helpful qualities; it’s an area of weakness for me, and I struggle with it to this day. The thing about those other emotions? They are all pinned to expectations and expectations are so often the ruin of a good time. I love to plan, and I like the comfort and security of having done so…but becoming attached to an expectation is a different thing. Clear and explicit expectation-setting has its place in day-to-day life, absolutely true. It’s the implicit, unverified, un-validated, unconfirmed, “I thought we…” sorts of expectations that fuck us all up. It occurred to me this morning, sipping coffee that is unexpectedly ‘bitter’…if I could entirely let go of implicit expectations, I would likely also be letting go of worry, guilt, jealousy, disappointment, discontent…and possibly other subtle negative emotions that can potentially mess with another otherwise great day. It’s a practical thing, and probably worth the effort involved. I won’t miss even a moment of discontent, worry, guilt, disappointment, or jealousy if I never feel those emotions ever again.

Today? Yes, I’m contemplating expectations and discontent, because I woke first with one, and then trending toward developing the other. I happened to take notice of the trajectory of my emotions, and put myself on pause to give it some thought. Had I allowed the moment to overwhelm me, and gotten caught up in ruminating about the drivers of my discontent, and begun wallowing in my disappointment that ‘my expectations’ failed me, I’d be in a very different place right now. I think the constant practicing of better practices proved itself this morning; I found perspective over my unexpectedly bitter coffee, and a tiny bit of unexpectedly positive news.

Today is unscripted. Ideally, I hold no expectations that I haven’t set explicitly, and even then I understand that change is. Today is a good day to live life engaged in the moment, present in my interactions, and open to the possibilities I hadn’t considered exploring. Today is a good day to change my experience of the world.

I’m still lounging in my sleepwear, and it’s actually 8:00 am. I succeeded in sleeping in – and a good thing, because my emotions and my physical pain kept me up quite late. There’s nothing like stress, hormones, and pain to illustrate all my very worst qualities as a human being: easily frustrated, childishly attached to being comforted, emotional, needy, demanding, inflexible, irritable, unapproachable, resentful, baggage laden, and capable of losing all perspective in a moment. This human primate thing is not so easy as it seems…at least not if I am wanting to be the best that these raw materials allow.

This morning I woke with this headache continuing from yesterday, and through the tears (yes, sufficiently painful to cause tears in the absence of other emotion-causing stimulus) I took time to be grateful for something pretty obvious; I don’t have this headache every day. That’s something. I take a moment and try to apply the same practice to other frustrations, other things I am ‘going without’ or just no longer have in my experience these days, that I continue to be attached to, and to yearn for.  I’m grateful that I ever did have those feelings, and experiences. I appreciate and value the memories that linger.

This is not the most joyful place I’ve been in life. Facing a mid-life health concern, having my own experience – companionship, love, sharing; none of these things actually change one thing that is real and true in all this. I am having my own experience. There will always be elements of my experience I can’t easily share, or verbalize. There will always be the limitation that others are having their own experience, as well, and my words will be filtered through their understanding of the world, and the context of their experience. There will probably also always be elements of my experience that are best not shared at all – that’s been a given all along. It’s one of the most difficult things about having this particular TBI, or of being a trauma survivor; most people don’t try to share on the level I default to, and most people do not want to have a visceral understanding of some kinds of pain. I am alone with my words. A lot. At some point, that has to be okay.

My TBI complicates things, and sometimes in a very unexpected way. I’ve been feeling incredibly discontent lately, less supported than I ‘expected to’, lonely, sexually unsatisfied, emotionally isolated, frustrated, and disconnected in my relationships… I miss a particular time period in a valued romantic relationship (which one would not be relevant, the experience is similar across all of them, to varying degrees). I miss “that year” together, with the intensity of our affection, the continuous good-natured camaraderie, the close emotional bond, the driven heat of sex-all-the-damned-time – and feeling well and truly loved, satisfied, cared for, nurtured, valued… it was fucking fantastic. There’s never been another year like it in my life, before or since – even in the relationship I share with that lover, now. I noticed it at the time, and I valued it greatly. I regularly attempted to express my appreciation and gratitude… and to my later great disadvantage (I realized during the night), his response was to assure me I deserved to be treated so well, and that he always would, and further that I ought not settle for less, ever. I wonder if, at the time, he had any idea that he would be treating me less well over time, himself? I recognized how spectacularly special that time was, and the wonderful way he loved and cared for me. I regret that I didn’t understand his polite refusal to be complimented on it had the potential to set my expectations of the future of love. It’s not fair to either of us that I yearn so much for a moment in love’s life cycle of unsustainable intensity. I’m sure it was a good time for him, too. No time machine. That time is not now.

Here I am now. Love is. That’s a pretty big deal. There are still things I want out of love that I don’t have right now. That is what it is. I suppose I will likely always feel that way. Realistically, if I never had sex ever again… I’ve had more than most people, some of it has been extraordinary. Same with love – if I were bereft of love’s warmth tomorrow, I have at least known love. Romantic promises and hyperbole probably don’t trip everyone up the way they tripped me up…my broken brain got in my way; I did not understand those promises were not ‘real’, only beautiful words of love.

Today I will have breakfast with a friend I’ve been missing, and converse about the things going on in our ‘now’. I won’t need to pretty up the details – he’s the sort of friend I’ve always been able to be entirely frank with, and he’s always there. He’s been a friend since before the relationships of my heart’s landscape now even existed, and has context on who I am over time, and how I’ve grown. When we hang out, I walk away feeling more aware of how far I’ve come, and wholly accepted. It’s never been about sex between us, and it’s good to be able to talk those things over with someone who doesn’t have any potential to feel hurt by it. If you have such a friend – cherish them. You may need the warmth of their good company later on. Later I will ride the train home, and think about all the sex, all the lovers… and the awareness that there is life beyond sex, much of which I’ve not had to explore; most of my experience is sexual in some way. I’d like to find my way to a point on the journey where sex just doesn’t matter, doesn’t drive needs, doesn’t influence my actions or emotions – for now, even the idea of sex tends to feel emotionally compelling, and something more or less on the order of ‘everything that matters’, because for now, it seems to matter so terribly much that without those experiences, I sort of wonder what the point is?

The path isn't straight, the destination isn't obvious, but the journey must continue.

The path isn’t straight, the destination isn’t obvious, but the journey must continue.

Today is a good day to explore the unknown within. Today is a good day to talk with a friend. Today is a good day to wander, eyes open, on strange paths. Today is a good day…to change.

I’m quietly contemplating my evening’s ‘crash landing’ and wondering why? The house is quiet, but it isn’t late and I don’t know that anyone is sleeping. I know I am not.

It wasn’t a bad evening, quietly hanging out and watching videos of this and that. Calm. Pleasant. Eventually ‘good nights’ were exchanged. I am feeling very mortal waiting for the test results from my biopsy. I find myself ‘trying to be brave’ like the small girl I once was and hoping to let it go until I get the results – any other choice seems silly in the abstract. I am so very human.

Stormy weather...

Stormy weather…

I hurt tonight. I’ve got a terrible headache, probably stress or fatigue. My arthritis hurts. How is it I hurt this badly and still want romance? It’s frustrating. I’m not exactly approachable; I am fragile, reactive, and emotional. That’s really where it all breaks down – in one simple question, and in an instant of contemplation, “How are you doing?”. “Well, shit, I was mostly fine until you asked, actually…” but I never manage to say that. I blurt out the details of how I am doing – however that happens to be, and with the force of whatever emotion is bound up in it all – and it tumbles forth in words…and emotions, in no particular order, and with full real-time intensity.  It must suck on this whole other level to live around this injury, and the chaos and damage I wade through every day – I just don’t have the same perspective on it. How can I?

I don’t know what I’m to learn here. There’s something to be learned, I’m sure of that. It’s late, and these tears don’t matter a tinker’s damn to the massive ills of the world. This is some minor league suffering, right here, and there’s a chill calm part of me that recognizes the subtle difference between the simple sorrow, itself, and the wave of suffering that follows, self-inflicted. Part of me feels foolish to be so storm-tossed, like an adolescent girl; the thought reminds me it’s only been a bit more than a week since I started on the medication I was given – hormones. There are so many moving pieces to this whole ‘taking care of me’ thing. I feel like a dick for having a minor meltdown when I was unwittingly on the brink of being handed a few moments of connection, contact, and affection that I sorely needed at the end of a difficult week.

Sitting here quietly in the darkness, I also feel: sympathetic, compassionate, warm – understanding. What did I expect with the hormones, the headache, the fatigue at the end of a long day, hurting well beyond what my Rx handles, and waiting for test results? I sit calmly, wondering what to do to take care of me most skillfully, and with greatest love. Sleep, soon, probably…

There’s a new day, tomorrow. Love is pretty ‘forgive-y’ (if that’s even a word)…but choices have consequences, I’ve hurt someone dear to me, and tonight I am alone. Perhaps the dawn will come and find me smiling…certainly there’s enough love to go around if only I am open to it. There are verbs involved.

...I still have so far to go.

…I still have so far to go.

The alarm went off, and through the surreal sludge of dream leftovers I reached out and shut it off. I stood in the hot water of my morning shower contentedly, and for some time without real purpose, willing to take my time and enjoy the simple pleasure of the moment. I made an Americano, and changed my mind about it, splashing soy milk in it as an after thought as I headed off to meditate, and do yoga. My morning feels ‘out of sequence’ but not disordered. The day begins quietly.

I catch myself, moments later, just sitting here in silence, letting words pass through my consciousness, sipping my coffee. The weekend was productive, but in other respects left me speechless and discontent. I got a lot done, but never quite crossed the strange gulf I perceived between myself and any secure connection with another. I went to bed last night still feeling it, as one might a loose tooth, poking at it with my awareness out of curiosity and concern, and wondering important things like ‘what the hell?’ and ‘what do I do with this?’. Sleep caught up with me before any answers did.

A goal, a dream, a chance, a yearning; perspective still ends up being a very useful tool.

A goal, a dream, a chance, a yearning; perspective still ends up being a very useful tool.

This morning I sip my coffee and observe the vague sense of dueling internal states: one fairly positive, hopeful, and ready to act, and the other with a more negative perspective, rooted in a lifetime of experience with frustration and pain. The tension between the two creates a weird sort of balance; knowing that this ‘balance’ is built on the tension between incompatible emotion states, though, finds me wanting very much to loosen the grip on my heart that the negative one still has, like a parent gently and firmly opening the clenched fist of a distressed child to find the source of the commotion hidden within. I am still practicing the practices that have brought me so far; I take time, too, to linger on the weekend moments that were soulful, pleasant, filled with love, and representative of where I am headed with my heart and my relationships, reinforcing those powerfully good simple experiences in my consciousness. There are things to say, questions to ask, in due time; all that can wait, while I enjoy ‘now’.

Today I am taking care of me, and taking care with my  heart. I am making room for my emotional experience, and finding contentment in this simple lovely moment of morning stillness. For now, it’s enough. Life’s curriculum has a lot to teach, in calm moments as much as any other. Today is a good day to learn what the world has to teach me.

It’s a weekend of quiet, spent mostly on housekeeping, meditation, and reading/studying. I spent some time, too, coloring in tiny squares on my Life in Weeks chart, which I started this year; it’s already an eye-opening project. I’m a very visual analyst, and I see patterns and trends fairly easily – especially painted with such a broad brush. I’m not imagining things; I’ve spent the largest portion of my life devoted to, and in support of, someone else’s agenda besides my own. Now, though, I also see the next 40 years laid out ahead of me – incomplete, unknown, and wide open with possibilities.

I’ve also been feeling fairly lonely. It’s odd. I’m not alone. I’ve spent considerable time in shared space with loved ones, too. The thing is…we’re not connecting easily. We’re each at such different places in life, with ourselves, with our understanding of the world; it is a season of change. I am learning to take care of me in moments when a conversation takes a turn that doesn’t really involved me, or isn’t the sort of thing I care to be all caught up in for one reason or another…by gently disengaging, or refraining from becoming involved in the first place. That’s a positive step for me…my tendency has been to be all up in everything, if it is within earshot, which over time feels more invasive than supportive for my loves, and for me quickly becomes a drain on my emotional resources, and just not much fun. There are other experiences I’d rather share with people who matter to me.

Taking a step back and letting other people’s business be other people’s business, and letting them have their moment – without me – feels like a better choice for my emotional wellness…but I had no idea just how much of what is going on around me has nothing whatsoever to do with me, at all. I am surprised to find that although I am aware that too little of my time supports my own agenda…I may not be prepared for what life holds if I stand firm on putting more of my emotional resources, and time, into my own needs and agenda; it could be very lonely indeed. This is a chapter in life’s curriculum I will study with great care; it looks like one of the more challenging bits. 🙂

OPD swirls around me in the background. I stay to myself. Sometimes it’s lonely, but it is less stressful, less emotionally fatiguing, and interestingly – I also seem to have far fewer, less intense, headaches. I don’t know that there’s any causality in there, but it’s an interesting coincidence.

When I started this journey I had some idea what I might find, built on assumptions and expectations.

When I started this journey I had some idea what I might find, seen through a veil of assumptions and expectations…

My traveling partner shared an article this morning, and I learned a new word that just delights me. The word is ‘listicle’ – you know, an article that is a list. I’m just delighted. It’s a needed word, that describes a real thing. It’s even in the dictionary. I feel like a child seeing a butterfly up close. lol I love words – they make it possible to communicate some very nuanced ideas. The article itself has value; it is a list of 7 traits the author suggests are common to chronically unhappy people. As I read the article, I felt a sense of forward progress, growth, and accomplishment, because there was a time when I definitely had all 7:

1. A default belief that ‘life is hard’ was definitely part of my experience until some relatively recent point. I’m not sure I really noticed when it changed, but reading the article this morning I feel keenly aware that it has. I would go so far as to acknowledge that I sometimes find life complicated, challenging, or moments when life feels hard, but it’s recognizably not my default experience.

2. A belief that ‘most people can’t be trusted’ most certainly describes how I used to feel about ‘people in general’; fearful, distrustful, and very very certain that if I dropped by guard for an instance, or turned my back, or shared a confidence, the consequences would be swift, severe, and painful. I don’t feel that way at all now. I find that generally, people mostly do their best, and are well-intended within the limits of their understanding of the world they live in. Well-meaning isn’t always enough for a good outcome, and I find that I am pretty accepting of that, too. I’m aware that people lie, that people are capable of fraud, bad acts, and real nastiness. I trust that each person I meet will likely behave very consistently with their nature, and underlying values, and that the best outcomes come from clear communication, awareness, and refraining from making assumptions, or holding on to expectations – or grudges – and that walking away from ‘toxic people’ is sometimes the only productive healthy choice.

3. Concentrating on what’s wrong versus what’s right is something I still struggle with. I get emotionally invested in something that seems unjust, unfair, unreasonable, and unnecessary, and my frustration with it can push me into becoming over-invested, and emotionally involved to a point that I lose perspective. I see this, too, as progress; I started in a very different place than I stand today. There is further to go.

4. Comparisons to others, and fostering jealousy are something I suppose most people struggle with; comparisons are an easy shortcut for measuring where we stand. The thing I’ve learned over time is that it’s not a competition, this ‘life’ thing. It’s more like a journey, and I take it pretty much alone – my own progress over time is my only measure of performance, really, and what that other person over there is doing with their time, money, heart, or intellect has little to do with me.  At the end of my life, when I look back, it won’t be to say “Well, compared to [insert name of celebrity or role model] I sure went far”; my life will have to stand on its own merits. Jealousy is new for me; I only recently learned what that feeling is, at all. I’m not really wired for it, and having finally experienced what it feels like, I’m okay with moving on as a being to a place where it is simply not likely to come up. Like ‘worry’ or ‘guilt’, ‘jealousy’ is a pretty pointless emotion that tends to start trouble, without offering any solutions. Having finally experienced what all the fuss is about, though, I am learning to use the feeling as a flare that pulls my attention to a specific need that I am not taking care of, and identifying that thing; making the underlying need, and taking care of that, a priority has tended to entirely satisfy any moment that feels like ‘jealousy’ – it nearly always turns out that some small thing I need isn’t being handled by me, and that I’ve made the mistake of assigning blame or responsibility to some other person, without being aware of it.

5. Striving for control isn’t something I have much problem with, at this point in my life, and it’s been a long while since it has. For me, letting go of the need to control everything in my experience turned out to be easily resolved by avoiding controlling or manipulative relationships; relationships of that sort tend to find me ‘pushing back’ to regain my freedom of will. It becomes an unpleasant see-saw of competitive power games that I find distasteful, and I went a different direction some years ago, and never looked back.

6. Considering the future fearfully comes up now and then. That’s sort of a given with anxiety. It’s not on the same order it once was, and these days I generally find that taking time to meditate kicks fear to the curb pretty handily. A better understanding of the value of thinking, of thoughts – and the understanding that thoughts have no ‘reality’ that I don’t give them, that I create them myself – has freed me to consider a ‘what if’ scenario to its conclusion – however ludicrous – and learn from it without being wounded by it; it’s not real.

7. Gossip and complaint filled conversations…yeah…just not my preference these days. Living in chronic misery, though, what else was there? It was a way to lift myself up…by comparing my experience to someone else’s. It was a way to make myself important…by venting about some unsatisfying thing or another. It was a way to get  and hold attention for some moment…and feel a little bit supported. It’s not honest, though, and it’s not … consensual. It also isn’t as effective as simple communication about my own feelings, and experience, using ‘I statements’ and just asking for a hug. Taking that more effective approach requires me to embrace a level of genuineness and vulnerability that was pretty scary, at first. It’s been worth it.

I don’t say much, above, about what I did to make these changes happen over time – because I’m not actually sure. Is it the meditation practice? Is it better health care? Is it taking care to get enough sleep? Is it a byproduct of changed perspective with time, and aging? Is it all the studying of the neuroscience of emotion, and the structured practicing of techniques intended to craft a more positive implicit memory? Is it love? Is it a coincidence? Is it my own idea – or someone else’s? I have no idea what specifically I’ve done that has amounted to so much change for the better, over time… I wasn’t even aware so much had changed, until I read that article (expecting to find myself nodding along and checking off all 7 as things characteristic of myself) and realized that it doesn’t speak to my ‘now’ experience.

...Without the powerful limitations assumptions and expectations place on my experience, I have found wide open vistas of possibility, and broad horizons of potential for change.

…Without the powerful limitations assumptions and expectations place on my experience, I have found wide open vistas of possibility, and broad horizons of potential for change. There are verbs involved, and your results may vary.

Today is a good day to share progress, and feel encouraged. Today is a good day to recognize change for the better. Today is a good day to say with conviction “I have come so far!” Today is a good day to see that I am changing the world…and to remind you that you can, too, and probably do. 😀