Archives for category: pain

I’m drinking water and preparing for dropping by the lab to provide a sample. My day was planned around medical stuff – mine and my Traveling Partner’s – and… I screwed up. I mean, not huge, but… I guess stupid finds us all, eventually. I somehow had managed to convince myself (like, a lifetime ago) that a fasting blood draw would nonetheless allow for, you know, morning coffee. For fucks’ sake, right? My Traveling Partner was kind about it, when he woke to the smell of coffee to find me contentedly sipping a very excellent cup of coffee first thing and expecting to go do the lab work. LOL Damn it. He patiently shared an article with me reinforcing his certainty that having coffee was a no-go. I admitted with some embarrassment that I had (literally)(my entire adult life) always gone ahead and had (black) coffee even on days when I had to do a fasting blood draw for some reason. LOL Omg.

…Make no mistake, stupid catches up with us all, eventually…

So, yeah. I pivoted to a more or less ordinary work day, with a plan to just do the urinalysis sample on my way home (it doesn’t seem smart to wait on what can be done today). I managed to sit down to a relatively full inbox and plenty to do, and managed to knock it out pretty quickly… as though I hadn’t just screwed up my entire actual plan. The plan is not the experience. The map is not the world. I began again, and here I am. It’s a pleasant day in spite of the bit of chaos I managed to add to it. πŸ˜€

I take a breath and exhale. I woke with this headache, and I wish that weren’t a part of the day, but it is and I’m dealing with it. I schedule first one new medical appointment and then another – either or both could be relevant to the headache, whose constant companionship I will not miss when it’s gone. I laugh at myself for feeling “so grownup” to be taking steps. Overdue.

I sigh and finish my bottle of water. It’s already time to begin again.

The day began earlier than it needed to, and I am okay with it. I’m waiting for daybreak to get a walk in while my Traveling Partner sleeps. Afterwards, I will make a trip to the grocery store to stock up on things he likes (and can make pretty easily), and then do a bit of tidying up before I finally finish packing, load the car, and hit the road for a couple quiet days of (hopefully) restful downtime.

I spend a few minutes meditating. I look over my packing list for obvious omissions. I update my to-do list. I sit quietly, taking note of how my body feels, and “where my head is at”.

My tinnitus is loud today and I am in more pain than usual. I’m physically uncomfortable, but I also feel pretty good emotionally, and generally quite merry and eager to face the day. Learning to hold space for these very different experiences at the same time took a long time to learn, and longer still to recognize the value in doing so, but so worth it. Being able to acknowledge and enjoy what’s going well in spite of what’s going poorly is a way of preventing shitty experiences or feelings from wrecking my entire moment (or day). Handy, considering how often I am in pain.

I take a breath and sigh as I exhale. It’s early, but I go ahead and take something to help manage my pain. Self-care is important to my own well-being, sure, and it’s also something I can do to support my relationships; miserable people make other people miserable, too. I’m not miserable with pain yet, but I could easily become so, and that’d be a crappy way to start off on a few days solo.

I’ve packed my paint box. My camera is ready, too. I’ve put the Lord of the Rings “Return of the King” in my bag, planning to finish it. There’s very little packing left to do (my CPAP, my pillow, things I was using during the night mostly). I’m really down to doing things to maximize my Traveling Partner’s comfort and convenience while I am gone. I take a moment to sit in quiet contemplation; I am so grateful to have a partner who is comfortable with me taking a few days solo now and then, and who truly supports my emotional wellness.

I smile, thinking about how much I know I will miss my partner, even though I am choosing to be away, and really need this time. I also know I will return home eagerly and happy to see him, and to love and be loved. It’s useful perspective to miss each other now and then.

I breathe, exhale, and relax. Soon it will be daybreak. Soon it will be time to begin again.

I find one of the most difficult (and worthwhile) practices to be refraining from taking things personally. It’s so easy to bask in the glow of a lovely compliment and take that to heart… but… the same person telling you that you’re awesome yesterday could very well be calling you a fucking bitch when they see you next week. That’s about them.

If I let myself become invested in some other person’s opinion of me to the point that it becomes self-defining, I’m likely to end up constantly spun up every time they change their opinion in some moment of joy – or anger. That doesn’t sound particularly healthy, at all. Using another example; if taken personally, shit talk from another room could be a huge mood wrecker and potentially a source of conflict. Avoid taking that personally, and it’s simply that other person dealing with their own emotions (however well or poorly, which is a separate concern). I’m not saying it’s easy to avoid taking shit personally, at all, I’m just saying its a worthwhile practice. So – I keep practicing.

…An insult is like any poison; it only affects you if it gets into your system. Don’t drink the poison.

Human primates are messy and sometimes unpleasant to deal with. Doesn’t matter if it’s that guy over there, or the person in the mirror – we’ve all got “issues”. Making a point of letting that other person’s issues be their own (and not letting them also become yours) is a good step toward feeling centered and calm, even when there’s a bit of chaos about. It’s also easier to focus on and deal with your own issues if you’re not all wound up in someone else’s moment. It’s one useful thing about being individuals; you can let that person be who they are, let them have their moment, and go right ahead and work on you while they do. Non-attachment is another useful-but-also-difficult practice. I take a deep breath and let it out.

I sip my coffee. The day started early, and less than ideally well. I got up, dressed, and went directly to work. I’m not in a good mood, and just dealing with that is taking quite a lot of my focus and effort. I had my day planned differently, but circumstances often don’t check my calendar. lol Later this morning, I’ll attempt to make the drive to a town nearby to get some lab work done that has been delayed by the inclement weather. I’ll return movie rentals on my way back. Maybe take a package to the post office. All of this is dependent on the condition the road is in, later in the morning. I admit – I’d very much like to get out of the house for awhile. I’m feeling a bit cooped up, and it’s exhausting trying to keep up on work, the housekeeping I usually do, and handle the tasks and chores my partner typically handles, while also doing things to support and care for him while he recovers from being injured. It’s a lot. I’m fucking tired. I’m tired enough that it limits my ability to graciously deal with stress or moments of temper, and since we’re both human primates, there’s reliably a bit of that now and then. I could do better. I keep practicing.

…There’s a lot of practicing going on this morning…

I sigh. Continue to drink my coffee. I could use some real “down time”. My last “coastal getaway” was mostly spent working, and was done primarily with the intention of giving my Traveling Partner time alone to work on a project – neither of us anticipated that he’d get hurt and be both unable to work on that project at that time, but also have to shelve it for weeks while he recovered. I came home from a getaway that provided little down time at all, to increased workload and increased stress with few opportunities to get away from either because I was needed right here at home to provide my partner with care because he just couldn’t get around to do basic tasks for himself. I’m exhausted, and I’m very much yearning for some time to myself to just exist on my own terms for some brief period of time without being constantly aware of the fairly long list of things I still haven’t gotten to that need doing. It’s called “self-care” for a reason; you’ve got to do it yourself, for yourself. I’m betting my Traveling Partner would enjoy a couple days without my constant presence, himself… I remind myself to ask, and to check-in on whether he thinks he is in sufficiently good shape to take care of himself without me for a couple days.

In the wintry months, camping is not an ideal option for me, personally. I don’t care for sleeping on the ground in cold weather, and it worsens my arthritis significantly to do so. Instead, I count on an inexpensive room on the coast, near trails and beaches I enjoy walking. I check to see what the availability is like over the next couple of weekends, and spot a potential opportunity. Just taking the steps to check out my options reduces my stress some little bit; I “feel heard” by the person I reliably need to be listening to me (me). I breathe. Exhale. Relax. Sip my coffee. Repeat. I think about other things I can do to ease my stress and restore my energy and plan my day with those things in mind. The weather seems to be improving somewhat, and the ice is melting… handy. I could use a walk. πŸ˜€

I make a short list of the more urgent items to attend to today, so I don’t forget them… I immediately feel overwhelmed when I add “put away your laundry” to the list; I’ve been putting off actually completing that task for literally weeks. It’s one task I can shrug off without really affecting anyone else, but… it does add to the chaos in my living space, and that increases my stress. There’s an obvious cycle to that, and breaking it requires me to hang up a bunch of shirts and tops, which is physically painful and also tedious. That’s it. That’s the “big deal” and I keep dodging it. Fucking hell. And the dishes need doing, which vexes me endlessly because as soon as they’re done, I cook something or fetch my Traveling Partner a snack and there are more fucking dishes. Cycles upon cycles.

…One task at a time…

I look at the time, and my inbox. It’s already time to begin again.

Many many years ago, in what now feels like an altogether different life, lived as if by an entirely different person, I made a choice to “save my own life” through extreme means (in that moment). My ex-husband was coming after me with a very large knife, in a small apartment in Germany. The front door was locked from the inside, and I could not open that door to escape down the stairwell. I dashed to the patio, barely ahead of him, and rolled over the balcony rail. He reached me as I dangled there in that moment between actions, and his face wore a look of astonishment and alarm, “Don’t!” he demanded urgently. “I have to,” I said quietly, and then I let go.

I hit the slick paved patio below quite hard. My ears rang, I felt something snap. I “saw” an explosion of lights behind closed eyes. I felt nauseatingly dizzy. I saw him looking down, then retreating from the balcony rail quickly – I knew he was on his way and I panicked. I jumped up from the pavement, disregarding all sensations, and climbed a fence and a hedge to get to the nearest neighbor whose lights were on. I couldn’t remember a word of German in that moment other than “polizei”, and so that’s who they called. The police arrived, locked and loaded, and told the neighbors (whose English was better than my German) that an ambulance from the American hospital had been called. The police went after my ex husband, and once they found him he was arrested.

When the ambulance arrived, the medics quickly determined I’d likely broken my back (and there I was sitting upright in a lawn chair, flexing my spine uncomfortably and commenting that I could not figure out why I was so “uncomfortable” – I didn’t understand that I was in shock). They insisted I be still. They put me on a back board, and on a stretcher, and rushed me to the ER. I wasn’t there long, barely long enough for X-rays, and for the Military Police investigators to arrive to interview me, while the doctor reminded them that I was heavily medicated and badly injured, and to keep their questions to a minimum. A helicopter arrived, and I was medevacked to the big regional Army hospital to the north, where there was a larger team more capable of treating spinal injuries. That was when I realized I was actually badly injured. The flight was short, and the strange air mattress they had me on was more comfortable than the back board or the hospital bed. When we arrived at the big hospital ER, they went to take me off that air mattress (I guess it belonged with the helicopter) and I cried and pleaded that they please let me stay on it. I still didn’t know “how bad it was” (or wasn’t) and I was starting to feel pain, again.

…It was pretty bad. My back was broken in two places, a spinous process from one smashed vertebrae had gotten shoved into my spinal canal, and I had a concussion and a broken wrist. I’d be in that hospital for a couple of months after 16+ continuous hours of surgery to fuse the damaged vertebrae and install bizarre and uncomfortable hardware to hold those surgical sites still while healing happened. (A year later, that hardware would all come out… except for a ferrous surgical wire that to this day prevents me having an MRI; the wire was woven through the fusion to hold things together.) I’ve got a long scar down my spine, a visible reminder, and an uglier, shorter one on my left hip where the bone grafts were taken to build my fusion. I don’t care about the scars; I lived. I’m still walking.

Funny thing about all of this; the longer term consequences were not within view. I had no idea that I would struggle to form healthy attachments or build trust with lovers, possibly ever again. I didn’t know that the nightmares would plague me for decades to come – some to do with the domestic violence, some to do with the medical terror of the surgery itself, during which the medical team had to wake me up to verify that I was responding to stimuli. There have been few things more openly terrifying in my life than being awake during spinal surgery, intubated, on life support, surgical incisions open, and being asked questions that required answers. There have been other consequences… the pain of my arthritis reminds me regularly of the choice I made. A choice to live, sure, but also… a choice that came with profound consequences. I paid a high price for this life of mine.

I pause for a moment to reflect on the value of a life. This life. My life. The choice I made to keep it, to trudge on, to try again, reaches so far back beyond that despairing moment in 2013 when I thought to abandon it. It has been a worthy journey, consequences and all. Sometimes it’s hard. Sometimes it’s easy.

…Some nights I still have nightmares. Some mornings I still wake up in pain. When I look back, though, I don’t regret that terrible lonely desperate choice to let go of a balcony rail and fall to my… freedom. Some choices just extract a big price. It’s a question I think few of us ask or answer before we choose; will the price be worth it? It’s hard to know, isn’t it? It’s probably worth wondering, for at least a moment… but there’s no map on this journey. We’re each walking our own hard mile.

Choose your adventure. Pay your price. Begin again. The journey is the destination.

I’m awake on a snowy Sunday morning, on a long weekend in January. It’s cold outside – too cold for me to go walking, and the roads are in a hell of a mess after the snow, and quite icy. So… I’m home for the morning, and giving myself (and my Traveling Partner) some space to wake up. After a few minutes of “headphone silence”, with the world muted by having headphones on but no music, I put on a playlist.

…I slept in this morning. So delightful. So rare. I slept well and deeply. I really needed that. I hope my Traveling Partner slept well, too; I haven’t had an opportunity to ask, yet. He was polite and very clear that he wanted some time to himself to wake up, when I greeted him this morning, so I made coffee and made my way to the studio. It’s wonderful to have that option on a snowy day. 

Yesterday’s headache is… part of yesterday. Today’s pain is just the manageable day-to-day sort of pain I live with. I do the things that help to ease it, and I work to stay alert and mindful that it’s still worthwhile to put real effort into being kind and being present and being my best self in all the minutes I am able to. It’s an aspirational bit of work, sometimes; I’m still very human. I breathe, exhale, relax. I take time for gratitude that I’m not hurting, today, the way I was hurting yesterday. My Traveling Partner was supportive and kind and careful to be gentle with his words yesterday, knowing the headache was just fucking crushing me. Today? I don’t know yet what today holds – it’s full of opportunities and possibilities.

Maybe we’ll hang out watching South Park? Maybe I’ll read a book? Ooh… I could make a couple new batches of shower pucks for that fragrant luxurious shower experience! πŸ˜€ The day ahead is full of chances to choose, and opportunities to enjoy moments. My heart is filled with love, and my head is full of thoughts and questions. The music plays on. I consider maybe painting. The song in my ears makes me want to grab a paint brush.

A shot taken in 2021 inspires me.

There’s no telling what the day holds. It could all go badly sideways in an instant, but I don’t dwell on that possibility; no reason to create it from imagined bullshit or anxiety. I can live in this timeless now, filled with potential, and choose with more care than that. I smile thinking of my Traveling Partner. Fuck, I love that guy. He is my partner, my best friend, my muse… I find myself missing him from this short distance, already.

I’ll guess I’ll finish this cup of coffee, and this bit of writing, and begin again…